[GUEST ACCESS MODE: Data is scrambled or limited to provide examples. Make requests using your API key to unlock full data. Check https://lunarcrush.ai/auth for authentication information.] [@AlexionPharma](/creator/twitter/AlexionPharma) "Neuromyelitis optica spectrum disorder (#NMOSD) is associated with unpredictable attacks also known as relapses which can lead to long-term disability like vision loss or paralysis. Learn more about the symptoms of this #RareDisease below" [X Link](https://x.com/AlexionPharma/status/1962500698215469171) [@AlexionPharma](/creator/x/AlexionPharma) 2025-09-01T13:00Z 12.4K followers, XXX engagements "What happens when three people living with neuromyelitis optica spectrum disorder (#NMOSD) write and exchange letters about their individual journeys and read them for the first time on camera Watch our short film Rare Connections in NMOSD to see it unfold:" [X Link](https://x.com/AlexionPharma/status/1963268691128090718) [@AlexionPharma](/creator/x/AlexionPharma) 2025-09-03T15:51Z 12.4K followers, XXX engagements "Learn how were advancing newborn screening through genetic research:" [X Link](https://x.com/AlexionPharma/status/1968714138416284137) [@AlexionPharma](/creator/x/AlexionPharma) 2025-09-18T16:30Z 12.4K followers, XXX engagements "Genomic newborn screening holds the potential to transform the diagnostic journey for families by enabling early action to make a meaningful difference. Learn how:" [X Link](https://x.com/AlexionPharma/status/1968715498612277738) [@AlexionPharma](/creator/x/AlexionPharma) 2025-09-18T16:35Z 12.4K followers, XXX engagements "Were proud to be at the 41st Congress of the @ECTRIMS showcasing our latest research in neuromyelitis optica spectrum disorder (#NMOSD) and screening Rare Connections in NMOSD to elevate patient voices and deepen understanding of this rare neuromuscular disease" [X Link](https://x.com/AlexionPharma/status/1970850717079351365) [@AlexionPharma](/creator/x/AlexionPharma) 2025-09-24T14:00Z 12.4K followers, XXX engagements "Like many rare diseases theres limited awareness of generalised #MyastheniaGravis a rare autoimmune disorder characterised by loss of muscle function and severe muscle weakness. Were committed to advancing understanding of this #RareDisease to benefit patients across the 🌎" [X Link](https://x.com/AlexionPharma/status/1973009986046316892) [@AlexionPharma](/creator/x/AlexionPharma) 2025-09-30T13:00Z 12.4K followers, XXX engagements "On Global #PNHDay2025 were joining the rare disease community to bring attention to paroxysmal nocturnal haemoglobinuria (PNH). By deepening awareness and understanding were committed to improving outcomes for those living with PNH. #PNHAwareness2025 #TogetherForPNH" [X Link](https://x.com/AlexionPharma/status/1977358592027103478) [@AlexionPharma](/creator/x/AlexionPharma) 2025-10-12T13:00Z 12.4K followers, XXX engagements "People living with paroxysmal nocturnal haemoglobinuria (PNH) can experience a delayed diagnosis by XX or more years due to diverse symptoms and varied clinical presentation. Explore the signs and symptoms of PNH below. #PNHDay2025 #PNHAwareness2025" [X Link](https://x.com/AlexionPharma/status/1977403893597209023) [@AlexionPharma](/creator/x/AlexionPharma) 2025-10-12T16:00Z 12.4K followers, XXX engagements "Due to the unpredictability and fluctuating symptoms of generalised #MyastheniaGravis (gMG) those living with this #RareDisease may feel invisible. Learn about the power of feeling seen while navigating life with gMG in Rare Connections in gMG. Watch at" [X Link](https://x.com/AlexionPharma/status/1978808146589073614) [@AlexionPharma](/creator/x/AlexionPharma) 2025-10-16T13:00Z 12.4K followers, XXX engagements "The path to a hypophosphatasia (#HPP) diagnosis can be difficult. Vague varied symptoms can often lead to missed signs many doctor visits and uncertainty" [X Link](https://x.com/AlexionPharma/status/1979170534928560299) [@AlexionPharma](/creator/x/AlexionPharma) 2025-10-17T13:00Z 12.4K followers, XXX engagements "Hypophosphatasia (#HPP) in adults can take a serious toll on physical mental and emotional health making everyday activities a challenge" [X Link](https://x.com/AlexionPharma/status/1980257694104604893) [@AlexionPharma](/creator/x/AlexionPharma) 2025-10-20T13:00Z 12.4K followers, XXX engagements
[GUEST ACCESS MODE: Data is scrambled or limited to provide examples. Make requests using your API key to unlock full data. Check https://lunarcrush.ai/auth for authentication information.]
@AlexionPharma
"Neuromyelitis optica spectrum disorder (#NMOSD) is associated with unpredictable attacks also known as relapses which can lead to long-term disability like vision loss or paralysis. Learn more about the symptoms of this #RareDisease below"
X Link @AlexionPharma 2025-09-01T13:00Z 12.4K followers, XXX engagements
"What happens when three people living with neuromyelitis optica spectrum disorder (#NMOSD) write and exchange letters about their individual journeys and read them for the first time on camera Watch our short film Rare Connections in NMOSD to see it unfold:"
X Link @AlexionPharma 2025-09-03T15:51Z 12.4K followers, XXX engagements
"Learn how were advancing newborn screening through genetic research:"
X Link @AlexionPharma 2025-09-18T16:30Z 12.4K followers, XXX engagements
"Genomic newborn screening holds the potential to transform the diagnostic journey for families by enabling early action to make a meaningful difference. Learn how:"
X Link @AlexionPharma 2025-09-18T16:35Z 12.4K followers, XXX engagements
"Were proud to be at the 41st Congress of the @ECTRIMS showcasing our latest research in neuromyelitis optica spectrum disorder (#NMOSD) and screening Rare Connections in NMOSD to elevate patient voices and deepen understanding of this rare neuromuscular disease"
X Link @AlexionPharma 2025-09-24T14:00Z 12.4K followers, XXX engagements
"Like many rare diseases theres limited awareness of generalised #MyastheniaGravis a rare autoimmune disorder characterised by loss of muscle function and severe muscle weakness. Were committed to advancing understanding of this #RareDisease to benefit patients across the 🌎"
X Link @AlexionPharma 2025-09-30T13:00Z 12.4K followers, XXX engagements
"On Global #PNHDay2025 were joining the rare disease community to bring attention to paroxysmal nocturnal haemoglobinuria (PNH). By deepening awareness and understanding were committed to improving outcomes for those living with PNH. #PNHAwareness2025 #TogetherForPNH"
X Link @AlexionPharma 2025-10-12T13:00Z 12.4K followers, XXX engagements
"People living with paroxysmal nocturnal haemoglobinuria (PNH) can experience a delayed diagnosis by XX or more years due to diverse symptoms and varied clinical presentation. Explore the signs and symptoms of PNH below. #PNHDay2025 #PNHAwareness2025"
X Link @AlexionPharma 2025-10-12T16:00Z 12.4K followers, XXX engagements
"Due to the unpredictability and fluctuating symptoms of generalised #MyastheniaGravis (gMG) those living with this #RareDisease may feel invisible. Learn about the power of feeling seen while navigating life with gMG in Rare Connections in gMG. Watch at"
X Link @AlexionPharma 2025-10-16T13:00Z 12.4K followers, XXX engagements
"The path to a hypophosphatasia (#HPP) diagnosis can be difficult. Vague varied symptoms can often lead to missed signs many doctor visits and uncertainty"
X Link @AlexionPharma 2025-10-17T13:00Z 12.4K followers, XXX engagements
"Hypophosphatasia (#HPP) in adults can take a serious toll on physical mental and emotional health making everyday activities a challenge"
X Link @AlexionPharma 2025-10-20T13:00Z 12.4K followers, XXX engagements
/creator/twitter::246664765/posts