# ![@TequilaVernetti Avatar](https://lunarcrush.com/gi/w:26/cr:twitter::1308779634784436231.png) @TequilaVernetti Tequila Vernetti

Tequila Vernetti posts on X about $srpt, son, saving, bean the most. They currently have [---------] followers and [--] posts still getting attention that total [------] engagements in the last [--] hours.

### Engagements: [------] [#](/creator/twitter::1308779634784436231/interactions)
![Engagements Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::1308779634784436231/c:line/m:interactions.svg)

- [--] Week [-------] +2,290%
- [--] Month [---------] +3.50%
- [--] Months [----------] +8,685,728%
- [--] Year [----------] +5,576,373,200%

### Mentions: [--] [#](/creator/twitter::1308779634784436231/posts_active)
![Mentions Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::1308779634784436231/c:line/m:posts_active.svg)

- [--] Month [--] -63%
- [--] Months [--] +5,300%
- [--] Year [--] +5,500%

### Followers: [---------] [#](/creator/twitter::1308779634784436231/followers)
![Followers Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::1308779634784436231/c:line/m:followers.svg)

- [--] Week [--] no change
- [--] Month [--] +5.40%
- [--] Months [--] +18%
- [--] Year [--] +86%

### CreatorRank: [---------] [#](/creator/twitter::1308779634784436231/influencer_rank)
![CreatorRank Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::1308779634784436231/c:line/m:influencer_rank.svg)

### Social Influence

**Social category influence**
[stocks](/list/stocks)  [finance](/list/finance)  [celebrities](/list/celebrities)  [countries](/list/countries)  [ncaa football](/list/ncaa-football)  [technology brands](/list/technology-brands) 

**Social topic influence**
[$srpt](/topic/$srpt) #8, [son](/topic/son), [saving](/topic/saving), [bean](/topic/bean), [for all](/topic/for-all), [better therapy](/topic/better-therapy), [save](/topic/save), [approved](/topic/approved), [elon musk](/topic/elon-musk), [trust](/topic/trust)

**Top accounts mentioned or mentioned by**
[@usfda](/creator/undefined) [@hhsgov](/creator/undefined) [@sarepta](/creator/undefined) [@nysdohmedicaid](/creator/undefined) [@elonmusk](/creator/undefined) [@robertkennedyjr](/creator/undefined) [@healthaffairs](/creator/undefined) [@pray4truth](/creator/undefined) [@stockkarate](/creator/undefined) [@nbcnews](/creator/undefined) [@fepblue](/creator/undefined) [@commonsenseplay](/creator/undefined) [@newyorkstateig](/creator/undefined) [@adamfeuerstein](/creator/undefined) [@johnhempton](/creator/undefined) [@jenniferhandt](/creator/undefined) [@jennmcnary](/creator/undefined) [@itsselenamaris](/creator/undefined) [@zerohedge](/creator/undefined) [@stanfordcerc](/creator/undefined)

**Top assets mentioned**
[Sarepta Therapeutics, Inc. (SRPT)](/topic/$srpt) [LUMIO (LUMIO)](/topic/lumio) [Twilio, Inc. (TWLO)](/topic/$twlo) [New York Times Co. (NYT)](/topic/$nyt)
### Top Social Posts
Top posts by engagements in the last [--] hours

"Zeo Energy Corp. and Lumio Complete Sale Transaction $ZEO #LUMIO https://finance.yahoo.com/news/zeo-energy-corp-lumio-complete-133000361.html https://finance.yahoo.com/news/zeo-energy-corp-lumio-complete-133000361.html"  
[X Link](https://x.com/TequilaVernetti/status/1887925142803595607)  2025-02-07T18:03Z [--] followers, [--] engagements


"@Pray_4Truth Every life saving treatment has risks. Parents of DMD kids know the trade off theyre willing to fight for $SRPT beacause it means time. Unless youre the one holding their childs hand in a hospital bed maybe dont preach about whats acceptable"  
[X Link](https://x.com/TequilaVernetti/status/1955002539222392920)  2025-08-11T20:25Z [--] followers, [---] engagements


"This Zero deaths in over a thousand children treated with systemic gene therapy could never be luck $SRPT Delivering a systemic gene therapy to over a thousand children with a single infusion and reporting ZERO deaths is what happens when vector design dosing and clinical care are done right and $SRPT simply did it right Delivering a systemic gene therapy to over a thousand children with a single infusion and reporting ZERO deaths is what happens when vector design dosing and clinical care are done right and $SRPT simply did it right"  
[X Link](https://x.com/TequilaVernetti/status/1959046705019539762)  2025-08-23T00:15Z [--] followers, [---] engagements


"Most boys lose the ability to walk by age [--]. Eventually it affects breathing and the heart. Life expectancy is often under [--]. If something helps change that even a little thats hope $SRPT #DMD $SRPT 74% dead before [--] in DMD. If you call that safer than Elevidys youre gaslighting reality. Safety isnt dying on schedule $SRPT 74% dead before [--] in DMD. If you call that safer than Elevidys youre gaslighting reality. Safety isnt dying on schedule"  
[X Link](https://x.com/TequilaVernetti/status/1959050685326008748)  2025-08-23T00:30Z [--] followers, [---] engagements


"Think of Elevidys as a symbol of human resilience. In a world quick to judge lets remember $SRPT is fighting a battle on behalf of kids who deserve a future Its not about creating a perfection overnight its about giving those kids a fighting chance. thats a story worth telling"  
[X Link](https://x.com/TequilaVernetti/status/1960031209230418399)  2025-08-25T17:27Z [--] followers, [----] engagements


"$SRPT is bridging the gap between what is and what could be. Elevidys is giving children a genetic boost that nature couldnt. They handed the kids a piece of the evolutionary puzzle they were missing"  
[X Link](https://x.com/TequilaVernetti/status/1960034448109350926)  2025-08-25T17:40Z [--] followers, [---] engagements


"People got scared when innovation answers things no one dared to imagine Maybe its not about what $SRPT failed to prove. Maybe its about what they failed to believe"  
[X Link](https://x.com/TequilaVernetti/status/1960388319868538893)  2025-08-26T17:06Z [--] followers, [---] engagements


"$SRPT isnt fighting for share price. Its fighting for time time kids dont have. If you want to short that the stain is on you @StockKarate Its really disgusting how they try to hurt this company saving lives just so they can make a few bucks shorting it @StockKarate Its really disgusting how they try to hurt this company saving lives just so they can make a few bucks shorting it"  
[X Link](https://x.com/TequilaVernetti/status/1960754514354692278)  2025-08-27T17:21Z [--] followers, [----] engagements


"$SRPT "A physician herself Alison understands the risks argues DMD already guarantees an early death. Their only hope is pray for cure and stall the disease while their sons can still walk run even swim" $SRPT One brother approved one denied for same gene therapy https://t.co/YLS7i4Txkz via @nbcnews $SRPT One brother approved one denied for same gene therapy https://t.co/YLS7i4Txkz via @nbcnews"  
[X Link](https://x.com/TequilaVernetti/status/1961121598468919558)  2025-08-28T17:39Z [--] followers, [----] engagements


"$SRPT is saving childrens strength one infusion at a time. Elevidys giving parents more time they never thought they would have. Hope all families and the kids can have the treatment they deserve $SRPT "A physician herself Alison understands the risks argues DMD already guarantees an early death. Their only hope is pray for cure and stall the disease while their sons can still walk run even swim" $SRPT "A physician herself Alison understands the risks argues DMD already guarantees an early death. Their only hope is pray for cure and stall the disease while their sons can still walk run even"  
[X Link](https://x.com/TequilaVernetti/status/1961122479956443252)  2025-08-28T17:43Z [--] followers, [---] engagements


"$SRPT No parent should have to see one child left behind while another thrives on the same therapy. We can do better. We must do better. Gene therapy exists and approvals cant wait. https://www.nbcnews.com/nightly-news/video/one-brother-approved-one-denied-for-same-gene-therapy-245926469872 https://www.nbcnews.com/nightly-news/video/one-brother-approved-one-denied-for-same-gene-therapy-245926469872"  
[X Link](https://x.com/TequilaVernetti/status/1962581095637041598)  2025-09-01T18:19Z [--] followers, [----] engagements


"$SRPT Rare disease patients dont get second chances. Undermining Elevidys the only Duchenne therapy is reckless and heartless. FDA is punishing the most vulnerable patients"  
[X Link](https://x.com/TequilaVernetti/status/1963297757734506970)  2025-09-03T17:47Z [--] followers, [----] engagements


"$SRPT Prasads credibility was already questioned. Cant believe he is still at the FDA If Prasad cant stand by what he said in [----] then he shouldnt be shaping the FDAs policy in [----]. FDA deserved better patients deserved better https://www.theguardian.com/us-news/2025/aug/31/fda-official-youtube-videos https://www.theguardian.com/us-news/2025/aug/31/fda-official-youtube-videos"  
[X Link](https://x.com/TequilaVernetti/status/1963299079699439889)  2025-09-03T17:52Z [--] followers, [----] engagements


"$SRPT Ah now new pinciple another excuse for doing nothing FDA stop congratulating yourself. Youre not the hero here. Kids need treatments and you guys has failed them for decades Enough with the press releases just approve the drugs Regulatory flexibility for rare diseases should be standard across the board not random and sporadic. FDAs action today makes the process more predictable with the hope of delivering more cures and meaningful treatments to the many Americans with rare diseases. https://t.co/wKhr03k5Fu Regulatory flexibility for rare diseases should be standard across the board"  
[X Link](https://x.com/TequilaVernetti/status/1964023930500337790)  2025-09-05T17:52Z [--] followers, [---] engagements


"$SRPT $SRPT what a child can do at [--] (climb stairs run ride a bike) is often gone forever by [--] Every month without treatment = progressive irreversible muscle loss We have confirmatory evidence lived outcomes a therapy that addresses the root genetic defect. The science is clear $SRPT what a child can do at [--] (climb stairs run ride a bike) is often gone forever by [--] Every month without treatment = progressive irreversible muscle loss We have confirmatory evidence lived outcomes a therapy that addresses the root genetic defect. The science is clear"  
[X Link](https://x.com/TequilaVernetti/status/1964031773009998267)  2025-09-05T18:23Z [--] followers, [---] engagements


"$SRPT This is exactly why we keep pushing. Denials arent the end of the road persistence matters. Huge congrats to your family I hope this could inspire others fighting the same battle Today my son was approved for #Elevidys (@sarepta) after @fepblue Federal Arkansas reversed their denial. Thank you all for the support and sharing my story - every bit helped. Today my son was approved for #Elevidys (@sarepta) after @fepblue Federal Arkansas reversed their denial. Thank you all for the support and sharing my story - every bit helped"  
[X Link](https://x.com/TequilaVernetti/status/1965463810883682803)  2025-09-09T17:14Z [--] followers, [---] engagements


"$SRPT Each day of delay means more decline more lost abilities more grief. Rare disease families accept risk because the alternative is certain suffering FDA should honor that reality. SRPT accelerated path for Elevidys is exactly the model we need"  
[X Link](https://x.com/TequilaVernetti/status/1965464491250110600)  2025-09-09T17:17Z [--] followers, [---] engagements


"@elonmusk This is exactly why bail reform debates cant be surface level. Some people cannot be back on the streets. Period"  
[X Link](https://x.com/TequilaVernetti/status/1966030731982827646)  2025-09-11T06:47Z [--] followers, [--] engagements


"$SRPT Families living with Duchenne carry so much strength. Elevidys has to be more than just approved it needs to reach the families who need it most. Lets get this right https://youtu.be/S0cOW4ckHHosi=YYEGjrJ0cu0gSCnY https://youtu.be/S0cOW4ckHHosi=YYEGjrJ0cu0gSCnY"  
[X Link](https://x.com/TequilaVernetti/status/1966210131076722838)  2025-09-11T18:40Z [--] followers, [----] engagements


"$SRPT Ive always said timing is everything in Duchenne. Elevidys has already shown safety in young patients with families reporting incredible outcomes. FDA says its about caution but whats cautious about letting kids slip further into disability while a treatment exists"  
[X Link](https://x.com/TequilaVernetti/status/1966579560633295185)  2025-09-12T19:07Z [--] followers, [----] engagements


"$SRPT Parents know the clock doesnt stop and neither should access to treatments. Time is the one thing you cant refund. Every month lost is another step kids may never take again"  
[X Link](https://x.com/TequilaVernetti/status/1966580964894572603)  2025-09-12T19:13Z [--] followers, [----] engagements


"$SRPT Elliot got lucky. A random hospital test flagged his DMD early. Thats timing. Thats access. Thats what every kid deserves WSJ Op-Ed on Elevidys. $SRPT In a WSJ article dated today (Sep. 14) Elizabeth Currid-Halkett mother of a child with DMD and a USC professor argues that DMD should be included in the Recommended Uniform Screening Panel for newborns. (Public comment period for adding DMD closes WSJ Op-Ed on Elevidys. $SRPT In a WSJ article dated today (Sep. 14) Elizabeth Currid-Halkett mother of a child with DMD and a USC professor argues that DMD should be included in the Recommended"  
[X Link](https://x.com/TequilaVernetti/status/1967647718458998795)  2025-09-15T17:52Z [--] followers, [----] engagements


"@commonsenseplay $SRPT right now most boys are diagnosed around age [--]. By then muscle damage is already permanent. Elevidys works best under [--] years old. Timing is everything"  
[X Link](https://x.com/TequilaVernetti/status/1967650280474022102)  2025-09-15T18:02Z [--] followers, [---] engagements


"$SRPT All we care about is function mobility life. Elevidys is giving that back right now. Families are demanding. The FDA'd better listen FDA has no excuse to stall. Time is not a luxury these kids have. @US_FDA"  
[X Link](https://x.com/TequilaVernetti/status/1970937905561629011)  2025-09-24T19:46Z [--] followers, [---] engagements


"$SRPT Time is muscle and these kids are running out of both FDA has to decide if theyre protecting patients or just protecting their own process @TequilaVernetti @US_FDA I wish they truly understood that time is muscle @TequilaVernetti @US_FDA I wish they truly understood that time is muscle"  
[X Link](https://x.com/TequilaVernetti/status/1970942476715446775)  2025-09-24T20:04Z [--] followers, [---] engagements


"$SRPT These [--] brave brothers are just one example of countless families fighting the same silent battle. Elevidys should be approved for all these kids because every child deserves a shot at a stronger tomorrow. https://www.facebook.com/share/v/1ADSYn8xE7/ https://www.facebook.com/share/v/1ADSYn8xE7/"  
[X Link](https://x.com/TequilaVernetti/status/1974126750100771219)  2025-10-03T14:57Z [--] followers, [----] engagements


"$SRPT We need to let the world know that Elevidys approval isnt just paperwork its a lifeline for so many families. Your voice can help speed up the process Lets rally together let the FDA know that these families cant wait. Share this post tag the FDA. Let's make some noise $SRPT These [--] brave brothers are just one example of countless families fighting the same silent battle. Elevidys should be approved for all these kids because every child deserves a shot at a stronger tomorrow. https://t.co/hiZ7cVeD8a $SRPT These [--] brave brothers are just one example of countless families fighting the"  
[X Link](https://x.com/TequilaVernetti/status/1974127224665371077)  2025-10-03T14:59Z [--] followers, [---] engagements


"@US_FDA @Sarepta $SRPT These brave boys represent so many others who are out of treatment options simply because of how their genes are written. The FDA must act urgently. Time is not on these kids side"  
[X Link](https://x.com/TequilaVernetti/status/1974130038787457056)  2025-10-03T15:10Z [--] followers, [---] engagements


"$SRPT Absolutely insane how they can ignore years of clean data and real families pleading for access. This is beyond frustrating The system moves fast to say no and too slow to save lives. Every DMD kid deserves better than this Spoken truths Pretty sad reality we live in sometimes. Backlash on this twisted decision is warranted. @NewYorkStateIG $SRPT https://t.co/EYxvMKpHzb Spoken truths Pretty sad reality we live in sometimes. Backlash on this twisted decision is warranted. @NewYorkStateIG $SRPT https://t.co/EYxvMKpHzb"  
[X Link](https://x.com/TequilaVernetti/status/1976024904953905455)  2025-10-08T20:40Z [--] followers, [----] engagements


"@adamfeuerstein This [--] yr old boy with Duchenne is preparing to plead his case to NYC Medicaid about why access to Elevidys matters. Imagine needing to explain to adults why your life is worth the cost it is ridiculous @Sarepta @US_FDA $SRPT https://www.facebook.com/share/p/1WhbUSJ6kx/ https://www.facebook.com/share/p/1WhbUSJ6kx/"  
[X Link](https://x.com/TequilaVernetti/status/1976703981662396494)  2025-10-10T17:38Z [--] followers, [----] engagements


"Twilio Stock Slumps on Weak Earnings Forecast $TWLO https://finance.yahoo.com/news/twilio-stock-slumps-weak-earnings-160246413.html https://finance.yahoo.com/news/twilio-stock-slumps-weak-earnings-160246413.html"  
[X Link](https://x.com/TequilaVernetti/status/1890455781247447303)  2025-02-14T17:39Z [--] followers, [--] engagements


"This You cant claim to protect kids health while blocking the one therapy that actually helps them keep walking. Cost matters but so does time Let just start by not traumatizing families fighting for their kids care. $SRPT @NYSDOHMEDICAID $SRPT @NYSDOHMEDICAID I'll tell you one way to reduce adverse childhood experiences: Save New York's children with #DMD the trauma of losing their muscle function by covering #Elevidys according to its FDA label. $SRPT @NYSDOHMEDICAID I'll tell you one way to reduce adverse childhood experiences: Save New York's children with #DMD the trauma of losing their"  
[X Link](https://x.com/TequilaVernetti/status/1976718303566467415)  2025-10-10T18:35Z [--] followers, [---] engagements


"$SRPT Budgets are tight but pausing Elevidys means these kids lose muscle theyll never get back. Theres no fiscal line item for lost time. Families shouldnt have to turn into policy experts just to get care for their kids. Let them focus on living @NYSDOHMEDICAID"  
[X Link](https://x.com/TequilaVernetti/status/1977813632726790395)  2025-10-13T19:08Z [--] followers, [----] engagements


"$SRPT "Sarah shares how once Caleb and Dunky became non-ambulatory toileting challenges began to limit how they prepared for the day." https://www.facebook.com/share/p/17P7PbBJF3/ https://www.facebook.com/share/p/17P7PbBJF3/"  
[X Link](https://x.com/TequilaVernetti/status/1978351354318901489)  2025-10-15T06:44Z [--] followers, [----] engagements


"$SRPT Its easy to forget how many daily things like getting ready in the morning become a huge challenge with Duchenne. We shouldnt have to fight for access to care and for basic dignity at the same time $SRPT "Sarah shares how once Caleb and Dunky became non-ambulatory toileting challenges began to limit how they prepared for the day." https://t.co/7yyCbU7OZG $SRPT "Sarah shares how once Caleb and Dunky became non-ambulatory toileting challenges began to limit how they prepared for the day." https://t.co/7yyCbU7OZG"  
[X Link](https://x.com/TequilaVernetti/status/1978427131915894833)  2025-10-15T11:46Z [--] followers, [---] engagements


"Jennifer youre just as strong What you and so many DMD families face every day deserves so much more attention and action. I truly hope the FDA and policymakers take this urgency seriously and ensure access to ELEVIDYS for every child who needs it 🙏 @US_FDA @Sarepta $SRPT @TequilaVernetti I adore this family. Most people couldn't last a day in their shoesbut they fight with purpose and love. @TequilaVernetti I adore this family. Most people couldn't last a day in their shoesbut they fight with purpose and love"  
[X Link](https://x.com/TequilaVernetti/status/1979104792463937820)  2025-10-17T08:38Z [--] followers, [----] engagements


"$SRPT A user recently shared on a public forum about losing two friends to Duchenne in the same year both before they could access gene therapy. This is why time matters in Duchenne. https://www.reddit.com/r/MuscularDystrophy/comments/1nx2s25/life_is_cruel/utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button https://www.reddit.com/r/MuscularDystrophy/comments/1nx2s25/life_is_cruel/utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button"  
[X Link](https://x.com/TequilaVernetti/status/1979237977118380072)  2025-10-17T17:28Z [--] followers, [----] engagements


"$SRPT We urge federal and state regulators to accelerate access pathways for approved gene therapies like Elevidys. Every month of delay means more Duchenne families facing irreversible loss. The science is ready our systems need to catch up @US_FDA $SRPT A user recently shared on a public forum about losing two friends to Duchenne in the same year both before they could access gene therapy. This is why time matters in Duchenne. https://t.co/kWPt2xREeD $SRPT A user recently shared on a public forum about losing two friends to Duchenne in the same year both before they could access gene"  
[X Link](https://x.com/TequilaVernetti/status/1979582429716496824)  2025-10-18T16:16Z [--] followers, [----] engagements


"$SRPT Lets make sure no more families have to say goodbye before science can reach them. Every month matters. Every life matters Stop pausing #Elevidys @NYSDOHMEDICAID @US_FDA $SRPT My son is a data point on this slide. Can confirm these results stand up IRL. "At [--] years Part 1-treated patients showed statistically significant and clinically meaningful functional improvement vs. the matched EC cohort." https://t.co/37a5i2hx44 $SRPT My son is a data point on this slide. Can confirm these results stand up IRL. "At [--] years Part 1-treated patients showed statistically significant and clinically"  
[X Link](https://x.com/TequilaVernetti/status/1979977960464515372)  2025-10-19T18:28Z [--] followers, [----] engagements


"$SRPT Ryett deserves a real shot all these boys do We got treatments like Elevidys that are changing lives and yet too many families still cant access them because of technical limits or red tape Holding space for you and hoping the next breakthrough finally reaches your boy"  
[X Link](https://x.com/TequilaVernetti/status/1980698570564202626)  2025-10-21T18:11Z [--] followers, [----] engagements


"$SRPT Families shouldnt have to wait this long when Elevidys is already proving what is possible Science has come so far and now policy just needs to catch up Hoping the regulators move faster so no more families have to hear not eligible @US_FDA"  
[X Link](https://x.com/TequilaVernetti/status/1980700525340549454)  2025-10-21T18:19Z [--] followers, [---] engagements


"We urge federal and state regulators to: [--]. Accelerate access pathways for approved gene therapies like #ELEVIDYS [--]. Ensure consistent coverage under Medicaid and state programs [--]. Support ongoing trials in younger and non-ambulatory populations so no child is left behind $SRPT In states like New York its not a conspiracy theory its official policy. https://t.co/qotp2yOOl5 In states like New York its not a conspiracy theory its official policy. https://t.co/qotp2yOOl5"  
[X Link](https://x.com/TequilaVernetti/status/1981715047324725551)  2025-10-24T13:31Z [--] followers, [----] engagements


"$SRPT Its wild how the FDA leadership spent more time arguing with journalists than fixing their own review process. If that energy went into approving therapies that actually work maybe patients wouldnt be left waiting. https://www.facebook.com/share/p/1Cm4SmCHMX/ https://www.facebook.com/share/p/1Cm4SmCHMX/"  
[X Link](https://x.com/TequilaVernetti/status/1983975189143834730)  2025-10-30T19:12Z [--] followers, [---] engagements


"$SRPT 100%. But transparency shouldnt stop at pricing we also need to see how FDA and HHS decisions actually affect access. Show the full chain from price tags to the policies that keep treatments stuck in review for years For too long the FDA has required a burdensome approval process that delays high-quality biosimilars the generic equivalent of biologics. That ends now. To lower drug costs the FDA will cut red tape to encourage more competition. https://t.co/BoR9iA9whV For too long the FDA has required a burdensome approval process that delays high-quality biosimilars the generic"  
[X Link](https://x.com/TequilaVernetti/status/1984334935792992370)  2025-10-31T19:01Z [--] followers, [----] engagements


"People deserve to know not just how drugs are priced but how much time and money get wasted in the approval maze before patients even get a shot at them. Access isnt just about price its about time @HHSGov @US_FDA $SRPT $SRPT 100%. But transparency shouldnt stop at pricing we also need to see how FDA and HHS decisions actually affect access. Show the full chain from price tags to the policies that keep treatments stuck in review for years $SRPT 100%. But transparency shouldnt stop at pricing we also need to see how FDA and HHS decisions actually affect access. Show the full chain from price"  
[X Link](https://x.com/TequilaVernetti/status/1984335306636866002)  2025-10-31T19:02Z [--] followers, [----] engagements


"$SRPT People talk like [--] extra years of life and [--] years before a ventilator dont matter. Tell that to the families living it @John_Hempton There are so many examples with drugs on the market which didn't meet their primary endpoint. I'm not saying the PMO's are some miracle drug but do provide some benefit a lot of these patients have no other options. They literally have a 100% mortality rate and most die in https://t.co/kcmI1XoLol @John_Hempton There are so many examples with drugs on the market which didn't meet their primary endpoint. I'm not saying the PMO's are some miracle drug but do"  
[X Link](https://x.com/TequilaVernetti/status/1985789137249570968)  2025-11-04T19:19Z [--] followers, [----] engagements


"$SRPT and they keep saying the trial failed but no one mentions that half the patients couldnt even get their therapy during COVID. You cant call it an efficacy failure when 43% missed [--] infusions in a row @TequilaVernetti They talk like they've never sat across a doctor's desk and heard that their child is terminal and there is nothing they can offer but corticosteroids. And they act like we can't see improvement with our lying eyes. @TequilaVernetti They talk like they've never sat across a doctor's desk and heard that their child is terminal and there is nothing they can offer but"  
[X Link](https://x.com/TequilaVernetti/status/1986134278649082048)  2025-11-05T18:11Z [--] followers, [----] engagements


"@JenniferHandt @NYSDOHMEDICAID The death panel headline shouldnt even exist in [----]. Were talking about kids fighting to walk not numbers on a spreadsheet. $SRPT s therapy gives them a shot thats what matters"  
[X Link](https://x.com/TequilaVernetti/status/1988622626357448792)  2025-11-12T14:59Z [--] followers, [---] engagements


"This breaks my heart. No one not the patient not the caregiver should ever feel guilty or like a burden for needing help Theyre doing everything they can to keep living. If you ever wondered why treatments like Elevidys matter start here. https://www.reddit.com/r/MuscularDystrophy/s/GP88wTtpjQ https://www.reddit.com/r/MuscularDystrophy/s/GP88wTtpjQ"  
[X Link](https://x.com/TequilaVernetti/status/1988986461618933973)  2025-11-13T15:05Z [--] followers, [--] engagements


"@jennmcnary @HHSGov @RobertKennedyJr Theres no credible argument left for taking Elevidys down $SRPT Wishing the very best for your son and your family. Its reassuring to see steps that prioritize early identification while protecting access for those already receiving care 🙏"  
[X Link](https://x.com/TequilaVernetti/status/2001739562717171815)  2025-12-18T19:41Z [--] followers, [---] engagements


"Stories like Alex's remind us why awareness and early care are so important and why broader access to therapies in the future could change so many lives $SRPT https://youtu.be/gAWLVD8DC0Msi=JLllnQxuyBYQCGLN https://youtu.be/gAWLVD8DC0Msi=JLllnQxuyBYQCGLN"  
[X Link](https://x.com/TequilaVernetti/status/2004265202167238914)  2025-12-25T18:57Z [--] followers, [----] engagements


"$SRPT FDA has approved dosing in a study cohort to evaluate the use of an immunosuppressive regimen as part of treatment with Elevidys gene therapy for Duchenne muscular dystrophy patients. https://www.msn.com/en-in/health/other/sarepta-wins-fda-approval-to-begin-study-on-reducing-liver-injury-risk-with-elevidys/ar-AA1R8C1focid=socialshare https://www.msn.com/en-in/health/other/sarepta-wins-fda-approval-to-begin-study-on-reducing-liver-injury-risk-with-elevidys/ar-AA1R8C1focid=socialshare"  
[X Link](https://x.com/TequilaVernetti/status/2005996724645679507)  2025-12-30T13:37Z [--] followers, [---] engagements


"$SRPT Between hospital visits trials daily life parents are trying to keep work going while managing intense care and nonstop stress. Its not just about the kids the strength is also in the ones carrying it all in the background😢 https://www.facebook.com/share/r/17NmcN5sXm/ https://www.facebook.com/share/r/17NmcN5sXm/"  
[X Link](https://x.com/TequilaVernetti/status/2007896637847605559)  2026-01-04T19:27Z [--] followers, [---] engagements


"$SRPT @US_FDA cant keep cycling through leadership and still expect people to trust consistency in its decisions For serious diseases with few options what patients and the industry need most is stability and predictability. And thats exactly what the FDA is starting to lose"  
[X Link](https://x.com/TequilaVernetti/status/2009710633898406024)  2026-01-09T19:35Z [--] followers, [----] engagements


"$SRPT #ELEVIDYS @US_FDA Children with rare diseases are not abstractions. They are real patients with real suffering Radicals in the FDA are Sabotaging Trumps Pro-Life Agenda https://t.co/BNNmnaiFjW https://t.co/0dRFD2jljW Radicals in the FDA are Sabotaging Trumps Pro-Life Agenda https://t.co/BNNmnaiFjW https://t.co/0dRFD2jljW"  
[X Link](https://x.com/TequilaVernetti/status/2010977407642091527)  2026-01-13T07:29Z [--] followers, [---] engagements


"@US_FDA now prove it Patients and families dont live off FDA statements. They live with the consequences of FDA decisions. $SRPT #Elevidys #DMD To further expedite product development the FDA announced a more flexible approach to the agencys oversight of chemistry manufacturing and control requirements for cell and gene therapies. https://t.co/Pix3Qfq4zj https://t.co/8zT70UFB4F To further expedite product development the FDA announced a more flexible approach to the agencys oversight of chemistry manufacturing and control requirements for cell and gene therapies. https://t.co/Pix3Qfq4zj"  
[X Link](https://x.com/TequilaVernetti/status/2011860056929628232)  2026-01-15T17:56Z [--] followers, [---] engagements


"$SRPT Whats hard to explain to people outside rare disease is how exhausting waiting really is. Elevidys may not be the final answer but its an attempt to do something meaningful now. I wish the system was better at holding urgency and caution at the same time"  
[X Link](https://x.com/TequilaVernetti/status/2014537340841067002)  2026-01-23T03:15Z [--] followers, [---] engagements


"Vinay Prasad never should have been in the FDA Ever $SRPT $SRPT Whats troubling about Vinay Prasad is his arrogance He treats regulatory decisions like academic debates dismisses urgency as emotion and talks down to patients as if their desperation is a logical flaw. That mindset could never protect patients https://t.co/OZly9y2sDj https://t.co/B29UGDu7O4 $SRPT Whats troubling about Vinay Prasad is his arrogance He treats regulatory decisions like academic debates dismisses urgency as emotion and talks down to patients as if their desperation is a logical flaw. That mindset could never"  
[X Link](https://x.com/TequilaVernetti/status/2013286371121574146)  2026-01-19T16:24Z [--] followers, [----] engagements


"I dont think Sarepta $SRPT is asking for a free pass with Elevidys. What patients and families are asking for is consistency and fairness. We all know innovation always carries uncertainty. The question isnt whether risk exists but who bears the cost of waiting"  
[X Link](https://x.com/TequilaVernetti/status/2013681228231135587)  2026-01-20T18:33Z [--] followers, [---] engagements


"$SRPT Access to treatment has been publicly promised Any reversal deserves a clear and transparent explanation to American people. For families and patients who depend on these therapies it is hope time and life. The FDA should not allow decisions that take that away lightly Deeply grateful for @HHSGov @RobertKennedyJr in adding #NBS for duchenne and MLD. In further commitment to rare disease patients and a comfort to families Secretary Kennedy committed that young men and boys like my son max will not lose access to approved exon skipping https://t.co/qBfSybRfPF Deeply grateful for @HHSGov"  
[X Link](https://x.com/TequilaVernetti/status/2001393341196345350)  2025-12-17T20:45Z [--] followers, [----] engagements


"$SRPT You dont have to trust the sponsor to see whats happening. ELEVIDYS outcomes deviate from established Duchenne trajectories in a sustained way If you don't believe the $SRPT data there are some decent EC datasets. Purple is Elevidys Red is the natural history from Muntoni et al in [----]. Broadly similar to the EC that $SRPT reported (of course they can actually match 1:1 which we can't). https://t.co/wc4NX1Ghvf If you don't believe the $SRPT data there are some decent EC datasets. Purple is Elevidys Red is the natural history from Muntoni et al in [----]. Broadly similar to the EC that"  
[X Link](https://x.com/TequilaVernetti/status/2016194497609109690)  2026-01-27T17:00Z [--] followers, [---] engagements


"@ItsSelenaMaris @zerohedge Calling durable multi year functional separation in Duchenne tiny gains really undersells what that means to patients and families. This isnt a cosmetic endpoint. Its time mobility and independence in a disease with no brakes $SRPT"  
[X Link](https://x.com/TequilaVernetti/status/2016198669792325658)  2026-01-27T17:16Z [--] followers, [---] engagements


"$SRPT If ELEVIDYS keeps being delayed be honest about the trade being made: children with DMD lose function so adults can feel safer. Dont call that neutrality. You can argue endpoints all day but kids gaining function shouldnt be dismissed. Listen to patients @Health_Affairs Nothing gets my Irish up like a bean counter telling me my son's therapy doesn't work. Robert Kaplan doesn't know Duchenne he doesn't get rare disease drug development and he certainly doesn't know my son. $SRPT Nothing gets my Irish up like a bean counter telling me my son's therapy doesn't work. Robert Kaplan doesn't"  
[X Link](https://x.com/anyuser/status/2022232183818392031)  2026-02-13T08:51Z [--] followers, [---] engagements


"$SRPT While adults debate ELEVIDYS in meeting rooms children with DMD keep getting weaker every day. They dont live in charts or statistics. They live in bodies that are slowly failing them. Please look at the children not just the data @HHSGov @US_FDA"  
[X Link](https://x.com/anyuser/status/2021131129609245028)  2026-02-10T07:56Z [--] followers, [---] engagements


"$SRPT Just wait sounds responsible until you realize what waiting actually costs. And there is nothing easier to say just wait when its not your child losing function month by month Time isnt a free variable in DMD. Stop pretending delay is harmless @US_FDA $SRPT Honest question for all that do not believe Elevidys changes the trajectory of disease if your son was diagnosed with DMD and could still walk would you consider it or just wait until a measurably better therapy was approved Requires honest answer. $SRPT Honest question for all that do not believe Elevidys changes the trajectory of"  
[X Link](https://x.com/anyuser/status/2022235638343598484)  2026-02-13T09:05Z [--] followers, [---] engagements


"How gross. Calling detention facilities a concentration camp yet this individual (who was in ourcountry illegally for [--] years) CHOSE to stay in detention for [--] months after he was issued a final deportation order and given full due process. Being in detention is a CHOICE we encourage every illegal alien to take advantage of the CBP Home app to self-deport and have the opportunity to come back to our nation the RIGHT way. https://twitter.com/i/web/status/2022105268574728689 https://twitter.com/i/web/status/2022105268574728689"  
[X Link](https://x.com/anyuser/status/2022105268574728689)  2026-02-13T00:27Z 2.9M followers, 377.3K engagements


"$SRPT Just wait sounds responsible until you realize what waiting actually costs. And there is nothing easier to say just wait when its not your child losing function month by month Time isnt a free variable in DMD. Stop pretending delay is harmless @US_FDA $SRPT Honest question for all that do not believe Elevidys changes the trajectory of disease if your son was diagnosed with DMD and could still walk would you consider it or just wait until a measurably better therapy was approved Requires honest answer. $SRPT Honest question for all that do not believe Elevidys changes the trajectory of"  
[X Link](https://x.com/anyuser/status/2022235638343598484)  2026-02-13T09:05Z [--] followers, [---] engagements


"$SRPT Honest question for all that do not believe Elevidys changes the trajectory of disease if your son was diagnosed with DMD and could still walk would you consider it or just wait until a measurably better therapy was approved Requires honest answer"  
[X Link](https://x.com/anyuser/status/2022029323230958072)  2026-02-12T19:25Z [---] followers, [----] engagements


"$SRPT If ELEVIDYS keeps being delayed be honest about the trade being made: children with DMD lose function so adults can feel safer. Dont call that neutrality. You can argue endpoints all day but kids gaining function shouldnt be dismissed. Listen to patients @Health_Affairs Nothing gets my Irish up like a bean counter telling me my son's therapy doesn't work. Robert Kaplan doesn't know Duchenne he doesn't get rare disease drug development and he certainly doesn't know my son. $SRPT Nothing gets my Irish up like a bean counter telling me my son's therapy doesn't work. Robert Kaplan doesn't"  
[X Link](https://x.com/anyuser/status/2022232183818392031)  2026-02-13T08:51Z [--] followers, [---] engagements


"Nothing gets my Irish up like a bean counter telling me my son's therapy doesn't work. Robert Kaplan doesn't know Duchenne he doesn't get rare disease drug development and he certainly doesn't know my son. $SRPT Accelerated approval can serve patients wellbut only when surrogate endpoints are reliable and clearly predict outcomes that matter to patients. Forefront Robert M Kaplan @StanfordCERC https://t.co/fKb3NOacvz Accelerated approval can serve patients wellbut only when surrogate endpoints are reliable and clearly predict outcomes that matter to patients. Forefront Robert M Kaplan"  
[X Link](https://x.com/anyuser/status/2022001163781255404)  2026-02-12T17:33Z [---] followers, [----] engagements


"If this is comprehensive medical care why does a toddler end up back in detention without her prescribed medication This entire story is a lie. We provide COMPREHENSIVE medical care from the moment an alien enters ICE custody. This includes medical dental and mental health intake screening within [--] hours of arriving at each detention facility a full health assessment within [--] days and https://t.co/jOwKDC6Dbw This entire story is a lie. We provide COMPREHENSIVE medical care from the moment an alien enters ICE custody. This includes medical dental and mental health intake screening within 12"  
[X Link](https://x.com/anyuser/status/2021131386321608791)  2026-02-10T07:57Z [--] followers, [--] engagements


"This entire story is a lie. We provide COMPREHENSIVE medical care from the moment an alien enters ICE custody. This includes medical dental and mental health intake screening within [--] hours of arriving at each detention facility a full health assessment within [--] days and access to medical appointments and 24-hour emergency care. Candidly this is the best healthcare many aliens have received in their entire lives. On December [--] [----] ICE took Kheilin Valero Marcano Stiven Arrieta Prieto and their daughter Amalia Arrieta-Valero into custody and they were detained at the Dilley Facility that is"  
[X Link](https://x.com/anyuser/status/2021006287283097866)  2026-02-09T23:40Z 2.9M followers, 550.8K engagements


"$SRPT While adults debate ELEVIDYS in meeting rooms children with DMD keep getting weaker every day. They dont live in charts or statistics. They live in bodies that are slowly failing them. Please look at the children not just the data @HHSGov @US_FDA"  
[X Link](https://x.com/anyuser/status/2021131129609245028)  2026-02-10T07:56Z [--] followers, [---] engagements


"BREAKING: Venerable Fulton Sheen to Be Beatified National Catholic Register @NCRegister https://www.ncregister.com/cna/breaking-venerable-fulton-sheen-to-be-beatified https://www.ncregister.com/cna/breaking-venerable-fulton-sheen-to-be-beatified"  
[X Link](https://x.com/anyuser/status/2020957241042489660)  2026-02-09T20:25Z 51.8K followers, [----] engagements


"There were [--] House Republicans who voted against allocating more of your tax dollars to refugee welfare. Here is the list:"  
[X Link](https://x.com/anyuser/status/2015842785362858191)  2026-01-26T17:42Z 319K followers, 2.1M engagements


"Deepest condolences to the loved ones of John Allen who has died after a long battle with cancer. He was a sterling and exemplary Vatican correspondent who was also a very kind and generous soul. He will be greatly missed. May he rest in peace"  
[X Link](https://x.com/anyuser/status/2014354756202897779)  2026-01-22T15:09Z 51.8K followers, 104.9K engagements


"The @DailyCaller is correct. Every House Republican but one just voted to fund the liberals' favorite censorship agency" (CISA) in the DHS bill. I'm the one Republican who voted No. I voted for the SAVE Act and support deporting illegals. I dont support online censorship"  
[X Link](https://x.com/anyuser/status/2014523226592882983)  2026-01-23T02:18Z 1.7M followers, 365.7K engagements


"In the wake of U.S. threats of military action against Iran if protesters there are killed while demonstrating against the Iranian government 70% of voters think the U.S. should not get involved while 18% think the U.S. should take military action https://poll.qu.edu/poll-releasereleaseid=3945 https://poll.qu.edu/poll-releasereleaseid=3945"  
[X Link](https://x.com/anyuser/status/2011796253055574168)  2026-01-15T13:42Z 1.7M followers, 118.9K engagements


"A visit to an L.A. McDonald's turns into a bloody confrontation. Widower sues fast-food chain https://www.latimes.com/california/story/2026-01-14/deadly-confrontation-at-la-mcdonalds-widower-sues-fast-food-chain https://www.latimes.com/california/story/2026-01-14/deadly-confrontation-at-la-mcdonalds-widower-sues-fast-food-chain"  
[X Link](https://x.com/anyuser/status/2011822700025520381)  2026-01-15T15:28Z 3.7M followers, [----] engagements


"The main contractor hired to clean up the Eaton and Palisades fires may have illegally dumped toxic ash reused contaminated soil and cut corners federal oversight reports allege. https://www.latimes.com/environment/story/2025-12-29/la-fire-cleanups-reports-describe-repeated-violations-illegal-dumping-allegation https://www.latimes.com/environment/story/2025-12-29/la-fire-cleanups-reports-describe-repeated-violations-illegal-dumping-allegation"  
[X Link](https://x.com/anyuser/status/2006144029977710813)  2025-12-30T23:23Z 3.7M followers, [----] engagements


"Arkansas HC John Calipari pitched a solution for the transfer portal situations back in July. What do you think of the idea 🎥 X / Steve Sullivan"  
[X Link](https://x.com/anyuser/status/2005435841083261177)  2025-12-29T00:28Z 616.4K followers, 939K engagements


"Our Annual @IngrahamAngle Real vs Fake Tree debate Laura and I introduce some new evidence this year. (And you real tree folks beware of those pine schats). Do you prefer real 🌲or fake🎄"  
[X Link](https://x.com/anyuser/status/2003479041530314903)  2025-12-23T14:53Z 189.3K followers, 18.1K engagements


"Zelensky Opens Way to Demilitarized Zone in Eastern Ukraine to Reach Peace - The New York Times https://www.nytimes.com/2025/12/24/world/europe/zelensky-demilitarized-zone-offer.html https://www.nytimes.com/2025/12/24/world/europe/zelensky-demilitarized-zone-offer.html"  
[X Link](https://x.com/anyuser/status/2003800242945130519)  2025-12-24T12:09Z 5.3M followers, 37K engagements


"Transparency shouldnt be controversial Our Epstein Files Transparency Act is now law. It establishes a December [--] deadline for the Attorney General to release the Epstein files. In this video Ill tell you what to expect in advance of tomorrow's statutory disclosure deadline. https://t.co/7aD7q1kyLC Our Epstein Files Transparency Act is now law. It establishes a December [--] deadline for the Attorney General to release the Epstein files. In this video Ill tell you what to expect in advance of tomorrow's statutory disclosure deadline. https://t.co/7aD7q1kyLC"  
[X Link](https://x.com/anyuser/status/2001740758571724882)  2025-12-18T19:46Z [--] followers, [--] engagements


"Our Epstein Files Transparency Act is now law. It establishes a December [--] deadline for the Attorney General to release the Epstein files. In this video Ill tell you what to expect in advance of tomorrow's statutory disclosure deadline"  
[X Link](https://x.com/anyuser/status/2001732069496402418)  2025-12-18T19:11Z 1.7M followers, 2.1M engagements


"Buying stocks when everyone feels uncertain usually ends up being the smartest move"  
[X Link](https://x.com/anyuser/status/1997085828804481282)  2025-12-05T23:29Z [--] followers, [--] engagements


"RT @elonmusk: An immediate increase in the birth rate is needed"  
[X Link](https://x.com/anyuser/status/1997054894486773842)  2025-12-05T21:26Z [--] followers, 13.5K engagements


"An immediate increase in the birth rate is needed Birth rates are plummeting in a lot of countries. Population collapse is the greatest threat to civilization. Change needs to happen to save humanity. https://t.co/k3Zgx6cekP Birth rates are plummeting in a lot of countries. Population collapse is the greatest threat to civilization. Change needs to happen to save humanity. https://t.co/k3Zgx6cekP"  
[X Link](https://x.com/anyuser/status/1996874769992651113)  2025-12-05T09:30Z 234.6M followers, 29M engagements


"Birth rates are plummeting in a lot of countries. Population collapse is the greatest threat to civilization. Change needs to happen to save humanity"  
[X Link](https://x.com/anyuser/status/1996859595529298043)  2025-12-05T08:30Z 1.4M followers, 28.2M engagements


"A warning for the Twin Cities ICE IS COMING: I cant give operational details but the FOCUS IS THERE. President Trump has the ENTIRE GOVERNMENT working these cases DEA ATF FBI CBP ICE. If we arrest an alien with drugs DEA prosecutes. If hes got a gun ATF prosecutes BEFORE we deport him. The criminal activity uncovered by DOJ and DHS has moved the Twin Cities up the priority list. -- @RealTomHoman"  
[X Link](https://x.com/anyuser/status/1996026838678741125)  2025-12-03T01:20Z 5.3M followers, 143.9K engagements


"RT @mrpibb: U up Its time to refresh your memory. And your mouth"  
[X Link](https://x.com/anyuser/status/1996120727523606859)  2025-12-03T07:34Z [--] followers, [---] engagements


"U up Its time to refresh your memory. And your mouth"  
[X Link](https://x.com/anyuser/status/1985734875224424797)  2025-11-04T15:44Z [----] followers, 43.5M engagements

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