Dark | Light
# ![@HorganRoberta Avatar](https://lunarcrush.com/gi/w:26/cr:twitter::1114939783191638019.png) @HorganRoberta Roberta Horgan ๐Ÿ‡ฎ๐Ÿ‡ช

Roberta Horgan ๐Ÿ‡ฎ๐Ÿ‡ช posts on X about ireland, for the, this is, to the the most. They currently have [-----] followers and [---] posts still getting attention that total [-----] engagements in the last [--] hours.

### Engagements: [-----] [#](/creator/twitter::1114939783191638019/interactions)
![Engagements Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::1114939783191638019/c:line/m:interactions.svg)

- [--] Week [-----] -72%
- [--] Months [------] -82%
- [--] Year [------] -84%

### Mentions: [--] [#](/creator/twitter::1114939783191638019/posts_active)
![Mentions Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::1114939783191638019/c:line/m:posts_active.svg)

- [--] Week [--] +20%
- [--] Months [--] +93%
- [--] Year [--] -56%

### Followers: [-----] [#](/creator/twitter::1114939783191638019/followers)
![Followers Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::1114939783191638019/c:line/m:followers.svg)

- [--] Week [-----] -0.12%
- [--] Months [-----] -0.46%
- [--] Year [-----] +3.60%

### CreatorRank: [---------] [#](/creator/twitter::1114939783191638019/influencer_rank)
![CreatorRank Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::1114939783191638019/c:line/m:influencer_rank.svg)

### Social Influence

**Social category influence**
[currencies](/list/currencies)  [countries](/list/countries)  [finance](/list/finance)  [travel destinations](/list/travel-destinations)  [fashion brands](/list/fashion-brands)  [stocks](/list/stocks)  [social networks](/list/social-networks)  [technology brands](/list/technology-brands)  [musicians](/list/musicians) 

**Social topic influence**
[ireland](/topic/ireland), [for the](/topic/for-the), [this is](/topic/this-is), [to the](/topic/to-the), [happy](/topic/happy), [hope](/topic/hope), [push](/topic/push), [we are](/topic/we-are), [community](/topic/community), [people with](/topic/people-with)
### Top Social Posts
Top posts by engagements in the last [--] hours

"Did you know that the PLSD also has a very handy risk calculator that #LynchSyndrome carriers can use to help determine their #cancerrisk based on age gender and the gene involved ๐Ÿ‘€"  
[X Link](https://x.com/HorganRoberta/status/1675825775738494981)  2023-07-03T11:16Z [----] followers, [----] engagements


"@Doctor_IMF @dee_laah @cardiffuni @long_covid No thanks I'd honestly rather drink [--] liters of Moviprep ๐Ÿซ  The optometrist give you any timeframe on when you might see an improvement I really feel for you Ian ๐Ÿซ‚ must be awful to put up with"  
[X Link](https://x.com/HorganRoberta/status/1679129977076236291)  2023-07-12T16:59Z [----] followers, [--] engagements


"This Did you know people with #LynchSyndrome have a greatly increased risk of developing #EndometrialCancer And are also at increased risk for #OvarianCancer And these cancers affect people at a younger age than seen in the general population #CancerGenetics"  
[X Link](https://x.com/HorganRoberta/status/1689642730488840192)  2023-08-10T14:19Z [----] followers, [----] engagements


"Great to see this happening #HPV vaccine now available to young men who missed out on the opportunity when in school. Register here #ThankYouLaura #VaccinesSavelives โค https://www.hse.ie/eng/health/immunisation/pubinfo/schoolprog/hpv/ Wonderful news that The Laura Brennan HPV Vaccine Catch-up Programme is expanding to include men up to [--] yrs old. The vaccine protects against the types of HPV that cause approx 90% of cervical cancers 90-95% of HPV-related anal cancer and 90% of genital warts. #ThankYouLaura https://t.co/4CzjX0sZ97"  
[X Link](https://x.com/HorganRoberta/status/1694995656975307120)  2023-08-25T08:50Z [----] followers, [---] engagements


"๐Ÿšจ Opportunity for people with experience of #Colorectalcancer to help shape research improve understanding of the disease and ultimately help their community. I can't stress enough how necessary & valued your voice is. #PPI is worthwhile & rewarding work ๐Ÿค“ #GetInvolved ๐Ÿ‘‡"  
[X Link](https://x.com/HorganRoberta/status/1699049422804410754)  2023-09-05T13:18Z [----] followers, [----] engagements


"Humbling to see these scholars present their exciting work. Circular RNA biomarkers for early detection TIGIT influence on anti-tumour response cells novel drug delivery systems. Just wow Much needed hope for those facing poor prognosis cancers ๐Ÿ’™ #CancerResearch #Hope"  
[X Link](https://x.com/HorganRoberta/status/1699450418936299901)  2023-09-06T15:52Z [----] followers, [---] engagements


"Oh my God I love this ๐Ÿ˜ Join @walls2 @Aladinsane40 @Bcgkelly and take the #TheBigProstate Quiz ๐Ÿ’™ Too many men dying from this treatable cancer like my lovely uncle. Open conversation risk-factor and symptom awareness is how you #StandUpForYourProstate [--] minutes well spent"  
[X Link](https://x.com/anyuser/status/1701223476369977823)  2023-09-11T13:17Z [--] followers, [---] engagements


"@kimmykims33 Aw Kim ๐Ÿ˜ฎ That's awful. After all the waiting and I'm sure a lot of organisation( work kids ect) gutted for you. It's not good enough by a mile. Hugs xx"  
[X Link](https://x.com/HorganRoberta/status/1702330790414348607)  2023-09-14T14:37Z [----] followers, [--] engagements


"#WorldCancerResearchDay โค Big shout out to all the individuals & organisations that include #PPI in their research. Thank you for recognising the value of our contribution. Thank you for giving us a voice enabling us to help ourselves and our loved ones. It matters greatly ๐Ÿฅฐ"  
[X Link](https://x.com/HorganRoberta/status/1705926216471945355)  2023-09-24T12:44Z [----] followers, [----] engagements


"Happy birthday Jerry. You'd be [--] today. Over two decades of absence felt by our family. Your twin sister blows out your candles. Research has saved your nieces from the same faith. My twin & I will blow out our candles together. #WorldCancerResearchDay #ResearchSavesLives #CRC"  
[X Link](https://x.com/anyuser/status/1705945905709363586)  2023-09-24T14:02Z [----] followers, [----] engagements


"@drawstickpeople @MidlifeMisfit @ehgkulow @grannysurgeon @Jdavis_Halton @jsadurski @KmMaimone @laurasweetjane @ls_mchandler @Tratra_d @Marylaw59112593 @McknightLaura @MHPoison1 @momstinfoilhat @Mozzer2015 @NurseGomer @ms_butterfly03 @NotClever4 @petvets37 Wow what is that It's beautiful ๐Ÿ˜โค"  
[X Link](https://x.com/HorganRoberta/status/1707707333420155172)  2023-09-29T10:42Z [----] followers, [--] engagements


"This This all day Embedding patients throughout all stages of research should be standard. We've much to offer each other. Patients+professionals+ populations = meaningful real world evidence. #EHTG #PatientsInvolved #NothingAboutUsWithoutUs #PPI #TogetherWeCanDoMore"  
[X Link](https://x.com/HorganRoberta/status/1708416018429727070)  2023-10-01T09:38Z [----] followers, [----] engagements


"Puts a warm feeling in my heart to see the patient voice bellowing through the halls of academia. without it patient centered care is lost. Thank you @PotisDR for your incredible support in this area. You are a fantastic advocate for true holistic care ๐Ÿ™โ™ฅ"  
[X Link](https://x.com/HorganRoberta/status/1708425729011032324)  2023-10-01T10:16Z [----] followers, [---] engagements


"Encouraging presentation from Lars Lindbergh #EHTG23 ๐Ÿ‘ Many times @Lynchsyndromirl have raised the need for a similar model to support probands inform family members of their potential cancer-risk & improve uptake of cascade testing in Ireland. It can & should be done @hseNCCP"  
[X Link](https://x.com/HorganRoberta/status/1709241448795713773)  2023-10-03T16:18Z [----] followers, [---] engagements


"What ๐Ÿ˜ง @DonnellyStephen last week you opened EU Cancer Mission Day and this week you're deciding that cancer patients who're desperately waiting on life-saving drug developments are not worthy of hope I'm at a loss here how is this acceptable to you Horrendous altogether. Shocking news for cancer patients as @DonnellyStephen has warned there will be no funding for new medicines amid budget challenges. @davidcullinane @RoisinShortall @GaryGannonTD @WaterfordMafia @HorganRoberta @RayMcDermott1 @DrRobertOConnor https://t.co/zligsJlosI Shocking news for cancer patients as @DonnellyStephen has"  
[X Link](https://x.com/anyuser/status/1710210057915273367)  2023-10-06T08:27Z [----] followers, [----] engagements


""If he had been in a surveillance programme due to the lynch syndrome he has his cancer may have been discovered at a earlier stage. He is urging anyone with a family history of bowel cancer to reach out to their GP and question if they are eligible for testing.""  
[X Link](https://x.com/HorganRoberta/status/1710986781112328517)  2023-10-08T11:53Z [----] followers, [----] engagements


"@hole_cancer Shock is right From yesterdays hope for new avenues to explore to todays awful news ๐Ÿ’” Maybe things could be different if only her concerns were heard and acted on sooner. Just maybe. that's a hard pill to swallow and it haunts me. Poor girl ๐Ÿ˜ญ"  
[X Link](https://x.com/HorganRoberta/status/1715767257354174575)  2023-10-21T16:29Z [----] followers, [---] engagements


"This is just too sad ๐Ÿ˜ญ Jen did so much to raise awareness of #ColorectalCancer especially in younger people and gave so much of her time to support others who are dealing with cancer. Heartbroken for her family and friends. Rest easy beautiful Jen ๐Ÿ’” #NeverTooYoung"  
[X Link](https://x.com/HorganRoberta/status/1718707391305240709)  2023-10-29T19:12Z [----] followers, [----] engagements


"Best costume award goes to. ๐Ÿ˜‚๐Ÿ™Œ Had a great giggle at the legend that is @ClodaghDowning doing her bit to raise awareness of #ColorectalCancer this Halloween ๐Ÿ’ฉ #NeverTooYoung #BowelCancerAwareness #GetChecked"  
[X Link](https://x.com/HorganRoberta/status/1719346485462982918)  2023-10-31T13:32Z [----] followers, [----] engagements


"@smulcahysymmons @druryal @GilmoreJNurse @ClionaNi @suzie_guerin @deepend_ireland @nalaireland @NSShse @hseNCCP @HSE_SI @patrickod9 Have promoted in LS Ireland patient group"  
[X Link](https://x.com/HorganRoberta/status/1719704274567905368)  2023-11-01T13:13Z [----] followers, [--] engagements


"This #LynchSyndrome might be better known for its links to bowel cancer but it also increases risk for #ovariancancer yet no automatic screening of ovarian tumours for LS here in Ireland. I really hope this changes someday. @hseNCCP"  
[X Link](https://x.com/HorganRoberta/status/1721095029366591959)  2023-11-05T09:20Z [----] followers, [----] engagements


"A fabulous announcement on #GCAwarenessDay โค Huge congrats @RosieOShea5 ๐ŸŽ‰ VERY important project - New @IrishCancerSoc funded research study to develop and evaluate digital cascade genetic testing. @Lynchsyndromirl are super excited ๐Ÿ˜€"  
[X Link](https://x.com/HorganRoberta/status/1722545934473494647)  2023-11-09T09:25Z [----] followers, [----] engagements


"@MickOrMickATX @DilW What would you know about it as an American living the other side of the world. She lives here and she's spot on. Majority of Irish people are appalled by the hate and destruction caused by racists"  
[X Link](https://x.com/HorganRoberta/status/1728333472031257015)  2023-11-25T08:43Z [----] followers, [---] engagements


"@dunkingwithfish Happy Birthday to your mother Shelia ๐Ÿฅณ"  
[X Link](https://x.com/HorganRoberta/status/1729919092604199027)  2023-11-29T17:43Z [----] followers, [--] engagements


"People who receive a terminal illness diagnosis should never have to endure the added stress of fighting for benefits to keep a roof over their heads and ensure food on the table but sadly Mark has been fighting for just that for years now. Please support his cause ๐Ÿ™๐Ÿฅฒ"  
[X Link](https://x.com/HorganRoberta/status/1732455087258087712)  2023-12-06T17:40Z [----] followers, [----] engagements


"It's taken me a few days to absorb the incredible @ColoMARK_DN event at @UCD_Conway institute that I was very fortunate to be a part of with my @Lynchsyndromirl crew and @IEColonCancer under the guidance of the marvelous Prof Amanda McCann & lovely Elaine Quinn @PVCR_Ireland 1/"  
[X Link](https://x.com/HorganRoberta/status/1736556981417021818)  2023-12-18T01:20Z [----] followers, [----] engagements


"Thank YOU for creating this wonderful opportunity for us all. Your dedication to the patient voice is lifting us all and helping us to help others. It's an incredible community that I'm so grateful to be a part of. So much love for team @PVCR_Ireland ๐Ÿค—โค"  
[X Link](https://x.com/HorganRoberta/status/1737127706234335305)  2023-12-19T15:08Z [----] followers, [---] engagements


"I've come to know many #LynchSyndrome families all with their own stories of devasting generational illness and loss endured before a diagnosis enabled them to greatly manage/reduce their risk of dieing from cancer. Pls RT below post ๐Ÿ™๐Ÿ™‚ An estimated 95% of people living with this condition in the UK are not yet diagnosed- lets find them and provide the support they deserve. Please get in touch if I can support you or your cancer MDTs with #lynchsyndrome pathways #NHS An estimated 95% of people living with this condition in the UK are not yet diagnosed- lets find them and provide the support"  
[X Link](https://x.com/HorganRoberta/status/1744097942280003915)  2024-01-07T20:45Z [----] followers, [----] engagements


"@MyriamChalabi @NatureMedicine Huge congrats ๐Ÿ‘๐ŸŽ‰"  
[X Link](https://x.com/HorganRoberta/status/1744317276801703988)  2024-01-08T11:17Z [----] followers, [---] engagements


"@deshocks Best wishes and huge congrats โค"  
[X Link](https://x.com/anyuser/status/1749608910678348146)  2024-01-23T01:44Z [--] followers, [--] engagements


"It's wonderful to see new clinical trials for #colorectalcancer taking off in Ireland ๐Ÿคฉ Very best wishes to all involved especially the patients ๐Ÿ’™ #ClinicalTrials Excited to initiate the Mountaineer-03 study offering Tucatinib and Trastuzumab in combination with mFOLFOX6 vs SOC in first line setting for HER2+ mCRC. PI of the study is @DrHealeyBird #HER2+ #colorectalcancer #mCRC @UCCCancerTrials @CRF_CORK @CanResUCC @cancertrials_ie Excited to initiate the Mountaineer-03 study offering Tucatinib and Trastuzumab in combination with mFOLFOX6 vs SOC in first line setting for HER2+ mCRC. PI of"  
[X Link](https://x.com/HorganRoberta/status/1750203519452266821)  2024-01-24T17:06Z [----] followers, [----] engagements


"@josepereag @escp_tweets @AECP_FAECP @aecirujanos @IBSAL_IIS Congrats Jos ๐Ÿ‘"  
[X Link](https://x.com/anyuser/status/1751929676035936596)  2024-01-29T11:25Z [--] followers, [---] engagements


"@JulianBarwell @Neeta__Kulkarni Congrats Julian"  
[X Link](https://x.com/HorganRoberta/status/1754929022306271599)  2024-02-06T18:04Z [----] followers, [--] engagements


"@1dor Happy birthday to your lovely Mammy โค๐Ÿฅณ๐ŸŽ‚"  
[X Link](https://x.com/HorganRoberta/status/1761360673282387974)  2024-02-24T12:01Z [----] followers, [--] engagements


"This is frightening. This is a screenable cancer that in many cases can be prevented. Most screening programmes for #ColorectalCancers only offered to those [--]. In Ireland not offered until [--] with plans to reducing screening age to [--]. It won't be enough to tackle this crisis. ๐Ÿ’กThe American Cancer Society reported that the proportion of CRC cases among adults younger than [--] increased from 11% in [----] to 20% in [----]. ๐Ÿ’กThe incidence of early-age onset CRC is expected to increase more than 140% by [----]. #ColorectalCancerAwarenessMonth ๐Ÿ’กThe American Cancer Society reported that the"  
[X Link](https://x.com/HorganRoberta/status/1764314658343649536)  2024-03-03T15:39Z [----] followers, [----] engagements


"@BreastDense @EUSOBIyc @mammoscreen_prj @UCDCancerTrials @EACRnews @News_IACR @AACR @NSShse I know the battles you continue to face. It shouldn't be this hard. But you don't give up Siobhn you step up and that will make the difference. Some day breast density notification will be standard here thanks to your unwavering advocacy โค"  
[X Link](https://x.com/HorganRoberta/status/1764650224834715966)  2024-03-04T13:52Z [----] followers, [--] engagements


"@sullydaysleeper Happy Birthday Beautiful ๐Ÿฅณ๐ŸŽ‰๐ŸŽ‚"  
[X Link](https://x.com/HorganRoberta/status/1765476418878603623)  2024-03-06T20:35Z [----] followers, [--] engagements


"@lilycogan @joancooke5 Happy birthday Lily ๐Ÿฅณ๐ŸŽ‰"  
[X Link](https://x.com/HorganRoberta/status/1765476560335974571)  2024-03-06T20:36Z [----] followers, [--] engagements


"@mtully21 He's just the cutest little boy ever Maureen โค"  
[X Link](https://x.com/HorganRoberta/status/1770550808393703879)  2024-03-20T20:39Z [----] followers, [--] engagements


"If anyone knows Millie in the daffodil center in @svuh can you give her our thanks for directing people affected by Lynch Syndrome to LS Ireland for peer-support. You are awesome Millie โค๐Ÿค— #CancerSupport"  
[X Link](https://x.com/HorganRoberta/status/1773366549136417165)  2024-03-28T15:08Z [----] followers, [---] engagements


"@NoeleenMcLaugh2 It's great to have someone like that and you're a great muse for her talent. I've often been tempted to to say "do whatever you like " to the hairdresser. but I'm not brave enough ๐Ÿ˜…"  
[X Link](https://x.com/HorganRoberta/status/1773825210988273868)  2024-03-29T21:31Z [----] followers, [--] engagements


"2500+ people diagnosed with #ColorectalCancer in Ireland each year and sadly many of those will be found to have advanced disease. People like Clodagh Niamh Dee & Mick. Hear their powerful message and be proactive if you've any concerns about your bowel health. #NoRegrets ๐Ÿ’™ As we get ready to launch this years Bowel Cancer Awareness Month Campaign tomorrow we want to reflect on last years powerful #NoRegrets campaign. . Thanks to @IEColonCancer - Bowel Cancer Ireland. #NoRegrets #BowelCancer https://t.co/bS2uBIcASl As we get ready to launch this years Bowel Cancer Awareness Month Campaign"  
[X Link](https://x.com/HorganRoberta/status/1775206774041092273)  2024-04-02T17:00Z [----] followers, [---] engagements


"A loved one recently diagnosed with stage [--] cancer has been denied a #MedicalCard She's unable to work due to effects of chemo which she will be on indefinitely. This is disgusting @HSELive do you not care about this added stress you're placing on people"  
[X Link](https://x.com/anyuser/status/1779091228639817885)  2024-04-13T10:16Z [----] followers, 323.5K engagements


"@motionsetc @mtully21 @HSELive @DonnellyStephen @IrishCancerSoc Thanks for the support Frances. Medical cards are the domain of the HSE. In fairness to ICS they've been strong advocates on this issue along with many others that negatively affect cancer patients. HSE need to step up big time"  
[X Link](https://x.com/HorganRoberta/status/1779099493129982317)  2024-04-13T10:49Z [----] followers, [----] engagements


"@IrexitFreedom How dare you use my post about a families members cancer experience to push your own unrelated agenda. Don't think I've ever even seen you advocate for cancer patients You're disgusting. Shame on you"  
[X Link](https://x.com/anyuser/status/1779522738962518507)  2024-04-14T14:50Z [----] followers, 11.6K engagements


"Shameful and disgusting to hijack my post about a loved ones cancer experience to push your own agenda. You couldn't care less about us. Delete it if you've any decency at all. This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom"  
[X Link](https://x.com/anyuser/status/1779523609620353372)  2024-04-14T14:54Z [----] followers, 99.2K engagements


"@BrownSM1973 @BernardGloster @HSELive She's family ๐Ÿฅน I'm a patient advocate for people affected by hereditary cancers you'd be shocked by many struggle to get the required supports. It shouldn't take a social media post but often it's the only way to raise important issues"  
[X Link](https://x.com/HorganRoberta/status/1780131086669844758)  2024-04-16T07:08Z [----] followers, [---] engagements


"@ChrisDorrell @ucddublin Aww Chris ๐Ÿ™ you're always so supportive thank you ๐Ÿ’–"  
[X Link](https://x.com/HorganRoberta/status/1780159359659515916)  2024-04-16T09:00Z [----] followers, [--] engagements


"@PotisDR @ucddublin Aww thanks Celia ๐Ÿฅน๐Ÿ™ It was such a boost for the Irish LS community to know [---] of our future healthcare professionals will be Lynch aware. It will have a very positive impact on the patient experience. We are very grateful to @PVCR_Ireland ๐Ÿซถ"  
[X Link](https://x.com/HorganRoberta/status/1780962834534355204)  2024-04-18T14:13Z [----] followers, [--] engagements


"I can't praise you enough @PVCR_Ireland for being so dedicated to the #PatientVoice and for providing me with this incredible opportunity to raise #LynchSyndromeAwareness amongst our future healthcare professionals. It means the world to our community ๐Ÿฅนโค Thank you ๐Ÿ™ Rocked it ๐ŸŒŸ๐Ÿ’ช- powerful insights Roberta that med students will bring with them to the #clinic. Rocked it ๐ŸŒŸ๐Ÿ’ช- powerful insights Roberta that med students will bring with them to the #clinic"  
[X Link](https://x.com/HorganRoberta/status/1780964055617818853)  2024-04-18T14:18Z [----] followers, [---] engagements


"This Reg colonoscopy for CRC along with prophylactic risk-reduction gynea surgeries help give reassurance to people with #LynchSyndrome but what about the other cancers involved A source of worry for people especially if they've a family history of #UrologicalCancer Professor Sir John Burn @CaPP3 presenting data on other #Lynchsyndrome related cancers - really important to remember its not just colorectal cancer https://t.co/sfUZl3XaQv Professor Sir John Burn @CaPP3 presenting data on other #Lynchsyndrome related cancers - really important to remember its not just colorectal cancer"  
[X Link](https://x.com/HorganRoberta/status/1783857229197685203)  2024-04-26T13:54Z [----] followers, [---] engagements


"@drawstickpeople @EJ_Mulholland @Doctor_IMF No better man than Ian I keep forgetting the time difference ๐Ÿ˜ฌ get some rest lovely xx"  
[X Link](https://x.com/HorganRoberta/status/1785944342445662553)  2024-05-02T08:08Z [----] followers, [--] engagements


"I adore this man. The magnificent Brendan Muldoon celebrating [--] yrs on from chemo induced double hip replacement ๐Ÿฅน Bren is a huge source of inspiration to us all at @Lynchsyndromirl We don't call him the #LynchLegend for nothing โค #BowelCancer #Thriving #LynchSyndrome"  
[X Link](https://x.com/anyuser/status/1786131375386407277)  2024-05-02T20:31Z [----] followers, [----] engagements


"@BEAUTIFULMUMSIE @Lynchsyndromirl I'm sure he felt the same meeting you ๐Ÿฅฐ When I was in UCD to take part in the live MDT CRC meeting myself and Prof Amanda McCann were talking about how lovely you are and good you were to come all the way from Scotland to support the ColoMark DCs ๐Ÿ˜Š๐Ÿซถ"  
[X Link](https://x.com/HorganRoberta/status/1786312340129849762)  2024-05-03T08:30Z [----] followers, [--] engagements


"@mtully21 @Smartheat Happy birthday beautiful Pat ๐Ÿฅณ๐Ÿ’๐Ÿ’•"  
[X Link](https://x.com/HorganRoberta/status/1789966469163335768)  2024-05-13T10:30Z [----] followers, [--] engagements


"@NiecyOKeeffe Watery ๐Ÿ˜‚ and the Elvis bit at the end They need their own show"  
[X Link](https://x.com/HorganRoberta/status/1791158819650724125)  2024-05-16T17:28Z [----] followers, [--] engagements


"@AverilLarke Happy birthday Averil enjoy your special day xx ๐ŸŽ‰๐ŸŽ‚๐Ÿฅณ"  
[X Link](https://x.com/HorganRoberta/status/1792171343724610043)  2024-05-19T12:31Z [----] followers, [--] engagements


"@NiecyOKeeffe Everyone has a favourite seat. Ollie's making sure you know which is his. His face is giving "I feckin dare ya touch it" ๐Ÿ˜‚"  
[X Link](https://x.com/HorganRoberta/status/1795188979341328815)  2024-05-27T20:23Z [----] followers, [--] engagements


"@Deeisnotmyname7 @Dr_Red_Gamer Seeing as you are badly in need of education I can send you information on Lynch syndrome and other hereditary cancer syndromes that greatly increases risk of developing colorectal cancers if you like Unless of course you've no interest in learning anything"  
[X Link](https://x.com/HorganRoberta/status/1796457721136583112)  2024-05-31T08:24Z [----] followers, [--] engagements


"Calling all #LynchSyndrome #BRCA advocates. Fancy having a chat with the loveliest research team about your use of social media to support people affected by these conditions I recently took part and it was a great experience. Highly recommend taking part. #CancerResearch ๐Ÿ“ข๐Ÿ“ขWe are speaking to advocates creators & influencers who discuss #LynchSyndrome/#BRCA on social media & it's truly amazing to learn about their work to share information personal stories and expertise๐Ÿคณ๐Ÿ‘ฉ๐ŸŽ“ Would you like to know more about our project Have a look at this๐Ÿ‘‡ https://t.co/0yUZ87SauE ๐Ÿ“ข๐Ÿ“ขWe are speaking to"  
[X Link](https://x.com/HorganRoberta/status/1800124531413221783)  2024-06-10T11:15Z [----] followers, [----] engagements


"@stefaniavicari Delighted to promote it's a very interesting area to explore and I personally got a lot out of taking part. Good to stop and reflect on how we use social media in the advocacy space. I've a feeling @brca_ireland would enjoy contributing ๐Ÿคž"  
[X Link](https://x.com/HorganRoberta/status/1800195896812192136)  2024-06-10T15:58Z [----] followers, [--] engagements


"@thesaltiestcow Happy birthday beautiful ๐ŸŽ‰๐Ÿ’œ and cancerversary ๐Ÿ™ I hate that you've suffered all that you have to get here and I'm grateful that you choose to openly share to raise awareness and create support. Hugs ๐Ÿค—๐Ÿ’œ"  
[X Link](https://x.com/HorganRoberta/status/1803429317176701102)  2024-06-19T14:07Z [----] followers, [--] engagements


"@Jdavis_Halton @drawstickpeople @Dr_Polarbird @drtwillett @ebflute @ehgkulow @ellezbee @Ezim79 @gilliar_do @grannysurgeon @HeatherUpLeft @jennybencardino @jsadurski @julialkRN @killersumobunny @KmMaimone @laurasweetjane @ls_mchandler @malefitness @Marylaw59112593 It's like a painting โค"  
[X Link](https://x.com/HorganRoberta/status/1804215153145098387)  2024-06-21T18:09Z [----] followers, [--] engagements


"As it should be. Costs should never be a barrier for people trying to be proactive in reducing risk and detecting #ColorectalCancer early. Too many people are dying from this disease. #ScreeningSavesLives We won't stop fighting until every American has no-cost access to life-saving screenings. ๐Ÿ’ช https://t.co/GB10FyXGZJ We won't stop fighting until every American has no-cost access to life-saving screenings. ๐Ÿ’ช https://t.co/GB10FyXGZJ"  
[X Link](https://x.com/HorganRoberta/status/1805263218345918600)  2024-06-24T15:34Z [----] followers, [---] engagements


"@AoifeTDoyle Happy Birthday Aoife ๐ŸŽ‰"  
[X Link](https://x.com/HorganRoberta/status/1806745848241377401)  2024-06-28T17:45Z [----] followers, [--] engagements


"@NFitzPsychology Happy birthday Niamh. A very emotional one I'm sure. Dara is watching over you with great love and pride. Hugs xx ๐Ÿซ‚โค"  
[X Link](https://x.com/HorganRoberta/status/1816189673598861808)  2024-07-24T19:12Z [----] followers, [--] engagements


"Cocktail time๐Ÿธ granted not my fave but needs must to check on production at the polyp farm (aka my bowel) ๐Ÿ’ฉ So what's it like to prepare for and undergo #colonoscopy I made a lil ๐Ÿงต before on my experience ๐Ÿ‘€๐Ÿ‘‡#PolyposisSyndrome #BowelCancer #RiskManagement #EarlyDetection Fear of the unknown can deter people from participating in #colonoscopy which is the gold standard for prevention and early detection of bowel cancer. So as it's #BowelCancerAwarenessMonth I'm making this thread to share my experience of undergoing regular screenings Fear of the unknown can deter people from participating"  
[X Link](https://x.com/anyuser/status/1818282884525899941)  2024-07-30T13:49Z [----] followers, 25K engagements


"@GaryHooker16 Happy Birthday Gary ๐Ÿฅณ๐ŸŽ‰๐Ÿ’ช"  
[X Link](https://x.com/HorganRoberta/status/1818967934728806901)  2024-08-01T11:12Z [----] followers, [--] engagements


"@mtully21 @lolatully Gorgeous pics ๐Ÿ˜ He's so adorable"  
[X Link](https://x.com/HorganRoberta/status/1820814540570763414)  2024-08-06T13:29Z [----] followers, [--] engagements


"@DeasyPamela The losses are so hard Pamela you carry each with you ๐Ÿ’” Through your advocacy you not only improve the situation for those who will be diagnosed with this cancer in the future but you greatly honour all those precious lives taken xx ๐Ÿ’œ"  
[X Link](https://x.com/HorganRoberta/status/1822948429737148703)  2024-08-12T10:49Z [----] followers, [--] engagements


"#ColorectalCancer in #LynchSyndrome MSH6 carriers display lower #MSI which may point to lower gene penetrance & later onset disease compared to those with alterations in the other MMR genes but may also render #Immunotherapy less effective in this group. https://www.biorxiv.org/content/10.1101/2024.08.12.607570v1ct= https://www.biorxiv.org/content/10.1101/2024.08.12.607570v1ct="  
[X Link](https://x.com/HorganRoberta/status/1823685050610720894)  2024-08-14T11:36Z [----] followers, [---] engagements


"A very honest and enlightening thread on why you never tell a man that's living with a life changing diagnosis they got the "good cancer". No cancer is good. Well done @ethansgrumps for raising awareness of the impact of #ProstateCancer on physical and mental health ๐Ÿ’™ #prostatecancer a ๐Ÿงต Ive been told at least you got the good cancer to get so I thought Id do a ๐Ÿงต about what a stage [--] incurable cancer is really like and the impact on life. Lets start with the treatment for it which the mainstay of is removal of male hormone 1/ #prostatecancer a ๐Ÿงต Ive been told at least you got the good"  
[X Link](https://x.com/HorganRoberta/status/1824164352846332254)  2024-08-15T19:20Z [----] followers, [----] engagements


"@EricabennettRTT @BonsCancerCork @UPMCinIreland @ThisIsKathyRock @ais_kerry @PaulKRadiation @MaryHickeyRT Wonderful โ™ฅ well done all ๐Ÿ‘"  
[X Link](https://x.com/HorganRoberta/status/1824781463650238472)  2024-08-17T12:12Z [----] followers, [--] engagements


"@BairdAM Happy Birthday Anne-Marie ๐Ÿฅณ๐ŸŽ‚"  
[X Link](https://x.com/HorganRoberta/status/1825622730961518957)  2024-08-19T19:55Z [----] followers, [--] engagements


"@22Q11_Ireland Well said. Terrible that it needs to be said though ๐Ÿ’”"  
[X Link](https://x.com/HorganRoberta/status/1826627056178004314)  2024-08-22T14:26Z [----] followers, [--] engagements


"@Mayer46231196 I had the pleasure of meeting Jane earlier this year. She was so lovely. Sadly Like many young people with CRC she was diagnosed with advanced disease ๐Ÿ’” She worked so hard to raise awareness and call for lowered screening age. So tired of this rotten disease ๐Ÿ˜ฅ"  
[X Link](https://x.com/HorganRoberta/status/1828433095898362072)  2024-08-27T14:03Z [----] followers, [--] engagements


"On the Sligo-Dublin train and they're making announcements like "Enjoy the races Paddy & Oonagh hope you've a winner" " to our American passengers getting off in Mullingar on their way to the first bacon & cabbage dinner congratulations" ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ‘ @IrishRail"  
[X Link](https://x.com/HorganRoberta/status/1829884680696709452)  2024-08-31T14:11Z [----] followers, [----] engagements


"@aideenryan1 @MichaelRynne1 @BreakthroCancer Teamwork makes the dream work ๐Ÿ˜Š Thank you Aideen not only for your incredible work in immunology but also for all your support. I really appreciate you ๐Ÿ™ I'm so sorry I had to dash for the train and didn't get a chance to thank you in person xx"  
[X Link](https://x.com/HorganRoberta/status/1830299756666736925)  2024-09-01T17:40Z [----] followers, [--] engagements


"A rising star Had the pleasure of being a patient partner at a @PVCR_Ireland communications workshop and her ability to connect with & understand patients & use their input to make her work accessible to all is to be greatly admired. Huge congrats @fayee_lewis well deserved๐Ÿ‘โค Well done to our @CluB_Cancer1 #PhD student @fayee_lewis for being selected for an ePoster at the IGCS-IGCAN Gynecologic Cancer Survivor-Caregiver Advocacy Summit @IGCSociety @TheCCD @TCDTMI @tcdTBSI @CancerInstIRE @TCDPharmacy @QubPGJCCR @pilib_ @hea_irl #NSRPproject. https://t.co/8Y8TFESOtH Well done to our"  
[X Link](https://x.com/HorganRoberta/status/1830572293224849510)  2024-09-02T11:43Z [----] followers, [---] engagements


"@Lynchtr5 @sarahcorbettly1 Happy birthday beautiful Sarah ๐ŸŽ‰๐Ÿฅณ"  
[X Link](https://x.com/HorganRoberta/status/1830576458156167464)  2024-09-02T12:00Z [----] followers, [--] engagements


"@Ontheboldstep @MaryButlerTD @SimonHarrisTD @DonnellyStephen Is there seriously only [--] public beds ๐Ÿ˜ณ That's an absolute disgrace"  
[X Link](https://x.com/HorganRoberta/status/1830581262148305109)  2024-09-02T12:19Z [----] followers, [--] engagements


"Only a few days left to register for this great course. So many families impacted by #HereditaryCancer syndromes need as many people as possible working in healthcare to be knowledgable on #CancerGenetics & #Genomics in order to insure timely diagnosis & correct care. ๐Ÿ“ขDeadline for Cancer Genetics and Genomics extended to [--] September. This course is delivered virtually for those wishing to advance their professional skills in the area of Cancer Genetics and Genomics. [--] CPD Credits Book now ๐Ÿ‘‰ https://t.co/kpym28ddLp https://t.co/q3MH9QKz9u ๐Ÿ“ขDeadline for Cancer Genetics and Genomics"  
[X Link](https://x.com/HorganRoberta/status/1830996785797509406)  2024-09-03T15:50Z [----] followers, [----] engagements


"@frillyflossy @SarahFitzWiMIN Same. I'm a very "live let live" type of person and don't really do anger but this makes my blood boil. I can't understand for the life of me why there aren't any laws in place to hold such grifters accountable. People literally die from their nonsense while they make a profit"  
[X Link](https://x.com/HorganRoberta/status/1831033522293035460)  2024-09-03T18:16Z [----] followers, [---] engagements


"@GillSherratt23 @CHI_Ireland @scolionetwork @SBH_PAG @Adam_Higgins27 @AccessForAll7 @davidcullinane @MaryLouMcDonald @RuthCoppingerSP @wereontheditch @TomClonan I'm so sorry you've been so badly let down. It's horrendous. Poor Harvey ๐Ÿ’”"  
[X Link](https://x.com/HorganRoberta/status/1835261601252819018)  2024-09-15T10:17Z [----] followers, [--] engagements


"Thinking of Laura and her family today ๐ŸŽˆ Happy Birthday Laura . You changed the world โค #HVP #ThankYouLaura ๐ŸŽˆ๐Ÿ™ Laura Brennan would have been [--] years old today. After her cancer diagnosis and until her death in [----] she campaigned to encourage parents to get the facts on the #HPVvaccine. The vaccine helps protect young people from the HPV virus which can cause cervical and other cancers https://t.co/Pc3z6MTWJ3 Laura Brennan would have been [--] years old today. After her cancer diagnosis and until her death in [----] she campaigned to encourage parents to get the facts on the #HPVvaccine. The"  
[X Link](https://x.com/HorganRoberta/status/1840889186058199512)  2024-09-30T22:59Z [----] followers, [----] engagements


"@AnSafiak Happy Birthday Jonaton ๐ŸŽ‚๐ŸŽ‰"  
[X Link](https://x.com/HorganRoberta/status/1846553112342900884)  2024-10-16T14:05Z [----] followers, [--] engagements


"@NEYGenomics It has moved me to tears in a good way. So much of what he describes resonates deeply. Getting the diagnosis finding your tribe and then sharing that unique knowledge base and your family experiences to help bring awareness support understanding and improvements โค๐Ÿ™Œ"  
[X Link](https://x.com/HorganRoberta/status/1848349682134573468)  2024-10-21T13:04Z [----] followers, [--] engagements


"@Rheum2improve @Primark Disappointing from @Primark. I'm happy to purchase some pjs in various sizes and ship to you for your patients or give funds if more appropriate I'd love to help in some way"  
[X Link](https://x.com/HorganRoberta/status/1848793959788859664)  2024-10-22T18:30Z [----] followers, [----] engagements


"@Rheum2improve @Primark Not wild at all basic needs along with underwear and safe slippers/footwear. It's sad anyone should be without in that situation a little comfort and dignity goes a long way. Pls do let me know what's decided and how to help. It's lovely how you look out for your patients ๐Ÿ˜Š"  
[X Link](https://x.com/HorganRoberta/status/1848814231048605857)  2024-10-22T19:50Z [----] followers, [---] engagements


"@Jdavis_Halton @SheldrickTrust Happy Birthday beautiful Jill ๐ŸŽ‰๐Ÿ’๐ŸŽ‚ awww Larro is magnificent ๐Ÿฅฐ"  
[X Link](https://x.com/HorganRoberta/status/1850610045244907869)  2024-10-27T18:46Z [----] followers, [--] engagements


""Objective: To provide a clear strategy for the management of people at hereditary risk of colorectal cancer (CRC) which includes diagnosis endoscopic management prevention and surgical care." #LynchSyndrome https://t.co/Jj8dkijnfy https://t.co/Jj8dkijnfy"  
[X Link](https://x.com/HorganRoberta/status/1852008977019576451)  2024-10-31T15:25Z [----] followers, [---] engagements


"@MissEims I could do a job on my books with a few cans of metallic spray paint to maintain the aesthetic ๐Ÿ˜‚ Love the shelves. the inscriptions โค"  
[X Link](https://x.com/HorganRoberta/status/1854592184873631977)  2024-11-07T18:30Z [----] followers, [--] engagements


"@VodafoneIreland any chance of home broadband fault being fixed today or do I need to cancel work meetings again Have tried contacting you for information but there's only unhelpful chatbots on offer ๐Ÿ™„"  
[X Link](https://x.com/HorganRoberta/status/1856619139076399247)  2024-11-13T08:44Z [----] followers, [--] engagements


"And you were only amazing @ForryMary highlighting the key role #ANP can play in mainstreaming of cancer genetic testing ๐Ÿ‘ Your commitment & hard work is making a huge difference to families with #HereditaryCancer. Every hospital should have a Mary โค & a @MechelleLoughre Thanks for having me as a panel member at the Inaugural Cancer Genetic Counselling Conference #ICGC2024 A great day of learning making connections and looking to the future. Nothing beats an in person conference https://t.co/9tiaQRwWqN Thanks for having me as a panel member at the Inaugural Cancer Genetic Counselling"  
[X Link](https://x.com/HorganRoberta/status/1860727121032741363)  2024-11-24T16:48Z [----] followers, [---] engagements


"Help needed This lady living with stage [--] #oralcancer would love to connect with people in the #HeadAndNeckCancer space in Canada/US. She's keen to connect with others & use her experiences to support advocacy & research. Anyone able to help her on her quest ๐Ÿ™#CancerCommunity I am struggling to find organizations & conferences around head+neck cancers in Canada OR the states does anyone know where I can find them to get involved @ThanksCancer I am struggling to find organizations & conferences around head+neck cancers in Canada OR the states does anyone know where I can find them to get"  
[X Link](https://x.com/HorganRoberta/status/1863201854068343101)  2024-12-01T12:41Z [----] followers, [---] engagements


"Families can be complicated and it's never easy to relay potential risk of having a condition that greatly increases your risk of developing #Cancer BUT these are potentially lifesaving conversations. Pls have them ๐Ÿ™ #FamilyHealthMatters #HereditaryCancer #KnowledgeIsPower Who should I tell if I have Lynch syndrome https://t.co/Gev8hg01mq via @lynchsyndromirl Who should I tell if I have Lynch syndrome https://t.co/Gev8hg01mq via @lynchsyndromirl"  
[X Link](https://x.com/HorganRoberta/status/1875945030508220887)  2025-01-05T16:38Z [----] followers, [----] engagements


"@maitiuomurchu @mtuttyTCD @prinamea @JacinthaOS @C_CahillTCD @Snowwwweeeee @sgmaher @Niamh_LL Huge congratulations Maiti ๐Ÿ‘๐Ÿฅณ"  
[X Link](https://x.com/HorganRoberta/status/1879600393212277024)  2025-01-15T18:43Z [----] followers, [--] engagements


"Check out this great event. Did you see the line-up of speakers Great to see Mechelle Loughrey will be presenting on her stellar work delivering #ANP led cancer genetics services to aid diagnostics & care for people with #LynchSyndrome ๐Ÿ’™๐Ÿ’ช #NursesForTheWin #CancerGenetics #Savethedate Join us at the 2nd Annual National Cancer Genetics in Nursing Conference on Feb [--] [----] at SVUH Hybrid format attend in person or online. Don't miss expert speakers & valuable insights #RegisterNow: https://t.co/XGn6NWbYIN #CancerGenetics #Nursing #SVUH #Savethedate Join us at the 2nd Annual National Cancer"  
[X Link](https://x.com/HorganRoberta/status/1881760471747064241)  2025-01-21T17:47Z [----] followers, [----] engagements


"Can anyone point Val & her lovely daughter in the right direction ๐Ÿ™ My lovely daughter has been working so hard planning her wedding. She can't get public liability insurance for the community hall. Can anyone help please She's hitting brick walls in every direction. My lovely daughter has been working so hard planning her wedding. She can't get public liability insurance for the community hall. Can anyone help please She's hitting brick walls in every direction"  
[X Link](https://x.com/HorganRoberta/status/1902108137168978361)  2025-03-18T21:21Z [----] followers, [----] engagements


"@PeachyCure It made me grab my now taller than me daughters and hug them so tightly. Nobody should go through what this poor family have ๐Ÿ’” More research into CMMRD is needed"  
[X Link](https://x.com/HorganRoberta/status/1916417390478307387)  2025-04-27T09:01Z [----] followers, [--] engagements


"Folks. I've just totted up my @sseairtricity bill for first [--] months of the year. I nearly fainted. [-------]. At this rate I my annual bill will be over [----] + For a standard [--] bed property ๐Ÿ˜ณ"  
[X Link](https://x.com/anyuser/status/1932074734327353400)  2025-06-09T13:58Z [----] followers, 83.8K engagements


"Great opportunity to use your experience to help others and empower yourself. If you've been affected by #cancer pls consider getting involved in #PPI you will become part of a wonderful community where you could make a real difference ๐Ÿ™‚๐Ÿ™ #YourVoiceMatters #PPI #GetInvolved We are looking for people to become Public and Patient Partners with us - if you've been affected by cancer and are interested please call [--] [---] [----] or email ppi@irishcancer.ie You will be trained up on the process no prior experience required. https://t.co/Sn6j5GgGTp We are looking for people to become Public and"  
[X Link](https://x.com/HorganRoberta/status/1934987308815491073)  2025-06-17T14:51Z [----] followers, [---] engagements


"@Suzieq2021 Aw so sorry your mother has suffered such an injury. Glad surgery went well ๐Ÿ™ WOW look at how amazing she looks She doesn't look a bit of her age and seems to be taking it all in her stride.Great women obviously runs in the family. Wishing her a great recovery xx ๐Ÿค—๐Ÿ’—"  
[X Link](https://x.com/HorganRoberta/status/1938523055115964681)  2025-06-27T09:01Z [----] followers, [--] engagements


"@CCampbell162 Tis ๐Ÿคฃ Mind you the trek home was a far slower affair when weighed down with unintended plants about to pass out in the heat ๐Ÿฅต And I forgot the seaweed feed so I'll have to go back tomorrow ๐Ÿ˜‚"  
[X Link](https://x.com/HorganRoberta/status/1944142294959141155)  2025-07-12T21:10Z [----] followers, [--] engagements


"@CCampbell162 @TraffordPalazzo @OvaCare @Ovacome @TargetOvarian @OvCancerDay @macmillancancer @UCANIRELAND โคThis Christine You are certainly more than enough. You are living your best life in the face of a terminal diagnosis telling the prognosis where to go and bringing great hope to others. All the while championing life saving symptom awareness ๐Ÿฅฐ๐Ÿ™Œ๐Ÿ’ช"  
[X Link](https://x.com/HorganRoberta/status/1946607099481292927)  2025-07-19T16:24Z [----] followers, [--] engagements


"Super excited to see this study ๐Ÿ˜ƒ People with EPCAM #LynchSyndrome are currently lumped in with MSH2 carriers regards risk estimates & surveillance so it will be a huge win for carriers to have good evidence specific to EPCAM. I hope collaborators are breaking down the door๐Ÿคž ๐ŸšจCall for Collaboration๐Ÿšจ We're launching a new study at the PLSD to analyze cancer risks in individuals with germline terminal deletion of EPCAMcharacterizing the fifth Lynch syndrome. Join us in leveraging the Prospective Lynch Syndrome Database for groundbreaking research ๐ŸšจCall for Collaboration๐Ÿšจ We're launching a"  
[X Link](https://x.com/HorganRoberta/status/1950544696029102518)  2025-07-30T13:11Z [----] followers, [---] engagements


"@HSELive @hseNCCP has this gentleman been provided with incorrect information regarding discontinuation of PSA testing for men in Ireland Would greatly appreciate some clarification here please ๐Ÿ™ @HorganRoberta @martins39999412 I was informed by my doctors nurse this week as I went for my blood test that the PSA test is to be discontinued as a result of false positives. Surely this will increase the number of men who will suffer as the alternative test is invasive. @HorganRoberta @martins39999412 I was informed by my doctors nurse this week as I went for my blood test that the PSA test is to"  
[X Link](https://x.com/HorganRoberta/status/1962891492399124668)  2025-09-02T14:52Z [----] followers, [--] engagements


"@josepereag @RCSI_Irl @DrgGastro We are honoured to have you and very grateful for your willingness to travel to Dublin to share your wisdom. It's going to be an epic event for the Irish bowel cancer community ๐Ÿ˜Š๐Ÿ’™"  
[X Link](https://x.com/HorganRoberta/status/1963587523281649691)  2025-09-04T12:58Z [----] followers, [--] engagements


"I've been so incredibly lucky. I got the screening I needed on time. It saved my life. Others are not so lucky and it destroys me to witness the lives unnecessarily lost to late diagnosis. Research like represents hope for more cost-effective accessible #CRC screening methods What if a single drop of blood could help us detect cancer sooner Our DC6 Bahareh Soleimanpour is back from a summer refresh to show us her work on Dynamic Chemical Labelling (DCL) a faster & cheaper way to find early signs of colorectal cancer. https://t.co/9ONqEi4q12 What if a single drop of blood could help us detect"  
[X Link](https://x.com/HorganRoberta/status/1964384756725919995)  2025-09-06T17:46Z [----] followers, [----] engagements


"Getting shingles if you have #CLL can kill you hence there's a strong recommendation that people with CLL get vaccinated against it. But sadly if you live in Ireland you better hope you can afford to pay the [---] or well just pray you don't get shingles. It should be free. Eligibility for a free #ShinglesVaccine isn't just something that's nice to have it could be life or death when living with #CLL should you contract shingles Expecting vulnerable patients to self-pay [---] euro is terrible. Most simply cannot afford it #UnitedCancerVoicesIE Eligibility for a free #ShinglesVaccine isn't just"  
[X Link](https://x.com/HorganRoberta/status/1965744362853396843)  2025-09-10T11:49Z [----] followers, [----] engagements


"This lady is a powerhouse ๐Ÿ’™ Niamh Conroy @hole_cancer co-founder @IEColonCancer speaking at @RCSI #BowelCancer event on being diagnosed with and living with advanced #CRC the need for awareness/resources to aid #screening #earlydetection improved patient care & experiences ๐Ÿ‘"  
[X Link](https://x.com/HorganRoberta/status/1968589479863636073)  2025-09-18T08:14Z [----] followers, [----] engagements


"Understand Hereditary Risk in Colorectal Cancer ๐Ÿงฌ- Mechelle Loughrey #ANP Cancer Genetics @svuh stellar breakdown of inherited #CRC risk at @RCSI_Irl #BowelCancer Event. Access to timely diagnosis & subsequent care pathways is key in maximising cancer prevention opportunities"  
[X Link](https://x.com/HorganRoberta/status/1968772648252359007)  2025-09-18T20:22Z [----] followers, [---] engagements


""Kealy says she is living proof that early intervention works and believes other women should be aware of their bodies and seek medical advice if any changes or concerns." - Powerful sharing for @WorldGOday ๐Ÿ‘๐Ÿ’œ #ThisisGO #WorldGODay #INGO #BeSymptomAware #EarlyDetection Gynaecological cancers: What strikes me is how easy it would have been to dismiss that one symptom https://t.co/FHdd6vkKbS via @lynchsyndromirl Gynaecological cancers: What strikes me is how easy it would have been to dismiss that one symptom https://t.co/FHdd6vkKbS via @lynchsyndromirl"  
[X Link](https://x.com/HorganRoberta/status/1969380401970926028)  2025-09-20T12:37Z [----] followers, [---] engagements


"@yvonneo_meara @IrishCancerSoc @AstraZeneca @Shotoole81 @DonalBrennan20 That's wonderful news. Well done to you all ๐Ÿ’œ๐Ÿ‘"  
[X Link](https://x.com/HorganRoberta/status/1969411874564321718)  2025-09-20T14:42Z [----] followers, [--] engagements


"Well done to you all for braving the cold to #Dip4GODay raising vital awareness of #gynaecancers and support for the patient community ๐Ÿ’ช๐Ÿ’œ Amazing efforts for #WorldGODay ๐Ÿ‘๐ŸŠ [--] hardy swimmers in Youghal to mark #WorldGoDay2025. Thank you all for braving the cool temperature and for helping to raise awareness of gynae cancers including ovarian and uterine cancer. https://t.co/YSCfX3Cg4P [--] hardy swimmers in Youghal to mark #WorldGoDay2025. Thank you all for braving the cool temperature and for helping to raise awareness of gynae cancers including ovarian and uterine cancer."  
[X Link](https://x.com/HorganRoberta/status/1969692270275248584)  2025-09-21T09:16Z [----] followers, [---] engagements


"@annmcbrien_ @BBCnireland @5kYWBelfast @MOVEcharity You're an amazing advocate and person Ann. Thrilled to see you receive such well deserved recognition. You really do make a difference in the lives of so many people affected by cancer. Congratulations lovely xx ๐ŸŽ‰๐Ÿ‘โค"  
[X Link](https://x.com/HorganRoberta/status/1971620375974068409)  2025-09-26T16:58Z [----] followers, [--] engagements


"@jessicafurseth @Lynchsyndromirl Jessica this is amazing I seen on @LynchSyndromeUK group yesterday. Hits so many nails on the head. Well done and thank you ๐Ÿ™๐Ÿฅฐ"  
[X Link](https://x.com/HorganRoberta/status/1311245169182806016)  2020-09-30T10:03Z [----] followers, [--] engagements


""Conclusion: This study refines cancer risk estimates for MSH6 LP/P carriers suggesting the need for delayed CRC screening in males and females and proactive discussions regarding prophylactic surgery for females to address elevated risks for EC and OC." #LynchSyndrome ๐Ÿงฌ Cancer risks for MSH6 pathogenic variant carriers by @MaartjeNielsen M. Jenkins et al- CRC risk by 80y: 36% (95%CI: 2548%) โ™‚ 21% (1332%) โ™€ EC: 23% (1543%) โ™€ OC: 6.4% (3-15%) โ™€ Urinary tract ca: 10% โ™‚ 4% โ™€ Biliary tract ca: 4-5% https://t.co/owRApY23C5 Cancer risks for MSH6 pathogenic variant carriers by @MaartjeNielsen M."  
[X Link](https://x.com/HorganRoberta/status/1894217324598567186)  2025-02-25T02:46Z [----] followers, [---] engagements


"Research Alert ๐Ÿ“ข National Evaluation of Nutrition & Dietetic Services for People Post-Cancer Treatment If 18+ living in & had/have cancer pls consider taking this 15min survey Your voice matters & will help to inform services ๐Ÿ™ #CancerResearch https://ucc.qualtrics.com/jfe/form/SV_2spbNjDttA3g2eq https://ucc.qualtrics.com/jfe/form/SV_2spbNjDttA3g2eq"  
[X Link](https://x.com/HorganRoberta/status/1982429241699602536)  2025-10-26T12:48Z [----] followers, [---] engagements


"Very proud of my Lily for qualifying for & competing in The GO Tennis Grandslam in Sligo yesterday bringing home the silver to Longford for under-14s ๐ŸŽ‰ Well done to all exceptional talent and sportsmanship demonstrated ๐Ÿ‘ Huge thanks to @SligoTennisClub for great hosting ๐Ÿ™"  
[X Link](https://x.com/HorganRoberta/status/1985295488992657490)  2025-11-03T10:38Z [----] followers, [---] engagements


"@MarieKeating ๐Ÿ’™๐Ÿ’”"  
[X Link](https://x.com/HorganRoberta/status/1986865443345211466)  2025-11-07T18:36Z [----] followers, [--] engagements


"@BEAUTIFULMUMSIE @MarieKeating Same Lesley ๐Ÿ˜ž Just heartbroken. Hours spent looking back on conversations & photos trying to keep hold of her. She was so special. Always running around the place supporting others with that great love and joy she was made of ๐Ÿ’™๐Ÿฅน She thought the world of you too. Hugs ๐Ÿซ‚"  
[X Link](https://x.com/HorganRoberta/status/1987528399745581477)  2025-11-09T14:31Z [----] followers, [---] engagements


"This is so wonderful. Cancer prevention at its finest. Get the #HPV vaccine. #CancerPrevention #HPVvaccine #VaccinesSaveLives Australia just recorded zero cervical cancer cases in women under [--] - for the first time since records began in [----]. This is what happens when a country commits to HPV vaccination and screening. We protect our girls and save lives. Australia just recorded zero cervical cancer cases in women under [--] - for the first time since records began in [----]. This is what happens when a country commits to HPV vaccination and screening. We protect our girls and save lives"  
[X Link](https://x.com/HorganRoberta/status/1994064673847521512)  2025-11-27T15:24Z [----] followers, [---] engagements


"@csmcnevin doing stellar work in the cancer genetics space Keep going Ciara you are making a real difference for people affected by BRCA gene mutations ๐Ÿ‘โค #BRCA #CancerGenetics Great to have Irish figures on BRCA germline and somatic presented by @csmcnevin from @CancerInstIRE @stjamesdublin @tcddublin at #ISGO25 https://t.co/SpR4RIxFPv Great to have Irish figures on BRCA germline and somatic presented by @csmcnevin from @CancerInstIRE @stjamesdublin @tcddublin at #ISGO25 https://t.co/SpR4RIxFPv"  
[X Link](https://x.com/HorganRoberta/status/1996945157145469418)  2025-12-05T14:10Z [----] followers, [---] engagements


"They cover everything from cancer genetics & genetic testing ๐Ÿงฌ to understanding the cancer types involved and your risk of developing these cancers based on age gender and mismatch repair gene involved. How to communicate a positive genetic test result with family members 2/"  
[X Link](https://x.com/HorganRoberta/status/2022783396498247769)  2026-02-14T21:21Z [----] followers, [---] engagements


""This study provides evidence that theMSH2nonsense mutation c.354TA is a highly likely pathogenic mutation and is responsible for typical LS-associated endometrial carcinoma. It emphasizes the importance." ๐Ÿง #LynchSyndrome #EndometrialCancer #CancerGenetics"  
[X Link](https://x.com/HorganRoberta/status/1945132132675780966)  2025-07-15T14:43Z [----] followers, [---] engagements


"Beyond tragic. #ColorectalCancer is one of few cancer types with proven screening methods for both prevention & early detection yet we are losing so many young people to it ๐Ÿ˜ฅ Supporting research to better understand detect & treat #CRC in people under [--] needs to be a priority. BREAKING NEWS: Colorectal cancer is now the leading cause of cancer death for people under [--] according to new data released by the American Cancer Society (@AmericanCancer). This trend is alarmingand it demands action. Congress must prioritize #ColorectalCancer research so we https://t.co/mbfhW9QmjF BREAKING NEWS:"  
[X Link](https://x.com/HorganRoberta/status/2014453680678855114)  2026-01-22T21:42Z [----] followers, [---] engagements


"@AMLaCassePhoto I'm so sorry Alan what a terrible shock for you and your loved ones ๐Ÿ˜ฅHard to play the waiting game for results and a game plan. There's been huge advancements in treatment for bowel cancer in recent years so keep that in your mind. Always here if you need an ear. Big hugs ๐Ÿซ‚"  
[X Link](https://x.com/HorganRoberta/status/2018737627386745223)  2026-02-03T17:25Z [----] followers, [----] engagements


"@AMLaCassePhoto Your Dr is spot on you are young and fit - that will stand to you. Your results will be back before you know it and there'll be a highly skilled team of experts working together to create the best treatment plan for you. You got this Alan ๐Ÿ’™"  
[X Link](https://x.com/HorganRoberta/status/2018800973758832866)  2026-02-03T21:37Z [----] followers, [--] engagements


"@Chris_McClem ๐Ÿซ‚โค"  
[X Link](https://x.com/HorganRoberta/status/2019494153571205177)  2026-02-05T19:31Z [----] followers, [--] engagements


"Just finished putting food delivery away when a second Tesco van arrives. "I think you've the wrong house". He checks his docket. It's my address. I'm so confused. Then my twin calls my phone howling laughing. It's hers. She somehow gave my aircode. She lives over 100km away๐Ÿคฃ"  
[X Link](https://x.com/HorganRoberta/status/2019527715154428008)  2026-02-05T21:45Z [----] followers, [----] engagements


"@MissEims Myself and poor Joe from Tesco didn't know what was going on ๐Ÿคฃ"  
[X Link](https://x.com/HorganRoberta/status/2019558069857026376)  2026-02-05T23:45Z [----] followers, [---] engagements


"Check out the new @hseNCCP #LynchSyndrome information booklets Designed in partnership with @Lynchsyndromirl patient community they contain clear & factual information to help affected families understand and manage the condition 1/"  
[X Link](https://x.com/HorganRoberta/status/2022783384078950417)  2026-02-14T21:21Z [----] followers, [---] engagements


"What symptoms to watch out for What screening is available to aid cancer prevention and early detection Info on prophylactic gynecological surgery Family planning and where to find relevant services and supports and much more 3/"  
[X Link](https://x.com/HorganRoberta/status/2022783411643936954)  2026-02-14T21:22Z [----] followers, [---] engagements


"Available for free download or order hard copies at Sincere thanks to all members @hseNCCP Lynch Syndrome Advisory Group. What a knowledgeable dedicated & caring group Special thanks to Dr Barbara McGrogan for her excellent leadership throughout ๐Ÿ™๐Ÿฅฐ https://www.healthpromotion.ie/productscategory=0&keyword=Lynch+&page=1 https://www.healthpromotion.ie/productscategory=0&keyword=Lynch+&page=1"  
[X Link](https://x.com/HorganRoberta/status/2022783426655342903)  2026-02-14T21:22Z [----] followers, [---] engagements


"So excited to share this #PatientLedResearch on #LynchSyndomeAwarenessDay exploring the experiences of living with a LS diagnosis in an Irish setting. It would not have been possible without the support of the participants. so grateful ๐Ÿฅฒ AddThis Home https://doi.org/10.1016/j.ejon.2022.102117#.YjmJ88PVuUI.twitter https://doi.org/10.1016/j.ejon.2022.102117#.YjmJ88PVuUI.twitter"  
[X Link](https://x.com/anyuser/status/1506189671012913156)  2022-03-22T08:42Z [----] followers, [---] engagements


"A loved one recently diagnosed with stage [--] cancer has been denied a #MedicalCard She's unable to work due to effects of chemo which she will be on indefinitely. This is disgusting @HSELive do you not care about this added stress you're placing on people"  
[X Link](https://x.com/anyuser/status/1779091228639817885)  2024-04-13T10:16Z [----] followers, 323.5K engagements


"Shameful and disgusting to hijack my post about a loved ones cancer experience to push your own agenda. You couldn't care less about us. Delete it if you've any decency at all. This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom"  
[X Link](https://x.com/anyuser/status/1779523609620353372)  2024-04-14T14:54Z [----] followers, 99.2K engagements


"This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom"  
[X Link](https://x.com/anyuser/status/1779514112613007797)  2024-04-14T14:16Z 53.2K followers, 112.2K engagements


"Folks. I've just totted up my @sseairtricity bill for first [--] months of the year. I nearly fainted. [-------]. At this rate I my annual bill will be over [----] + For a standard [--] bed property ๐Ÿ˜ณ"  
[X Link](https://x.com/anyuser/status/1932074734327353400)  2025-06-09T13:58Z [----] followers, 83.8K engagements


"Didn't sleep the best. A tweet I seen was weighing on my mind. A non-EU Doc hospitalized with covid had asked his friend to pls look after his family should he not survive๐Ÿ’” Without citizenship they've no rights or protection. Heartbreaking and not right. #fastTrackCitizenship"  
[X Link](https://x.com/anyuser/status/1350787666078543875)  2021-01-17T12:50Z [----] followers, [---] engagements


"I've always struggled with treating myself. Irish mammy guilt I think. So twin sister sends the bag you've admired but would never buy for yourself ๐Ÿฅนโค #IDontDeserveHer"  
[X Link](https://x.com/anyuser/status/1727342349775503430)  2023-11-22T15:04Z [----] followers, 49.8K engagements


"@IrexitFreedom How dare you use my post about a families members cancer experience to push your own unrelated agenda. Don't think I've ever even seen you advocate for cancer patients You're disgusting. Shame on you"  
[X Link](https://x.com/anyuser/status/1779522738962518507)  2024-04-14T14:50Z [----] followers, 11.6K engagements


"@gunsnrosesgirl3 Took me ages to figure out what was munching on my potted rose. Hiding in plain sight. ๐Ÿ‘€"  
[X Link](https://x.com/anyuser/status/1629484008080900097)  2023-02-25T14:10Z [----] followers, 13.6K engagements


"Can't thank the A&E staff at regional hospital Mullingar enough for the amazing care they took of my daughter over the last few days. Dispite been under immense pressure the level of care and compassion was incredible. We as a family are so grateful ๐Ÿ™๐Ÿ’—"  
[X Link](https://x.com/anyuser/status/1499408742609268744)  2022-03-03T15:37Z [----] followers, [---] engagements


"Just been told I'm getting my vaccine tomorrow ๐Ÿ™๐Ÿ˜ I'm so happy"  
[X Link](https://x.com/anyuser/status/1389853537816006657)  2021-05-05T08:04Z [----] followers, [---] engagements


"Covid has found me. I hear lots comparing to the flu. I've never had the flu but genuinely hope I never do if there's any truth to the comparison. Hit by a bus. more like a fleet I foresee PJs & painkillers being my best pals for the duration ๐Ÿค’"  
[X Link](https://x.com/anyuser/status/1516029227912646665)  2022-04-18T12:21Z [----] followers, [---] engagements


"I'm honestly overwhelmed by the response and support ๐Ÿฅนโค Looks like her medical card will be sorted now. A huge weight of their shoulders. Thank you so much everyone ๐Ÿ™ But my heart aches from the numerous replies from people in the same boat who face/faced the same difficulty. A loved one recently diagnosed with stage [--] cancer has been denied a #MedicalCard She's unable to work due to effects of chemo which she will be on indefinitely. This is disgusting @HSELive do you not care about this added stress you're placing on people A loved one recently diagnosed with stage [--] cancer has been"  
[X Link](https://x.com/anyuser/status/1779441864250183817)  2024-04-14T09:29Z [----] followers, 14.3K engagements


"Best tea & toast on the planet ๐Ÿ˜‹ Colonoscopy done โœ… Polyps evicted โœ… Cancer prevented โœ… Peace of mind โœ… Pls folks if you're invited for screening or have worrisome symptoms get checked ๐Ÿ™ it's a safe test that could save your life. #BowelCancerAwareness #ChooseScreening"  
[X Link](https://x.com/anyuser/status/1818681107027538328)  2024-07-31T16:12Z [----] followers, [----] engagements


"I planted a bare root rose 6wks ago in honour of a loved one who died long before their time. It was a yellow rose. I regretted not choosing a red one due to her love of Disneys Beauty & the Beast. Well look what greeted me this morning when it bloomed ๐Ÿฅฒ๐ŸŒน"  
[X Link](https://x.com/anyuser/status/1676564036291375104)  2023-07-05T12:09Z [----] followers, [----] engagements


"I can't thank you enough @BernardGloster along with your colleague Michelle @HSELive for acting with incredible speed & great empathy to ensure my loved one got her medical card today. Your actions helped a wonderful lady during the most difficult of times. We are so grateful ๐Ÿ™ A loved one recently diagnosed with stage [--] cancer has been denied a #MedicalCard She's unable to work due to effects of chemo which she will be on indefinitely. This is disgusting @HSELive do you not care about this added stress you're placing on people A loved one recently diagnosed with stage [--] cancer has been"  
[X Link](https://x.com/anyuser/status/1779963823484526946)  2024-04-15T20:03Z [----] followers, 22.8K engagements


"Sadly ๐Ÿ’” we dont always know the depths of someones depression until it is too late. ๐Ÿ˜ฅ May I please have even [--] follower copy and re-post I am trying to demonstrate that someone is listening Just one. Any one"  
[X Link](https://x.com/anyuser/status/1329488266438062083)  2020-11-19T18:14Z [----] followers, [---] engagements


"Suns shining and I actually slept well. I've been on autopilot all wk. My Dad was taken to Mullingar hospital on Monday very unwell with covid complications. Had a massive heart attack that night and was rushed to St James. We almost lost him. But thanks to his GP ambulance"  
[X Link](https://x.com/anyuser/status/1507715607487205381)  2022-03-26T13:46Z [----] followers, [---] engagements


"My uncle had symptoms of prostate cancer. Maybe it was fear or embarrassment that prevented him from seeking help. It spread to his bowel which ruptured & he died from sepsis ๐Ÿ˜ข please don't put off going to your doctor if you've health concerns. Get checked #MensHealthWeek"  
[X Link](https://x.com/anyuser/status/1273232027907735553)  2020-06-17T12:32Z [----] followers, [---] engagements


"At ease Dad ๐Ÿ•Š ๐Ÿ’—๐Ÿ•ฏ"  
[X Link](https://x.com/anyuser/status/1925072433972646207)  2025-05-21T06:13Z [----] followers, [----] engagements


"My dad has started to improved greatly โคโ˜บ Huge heartfelt thanks to everyone here for your well wishes and tremendous support. Absolute legends the lot of ye ๐Ÿ™"  
[X Link](https://x.com/anyuser/status/1509452193228853250)  2022-03-31T08:47Z [----] followers, [---] engagements


"It saddens me that bowel screenings are not starting up till September. It's essential in identifying disease in asymptomatic people.This will have terrible life changing consequences for many. It will cost lives. Every week that goes by is adding to the devastation to come. ๐Ÿ˜ข"  
[X Link](https://x.com/anyuser/status/1276882384487624705)  2020-06-27T14:17Z [----] followers, [---] engagements


"Please could any [--] of my followers just copy and repost This pandemic is especially hard for people with depression. Samaritans [---] [---] Just two. Any two. Say done"  
[X Link](https://x.com/anyuser/status/1312484728738512896)  2020-10-03T20:08Z [----] followers, [---] engagements


"When we talk about the 'cure for cancer' we forget that this means someone already has to have that cancer. The holy grail is PREVENTION Today my daughter received her #HPV vaccine and we as a family are so grateful. #ThankYouLaura ๐Ÿ™๐Ÿ’–"  
[X Link](https://x.com/anyuser/status/1373966704351526912)  2021-03-22T11:56Z [----] followers, [---] engagements


"My teen had her first colonoscopy yesterday. She has GI issues due to liver condition but they wanted to be sure it was just that and nothing to do with her FH of polyposis/bowel cancer. On one hand I was extremely grateful that her consultant was knowledgeable about 1/"  
[X Link](https://x.com/anyuser/status/1817507391367176608)  2024-07-28T10:28Z [----] followers, 27K engagements


"Cancer patients have experienced great difficulties accessing medical cards long before Ukrainians set foot here. I stand by what I said. You couldn't care less about what I actually posted about. Just using my post to push racist agenda. Shame on you"  
[X Link](https://x.com/anyuser/status/1779533098733957400)  2024-04-14T15:32Z [----] followers, [----] engagements


"@mtully21 @HSELive @DonnellyStephen Thanks Maureen ๐Ÿ™ just spent a half hour chatting to her husband they're having such a hard time. chemo side effects are hitting hard and the financial toxicity is very real. He's also on reduced hours trying to take care of his wife. Can't believe they were refused. So angry"  
[X Link](https://x.com/anyuser/status/1779094976829284749)  2024-04-13T10:31Z [----] followers, 15.4K engagements


"I cried when @MyriamChalabi explained her smile. For her every blue bar was more than a statistic it was a person. She knew their face and name knew about their children and their lives knew that they would now get to live that life together. It's really what it's all about ๐Ÿ’™"  
[X Link](https://x.com/anyuser/status/1632166079693824005)  2023-03-04T23:48Z [----] followers, 15.6K engagements


"Another #colonoscopy done ๐Ÿ’ฉ Massive thanks to Prof Egan & his lovely team @BonSecours Galway for always taking great care of me ๐Ÿ’— I'm a little tired. low BP but feeling happy and grateful that all went well. no cancers ๐Ÿ™Œ #screeningsaveslives #SerratedPolyposisSyndrome"  
[X Link](https://x.com/anyuser/status/1548022686072197123)  2022-07-15T19:12Z [----] followers, [---] engagements


"She was a force to be reckoned with and lived life on her own terms. So many good memories of summers spent under her roof โค A long term cancer patient she sadly passed away last night from pneumonia. Lots of heavy hearts today ๐Ÿ˜ข RIP Auntie Bernie x"  
[X Link](https://x.com/anyuser/status/1339146580465684480)  2020-12-16T09:53Z [----] followers, [---] engagements


"@Siuners Love this โค Some of the nicest people I've ever met are Dublin taxi drivers. After a round of spinal injections driver who collected me from hospital insisted on walking me right to my seat on the train as he was afraid someone might accidentally bump into me. Such kindness"  
[X Link](https://x.com/anyuser/status/1235866207091167232)  2020-03-06T09:53Z [----] followers, [---] engagements


"What an honour I'm deeply humbled. When my daughter was due her #HPV vaccine it wasn't even something I had to discuss with her as Lauras powerful voice had already educated her on the importance of prevention. A legacy that has and will continue to save countless lives 1/2 ISGO are delighted to announce that Roberta Horgan @Lynchsyndromirl will be the recipient of the Laura Brennan award [----]. Roberta has done enormous work in advocating for improved services around Lynch Syndrome and destigmatisation of genetic testing https://t.co/irRAt7YRsy ISGO are delighted to announce that Roberta"  
[X Link](https://x.com/anyuser/status/1585202839311503360)  2022-10-26T09:33Z [----] followers, [---] engagements


"ISGO are delighted to announce that Roberta Horgan @Lynchsyndromirl will be the recipient of the Laura Brennan award [----]. Roberta has done enormous work in advocating for improved services around Lynch Syndrome and destigmatisation of genetic testing https://youtu.be/UeVdgSWv28s https://youtu.be/UeVdgSWv28s"  
[X Link](https://x.com/anyuser/status/1585186061428305922)  2022-10-26T08:26Z [----] followers, [---] engagements


"A MASSIVE thank you to Dr Toomey and all the team in Mullingar for taking such wonderful care of my daughter. And for giving up their Saturdays (coming in at 6.30am no less) to help alleviate growing waiting lists. You were all so lovely and kind to a scared teen girl ๐Ÿ™โค"  
[X Link](https://x.com/anyuser/status/1817507405074145499)  2024-07-28T10:28Z [----] followers, [----] engagements


"#colonoscopy all done โœ… [--] new lesions got evicted and my prep quality was excellent ๐Ÿ™Œ Haha Coke Zero did the job โ˜บ exceptional care as always in @BonSecours Galway. All good for another [--] months ๐Ÿ‘Š Thanks everyone for the well wishes. Yer the best bunch ๐Ÿ™๐Ÿ˜˜๐Ÿ’ž"  
[X Link](https://x.com/anyuser/status/1416092835602968579)  2021-07-16T17:50Z [----] followers, [---] engagements


"Cocktail of the day is. ๐Ÿคช๐Ÿคฎ But I won't complain. I'm thinking of all those who should be prepping but aren't. All those left waiting. I'm very grateful to get my colonoscopy. So bottoms up ๐Ÿฅ‚ #colonoscopy #FightCRC #highrisk #screeningsaveslives"  
[X Link](https://x.com/anyuser/status/1280474659104927748)  2020-07-07T12:12Z [----] followers, [---] engagements


"Colonoscopy done The big lesion is fully gone along with a new one that had grown ๐Ÿ˜ƒ Amazing care in @BonSecours Galway as always โค Thanks so much all you lovelies for keeping me company through prep yesterday with great humour and well wishes. You're a wonderful bunch xx ๐Ÿ˜˜๐Ÿ’•"  
[X Link](https://x.com/anyuser/status/1280869004714881025)  2020-07-08T14:19Z [----] followers, [---] engagements


"When you've being dealing with a lot and it's starting to feel relentless your twin sister sends you a hug in a box to remind you there is always love and light ๐Ÿฅน๐Ÿ’— #SisterLove #BetterDays #Twinning"  
[X Link](https://x.com/anyuser/status/1583427023892279297)  2022-10-21T11:56Z [----] followers, [---] engagements


"@PaddyOPutin @IrexitFreedom Everyone is deserving of healthcare regardless of who they are. It's a basic human right. first time you've ever interacted with me dispite all my posts raising awareness & support for cancer patients. You couldn't care less about the content of my post just your own agenda"  
[X Link](https://x.com/anyuser/status/1779535287774810343)  2024-04-14T15:40Z [----] followers, [----] engagements


"While advancements in diagnosing & treating cancer is greatly improving outcomes my heart has just collapsed at learning a beautiful young person has no time no options only hospice. My tears are useless ๐Ÿ˜ข๐Ÿ’”"  
[X Link](https://x.com/anyuser/status/1715736842207715687)  2023-10-21T14:28Z [----] followers, [----] engagements


"Daddy Horgan wins the gold for the fastest turn around. To think we almost lost him only weeks back and now look at him ๐Ÿ˜ญโค All thanks to the phenomenal medical care he received ๐Ÿ˜Š still needs a few procedures but is getting stronger for them"  
[X Link](https://x.com/anyuser/status/1513473342715666441)  2022-04-11T11:05Z [----] followers, [---] engagements


"@robbiewritesie @HSELive Please don't hijack my post about my loved ones cancer experience to push your own agenda. That's really horrible"  
[X Link](https://x.com/anyuser/status/1779485372814147726)  2024-04-14T12:22Z [----] followers, [----] engagements


"Very excited (and a tad nervous) to be on route to @ucddublin to take part in a live MDT meeting on #ColorectalCanxer being delivered to final year medical students โ˜บ A wonderful opportunity to bring in the #patientvoice of people living with #LynchSyndrome ๐Ÿ’™"  
[X Link](https://x.com/anyuser/status/1780150239623549167)  2024-04-16T08:24Z [----] followers, [----] engagements


"@Justin_Slamen Your party using my post to push an agenda that has absolutely nothing to do with the content of my post - that's what's unacceptable. I post all day long about cancer awareness and your party has never shown any support. Just jumped on this one because it gained traction"  
[X Link](https://x.com/anyuser/status/1779533913276203383)  2024-04-14T15:35Z [----] followers, [----] engagements


"Cocktail time๐Ÿธ granted not my fave but needs must to check on production at the polyp farm (aka my bowel) ๐Ÿ’ฉ So what's it like to prepare for and undergo #colonoscopy I made a lil ๐Ÿงต before on my experience ๐Ÿ‘€๐Ÿ‘‡#PolyposisSyndrome #BowelCancer #RiskManagement #EarlyDetection Fear of the unknown can deter people from participating in #colonoscopy which is the gold standard for prevention and early detection of bowel cancer. So as it's #BowelCancerAwarenessMonth I'm making this thread to share my experience of undergoing regular screenings Fear of the unknown can deter people from participating"  
[X Link](https://x.com/anyuser/status/1818282884525899941)  2024-07-30T13:49Z [----] followers, 25K engagements


"Fear of the unknown can deter people from participating in #colonoscopy which is the gold standard for prevention and early detection of bowel cancer. So as it's #BowelCancerAwarenessMonth I'm making this thread to share my experience of undergoing regular screenings"  
[X Link](https://x.com/anyuser/status/1510284891891638272)  2022-04-02T15:55Z [----] followers, [---] engagements


"@MarieKeating @DeniseMBreen Well done Denise ๐Ÿ‘๐Ÿ’™"  
[X Link](https://x.com/anyuser/status/1703745769700769897)  2023-09-18T12:20Z [----] followers, 12.3K engagements


"Tucked up in bed with my cupan tae happy out after an amazing day at #ISGO2022. A day full of great people going above and beyond in their work to help others. The highlight was having dinner with Laura Brennan's amazing parents ๐Ÿฅน๐Ÿ’— Love you Larry & Bernie #ThankYouLaura ๐Ÿ™"  
[X Link](https://x.com/anyuser/status/1593768201019686914)  2022-11-19T00:48Z [----] followers, [---] engagements


"Thanks so much @LumpyandFriends for making two little ladies very happy โ˜บ Kayla (left) & Lily ( right) were over the moon with the very thoughtful gifts. They still can't believe Mr Lumpy sent them mail & couldn't wait to show their friends in school"  
[X Link](https://x.com/anyuser/status/1179319003577225217)  2019-10-02T08:55Z [----] followers, [--] engagements


"Okay so just going to say it straight. Why oh why is Lynch Syndrome not getting the same coverage as other genetic cancer syndromes in the media The associated cancers are so preventable if affected families are aware but how do we educate if it's not spoken about ๐Ÿ™„"  
[X Link](https://x.com/anyuser/status/1192983912714252288)  2019-11-09T01:55Z [----] followers, [---] engagements


"Very welcome news. I was contacted by my GI this morning to say they hope to bring me in for colonoscopy on July 8th. I actually cried with relief ๐Ÿ˜ญโค Simon Harris confirms that all cancer screening services will resume by July (via @thejournal_ie) https://t.co/H8CqDm9jgz Simon Harris confirms that all cancer screening services will resume by July (via @thejournal_ie) https://t.co/H8CqDm9jgz"  
[X Link](https://x.com/anyuser/status/1271402275416805378)  2020-06-12T11:21Z [----] followers, [--] engagements


"Simon Harris confirms that all cancer screening services will resume by July (via @thejournal_ie) https://jrnl.ie/5120791 https://jrnl.ie/5120791"  
[X Link](https://x.com/anyuser/status/1271332717297201152)  2020-06-12T06:45Z [----] followers, [--] engagements


"Thankfully no polyps found ๐Ÿ˜ญโค The relief is indescribable. She can put it behind her until she starts regular surveillance in a few years time. Her first word in recovery room was "Kitty" Clever girl pulled the empathy card on her Dad to secure the adoption ๐Ÿ˜‚ 4/"  
[X Link](https://x.com/anyuser/status/1817507402175975450)  2024-07-28T10:28Z [----] followers, [----] engagements


"Can we all please give it up for Pamela ๐Ÿ‘๐Ÿ‘๐Ÿ‘ A survivor of pancreatic cancer who will tomorrow finish the #camino in aid of @pancanireland. She has walked her legs off while battling pain and high temperatures & still flew to meetings with her advocacy hat on Legend ๐Ÿ’œ๐Ÿ‘๐Ÿคฉ #Day191 of #200daysofwalking The penultimate day ๐Ÿ˜” tomorrow I will finish my #CaminodeSantiago #Camino https://t.co/FVNXmbBwPN in aid of #pancreaticcancer https://t.co/YB6qW72J5D #Day191 of #200daysofwalking The penultimate day ๐Ÿ˜” tomorrow I will finish my #CaminodeSantiago #Camino https://t.co/FVNXmbBwPN in aid of"  
[X Link](https://x.com/anyuser/status/1943359025749594395)  2025-07-10T17:17Z [----] followers, [----] engagements


"#Day191 of #200daysofwalking The penultimate day ๐Ÿ˜” tomorrow I will finish my #CaminodeSantiago #Camino in aid of #pancreaticcancer https://www.idonate.ie/fundraiser/PamelaDeasy11 https://www.idonate.ie/fundraiser/PamelaDeasy11"  
[X Link](https://x.com/anyuser/status/1943296170870088165)  2025-07-10T13:08Z [----] followers, [----] engagements


"@morellifit You still can't give answers. ONE thing YOU must understand is that molecular testing of individual tumours to match patients with targeted therapies is practiced in actual oncology clinics by actual Drs. That's personalised treatment You are a disgusting fraud. Shame on you"  
[X Link](https://x.com/anyuser/status/1791840914756768227)  2024-05-18T14:38Z [----] followers, [----] engagements


"My uncle smiling away his gaunt face a clue to the #prostatecancer that would soon take him but yet he was "grand no need to bother the doctor". If only he had. We might still have that smile. Please guys don't ignore symptoms. Get checked ๐Ÿ™ #prostatecancerawarenessmonth"  
[X Link](https://x.com/anyuser/status/1304785568048590849)  2020-09-12T14:14Z [----] followers, [--] engagements


"Having a cuppa & enjoying looking through social media seeing all the incredible posts for #LynchSyndromeAwarenessDay People are AMAZING ๐Ÿคฉ It's heartwarming to see the great efforts by so many to raise awareness ๐Ÿฅน Thank you all #community #LetsGoDotty ๐Ÿ”ด๐Ÿ”ต๐ŸŸฃ๐ŸŸข๐ŸŸ ๐ŸŸก๐Ÿ”ด๐Ÿ”ต"  
[X Link](https://x.com/anyuser/status/1638592982109528064)  2023-03-22T17:26Z [----] followers, [----] engagements


"What ๐Ÿ˜ง @DonnellyStephen last week you opened EU Cancer Mission Day and this week you're deciding that cancer patients who're desperately waiting on life-saving drug developments are not worthy of hope I'm at a loss here how is this acceptable to you Horrendous altogether. Shocking news for cancer patients as @DonnellyStephen has warned there will be no funding for new medicines amid budget challenges. @davidcullinane @RoisinShortall @GaryGannonTD @WaterfordMafia @HorganRoberta @RayMcDermott1 @DrRobertOConnor https://t.co/zligsJlosI Shocking news for cancer patients as @DonnellyStephen has"  
[X Link](https://x.com/anyuser/status/1710210057915273367)  2023-10-06T08:27Z [----] followers, [----] engagements


"Shocking news for cancer patients as @DonnellyStephen has warned there will be no funding for new medicines amid budget challenges. @davidcullinane @RoisinShortall @GaryGannonTD @WaterfordMafia @HorganRoberta @RayMcDermott1 @DrRobertOConnor https://www.irishtimes.com/politics/2023/10/05/donnelly-warns-drug-firms-of-funding-shortage-for-new-medicines-amid-budget-challenges/ https://www.irishtimes.com/politics/2023/10/05/donnelly-warns-drug-firms-of-funding-shortage-for-new-medicines-amid-budget-challenges/"  
[X Link](https://x.com/anyuser/status/1710021208605958571)  2023-10-05T19:56Z [----] followers, 12.4K engagements


"My baby finished primary school yesterday ๐Ÿฅฒ After a wonderful ceremony yesterday evening that included singing banter awards cake & a very emotional slide-show of their journey through the school years they finished up with a MASSIVE water fight ๐Ÿคฃ๐Ÿ‘โค"  
[X Link](https://x.com/anyuser/status/1803403575348883488)  2024-06-19T12:24Z [----] followers, [----] engagements


"@Lynchtr5 No doubt Jason is proud of his brave children and grateful to you for supporting them throughout. Ye couldn't have done more. Love and hugs to you all Tracey xx ๐Ÿ’•"  
[X Link](https://x.com/anyuser/status/1722537739294244937)  2023-11-09T08:52Z [----] followers, [----] engagements


"I was expecting it but it doesn't make it any easier. Yesterday my GI confirmed my follow up colonoscopy to get the rest of a giant lesion found in January won't be going ahead. I've no idea when it will. #SerratedPolyposisSyndrome #HighRisk #BringBackCancerScreening"  
[X Link](https://x.com/anyuser/status/1269279560388009984)  2020-06-06T14:46Z [----] followers, [--] engagements


"The patient advocate community has lost a queen ๐Ÿ˜ข A warm and caring person whose selfless dedication to our community has and will continue to inspire. I'm going to miss this magnificent soul so much. Sincere condolences to her family and friends. Rest easy beautiful Sonya๐Ÿ•ฏ๐Ÿ’” We are deeply saddened to hear of the passing of Sonya Lynch Our heartfelt sympathy goes to your husband Don and your children that we all heard about Alex Isabel and Isaac and to all your family. Go gently Sonya Rest In Peace https://t.co/nlJhsJqrZp #RIP https://t.co/rPunIjInEY We are deeply saddened to hear of the"  
[X Link](https://x.com/anyuser/status/1691465568971575296)  2023-08-15T15:03Z [----] followers, [----] engagements


"We are deeply saddened to hear of the passing of Sonya Lynch Our heartfelt sympathy goes to your husband Don and your children that we all heard about Alex Isabel and Isaac and to all your family. Go gently Sonya Rest In Peace #RIP https://mariekeating.ie/2023/08/sonya-lynch-rip/ https://mariekeating.ie/2023/08/sonya-lynch-rip/"  
[X Link](https://x.com/anyuser/status/1691390149836341248)  2023-08-15T10:03Z [----] followers, [----] engagements

Limited data mode. Full metrics available with subscription: lunarcrush.com/pricing

@HorganRoberta Avatar @HorganRoberta Roberta Horgan ๐Ÿ‡ฎ๐Ÿ‡ช

Roberta Horgan ๐Ÿ‡ฎ๐Ÿ‡ช posts on X about ireland, for the, this is, to the the most. They currently have [-----] followers and [---] posts still getting attention that total [-----] engagements in the last [--] hours.

Engagements: [-----] #

Engagements Line Chart

  • [--] Week [-----] -72%
  • [--] Months [------] -82%
  • [--] Year [------] -84%

Mentions: [--] #

Mentions Line Chart

  • [--] Week [--] +20%
  • [--] Months [--] +93%
  • [--] Year [--] -56%

Followers: [-----] #

Followers Line Chart

  • [--] Week [-----] -0.12%
  • [--] Months [-----] -0.46%
  • [--] Year [-----] +3.60%

CreatorRank: [---------] #

CreatorRank Line Chart

Social Influence

Social category influence currencies countries finance travel destinations fashion brands stocks social networks technology brands musicians

Social topic influence ireland, for the, this is, to the, happy, hope, push, we are, community, people with

Top Social Posts

Top posts by engagements in the last [--] hours

"Did you know that the PLSD also has a very handy risk calculator that #LynchSyndrome carriers can use to help determine their #cancerrisk based on age gender and the gene involved ๐Ÿ‘€"
X Link 2023-07-03T11:16Z [----] followers, [----] engagements

"@Doctor_IMF @dee_laah @cardiffuni @long_covid No thanks I'd honestly rather drink [--] liters of Moviprep ๐Ÿซ  The optometrist give you any timeframe on when you might see an improvement I really feel for you Ian ๐Ÿซ‚ must be awful to put up with"
X Link 2023-07-12T16:59Z [----] followers, [--] engagements

"This Did you know people with #LynchSyndrome have a greatly increased risk of developing #EndometrialCancer And are also at increased risk for #OvarianCancer And these cancers affect people at a younger age than seen in the general population #CancerGenetics"
X Link 2023-08-10T14:19Z [----] followers, [----] engagements

"Great to see this happening #HPV vaccine now available to young men who missed out on the opportunity when in school. Register here #ThankYouLaura #VaccinesSavelives โค https://www.hse.ie/eng/health/immunisation/pubinfo/schoolprog/hpv/ Wonderful news that The Laura Brennan HPV Vaccine Catch-up Programme is expanding to include men up to [--] yrs old. The vaccine protects against the types of HPV that cause approx 90% of cervical cancers 90-95% of HPV-related anal cancer and 90% of genital warts. #ThankYouLaura https://t.co/4CzjX0sZ97"
X Link 2023-08-25T08:50Z [----] followers, [---] engagements

"๐Ÿšจ Opportunity for people with experience of #Colorectalcancer to help shape research improve understanding of the disease and ultimately help their community. I can't stress enough how necessary & valued your voice is. #PPI is worthwhile & rewarding work ๐Ÿค“ #GetInvolved ๐Ÿ‘‡"
X Link 2023-09-05T13:18Z [----] followers, [----] engagements

"Humbling to see these scholars present their exciting work. Circular RNA biomarkers for early detection TIGIT influence on anti-tumour response cells novel drug delivery systems. Just wow Much needed hope for those facing poor prognosis cancers ๐Ÿ’™ #CancerResearch #Hope"
X Link 2023-09-06T15:52Z [----] followers, [---] engagements

"Oh my God I love this ๐Ÿ˜ Join @walls2 @Aladinsane40 @Bcgkelly and take the #TheBigProstate Quiz ๐Ÿ’™ Too many men dying from this treatable cancer like my lovely uncle. Open conversation risk-factor and symptom awareness is how you #StandUpForYourProstate [--] minutes well spent"
X Link 2023-09-11T13:17Z [--] followers, [---] engagements

"@kimmykims33 Aw Kim ๐Ÿ˜ฎ That's awful. After all the waiting and I'm sure a lot of organisation( work kids ect) gutted for you. It's not good enough by a mile. Hugs xx"
X Link 2023-09-14T14:37Z [----] followers, [--] engagements

"#WorldCancerResearchDay โค Big shout out to all the individuals & organisations that include #PPI in their research. Thank you for recognising the value of our contribution. Thank you for giving us a voice enabling us to help ourselves and our loved ones. It matters greatly ๐Ÿฅฐ"
X Link 2023-09-24T12:44Z [----] followers, [----] engagements

"Happy birthday Jerry. You'd be [--] today. Over two decades of absence felt by our family. Your twin sister blows out your candles. Research has saved your nieces from the same faith. My twin & I will blow out our candles together. #WorldCancerResearchDay #ResearchSavesLives #CRC"
X Link 2023-09-24T14:02Z [----] followers, [----] engagements

"@drawstickpeople @MidlifeMisfit @ehgkulow @grannysurgeon @Jdavis_Halton @jsadurski @KmMaimone @laurasweetjane @ls_mchandler @Tratra_d @Marylaw59112593 @McknightLaura @MHPoison1 @momstinfoilhat @Mozzer2015 @NurseGomer @ms_butterfly03 @NotClever4 @petvets37 Wow what is that It's beautiful ๐Ÿ˜โค"
X Link 2023-09-29T10:42Z [----] followers, [--] engagements

"This This all day Embedding patients throughout all stages of research should be standard. We've much to offer each other. Patients+professionals+ populations = meaningful real world evidence. #EHTG #PatientsInvolved #NothingAboutUsWithoutUs #PPI #TogetherWeCanDoMore"
X Link 2023-10-01T09:38Z [----] followers, [----] engagements

"Puts a warm feeling in my heart to see the patient voice bellowing through the halls of academia. without it patient centered care is lost. Thank you @PotisDR for your incredible support in this area. You are a fantastic advocate for true holistic care ๐Ÿ™โ™ฅ"
X Link 2023-10-01T10:16Z [----] followers, [---] engagements

"Encouraging presentation from Lars Lindbergh #EHTG23 ๐Ÿ‘ Many times @Lynchsyndromirl have raised the need for a similar model to support probands inform family members of their potential cancer-risk & improve uptake of cascade testing in Ireland. It can & should be done @hseNCCP"
X Link 2023-10-03T16:18Z [----] followers, [---] engagements

"What ๐Ÿ˜ง @DonnellyStephen last week you opened EU Cancer Mission Day and this week you're deciding that cancer patients who're desperately waiting on life-saving drug developments are not worthy of hope I'm at a loss here how is this acceptable to you Horrendous altogether. Shocking news for cancer patients as @DonnellyStephen has warned there will be no funding for new medicines amid budget challenges. @davidcullinane @RoisinShortall @GaryGannonTD @WaterfordMafia @HorganRoberta @RayMcDermott1 @DrRobertOConnor https://t.co/zligsJlosI Shocking news for cancer patients as @DonnellyStephen has"
X Link 2023-10-06T08:27Z [----] followers, [----] engagements

""If he had been in a surveillance programme due to the lynch syndrome he has his cancer may have been discovered at a earlier stage. He is urging anyone with a family history of bowel cancer to reach out to their GP and question if they are eligible for testing.""
X Link 2023-10-08T11:53Z [----] followers, [----] engagements

"@hole_cancer Shock is right From yesterdays hope for new avenues to explore to todays awful news ๐Ÿ’” Maybe things could be different if only her concerns were heard and acted on sooner. Just maybe. that's a hard pill to swallow and it haunts me. Poor girl ๐Ÿ˜ญ"
X Link 2023-10-21T16:29Z [----] followers, [---] engagements

"This is just too sad ๐Ÿ˜ญ Jen did so much to raise awareness of #ColorectalCancer especially in younger people and gave so much of her time to support others who are dealing with cancer. Heartbroken for her family and friends. Rest easy beautiful Jen ๐Ÿ’” #NeverTooYoung"
X Link 2023-10-29T19:12Z [----] followers, [----] engagements

"Best costume award goes to. ๐Ÿ˜‚๐Ÿ™Œ Had a great giggle at the legend that is @ClodaghDowning doing her bit to raise awareness of #ColorectalCancer this Halloween ๐Ÿ’ฉ #NeverTooYoung #BowelCancerAwareness #GetChecked"
X Link 2023-10-31T13:32Z [----] followers, [----] engagements

"@smulcahysymmons @druryal @GilmoreJNurse @ClionaNi @suzie_guerin @deepend_ireland @nalaireland @NSShse @hseNCCP @HSE_SI @patrickod9 Have promoted in LS Ireland patient group"
X Link 2023-11-01T13:13Z [----] followers, [--] engagements

"This #LynchSyndrome might be better known for its links to bowel cancer but it also increases risk for #ovariancancer yet no automatic screening of ovarian tumours for LS here in Ireland. I really hope this changes someday. @hseNCCP"
X Link 2023-11-05T09:20Z [----] followers, [----] engagements

"A fabulous announcement on #GCAwarenessDay โค Huge congrats @RosieOShea5 ๐ŸŽ‰ VERY important project - New @IrishCancerSoc funded research study to develop and evaluate digital cascade genetic testing. @Lynchsyndromirl are super excited ๐Ÿ˜€"
X Link 2023-11-09T09:25Z [----] followers, [----] engagements

"@MickOrMickATX @DilW What would you know about it as an American living the other side of the world. She lives here and she's spot on. Majority of Irish people are appalled by the hate and destruction caused by racists"
X Link 2023-11-25T08:43Z [----] followers, [---] engagements

"@dunkingwithfish Happy Birthday to your mother Shelia ๐Ÿฅณ"
X Link 2023-11-29T17:43Z [----] followers, [--] engagements

"People who receive a terminal illness diagnosis should never have to endure the added stress of fighting for benefits to keep a roof over their heads and ensure food on the table but sadly Mark has been fighting for just that for years now. Please support his cause ๐Ÿ™๐Ÿฅฒ"
X Link 2023-12-06T17:40Z [----] followers, [----] engagements

"It's taken me a few days to absorb the incredible @ColoMARK_DN event at @UCD_Conway institute that I was very fortunate to be a part of with my @Lynchsyndromirl crew and @IEColonCancer under the guidance of the marvelous Prof Amanda McCann & lovely Elaine Quinn @PVCR_Ireland 1/"
X Link 2023-12-18T01:20Z [----] followers, [----] engagements

"Thank YOU for creating this wonderful opportunity for us all. Your dedication to the patient voice is lifting us all and helping us to help others. It's an incredible community that I'm so grateful to be a part of. So much love for team @PVCR_Ireland ๐Ÿค—โค"
X Link 2023-12-19T15:08Z [----] followers, [---] engagements

"I've come to know many #LynchSyndrome families all with their own stories of devasting generational illness and loss endured before a diagnosis enabled them to greatly manage/reduce their risk of dieing from cancer. Pls RT below post ๐Ÿ™๐Ÿ™‚ An estimated 95% of people living with this condition in the UK are not yet diagnosed- lets find them and provide the support they deserve. Please get in touch if I can support you or your cancer MDTs with #lynchsyndrome pathways #NHS An estimated 95% of people living with this condition in the UK are not yet diagnosed- lets find them and provide the support"
X Link 2024-01-07T20:45Z [----] followers, [----] engagements

"@MyriamChalabi @NatureMedicine Huge congrats ๐Ÿ‘๐ŸŽ‰"
X Link 2024-01-08T11:17Z [----] followers, [---] engagements

"@deshocks Best wishes and huge congrats โค"
X Link 2024-01-23T01:44Z [--] followers, [--] engagements

"It's wonderful to see new clinical trials for #colorectalcancer taking off in Ireland ๐Ÿคฉ Very best wishes to all involved especially the patients ๐Ÿ’™ #ClinicalTrials Excited to initiate the Mountaineer-03 study offering Tucatinib and Trastuzumab in combination with mFOLFOX6 vs SOC in first line setting for HER2+ mCRC. PI of the study is @DrHealeyBird #HER2+ #colorectalcancer #mCRC @UCCCancerTrials @CRF_CORK @CanResUCC @cancertrials_ie Excited to initiate the Mountaineer-03 study offering Tucatinib and Trastuzumab in combination with mFOLFOX6 vs SOC in first line setting for HER2+ mCRC. PI of"
X Link 2024-01-24T17:06Z [----] followers, [----] engagements

"@josepereag @escp_tweets @AECP_FAECP @aecirujanos @IBSAL_IIS Congrats Jos ๐Ÿ‘"
X Link 2024-01-29T11:25Z [--] followers, [---] engagements

"@JulianBarwell @Neeta__Kulkarni Congrats Julian"
X Link 2024-02-06T18:04Z [----] followers, [--] engagements

"@1dor Happy birthday to your lovely Mammy โค๐Ÿฅณ๐ŸŽ‚"
X Link 2024-02-24T12:01Z [----] followers, [--] engagements

"This is frightening. This is a screenable cancer that in many cases can be prevented. Most screening programmes for #ColorectalCancers only offered to those [--]. In Ireland not offered until [--] with plans to reducing screening age to [--]. It won't be enough to tackle this crisis. ๐Ÿ’กThe American Cancer Society reported that the proportion of CRC cases among adults younger than [--] increased from 11% in [----] to 20% in [----]. ๐Ÿ’กThe incidence of early-age onset CRC is expected to increase more than 140% by [----]. #ColorectalCancerAwarenessMonth ๐Ÿ’กThe American Cancer Society reported that the"
X Link 2024-03-03T15:39Z [----] followers, [----] engagements

"@BreastDense @EUSOBIyc @mammoscreen_prj @UCDCancerTrials @EACRnews @News_IACR @AACR @NSShse I know the battles you continue to face. It shouldn't be this hard. But you don't give up Siobhn you step up and that will make the difference. Some day breast density notification will be standard here thanks to your unwavering advocacy โค"
X Link 2024-03-04T13:52Z [----] followers, [--] engagements

"@sullydaysleeper Happy Birthday Beautiful ๐Ÿฅณ๐ŸŽ‰๐ŸŽ‚"
X Link 2024-03-06T20:35Z [----] followers, [--] engagements

"@lilycogan @joancooke5 Happy birthday Lily ๐Ÿฅณ๐ŸŽ‰"
X Link 2024-03-06T20:36Z [----] followers, [--] engagements

"@mtully21 He's just the cutest little boy ever Maureen โค"
X Link 2024-03-20T20:39Z [----] followers, [--] engagements

"If anyone knows Millie in the daffodil center in @svuh can you give her our thanks for directing people affected by Lynch Syndrome to LS Ireland for peer-support. You are awesome Millie โค๐Ÿค— #CancerSupport"
X Link 2024-03-28T15:08Z [----] followers, [---] engagements

"@NoeleenMcLaugh2 It's great to have someone like that and you're a great muse for her talent. I've often been tempted to to say "do whatever you like " to the hairdresser. but I'm not brave enough ๐Ÿ˜…"
X Link 2024-03-29T21:31Z [----] followers, [--] engagements

"2500+ people diagnosed with #ColorectalCancer in Ireland each year and sadly many of those will be found to have advanced disease. People like Clodagh Niamh Dee & Mick. Hear their powerful message and be proactive if you've any concerns about your bowel health. #NoRegrets ๐Ÿ’™ As we get ready to launch this years Bowel Cancer Awareness Month Campaign tomorrow we want to reflect on last years powerful #NoRegrets campaign. . Thanks to @IEColonCancer - Bowel Cancer Ireland. #NoRegrets #BowelCancer https://t.co/bS2uBIcASl As we get ready to launch this years Bowel Cancer Awareness Month Campaign"
X Link 2024-04-02T17:00Z [----] followers, [---] engagements

"A loved one recently diagnosed with stage [--] cancer has been denied a #MedicalCard She's unable to work due to effects of chemo which she will be on indefinitely. This is disgusting @HSELive do you not care about this added stress you're placing on people"
X Link 2024-04-13T10:16Z [----] followers, 323.5K engagements

"@motionsetc @mtully21 @HSELive @DonnellyStephen @IrishCancerSoc Thanks for the support Frances. Medical cards are the domain of the HSE. In fairness to ICS they've been strong advocates on this issue along with many others that negatively affect cancer patients. HSE need to step up big time"
X Link 2024-04-13T10:49Z [----] followers, [----] engagements

"@IrexitFreedom How dare you use my post about a families members cancer experience to push your own unrelated agenda. Don't think I've ever even seen you advocate for cancer patients You're disgusting. Shame on you"
X Link 2024-04-14T14:50Z [----] followers, 11.6K engagements

"Shameful and disgusting to hijack my post about a loved ones cancer experience to push your own agenda. You couldn't care less about us. Delete it if you've any decency at all. This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom"
X Link 2024-04-14T14:54Z [----] followers, 99.2K engagements

"@BrownSM1973 @BernardGloster @HSELive She's family ๐Ÿฅน I'm a patient advocate for people affected by hereditary cancers you'd be shocked by many struggle to get the required supports. It shouldn't take a social media post but often it's the only way to raise important issues"
X Link 2024-04-16T07:08Z [----] followers, [---] engagements

"@ChrisDorrell @ucddublin Aww Chris ๐Ÿ™ you're always so supportive thank you ๐Ÿ’–"
X Link 2024-04-16T09:00Z [----] followers, [--] engagements

"@PotisDR @ucddublin Aww thanks Celia ๐Ÿฅน๐Ÿ™ It was such a boost for the Irish LS community to know [---] of our future healthcare professionals will be Lynch aware. It will have a very positive impact on the patient experience. We are very grateful to @PVCR_Ireland ๐Ÿซถ"
X Link 2024-04-18T14:13Z [----] followers, [--] engagements

"I can't praise you enough @PVCR_Ireland for being so dedicated to the #PatientVoice and for providing me with this incredible opportunity to raise #LynchSyndromeAwareness amongst our future healthcare professionals. It means the world to our community ๐Ÿฅนโค Thank you ๐Ÿ™ Rocked it ๐ŸŒŸ๐Ÿ’ช- powerful insights Roberta that med students will bring with them to the #clinic. Rocked it ๐ŸŒŸ๐Ÿ’ช- powerful insights Roberta that med students will bring with them to the #clinic"
X Link 2024-04-18T14:18Z [----] followers, [---] engagements

"This Reg colonoscopy for CRC along with prophylactic risk-reduction gynea surgeries help give reassurance to people with #LynchSyndrome but what about the other cancers involved A source of worry for people especially if they've a family history of #UrologicalCancer Professor Sir John Burn @CaPP3 presenting data on other #Lynchsyndrome related cancers - really important to remember its not just colorectal cancer https://t.co/sfUZl3XaQv Professor Sir John Burn @CaPP3 presenting data on other #Lynchsyndrome related cancers - really important to remember its not just colorectal cancer"
X Link 2024-04-26T13:54Z [----] followers, [---] engagements

"@drawstickpeople @EJ_Mulholland @Doctor_IMF No better man than Ian I keep forgetting the time difference ๐Ÿ˜ฌ get some rest lovely xx"
X Link 2024-05-02T08:08Z [----] followers, [--] engagements

"I adore this man. The magnificent Brendan Muldoon celebrating [--] yrs on from chemo induced double hip replacement ๐Ÿฅน Bren is a huge source of inspiration to us all at @Lynchsyndromirl We don't call him the #LynchLegend for nothing โค #BowelCancer #Thriving #LynchSyndrome"
X Link 2024-05-02T20:31Z [----] followers, [----] engagements

"@BEAUTIFULMUMSIE @Lynchsyndromirl I'm sure he felt the same meeting you ๐Ÿฅฐ When I was in UCD to take part in the live MDT CRC meeting myself and Prof Amanda McCann were talking about how lovely you are and good you were to come all the way from Scotland to support the ColoMark DCs ๐Ÿ˜Š๐Ÿซถ"
X Link 2024-05-03T08:30Z [----] followers, [--] engagements

"@mtully21 @Smartheat Happy birthday beautiful Pat ๐Ÿฅณ๐Ÿ’๐Ÿ’•"
X Link 2024-05-13T10:30Z [----] followers, [--] engagements

"@NiecyOKeeffe Watery ๐Ÿ˜‚ and the Elvis bit at the end They need their own show"
X Link 2024-05-16T17:28Z [----] followers, [--] engagements

"@AverilLarke Happy birthday Averil enjoy your special day xx ๐ŸŽ‰๐ŸŽ‚๐Ÿฅณ"
X Link 2024-05-19T12:31Z [----] followers, [--] engagements

"@NiecyOKeeffe Everyone has a favourite seat. Ollie's making sure you know which is his. His face is giving "I feckin dare ya touch it" ๐Ÿ˜‚"
X Link 2024-05-27T20:23Z [----] followers, [--] engagements

"@Deeisnotmyname7 @Dr_Red_Gamer Seeing as you are badly in need of education I can send you information on Lynch syndrome and other hereditary cancer syndromes that greatly increases risk of developing colorectal cancers if you like Unless of course you've no interest in learning anything"
X Link 2024-05-31T08:24Z [----] followers, [--] engagements

"Calling all #LynchSyndrome #BRCA advocates. Fancy having a chat with the loveliest research team about your use of social media to support people affected by these conditions I recently took part and it was a great experience. Highly recommend taking part. #CancerResearch ๐Ÿ“ข๐Ÿ“ขWe are speaking to advocates creators & influencers who discuss #LynchSyndrome/#BRCA on social media & it's truly amazing to learn about their work to share information personal stories and expertise๐Ÿคณ๐Ÿ‘ฉ๐ŸŽ“ Would you like to know more about our project Have a look at this๐Ÿ‘‡ https://t.co/0yUZ87SauE ๐Ÿ“ข๐Ÿ“ขWe are speaking to"
X Link 2024-06-10T11:15Z [----] followers, [----] engagements

"@stefaniavicari Delighted to promote it's a very interesting area to explore and I personally got a lot out of taking part. Good to stop and reflect on how we use social media in the advocacy space. I've a feeling @brca_ireland would enjoy contributing ๐Ÿคž"
X Link 2024-06-10T15:58Z [----] followers, [--] engagements

"@thesaltiestcow Happy birthday beautiful ๐ŸŽ‰๐Ÿ’œ and cancerversary ๐Ÿ™ I hate that you've suffered all that you have to get here and I'm grateful that you choose to openly share to raise awareness and create support. Hugs ๐Ÿค—๐Ÿ’œ"
X Link 2024-06-19T14:07Z [----] followers, [--] engagements

"@Jdavis_Halton @drawstickpeople @Dr_Polarbird @drtwillett @ebflute @ehgkulow @ellezbee @Ezim79 @gilliar_do @grannysurgeon @HeatherUpLeft @jennybencardino @jsadurski @julialkRN @killersumobunny @KmMaimone @laurasweetjane @ls_mchandler @malefitness @Marylaw59112593 It's like a painting โค"
X Link 2024-06-21T18:09Z [----] followers, [--] engagements

"As it should be. Costs should never be a barrier for people trying to be proactive in reducing risk and detecting #ColorectalCancer early. Too many people are dying from this disease. #ScreeningSavesLives We won't stop fighting until every American has no-cost access to life-saving screenings. ๐Ÿ’ช https://t.co/GB10FyXGZJ We won't stop fighting until every American has no-cost access to life-saving screenings. ๐Ÿ’ช https://t.co/GB10FyXGZJ"
X Link 2024-06-24T15:34Z [----] followers, [---] engagements

"@AoifeTDoyle Happy Birthday Aoife ๐ŸŽ‰"
X Link 2024-06-28T17:45Z [----] followers, [--] engagements

"@NFitzPsychology Happy birthday Niamh. A very emotional one I'm sure. Dara is watching over you with great love and pride. Hugs xx ๐Ÿซ‚โค"
X Link 2024-07-24T19:12Z [----] followers, [--] engagements

"Cocktail time๐Ÿธ granted not my fave but needs must to check on production at the polyp farm (aka my bowel) ๐Ÿ’ฉ So what's it like to prepare for and undergo #colonoscopy I made a lil ๐Ÿงต before on my experience ๐Ÿ‘€๐Ÿ‘‡#PolyposisSyndrome #BowelCancer #RiskManagement #EarlyDetection Fear of the unknown can deter people from participating in #colonoscopy which is the gold standard for prevention and early detection of bowel cancer. So as it's #BowelCancerAwarenessMonth I'm making this thread to share my experience of undergoing regular screenings Fear of the unknown can deter people from participating"
X Link 2024-07-30T13:49Z [----] followers, 25K engagements

"@GaryHooker16 Happy Birthday Gary ๐Ÿฅณ๐ŸŽ‰๐Ÿ’ช"
X Link 2024-08-01T11:12Z [----] followers, [--] engagements

"@mtully21 @lolatully Gorgeous pics ๐Ÿ˜ He's so adorable"
X Link 2024-08-06T13:29Z [----] followers, [--] engagements

"@DeasyPamela The losses are so hard Pamela you carry each with you ๐Ÿ’” Through your advocacy you not only improve the situation for those who will be diagnosed with this cancer in the future but you greatly honour all those precious lives taken xx ๐Ÿ’œ"
X Link 2024-08-12T10:49Z [----] followers, [--] engagements

"#ColorectalCancer in #LynchSyndrome MSH6 carriers display lower #MSI which may point to lower gene penetrance & later onset disease compared to those with alterations in the other MMR genes but may also render #Immunotherapy less effective in this group. https://www.biorxiv.org/content/10.1101/2024.08.12.607570v1ct= https://www.biorxiv.org/content/10.1101/2024.08.12.607570v1ct="
X Link 2024-08-14T11:36Z [----] followers, [---] engagements

"A very honest and enlightening thread on why you never tell a man that's living with a life changing diagnosis they got the "good cancer". No cancer is good. Well done @ethansgrumps for raising awareness of the impact of #ProstateCancer on physical and mental health ๐Ÿ’™ #prostatecancer a ๐Ÿงต Ive been told at least you got the good cancer to get so I thought Id do a ๐Ÿงต about what a stage [--] incurable cancer is really like and the impact on life. Lets start with the treatment for it which the mainstay of is removal of male hormone 1/ #prostatecancer a ๐Ÿงต Ive been told at least you got the good"
X Link 2024-08-15T19:20Z [----] followers, [----] engagements

"@EricabennettRTT @BonsCancerCork @UPMCinIreland @ThisIsKathyRock @ais_kerry @PaulKRadiation @MaryHickeyRT Wonderful โ™ฅ well done all ๐Ÿ‘"
X Link 2024-08-17T12:12Z [----] followers, [--] engagements

"@BairdAM Happy Birthday Anne-Marie ๐Ÿฅณ๐ŸŽ‚"
X Link 2024-08-19T19:55Z [----] followers, [--] engagements

"@22Q11_Ireland Well said. Terrible that it needs to be said though ๐Ÿ’”"
X Link 2024-08-22T14:26Z [----] followers, [--] engagements

"@Mayer46231196 I had the pleasure of meeting Jane earlier this year. She was so lovely. Sadly Like many young people with CRC she was diagnosed with advanced disease ๐Ÿ’” She worked so hard to raise awareness and call for lowered screening age. So tired of this rotten disease ๐Ÿ˜ฅ"
X Link 2024-08-27T14:03Z [----] followers, [--] engagements

"On the Sligo-Dublin train and they're making announcements like "Enjoy the races Paddy & Oonagh hope you've a winner" " to our American passengers getting off in Mullingar on their way to the first bacon & cabbage dinner congratulations" ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ‘ @IrishRail"
X Link 2024-08-31T14:11Z [----] followers, [----] engagements

"@aideenryan1 @MichaelRynne1 @BreakthroCancer Teamwork makes the dream work ๐Ÿ˜Š Thank you Aideen not only for your incredible work in immunology but also for all your support. I really appreciate you ๐Ÿ™ I'm so sorry I had to dash for the train and didn't get a chance to thank you in person xx"
X Link 2024-09-01T17:40Z [----] followers, [--] engagements

"A rising star Had the pleasure of being a patient partner at a @PVCR_Ireland communications workshop and her ability to connect with & understand patients & use their input to make her work accessible to all is to be greatly admired. Huge congrats @fayee_lewis well deserved๐Ÿ‘โค Well done to our @CluB_Cancer1 #PhD student @fayee_lewis for being selected for an ePoster at the IGCS-IGCAN Gynecologic Cancer Survivor-Caregiver Advocacy Summit @IGCSociety @TheCCD @TCDTMI @tcdTBSI @CancerInstIRE @TCDPharmacy @QubPGJCCR @pilib_ @hea_irl #NSRPproject. https://t.co/8Y8TFESOtH Well done to our"
X Link 2024-09-02T11:43Z [----] followers, [---] engagements

"@Lynchtr5 @sarahcorbettly1 Happy birthday beautiful Sarah ๐ŸŽ‰๐Ÿฅณ"
X Link 2024-09-02T12:00Z [----] followers, [--] engagements

"@Ontheboldstep @MaryButlerTD @SimonHarrisTD @DonnellyStephen Is there seriously only [--] public beds ๐Ÿ˜ณ That's an absolute disgrace"
X Link 2024-09-02T12:19Z [----] followers, [--] engagements

"Only a few days left to register for this great course. So many families impacted by #HereditaryCancer syndromes need as many people as possible working in healthcare to be knowledgable on #CancerGenetics & #Genomics in order to insure timely diagnosis & correct care. ๐Ÿ“ขDeadline for Cancer Genetics and Genomics extended to [--] September. This course is delivered virtually for those wishing to advance their professional skills in the area of Cancer Genetics and Genomics. [--] CPD Credits Book now ๐Ÿ‘‰ https://t.co/kpym28ddLp https://t.co/q3MH9QKz9u ๐Ÿ“ขDeadline for Cancer Genetics and Genomics"
X Link 2024-09-03T15:50Z [----] followers, [----] engagements

"@frillyflossy @SarahFitzWiMIN Same. I'm a very "live let live" type of person and don't really do anger but this makes my blood boil. I can't understand for the life of me why there aren't any laws in place to hold such grifters accountable. People literally die from their nonsense while they make a profit"
X Link 2024-09-03T18:16Z [----] followers, [---] engagements

"@GillSherratt23 @CHI_Ireland @scolionetwork @SBH_PAG @Adam_Higgins27 @AccessForAll7 @davidcullinane @MaryLouMcDonald @RuthCoppingerSP @wereontheditch @TomClonan I'm so sorry you've been so badly let down. It's horrendous. Poor Harvey ๐Ÿ’”"
X Link 2024-09-15T10:17Z [----] followers, [--] engagements

"Thinking of Laura and her family today ๐ŸŽˆ Happy Birthday Laura . You changed the world โค #HVP #ThankYouLaura ๐ŸŽˆ๐Ÿ™ Laura Brennan would have been [--] years old today. After her cancer diagnosis and until her death in [----] she campaigned to encourage parents to get the facts on the #HPVvaccine. The vaccine helps protect young people from the HPV virus which can cause cervical and other cancers https://t.co/Pc3z6MTWJ3 Laura Brennan would have been [--] years old today. After her cancer diagnosis and until her death in [----] she campaigned to encourage parents to get the facts on the #HPVvaccine. The"
X Link 2024-09-30T22:59Z [----] followers, [----] engagements

"@AnSafiak Happy Birthday Jonaton ๐ŸŽ‚๐ŸŽ‰"
X Link 2024-10-16T14:05Z [----] followers, [--] engagements

"@NEYGenomics It has moved me to tears in a good way. So much of what he describes resonates deeply. Getting the diagnosis finding your tribe and then sharing that unique knowledge base and your family experiences to help bring awareness support understanding and improvements โค๐Ÿ™Œ"
X Link 2024-10-21T13:04Z [----] followers, [--] engagements

"@Rheum2improve @Primark Disappointing from @Primark. I'm happy to purchase some pjs in various sizes and ship to you for your patients or give funds if more appropriate I'd love to help in some way"
X Link 2024-10-22T18:30Z [----] followers, [----] engagements

"@Rheum2improve @Primark Not wild at all basic needs along with underwear and safe slippers/footwear. It's sad anyone should be without in that situation a little comfort and dignity goes a long way. Pls do let me know what's decided and how to help. It's lovely how you look out for your patients ๐Ÿ˜Š"
X Link 2024-10-22T19:50Z [----] followers, [---] engagements

"@Jdavis_Halton @SheldrickTrust Happy Birthday beautiful Jill ๐ŸŽ‰๐Ÿ’๐ŸŽ‚ awww Larro is magnificent ๐Ÿฅฐ"
X Link 2024-10-27T18:46Z [----] followers, [--] engagements

""Objective: To provide a clear strategy for the management of people at hereditary risk of colorectal cancer (CRC) which includes diagnosis endoscopic management prevention and surgical care." #LynchSyndrome https://t.co/Jj8dkijnfy https://t.co/Jj8dkijnfy"
X Link 2024-10-31T15:25Z [----] followers, [---] engagements

"@MissEims I could do a job on my books with a few cans of metallic spray paint to maintain the aesthetic ๐Ÿ˜‚ Love the shelves. the inscriptions โค"
X Link 2024-11-07T18:30Z [----] followers, [--] engagements

"@VodafoneIreland any chance of home broadband fault being fixed today or do I need to cancel work meetings again Have tried contacting you for information but there's only unhelpful chatbots on offer ๐Ÿ™„"
X Link 2024-11-13T08:44Z [----] followers, [--] engagements

"And you were only amazing @ForryMary highlighting the key role #ANP can play in mainstreaming of cancer genetic testing ๐Ÿ‘ Your commitment & hard work is making a huge difference to families with #HereditaryCancer. Every hospital should have a Mary โค & a @MechelleLoughre Thanks for having me as a panel member at the Inaugural Cancer Genetic Counselling Conference #ICGC2024 A great day of learning making connections and looking to the future. Nothing beats an in person conference https://t.co/9tiaQRwWqN Thanks for having me as a panel member at the Inaugural Cancer Genetic Counselling"
X Link 2024-11-24T16:48Z [----] followers, [---] engagements

"Help needed This lady living with stage [--] #oralcancer would love to connect with people in the #HeadAndNeckCancer space in Canada/US. She's keen to connect with others & use her experiences to support advocacy & research. Anyone able to help her on her quest ๐Ÿ™#CancerCommunity I am struggling to find organizations & conferences around head+neck cancers in Canada OR the states does anyone know where I can find them to get involved @ThanksCancer I am struggling to find organizations & conferences around head+neck cancers in Canada OR the states does anyone know where I can find them to get"
X Link 2024-12-01T12:41Z [----] followers, [---] engagements

"Families can be complicated and it's never easy to relay potential risk of having a condition that greatly increases your risk of developing #Cancer BUT these are potentially lifesaving conversations. Pls have them ๐Ÿ™ #FamilyHealthMatters #HereditaryCancer #KnowledgeIsPower Who should I tell if I have Lynch syndrome https://t.co/Gev8hg01mq via @lynchsyndromirl Who should I tell if I have Lynch syndrome https://t.co/Gev8hg01mq via @lynchsyndromirl"
X Link 2025-01-05T16:38Z [----] followers, [----] engagements

"@maitiuomurchu @mtuttyTCD @prinamea @JacinthaOS @C_CahillTCD @Snowwwweeeee @sgmaher @Niamh_LL Huge congratulations Maiti ๐Ÿ‘๐Ÿฅณ"
X Link 2025-01-15T18:43Z [----] followers, [--] engagements

"Check out this great event. Did you see the line-up of speakers Great to see Mechelle Loughrey will be presenting on her stellar work delivering #ANP led cancer genetics services to aid diagnostics & care for people with #LynchSyndrome ๐Ÿ’™๐Ÿ’ช #NursesForTheWin #CancerGenetics #Savethedate Join us at the 2nd Annual National Cancer Genetics in Nursing Conference on Feb [--] [----] at SVUH Hybrid format attend in person or online. Don't miss expert speakers & valuable insights #RegisterNow: https://t.co/XGn6NWbYIN #CancerGenetics #Nursing #SVUH #Savethedate Join us at the 2nd Annual National Cancer"
X Link 2025-01-21T17:47Z [----] followers, [----] engagements

"Can anyone point Val & her lovely daughter in the right direction ๐Ÿ™ My lovely daughter has been working so hard planning her wedding. She can't get public liability insurance for the community hall. Can anyone help please She's hitting brick walls in every direction. My lovely daughter has been working so hard planning her wedding. She can't get public liability insurance for the community hall. Can anyone help please She's hitting brick walls in every direction"
X Link 2025-03-18T21:21Z [----] followers, [----] engagements

"@PeachyCure It made me grab my now taller than me daughters and hug them so tightly. Nobody should go through what this poor family have ๐Ÿ’” More research into CMMRD is needed"
X Link 2025-04-27T09:01Z [----] followers, [--] engagements

"Folks. I've just totted up my @sseairtricity bill for first [--] months of the year. I nearly fainted. [-------]. At this rate I my annual bill will be over [----] + For a standard [--] bed property ๐Ÿ˜ณ"
X Link 2025-06-09T13:58Z [----] followers, 83.8K engagements

"Great opportunity to use your experience to help others and empower yourself. If you've been affected by #cancer pls consider getting involved in #PPI you will become part of a wonderful community where you could make a real difference ๐Ÿ™‚๐Ÿ™ #YourVoiceMatters #PPI #GetInvolved We are looking for people to become Public and Patient Partners with us - if you've been affected by cancer and are interested please call [--] [---] [----] or email ppi@irishcancer.ie You will be trained up on the process no prior experience required. https://t.co/Sn6j5GgGTp We are looking for people to become Public and"
X Link 2025-06-17T14:51Z [----] followers, [---] engagements

"@Suzieq2021 Aw so sorry your mother has suffered such an injury. Glad surgery went well ๐Ÿ™ WOW look at how amazing she looks She doesn't look a bit of her age and seems to be taking it all in her stride.Great women obviously runs in the family. Wishing her a great recovery xx ๐Ÿค—๐Ÿ’—"
X Link 2025-06-27T09:01Z [----] followers, [--] engagements

"@CCampbell162 Tis ๐Ÿคฃ Mind you the trek home was a far slower affair when weighed down with unintended plants about to pass out in the heat ๐Ÿฅต And I forgot the seaweed feed so I'll have to go back tomorrow ๐Ÿ˜‚"
X Link 2025-07-12T21:10Z [----] followers, [--] engagements

"@CCampbell162 @TraffordPalazzo @OvaCare @Ovacome @TargetOvarian @OvCancerDay @macmillancancer @UCANIRELAND โคThis Christine You are certainly more than enough. You are living your best life in the face of a terminal diagnosis telling the prognosis where to go and bringing great hope to others. All the while championing life saving symptom awareness ๐Ÿฅฐ๐Ÿ™Œ๐Ÿ’ช"
X Link 2025-07-19T16:24Z [----] followers, [--] engagements

"Super excited to see this study ๐Ÿ˜ƒ People with EPCAM #LynchSyndrome are currently lumped in with MSH2 carriers regards risk estimates & surveillance so it will be a huge win for carriers to have good evidence specific to EPCAM. I hope collaborators are breaking down the door๐Ÿคž ๐ŸšจCall for Collaboration๐Ÿšจ We're launching a new study at the PLSD to analyze cancer risks in individuals with germline terminal deletion of EPCAMcharacterizing the fifth Lynch syndrome. Join us in leveraging the Prospective Lynch Syndrome Database for groundbreaking research ๐ŸšจCall for Collaboration๐Ÿšจ We're launching a"
X Link 2025-07-30T13:11Z [----] followers, [---] engagements

"@HSELive @hseNCCP has this gentleman been provided with incorrect information regarding discontinuation of PSA testing for men in Ireland Would greatly appreciate some clarification here please ๐Ÿ™ @HorganRoberta @martins39999412 I was informed by my doctors nurse this week as I went for my blood test that the PSA test is to be discontinued as a result of false positives. Surely this will increase the number of men who will suffer as the alternative test is invasive. @HorganRoberta @martins39999412 I was informed by my doctors nurse this week as I went for my blood test that the PSA test is to"
X Link 2025-09-02T14:52Z [----] followers, [--] engagements

"@josepereag @RCSI_Irl @DrgGastro We are honoured to have you and very grateful for your willingness to travel to Dublin to share your wisdom. It's going to be an epic event for the Irish bowel cancer community ๐Ÿ˜Š๐Ÿ’™"
X Link 2025-09-04T12:58Z [----] followers, [--] engagements

"I've been so incredibly lucky. I got the screening I needed on time. It saved my life. Others are not so lucky and it destroys me to witness the lives unnecessarily lost to late diagnosis. Research like represents hope for more cost-effective accessible #CRC screening methods What if a single drop of blood could help us detect cancer sooner Our DC6 Bahareh Soleimanpour is back from a summer refresh to show us her work on Dynamic Chemical Labelling (DCL) a faster & cheaper way to find early signs of colorectal cancer. https://t.co/9ONqEi4q12 What if a single drop of blood could help us detect"
X Link 2025-09-06T17:46Z [----] followers, [----] engagements

"Getting shingles if you have #CLL can kill you hence there's a strong recommendation that people with CLL get vaccinated against it. But sadly if you live in Ireland you better hope you can afford to pay the [---] or well just pray you don't get shingles. It should be free. Eligibility for a free #ShinglesVaccine isn't just something that's nice to have it could be life or death when living with #CLL should you contract shingles Expecting vulnerable patients to self-pay [---] euro is terrible. Most simply cannot afford it #UnitedCancerVoicesIE Eligibility for a free #ShinglesVaccine isn't just"
X Link 2025-09-10T11:49Z [----] followers, [----] engagements

"This lady is a powerhouse ๐Ÿ’™ Niamh Conroy @hole_cancer co-founder @IEColonCancer speaking at @RCSI #BowelCancer event on being diagnosed with and living with advanced #CRC the need for awareness/resources to aid #screening #earlydetection improved patient care & experiences ๐Ÿ‘"
X Link 2025-09-18T08:14Z [----] followers, [----] engagements

"Understand Hereditary Risk in Colorectal Cancer ๐Ÿงฌ- Mechelle Loughrey #ANP Cancer Genetics @svuh stellar breakdown of inherited #CRC risk at @RCSI_Irl #BowelCancer Event. Access to timely diagnosis & subsequent care pathways is key in maximising cancer prevention opportunities"
X Link 2025-09-18T20:22Z [----] followers, [---] engagements

""Kealy says she is living proof that early intervention works and believes other women should be aware of their bodies and seek medical advice if any changes or concerns." - Powerful sharing for @WorldGOday ๐Ÿ‘๐Ÿ’œ #ThisisGO #WorldGODay #INGO #BeSymptomAware #EarlyDetection Gynaecological cancers: What strikes me is how easy it would have been to dismiss that one symptom https://t.co/FHdd6vkKbS via @lynchsyndromirl Gynaecological cancers: What strikes me is how easy it would have been to dismiss that one symptom https://t.co/FHdd6vkKbS via @lynchsyndromirl"
X Link 2025-09-20T12:37Z [----] followers, [---] engagements

"@yvonneo_meara @IrishCancerSoc @AstraZeneca @Shotoole81 @DonalBrennan20 That's wonderful news. Well done to you all ๐Ÿ’œ๐Ÿ‘"
X Link 2025-09-20T14:42Z [----] followers, [--] engagements

"Well done to you all for braving the cold to #Dip4GODay raising vital awareness of #gynaecancers and support for the patient community ๐Ÿ’ช๐Ÿ’œ Amazing efforts for #WorldGODay ๐Ÿ‘๐ŸŠ [--] hardy swimmers in Youghal to mark #WorldGoDay2025. Thank you all for braving the cool temperature and for helping to raise awareness of gynae cancers including ovarian and uterine cancer. https://t.co/YSCfX3Cg4P [--] hardy swimmers in Youghal to mark #WorldGoDay2025. Thank you all for braving the cool temperature and for helping to raise awareness of gynae cancers including ovarian and uterine cancer."
X Link 2025-09-21T09:16Z [----] followers, [---] engagements

"@annmcbrien_ @BBCnireland @5kYWBelfast @MOVEcharity You're an amazing advocate and person Ann. Thrilled to see you receive such well deserved recognition. You really do make a difference in the lives of so many people affected by cancer. Congratulations lovely xx ๐ŸŽ‰๐Ÿ‘โค"
X Link 2025-09-26T16:58Z [----] followers, [--] engagements

"@jessicafurseth @Lynchsyndromirl Jessica this is amazing I seen on @LynchSyndromeUK group yesterday. Hits so many nails on the head. Well done and thank you ๐Ÿ™๐Ÿฅฐ"
X Link 2020-09-30T10:03Z [----] followers, [--] engagements

""Conclusion: This study refines cancer risk estimates for MSH6 LP/P carriers suggesting the need for delayed CRC screening in males and females and proactive discussions regarding prophylactic surgery for females to address elevated risks for EC and OC." #LynchSyndrome ๐Ÿงฌ Cancer risks for MSH6 pathogenic variant carriers by @MaartjeNielsen M. Jenkins et al- CRC risk by 80y: 36% (95%CI: 2548%) โ™‚ 21% (1332%) โ™€ EC: 23% (1543%) โ™€ OC: 6.4% (3-15%) โ™€ Urinary tract ca: 10% โ™‚ 4% โ™€ Biliary tract ca: 4-5% https://t.co/owRApY23C5 Cancer risks for MSH6 pathogenic variant carriers by @MaartjeNielsen M."
X Link 2025-02-25T02:46Z [----] followers, [---] engagements

"Research Alert ๐Ÿ“ข National Evaluation of Nutrition & Dietetic Services for People Post-Cancer Treatment If 18+ living in & had/have cancer pls consider taking this 15min survey Your voice matters & will help to inform services ๐Ÿ™ #CancerResearch https://ucc.qualtrics.com/jfe/form/SV_2spbNjDttA3g2eq https://ucc.qualtrics.com/jfe/form/SV_2spbNjDttA3g2eq"
X Link 2025-10-26T12:48Z [----] followers, [---] engagements

"Very proud of my Lily for qualifying for & competing in The GO Tennis Grandslam in Sligo yesterday bringing home the silver to Longford for under-14s ๐ŸŽ‰ Well done to all exceptional talent and sportsmanship demonstrated ๐Ÿ‘ Huge thanks to @SligoTennisClub for great hosting ๐Ÿ™"
X Link 2025-11-03T10:38Z [----] followers, [---] engagements

"@MarieKeating ๐Ÿ’™๐Ÿ’”"
X Link 2025-11-07T18:36Z [----] followers, [--] engagements

"@BEAUTIFULMUMSIE @MarieKeating Same Lesley ๐Ÿ˜ž Just heartbroken. Hours spent looking back on conversations & photos trying to keep hold of her. She was so special. Always running around the place supporting others with that great love and joy she was made of ๐Ÿ’™๐Ÿฅน She thought the world of you too. Hugs ๐Ÿซ‚"
X Link 2025-11-09T14:31Z [----] followers, [---] engagements

"This is so wonderful. Cancer prevention at its finest. Get the #HPV vaccine. #CancerPrevention #HPVvaccine #VaccinesSaveLives Australia just recorded zero cervical cancer cases in women under [--] - for the first time since records began in [----]. This is what happens when a country commits to HPV vaccination and screening. We protect our girls and save lives. Australia just recorded zero cervical cancer cases in women under [--] - for the first time since records began in [----]. This is what happens when a country commits to HPV vaccination and screening. We protect our girls and save lives"
X Link 2025-11-27T15:24Z [----] followers, [---] engagements

"@csmcnevin doing stellar work in the cancer genetics space Keep going Ciara you are making a real difference for people affected by BRCA gene mutations ๐Ÿ‘โค #BRCA #CancerGenetics Great to have Irish figures on BRCA germline and somatic presented by @csmcnevin from @CancerInstIRE @stjamesdublin @tcddublin at #ISGO25 https://t.co/SpR4RIxFPv Great to have Irish figures on BRCA germline and somatic presented by @csmcnevin from @CancerInstIRE @stjamesdublin @tcddublin at #ISGO25 https://t.co/SpR4RIxFPv"
X Link 2025-12-05T14:10Z [----] followers, [---] engagements

"They cover everything from cancer genetics & genetic testing ๐Ÿงฌ to understanding the cancer types involved and your risk of developing these cancers based on age gender and mismatch repair gene involved. How to communicate a positive genetic test result with family members 2/"
X Link 2026-02-14T21:21Z [----] followers, [---] engagements

""This study provides evidence that theMSH2nonsense mutation c.354TA is a highly likely pathogenic mutation and is responsible for typical LS-associated endometrial carcinoma. It emphasizes the importance." ๐Ÿง #LynchSyndrome #EndometrialCancer #CancerGenetics"
X Link 2025-07-15T14:43Z [----] followers, [---] engagements

"Beyond tragic. #ColorectalCancer is one of few cancer types with proven screening methods for both prevention & early detection yet we are losing so many young people to it ๐Ÿ˜ฅ Supporting research to better understand detect & treat #CRC in people under [--] needs to be a priority. BREAKING NEWS: Colorectal cancer is now the leading cause of cancer death for people under [--] according to new data released by the American Cancer Society (@AmericanCancer). This trend is alarmingand it demands action. Congress must prioritize #ColorectalCancer research so we https://t.co/mbfhW9QmjF BREAKING NEWS:"
X Link 2026-01-22T21:42Z [----] followers, [---] engagements

"@AMLaCassePhoto I'm so sorry Alan what a terrible shock for you and your loved ones ๐Ÿ˜ฅHard to play the waiting game for results and a game plan. There's been huge advancements in treatment for bowel cancer in recent years so keep that in your mind. Always here if you need an ear. Big hugs ๐Ÿซ‚"
X Link 2026-02-03T17:25Z [----] followers, [----] engagements

"@AMLaCassePhoto Your Dr is spot on you are young and fit - that will stand to you. Your results will be back before you know it and there'll be a highly skilled team of experts working together to create the best treatment plan for you. You got this Alan ๐Ÿ’™"
X Link 2026-02-03T21:37Z [----] followers, [--] engagements

"@Chris_McClem ๐Ÿซ‚โค"
X Link 2026-02-05T19:31Z [----] followers, [--] engagements

"Just finished putting food delivery away when a second Tesco van arrives. "I think you've the wrong house". He checks his docket. It's my address. I'm so confused. Then my twin calls my phone howling laughing. It's hers. She somehow gave my aircode. She lives over 100km away๐Ÿคฃ"
X Link 2026-02-05T21:45Z [----] followers, [----] engagements

"@MissEims Myself and poor Joe from Tesco didn't know what was going on ๐Ÿคฃ"
X Link 2026-02-05T23:45Z [----] followers, [---] engagements

"Check out the new @hseNCCP #LynchSyndrome information booklets Designed in partnership with @Lynchsyndromirl patient community they contain clear & factual information to help affected families understand and manage the condition 1/"
X Link 2026-02-14T21:21Z [----] followers, [---] engagements

"What symptoms to watch out for What screening is available to aid cancer prevention and early detection Info on prophylactic gynecological surgery Family planning and where to find relevant services and supports and much more 3/"
X Link 2026-02-14T21:22Z [----] followers, [---] engagements

"Available for free download or order hard copies at Sincere thanks to all members @hseNCCP Lynch Syndrome Advisory Group. What a knowledgeable dedicated & caring group Special thanks to Dr Barbara McGrogan for her excellent leadership throughout ๐Ÿ™๐Ÿฅฐ https://www.healthpromotion.ie/productscategory=0&keyword=Lynch+&page=1 https://www.healthpromotion.ie/productscategory=0&keyword=Lynch+&page=1"
X Link 2026-02-14T21:22Z [----] followers, [---] engagements

"So excited to share this #PatientLedResearch on #LynchSyndomeAwarenessDay exploring the experiences of living with a LS diagnosis in an Irish setting. It would not have been possible without the support of the participants. so grateful ๐Ÿฅฒ AddThis Home https://doi.org/10.1016/j.ejon.2022.102117#.YjmJ88PVuUI.twitter https://doi.org/10.1016/j.ejon.2022.102117#.YjmJ88PVuUI.twitter"
X Link 2022-03-22T08:42Z [----] followers, [---] engagements

"A loved one recently diagnosed with stage [--] cancer has been denied a #MedicalCard She's unable to work due to effects of chemo which she will be on indefinitely. This is disgusting @HSELive do you not care about this added stress you're placing on people"
X Link 2024-04-13T10:16Z [----] followers, 323.5K engagements

"Shameful and disgusting to hijack my post about a loved ones cancer experience to push your own agenda. You couldn't care less about us. Delete it if you've any decency at all. This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom"
X Link 2024-04-14T14:54Z [----] followers, 99.2K engagements

"This Government treats Irish people like second class citizens.Asylum seekers get a medical card automatically. Ukrainian pets are treated better than the Irish people. #VoteThemAllOut and support #Irishfreedom"
X Link 2024-04-14T14:16Z 53.2K followers, 112.2K engagements

"Folks. I've just totted up my @sseairtricity bill for first [--] months of the year. I nearly fainted. [-------]. At this rate I my annual bill will be over [----] + For a standard [--] bed property ๐Ÿ˜ณ"
X Link 2025-06-09T13:58Z [----] followers, 83.8K engagements

"Didn't sleep the best. A tweet I seen was weighing on my mind. A non-EU Doc hospitalized with covid had asked his friend to pls look after his family should he not survive๐Ÿ’” Without citizenship they've no rights or protection. Heartbreaking and not right. #fastTrackCitizenship"
X Link 2021-01-17T12:50Z [----] followers, [---] engagements

"I've always struggled with treating myself. Irish mammy guilt I think. So twin sister sends the bag you've admired but would never buy for yourself ๐Ÿฅนโค #IDontDeserveHer"
X Link 2023-11-22T15:04Z [----] followers, 49.8K engagements

"@IrexitFreedom How dare you use my post about a families members cancer experience to push your own unrelated agenda. Don't think I've ever even seen you advocate for cancer patients You're disgusting. Shame on you"
X Link 2024-04-14T14:50Z [----] followers, 11.6K engagements

"@gunsnrosesgirl3 Took me ages to figure out what was munching on my potted rose. Hiding in plain sight. ๐Ÿ‘€"
X Link 2023-02-25T14:10Z [----] followers, 13.6K engagements

"Can't thank the A&E staff at regional hospital Mullingar enough for the amazing care they took of my daughter over the last few days. Dispite been under immense pressure the level of care and compassion was incredible. We as a family are so grateful ๐Ÿ™๐Ÿ’—"
X Link 2022-03-03T15:37Z [----] followers, [---] engagements

"Just been told I'm getting my vaccine tomorrow ๐Ÿ™๐Ÿ˜ I'm so happy"
X Link 2021-05-05T08:04Z [----] followers, [---] engagements

"Covid has found me. I hear lots comparing to the flu. I've never had the flu but genuinely hope I never do if there's any truth to the comparison. Hit by a bus. more like a fleet I foresee PJs & painkillers being my best pals for the duration ๐Ÿค’"
X Link 2022-04-18T12:21Z [----] followers, [---] engagements

"I'm honestly overwhelmed by the response and support ๐Ÿฅนโค Looks like her medical card will be sorted now. A huge weight of their shoulders. Thank you so much everyone ๐Ÿ™ But my heart aches from the numerous replies from people in the same boat who face/faced the same difficulty. A loved one recently diagnosed with stage [--] cancer has been denied a #MedicalCard She's unable to work due to effects of chemo which she will be on indefinitely. This is disgusting @HSELive do you not care about this added stress you're placing on people A loved one recently diagnosed with stage [--] cancer has been"
X Link 2024-04-14T09:29Z [----] followers, 14.3K engagements

"Best tea & toast on the planet ๐Ÿ˜‹ Colonoscopy done โœ… Polyps evicted โœ… Cancer prevented โœ… Peace of mind โœ… Pls folks if you're invited for screening or have worrisome symptoms get checked ๐Ÿ™ it's a safe test that could save your life. #BowelCancerAwareness #ChooseScreening"
X Link 2024-07-31T16:12Z [----] followers, [----] engagements

"I planted a bare root rose 6wks ago in honour of a loved one who died long before their time. It was a yellow rose. I regretted not choosing a red one due to her love of Disneys Beauty & the Beast. Well look what greeted me this morning when it bloomed ๐Ÿฅฒ๐ŸŒน"
X Link 2023-07-05T12:09Z [----] followers, [----] engagements

"I can't thank you enough @BernardGloster along with your colleague Michelle @HSELive for acting with incredible speed & great empathy to ensure my loved one got her medical card today. Your actions helped a wonderful lady during the most difficult of times. We are so grateful ๐Ÿ™ A loved one recently diagnosed with stage [--] cancer has been denied a #MedicalCard She's unable to work due to effects of chemo which she will be on indefinitely. This is disgusting @HSELive do you not care about this added stress you're placing on people A loved one recently diagnosed with stage [--] cancer has been"
X Link 2024-04-15T20:03Z [----] followers, 22.8K engagements

"Sadly ๐Ÿ’” we dont always know the depths of someones depression until it is too late. ๐Ÿ˜ฅ May I please have even [--] follower copy and re-post I am trying to demonstrate that someone is listening Just one. Any one"
X Link 2020-11-19T18:14Z [----] followers, [---] engagements

"Suns shining and I actually slept well. I've been on autopilot all wk. My Dad was taken to Mullingar hospital on Monday very unwell with covid complications. Had a massive heart attack that night and was rushed to St James. We almost lost him. But thanks to his GP ambulance"
X Link 2022-03-26T13:46Z [----] followers, [---] engagements

"My uncle had symptoms of prostate cancer. Maybe it was fear or embarrassment that prevented him from seeking help. It spread to his bowel which ruptured & he died from sepsis ๐Ÿ˜ข please don't put off going to your doctor if you've health concerns. Get checked #MensHealthWeek"
X Link 2020-06-17T12:32Z [----] followers, [---] engagements

"At ease Dad ๐Ÿ•Š ๐Ÿ’—๐Ÿ•ฏ"
X Link 2025-05-21T06:13Z [----] followers, [----] engagements

"My dad has started to improved greatly โคโ˜บ Huge heartfelt thanks to everyone here for your well wishes and tremendous support. Absolute legends the lot of ye ๐Ÿ™"
X Link 2022-03-31T08:47Z [----] followers, [---] engagements

"It saddens me that bowel screenings are not starting up till September. It's essential in identifying disease in asymptomatic people.This will have terrible life changing consequences for many. It will cost lives. Every week that goes by is adding to the devastation to come. ๐Ÿ˜ข"
X Link 2020-06-27T14:17Z [----] followers, [---] engagements

"Please could any [--] of my followers just copy and repost This pandemic is especially hard for people with depression. Samaritans [---] [---] Just two. Any two. Say done"
X Link 2020-10-03T20:08Z [----] followers, [---] engagements

"When we talk about the 'cure for cancer' we forget that this means someone already has to have that cancer. The holy grail is PREVENTION Today my daughter received her #HPV vaccine and we as a family are so grateful. #ThankYouLaura ๐Ÿ™๐Ÿ’–"
X Link 2021-03-22T11:56Z [----] followers, [---] engagements

"My teen had her first colonoscopy yesterday. She has GI issues due to liver condition but they wanted to be sure it was just that and nothing to do with her FH of polyposis/bowel cancer. On one hand I was extremely grateful that her consultant was knowledgeable about 1/"
X Link 2024-07-28T10:28Z [----] followers, 27K engagements

"Cancer patients have experienced great difficulties accessing medical cards long before Ukrainians set foot here. I stand by what I said. You couldn't care less about what I actually posted about. Just using my post to push racist agenda. Shame on you"
X Link 2024-04-14T15:32Z [----] followers, [----] engagements

"@mtully21 @HSELive @DonnellyStephen Thanks Maureen ๐Ÿ™ just spent a half hour chatting to her husband they're having such a hard time. chemo side effects are hitting hard and the financial toxicity is very real. He's also on reduced hours trying to take care of his wife. Can't believe they were refused. So angry"
X Link 2024-04-13T10:31Z [----] followers, 15.4K engagements

"I cried when @MyriamChalabi explained her smile. For her every blue bar was more than a statistic it was a person. She knew their face and name knew about their children and their lives knew that they would now get to live that life together. It's really what it's all about ๐Ÿ’™"
X Link 2023-03-04T23:48Z [----] followers, 15.6K engagements

"Another #colonoscopy done ๐Ÿ’ฉ Massive thanks to Prof Egan & his lovely team @BonSecours Galway for always taking great care of me ๐Ÿ’— I'm a little tired. low BP but feeling happy and grateful that all went well. no cancers ๐Ÿ™Œ #screeningsaveslives #SerratedPolyposisSyndrome"
X Link 2022-07-15T19:12Z [----] followers, [---] engagements

"She was a force to be reckoned with and lived life on her own terms. So many good memories of summers spent under her roof โค A long term cancer patient she sadly passed away last night from pneumonia. Lots of heavy hearts today ๐Ÿ˜ข RIP Auntie Bernie x"
X Link 2020-12-16T09:53Z [----] followers, [---] engagements

"@Siuners Love this โค Some of the nicest people I've ever met are Dublin taxi drivers. After a round of spinal injections driver who collected me from hospital insisted on walking me right to my seat on the train as he was afraid someone might accidentally bump into me. Such kindness"
X Link 2020-03-06T09:53Z [----] followers, [---] engagements

"What an honour I'm deeply humbled. When my daughter was due her #HPV vaccine it wasn't even something I had to discuss with her as Lauras powerful voice had already educated her on the importance of prevention. A legacy that has and will continue to save countless lives 1/2 ISGO are delighted to announce that Roberta Horgan @Lynchsyndromirl will be the recipient of the Laura Brennan award [----]. Roberta has done enormous work in advocating for improved services around Lynch Syndrome and destigmatisation of genetic testing https://t.co/irRAt7YRsy ISGO are delighted to announce that Roberta"
X Link 2022-10-26T09:33Z [----] followers, [---] engagements

"ISGO are delighted to announce that Roberta Horgan @Lynchsyndromirl will be the recipient of the Laura Brennan award [----]. Roberta has done enormous work in advocating for improved services around Lynch Syndrome and destigmatisation of genetic testing https://youtu.be/UeVdgSWv28s https://youtu.be/UeVdgSWv28s"
X Link 2022-10-26T08:26Z [----] followers, [---] engagements

"A MASSIVE thank you to Dr Toomey and all the team in Mullingar for taking such wonderful care of my daughter. And for giving up their Saturdays (coming in at 6.30am no less) to help alleviate growing waiting lists. You were all so lovely and kind to a scared teen girl ๐Ÿ™โค"
X Link 2024-07-28T10:28Z [----] followers, [----] engagements

"#colonoscopy all done โœ… [--] new lesions got evicted and my prep quality was excellent ๐Ÿ™Œ Haha Coke Zero did the job โ˜บ exceptional care as always in @BonSecours Galway. All good for another [--] months ๐Ÿ‘Š Thanks everyone for the well wishes. Yer the best bunch ๐Ÿ™๐Ÿ˜˜๐Ÿ’ž"
X Link 2021-07-16T17:50Z [----] followers, [---] engagements

"Cocktail of the day is. ๐Ÿคช๐Ÿคฎ But I won't complain. I'm thinking of all those who should be prepping but aren't. All those left waiting. I'm very grateful to get my colonoscopy. So bottoms up ๐Ÿฅ‚ #colonoscopy #FightCRC #highrisk #screeningsaveslives"
X Link 2020-07-07T12:12Z [----] followers, [---] engagements

"Colonoscopy done The big lesion is fully gone along with a new one that had grown ๐Ÿ˜ƒ Amazing care in @BonSecours Galway as always โค Thanks so much all you lovelies for keeping me company through prep yesterday with great humour and well wishes. You're a wonderful bunch xx ๐Ÿ˜˜๐Ÿ’•"
X Link 2020-07-08T14:19Z [----] followers, [---] engagements

"When you've being dealing with a lot and it's starting to feel relentless your twin sister sends you a hug in a box to remind you there is always love and light ๐Ÿฅน๐Ÿ’— #SisterLove #BetterDays #Twinning"
X Link 2022-10-21T11:56Z [----] followers, [---] engagements

"@PaddyOPutin @IrexitFreedom Everyone is deserving of healthcare regardless of who they are. It's a basic human right. first time you've ever interacted with me dispite all my posts raising awareness & support for cancer patients. You couldn't care less about the content of my post just your own agenda"
X Link 2024-04-14T15:40Z [----] followers, [----] engagements

"While advancements in diagnosing & treating cancer is greatly improving outcomes my heart has just collapsed at learning a beautiful young person has no time no options only hospice. My tears are useless ๐Ÿ˜ข๐Ÿ’”"
X Link 2023-10-21T14:28Z [----] followers, [----] engagements

"Daddy Horgan wins the gold for the fastest turn around. To think we almost lost him only weeks back and now look at him ๐Ÿ˜ญโค All thanks to the phenomenal medical care he received ๐Ÿ˜Š still needs a few procedures but is getting stronger for them"
X Link 2022-04-11T11:05Z [----] followers, [---] engagements

"@robbiewritesie @HSELive Please don't hijack my post about my loved ones cancer experience to push your own agenda. That's really horrible"
X Link 2024-04-14T12:22Z [----] followers, [----] engagements

"Very excited (and a tad nervous) to be on route to @ucddublin to take part in a live MDT meeting on #ColorectalCanxer being delivered to final year medical students โ˜บ A wonderful opportunity to bring in the #patientvoice of people living with #LynchSyndrome ๐Ÿ’™"
X Link 2024-04-16T08:24Z [----] followers, [----] engagements

"@Justin_Slamen Your party using my post to push an agenda that has absolutely nothing to do with the content of my post - that's what's unacceptable. I post all day long about cancer awareness and your party has never shown any support. Just jumped on this one because it gained traction"
X Link 2024-04-14T15:35Z [----] followers, [----] engagements

"Cocktail time๐Ÿธ granted not my fave but needs must to check on production at the polyp farm (aka my bowel) ๐Ÿ’ฉ So what's it like to prepare for and undergo #colonoscopy I made a lil ๐Ÿงต before on my experience ๐Ÿ‘€๐Ÿ‘‡#PolyposisSyndrome #BowelCancer #RiskManagement #EarlyDetection Fear of the unknown can deter people from participating in #colonoscopy which is the gold standard for prevention and early detection of bowel cancer. So as it's #BowelCancerAwarenessMonth I'm making this thread to share my experience of undergoing regular screenings Fear of the unknown can deter people from participating"
X Link 2024-07-30T13:49Z [----] followers, 25K engagements

"Fear of the unknown can deter people from participating in #colonoscopy which is the gold standard for prevention and early detection of bowel cancer. So as it's #BowelCancerAwarenessMonth I'm making this thread to share my experience of undergoing regular screenings"
X Link 2022-04-02T15:55Z [----] followers, [---] engagements

"@MarieKeating @DeniseMBreen Well done Denise ๐Ÿ‘๐Ÿ’™"
X Link 2023-09-18T12:20Z [----] followers, 12.3K engagements

"Tucked up in bed with my cupan tae happy out after an amazing day at #ISGO2022. A day full of great people going above and beyond in their work to help others. The highlight was having dinner with Laura Brennan's amazing parents ๐Ÿฅน๐Ÿ’— Love you Larry & Bernie #ThankYouLaura ๐Ÿ™"
X Link 2022-11-19T00:48Z [----] followers, [---] engagements

"Thanks so much @LumpyandFriends for making two little ladies very happy โ˜บ Kayla (left) & Lily ( right) were over the moon with the very thoughtful gifts. They still can't believe Mr Lumpy sent them mail & couldn't wait to show their friends in school"
X Link 2019-10-02T08:55Z [----] followers, [--] engagements

"Okay so just going to say it straight. Why oh why is Lynch Syndrome not getting the same coverage as other genetic cancer syndromes in the media The associated cancers are so preventable if affected families are aware but how do we educate if it's not spoken about ๐Ÿ™„"
X Link 2019-11-09T01:55Z [----] followers, [---] engagements

"Very welcome news. I was contacted by my GI this morning to say they hope to bring me in for colonoscopy on July 8th. I actually cried with relief ๐Ÿ˜ญโค Simon Harris confirms that all cancer screening services will resume by July (via @thejournal_ie) https://t.co/H8CqDm9jgz Simon Harris confirms that all cancer screening services will resume by July (via @thejournal_ie) https://t.co/H8CqDm9jgz"
X Link 2020-06-12T11:21Z [----] followers, [--] engagements

"Simon Harris confirms that all cancer screening services will resume by July (via @thejournal_ie) https://jrnl.ie/5120791 https://jrnl.ie/5120791"
X Link 2020-06-12T06:45Z [----] followers, [--] engagements

"Thankfully no polyps found ๐Ÿ˜ญโค The relief is indescribable. She can put it behind her until she starts regular surveillance in a few years time. Her first word in recovery room was "Kitty" Clever girl pulled the empathy card on her Dad to secure the adoption ๐Ÿ˜‚ 4/"
X Link 2024-07-28T10:28Z [----] followers, [----] engagements

"Can we all please give it up for Pamela ๐Ÿ‘๐Ÿ‘๐Ÿ‘ A survivor of pancreatic cancer who will tomorrow finish the #camino in aid of @pancanireland. She has walked her legs off while battling pain and high temperatures & still flew to meetings with her advocacy hat on Legend ๐Ÿ’œ๐Ÿ‘๐Ÿคฉ #Day191 of #200daysofwalking The penultimate day ๐Ÿ˜” tomorrow I will finish my #CaminodeSantiago #Camino https://t.co/FVNXmbBwPN in aid of #pancreaticcancer https://t.co/YB6qW72J5D #Day191 of #200daysofwalking The penultimate day ๐Ÿ˜” tomorrow I will finish my #CaminodeSantiago #Camino https://t.co/FVNXmbBwPN in aid of"
X Link 2025-07-10T17:17Z [----] followers, [----] engagements

"#Day191 of #200daysofwalking The penultimate day ๐Ÿ˜” tomorrow I will finish my #CaminodeSantiago #Camino in aid of #pancreaticcancer https://www.idonate.ie/fundraiser/PamelaDeasy11 https://www.idonate.ie/fundraiser/PamelaDeasy11"
X Link 2025-07-10T13:08Z [----] followers, [----] engagements

"@morellifit You still can't give answers. ONE thing YOU must understand is that molecular testing of individual tumours to match patients with targeted therapies is practiced in actual oncology clinics by actual Drs. That's personalised treatment You are a disgusting fraud. Shame on you"
X Link 2024-05-18T14:38Z [----] followers, [----] engagements

"My uncle smiling away his gaunt face a clue to the #prostatecancer that would soon take him but yet he was "grand no need to bother the doctor". If only he had. We might still have that smile. Please guys don't ignore symptoms. Get checked ๐Ÿ™ #prostatecancerawarenessmonth"
X Link 2020-09-12T14:14Z [----] followers, [--] engagements

"Having a cuppa & enjoying looking through social media seeing all the incredible posts for #LynchSyndromeAwarenessDay People are AMAZING ๐Ÿคฉ It's heartwarming to see the great efforts by so many to raise awareness ๐Ÿฅน Thank you all #community #LetsGoDotty ๐Ÿ”ด๐Ÿ”ต๐ŸŸฃ๐ŸŸข๐ŸŸ ๐ŸŸก๐Ÿ”ด๐Ÿ”ต"
X Link 2023-03-22T17:26Z [----] followers, [----] engagements

"What ๐Ÿ˜ง @DonnellyStephen last week you opened EU Cancer Mission Day and this week you're deciding that cancer patients who're desperately waiting on life-saving drug developments are not worthy of hope I'm at a loss here how is this acceptable to you Horrendous altogether. Shocking news for cancer patients as @DonnellyStephen has warned there will be no funding for new medicines amid budget challenges. @davidcullinane @RoisinShortall @GaryGannonTD @WaterfordMafia @HorganRoberta @RayMcDermott1 @DrRobertOConnor https://t.co/zligsJlosI Shocking news for cancer patients as @DonnellyStephen has"
X Link 2023-10-06T08:27Z [----] followers, [----] engagements

"Shocking news for cancer patients as @DonnellyStephen has warned there will be no funding for new medicines amid budget challenges. @davidcullinane @RoisinShortall @GaryGannonTD @WaterfordMafia @HorganRoberta @RayMcDermott1 @DrRobertOConnor https://www.irishtimes.com/politics/2023/10/05/donnelly-warns-drug-firms-of-funding-shortage-for-new-medicines-amid-budget-challenges/ https://www.irishtimes.com/politics/2023/10/05/donnelly-warns-drug-firms-of-funding-shortage-for-new-medicines-amid-budget-challenges/"
X Link 2023-10-05T19:56Z [----] followers, 12.4K engagements

"My baby finished primary school yesterday ๐Ÿฅฒ After a wonderful ceremony yesterday evening that included singing banter awards cake & a very emotional slide-show of their journey through the school years they finished up with a MASSIVE water fight ๐Ÿคฃ๐Ÿ‘โค"
X Link 2024-06-19T12:24Z [----] followers, [----] engagements

"@Lynchtr5 No doubt Jason is proud of his brave children and grateful to you for supporting them throughout. Ye couldn't have done more. Love and hugs to you all Tracey xx ๐Ÿ’•"
X Link 2023-11-09T08:52Z [----] followers, [----] engagements

"I was expecting it but it doesn't make it any easier. Yesterday my GI confirmed my follow up colonoscopy to get the rest of a giant lesion found in January won't be going ahead. I've no idea when it will. #SerratedPolyposisSyndrome #HighRisk #BringBackCancerScreening"
X Link 2020-06-06T14:46Z [----] followers, [--] engagements

"The patient advocate community has lost a queen ๐Ÿ˜ข A warm and caring person whose selfless dedication to our community has and will continue to inspire. I'm going to miss this magnificent soul so much. Sincere condolences to her family and friends. Rest easy beautiful Sonya๐Ÿ•ฏ๐Ÿ’” We are deeply saddened to hear of the passing of Sonya Lynch Our heartfelt sympathy goes to your husband Don and your children that we all heard about Alex Isabel and Isaac and to all your family. Go gently Sonya Rest In Peace https://t.co/nlJhsJqrZp #RIP https://t.co/rPunIjInEY We are deeply saddened to hear of the"
X Link 2023-08-15T15:03Z [----] followers, [----] engagements

"We are deeply saddened to hear of the passing of Sonya Lynch Our heartfelt sympathy goes to your husband Don and your children that we all heard about Alex Isabel and Isaac and to all your family. Go gently Sonya Rest In Peace #RIP https://mariekeating.ie/2023/08/sonya-lynch-rip/ https://mariekeating.ie/2023/08/sonya-lynch-rip/"
X Link 2023-08-15T10:03Z [----] followers, [----] engagements

Limited data mode. Full metrics available with subscription: lunarcrush.com/pricing

creator/x::HorganRoberta
/creator/x::HorganRoberta