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[@JenniferHandt](/creator/twitter/JenniferHandt)
"$SRPT On 10/3 New York's Medicaid Drug Utilization Board unilaterally voted to pause coverage for #Elevidys stripping families of hope for their dying children. It was clear the board entered the room ready to make that decision ignoring passionate testimony from parents. 🧵"  
[X Link](https://x.com/JenniferHandt/status/1975985998636122361) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-08T18:05Z XXX followers, 9626 engagements


"@adamfeuerstein Have you ever asked @Sarepta to pay rent for all of the headspace of yours that they occupy $SRPT is like a deluxe apartment in your completely conflicted sky"  
[X Link](https://x.com/JenniferHandt/status/1976052625163379015) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-08T22:30Z XXX followers, 2305 engagements


"@bigmurf58 @adamfeuerstein @Sarepta Let me be unequivocally clear on this: I am not compensated in any way shape or form by Sarepta or anyone for my DMD advocacy. And I own no positions in $SRPT. My son is enough reason to use my voice"  
[X Link](https://x.com/JenniferHandt/status/1976305150026449081) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-09T15:14Z XXX followers, 2351 engagements


"$SRPT This member of the @NYSDOHMEDICAID Drug Utilization Review Board just votedthen gloatedto deny coverage of FDA-approved #Elevidys for children in New York living with #duchenne. Last year she retweeted this hit piece. Bias much"  
[X Link](https://x.com/JenniferHandt/status/1976036817423179927) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-08T21:27Z XXX followers, 2916 engagements


"$SRPT @NYSDOHMEDICAID I'll tell you one way to reduce adverse childhood experiences: Save New York's children with #DMD the trauma of losing their muscle function by covering #Elevidys according to its FDA label"  
[X Link](https://x.com/JenniferHandt/status/1976682573330792954) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-10T16:13Z XXX followers, 3561 engagements


"$SRPT Unfortunately a takeaway from this week in #DMD advocacy is that there are people like @a_kaltenboeck with decision-making power who will celebrate when children with a devastating XXX% fatal disease are denied coverage of a potentially lifesaving therapy. It haunts me"  
[X Link](https://x.com/JenniferHandt/status/1976686242407571962) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-10T16:28Z XXX followers, 1401 engagements


"$SRPT My son is a data point on this slide. Can confirm these results stand up IRL. "At X years Part 1-treated patients showed statistically significant and clinically meaningful functional improvement vs. the matched EC cohort.""  
[X Link](https://x.com/JenniferHandt/status/1977512340498026594) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-12T23:10Z XXX followers, 23.4K engagements


"$SRPT Real-world data from commercially dosed patients at a single center"  
[X Link](https://x.com/JenniferHandt/status/1979201612334714928) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-17T15:03Z XXX followers, 5302 engagements


"@ParentProjectMD "Our results.indicatestrong interest in gene therapy as a treatment for DMD even given a hypothetical scenario in which the benefit is described as non-curative time limited and with a treatment-related risk of death." $SRPT"  
[X Link](https://x.com/JenniferHandt/status/1979280850228515170) [@JenniferHandt](/creator/x/JenniferHandt) 2025-10-17T20:18Z XXX followers, XXX engagements