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[@AlexionPharma](/creator/twitter/AlexionPharma)
"Atypical haemolytic uraemic syndrome (#aHUS) is a rare progressive chronic disease with relapses. Its a type of thrombotic microangiopathy a group of severe and potentially life-threatening rare disorders that cause blood clots and damage to small blood vessels"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1930535065131348208) 2025-06-05 08:00:01 UTC 12.4K followers, XXX engagements


"Symptoms of hypophosphatasia (#HPP) can appear at any age and accumulate or worsen over time they can cause significant disability or impaired mobility"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1944756278175146118) 2025-07-14 13:50:03 UTC 12.4K followers, XXX engagements


"Neuromyelitis optica spectrum disorder (#NMOSD) is a rare and debilitating autoimmune disease characterised by unpredictable relapses or attacks. Learn more about the condition below"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1936710818160128099) 2025-06-22 09:00:16 UTC 12.4K followers, XXX engagements


"Were excited to be at the @TheEndoSocietys Annual Meeting in Endocrinology presenting new research in #Hypophosphatasia (HPP) that could help improve understanding of this rare disease for endocrine and bone metabolism researchers and clinicians from around the globe"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1943656528390582390) 2025-07-11 13:00:02 UTC 12.4K followers, XXX engagements


"aHUS is a type of thrombotic microangiopathy (TMA) a group of severe and potentially life-threatening rare disorders that cause blood clots and damage to blood vessels which can lead to organ damage and death. See the signs symptoms & complications associated with TMAs"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1947642790524944692) 2025-07-22 13:00:01 UTC 12.4K followers, XXX engagements


"Navigating the complex regulatory environment for #RareDisease requires innovation thinking and collaboration. Learn how were paving regulatory pathways using a patient-first mindset:"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1943233734947258658) 2025-07-10 09:00:00 UTC 12.4K followers, XXX engagements


"Paroxysmal nocturnal haemoglobinuria (#PNH) is a rare chronic progressive and potentially life-threatening blood disorder that is characterised by red blood cell destruction within blood vessels and white blood cell and platelet activation which may lead to blood clots"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1933434167523467749) 2025-06-13 08:00:01 UTC 12.4K followers, XXX engagements


"Hello from Milan Were excited to be attending the European Hematology Association @EHA_Hematology 2025 Congress. We look forward to presenting our latest advancements in #PNH and #HSCT-TMA research and engaging with the scientific community"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1933086880339230726) 2025-06-12 09:00:01 UTC 12.4K followers, XXX engagements


"Today is #WorldHypoparaDay dedicated to raising awareness of #hypoparathyroidism and the ongoing needs of those impacted by it. Join us in helping to educate on this rare endocrine disease"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1929085512792318220) 2025-06-01 08:00:01 UTC 12.4K followers, XXX engagements


"Today we wrap up an inspiring few days at the European Hematology Association @EHA_Hematology 2025 Congress It was an exciting opportunity to gather with experts in the field whose insights help inform our work to improve care for people living with rare haematologic diseases"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1934158942612906456) 2025-06-15 08:00:01 UTC 12.4K followers, XXX engagements


"Developing transformative therapies for rare diseases means overcoming unique challenges and reimagining foundational elements of research and development. Learn more about Alexion's Research and Development:"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1945408064401600815) 2025-07-16 09:00:01 UTC 12.4K followers, XXX engagements


"Rare Connections in gMG sheds light on the emotional and physical toll of generalised #MyastheniaGravis (gMG) through the voices of three individuals living with gMG. Watch the film at to learn about the strength and resilience of Marta Deanna and Nick"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1945830847682109549) 2025-07-17 13:00:00 UTC 12.4K followers, XXX engagements


"What is amyloid light chain (AL) #amyloidosis Learn more about this #RareDisease below. Amyloid light chain (AL) #amyloidosis also referred to as AL is a rare systemic and progressive disorder caused by defective plasma cell in the bone marrow"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1942131476893405553) 2025-07-07 08:00:01 UTC 12.4K followers, XXX engagements


"Generalised #MyastheniaGravis can feel invisible to others due to its rapidly fluctuating symptoms. Our recently premiered short film Rare Connections in gMG highlights the importance of being seen. Watch the full film here:"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1937797916304855440) 2025-06-25 09:00:00 UTC 12.4K followers, XXX engagements


"Are you passionate about making a difference in patients' lives At Alexion we're pioneering groundbreaking therapies for rare and devastating diseases and looking for top-tier talent to join us. Could you be up for the challenge Lets find out:"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1941044316522029401) 2025-07-04 08:00:02 UTC 12.4K followers, XXX engagements


"As a clinician industry veteran and parent to a child with a #raredisease Gianlucas unique perspectives help to shape Alexions approach to clinical development and foster meaningful advancements for people impacted by rare diseases. Learn more:"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1922925015458046277) 2025-05-15 08:00:24 UTC 12.4K followers, XXX engagements


"#BIO2025 kicks off today in Boston right near our Seaport HQ. Together with @AstraZeneca we are excited for dynamic discussions about the policies needed to foster drug development support access to care and drive meaningful change for the #RareDisease community"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1934652466315870609) 2025-06-16 16:41:06 UTC 12.4K followers, XXX engagements


"Greetings from Vienna Were proud to be attending the 62nd European Renal Association @ERAkidney Congress where we will be showcasing our latest research in atypical haemolytic uraemic syndrome (#aHUS) and immunoglobulin A nephropathy (#IgAN)"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1930172678062694810) 2025-06-04 08:00:01 UTC 12.4K followers, XXX engagements


"We recently screened our Rare Connections short film collection at @EANeurology. Our latest addition Rare Connections in gMG shares the powerful stories of three individuals living with generalised #MyastheniaGravis. Watch the film at 🎬"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1940304435541848536) 2025-07-02 07:00:01 UTC 12.4K followers, XXX engagements


"Apply to join our talented team of individuals looking to make a difference in the lives of #RareDisease patients:"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1946132841231720775) 2025-07-18 09:00:01 UTC 12.4K followers, XXX engagements


"Were committed to advancing the understanding of paroxysmal nocturnal haemoglobinuria (#PNH) and showing our support for the PNH community. Learn about this rare chronic progressive and potentially life-threatening blood disorder below"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1942569363950670242) 2025-07-08 13:00:02 UTC 12.4K followers, XXX engagements


"Our mission is to transform the lives of people affected by rare diseases and devastating conditions by continuously innovating and creating meaningful value in all that we do. Learn more our unwavering commitment to the #RareDisease community:"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1942871346993680401) 2025-07-09 09:00:00 UTC 12.4K followers, XXX engagements


"Excited to be in Helsinki Finland at the 11th Congress of the European Academy of Neurology @EANeurology. We are proud to be highlighting the latest from our neuromyelitis optica spectrum disorder (#NMOSD) and generalised #MyastheniaGravis (gMG) research"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1936348367946219687) 2025-06-21 09:00:01 UTC 12.4K followers, XXX engagements


"HSCT-TMA is a rare severe and potentially life-threatening type of TMA that occurs following haematopoietic stem cell transplantation a procedure to treat some types of cancers and other diseases. Learn more about this condition below"  
![@AlexionPharma Avatar](https://lunarcrush.com/gi/w:16/cr:twitter::246664765.png) [@AlexionPharma](/creator/x/AlexionPharma) on [X](/post/tweet/1935264859458834692) 2025-06-18 09:14:32 UTC 12.4K followers, XXX engagements