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[@TequilaVernetti](/creator/twitter/TequilaVernetti)
"$SRPT Budgets are tight but pausing Elevidys means these kids lose muscle theyll never get back. Theres no fiscal line item for lost time. Families shouldnt have to turn into policy experts just to get care for their kids. Let them focus on living @NYSDOHMEDICAID"  
[X Link](https://x.com/TequilaVernetti/status/1977813632726790395) [@TequilaVernetti](/creator/x/TequilaVernetti) 2025-10-13T19:08Z XX followers, 1932 engagements


"Jennifer youre just as strong What you and so many DMD families face every day deserves so much more attention and action. I truly hope the FDA and policymakers take this urgency seriously and ensure access to ELEVIDYS for every child who needs it 🙏 @US_FDA @Sarepta $SRPT"  
[X Link](https://x.com/TequilaVernetti/status/1979104792463937820) [@TequilaVernetti](/creator/x/TequilaVernetti) 2025-10-17T08:38Z XX followers, 1574 engagements


"$SRPT "Sarah shares how once Caleb and Dunky became non-ambulatory toileting challenges began to limit how they prepared for the day.""  
[X Link](https://x.com/TequilaVernetti/status/1978351354318901489) [@TequilaVernetti](/creator/x/TequilaVernetti) 2025-10-15T06:44Z XX followers, 1190 engagements


"$SRPT Its easy to forget how many daily things like getting ready in the morning become a huge challenge with Duchenne. We shouldnt have to fight for access to care and for basic dignity at the same time"  
[X Link](https://x.com/TequilaVernetti/status/1978427131915894833) [@TequilaVernetti](/creator/x/TequilaVernetti) 2025-10-15T11:46Z XX followers, XXX engagements


"$SRPT A user recently shared on a public forum about losing two friends to Duchenne in the same year both before they could access gene therapy. This is why time matters in Duchenne"  
[X Link](https://x.com/TequilaVernetti/status/1979237977118380072) [@TequilaVernetti](/creator/x/TequilaVernetti) 2025-10-17T17:28Z XX followers, 2000 engagements


"$SRPT We urge federal and state regulators to accelerate access pathways for approved gene therapies like Elevidys. Every month of delay means more Duchenne families facing irreversible loss. The science is ready our systems need to catch up @US_FDA"  
[X Link](https://x.com/TequilaVernetti/status/1979582429716496824) [@TequilaVernetti](/creator/x/TequilaVernetti) 2025-10-18T16:16Z XX followers, XXX engagements