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Kara in the Chaos ⚡️ posts on TikTok about the most. They currently have XXXXXX followers and XX posts still getting attention that total XXXXXX engagements in the last XX hours.
Top posts by engagements in the last XX hours
"We tired out here. 😮💨 #lifeafterstevensjohnsonsyndrome #stevensjohnsonssyndromesurvivor"
TikTok Link @traumatizedporcupine 2025-10-08T23:02Z 20.3K followers, 164K engagements
"Grateful for my little miracle lenses but holy cow they are high maintenance. Maintaining my scleral lenses are a small price to pay for the gift of being able to use my eyes. #scleralenses #hardcontacts #dryeye #stevensjohnsonsyndrome"
TikTok Link @traumatizedporcupine 2025-09-04T14:17Z 20.4K followers, 1.1M engagements
"Never ever stop advocating for your health. Not when your tired or sick not ever. Especially not when you are tired and sick. Sometimes thats what you need to push through and do so that professionals can see you at your worst and adequately treat you and test you. I know its hard. I know its expensive. I know its scary. But you deserve THE BESF question. Sometimes doctors wont suggest a treatment unless you specifically ask for it. Do your research. Use Chat GPT. You have got this #toxicepidermalnecrolysis #sjs #medicaladvocacy #chronicillness #ziomonitor"
TikTok Link @traumatizedporcupine 2025-10-07T23:02Z 20.4K followers, 72.2K engagements
"Stevens-Johnson Syndrome is a severe allergic reaction caused by a pharmaceutical an infection or of unknown origin. I do not know which medication caused it for me. Some people have a higher likelihood of getting Stevens-Johnson Syndrome than others. Some medications carry greater risk than other. A wide variety of meds can cause this to occur including: UTI meds anti-seizure meds and Advil. It comes on quickly amd spreads quickly. Stevens-Johnson Syndrome is a syndrome that causes flu-like symptoms followed by blisters and peeling of the skin. It also attacks the mucus membranes that line"
TikTok Link @traumatizedporcupine 2025-10-12T01:32Z 20.4K followers, 219.7K engagements
"Im currently on a hiatus from Simponi. Despite the chest pain and thrush Im still holding out hope that it is my miracle. #rheumatoidarthritis #chronicillness #immunocompromised #candidaovergrowth #sclerallenses #simponi"
TikTok Link @traumatizedporcupine 2025-08-07T06:14Z 20.2K followers, 6097 engagements
"Stevens Johnson Syndome and the more severe version called Toxic Epidermal Necrolysis is a rare allergic reaction most often from a pharmaceutical that can be life threatening. It rapidly progresses by the hour. If you or a loved one suspects they are coming down with SJS consider calling 9-1-1 calling your PCP or heading to the nearest emergency room. It normally must be treated in a burn unit. When assessing which hospital to go to look for which ones have burn centers. Two well known burn centers in the USA are The Grossman Burn Center in LA and The Parkland Burn Center in Dallas. Remember"
TikTok Link @traumatizedporcupine 2025-07-15T04:45Z 20.2K followers, 6.6M engagements