# ![@useless_priest Avatar](https://lunarcrush.com/gi/w:26/cr:twitter::2995796441.png) @useless_priest uselesspriest.bluesky.social

uselesspriest.bluesky.social posts on X about people with, netherlands, amsterdam, germany the most. They currently have [-------] followers and [---] posts still getting attention that total [------] engagements in the last [--] hours.

### Engagements: [------] [#](/creator/twitter::2995796441/interactions)
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- [--] Week [------] +300%
- [--] Month [-------] +677%
- [--] Months [-------] -28%
- [--] Year [-------] -90%

### Mentions: [--] [#](/creator/twitter::2995796441/posts_active)
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- [--] Months [--] -38%
- [--] Year [---] -50%

### Followers: [-------] [#](/creator/twitter::2995796441/followers)
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- [--] Week [-----] +0.07%
- [--] Month [-----] +0.63%
- [--] Months [-----] +3.30%
- [--] Year [-----] +11%

### CreatorRank: [---------] [#](/creator/twitter::2995796441/influencer_rank)
![CreatorRank Line Chart](https://lunarcrush.com/gi/w:600/cr:twitter::2995796441/c:line/m:influencer_rank.svg)

### Social Influence

**Social category influence**
[countries](/list/countries)  [technology brands](/list/technology-brands)  [social networks](/list/social-networks)  [travel destinations](/list/travel-destinations)  [finance](/list/finance)  [celebrities](/list/celebrities)  [stocks](/list/stocks)  [us election](/list/us-election)  [currencies](/list/currencies)  [musicians](/list/musicians) 

**Social topic influence**
[people with](/topic/people-with), [netherlands](/topic/netherlands), [amsterdam](/topic/amsterdam), [germany](/topic/germany), [in the](/topic/in-the), [pandemic](/topic/pandemic), [ireland](/topic/ireland), [twitter](/topic/twitter), [update](/topic/update), [has been](/topic/has-been)

**Top accounts mentioned or mentioned by**
[@loscharlos](/creator/undefined) [@mildtin](/creator/undefined) [@chromatowski](/creator/undefined) [@healingfromlc](/creator/undefined) [@visiblehealth](/creator/undefined) [@mattturbosethut](/creator/undefined) [@sunsopeningband](/creator/undefined) [@longcovid](/creator/undefined) [@longcovidphysio](/creator/undefined) [@longcovidsos](/creator/undefined) [@kylofone](/creator/undefined) [@petrroll](/creator/undefined) [@yrrepmot](/creator/undefined) [@guustweet](/creator/undefined) [@niethersteld](/creator/undefined) [@ciaraglenville](/creator/undefined) [@u2fightworld](/creator/undefined) [@surf4children](/creator/undefined) [@covidinquiryuk](/creator/undefined) [@longcovidkids](/creator/undefined)

**Top assets mentioned**
[Spotify Technology (SPOT)](/topic/$spot) [Oxygen (OXY)](/topic/oxygen) [Alphabet Inc Class A (GOOGL)](/topic/$googl)
### Top Social Posts
Top posts by engagements in the last [--] hours

"@SickPatato Its usually stable enough to build up an impression of whats doing the damage. But depending on what else is going on you may be more resilient to a food on a particular day (or alternatively the impact of the trigger may be more delayed)"  
[X Link](https://x.com/useless_priest/status/1662158097090068483)  2023-05-26T18:05Z [----] followers, [--] engagements


"If this were a movie or TV ep the main characters would just have to get a sample of the viral RNA back to the Wuhan Institute of Virology and they would find a cure. In real life its like Yeah its a bio weapon - get over it. What are you gay and everyone moves on"  
[X Link](https://x.com/useless_priest/status/1667960152845168640)  2023-06-11T18:21Z [----] followers, [----] engagements


"2-year Long COVID study from Erasmus Medical Centre Main results: Many patients have not or only partially recovered after [--] year 18% have gotten worse 82% have PEM Despite persistent complaints patients receive less regular care. 1/n"  
[X Link](https://x.com/useless_priest/status/1674533224658116609)  2023-06-29T21:41Z [----] followers, [----] engagements


"Statement from @Pascalgrootveld (LC Netherlands) "There are also people who have only been able to lie down in the dark for more than [--] years. Who live very isolated. They now have no quality of life whatsoever. We cannot settle for that something has to be done now" 2/n"  
[X Link](https://x.com/useless_priest/status/1674535341603127309)  2023-06-29T21:50Z [----] followers, [---] engagements


"@loscharlos My GP in Ireland in 2024: (hands me paper) "Can you read that" Me: ". Yeah makes sen-" GP: "Get the f*ck outta here (65 euros please)""  
[X Link](https://x.com/useless_priest/status/1674550355307249665)  2023-06-29T22:48Z [----] followers, [---] engagements


"@dsethlewis @loscharlos The prevalence is higher than we had anticipated"  
[X Link](https://x.com/useless_priest/status/1674551799582281729)  2023-06-29T22:57Z [----] followers, [---] engagements


"@mildTin @coco_chatel @loscharlos Oh nice. Are you up to your old tricks again Haha"  
[X Link](https://x.com/useless_priest/status/1674559667161165825)  2023-06-29T23:26Z [----] followers, [--] engagements


"Let RECOVER stew in its general ineptitude and lack of ambition Let it eventually fail and shrug your shoulders - "maybe it is in their heads" Squander this once-in-century opportunity to tackle infectious-associated chronic illnesses that cost the economy trillions 5/5"  
[X Link](https://x.com/useless_priest/status/1675157678232858626)  2023-07-01T19:17Z [----] followers, [---] engagements


"@healingfromlc Grace isnt much use to anyone in an unjust situation"  
[X Link](https://x.com/useless_priest/status/1678009051081220101)  2023-07-09T11:52Z [----] followers, [---] engagements


"Seriously. how many f-ing studies is it going to take"  
[X Link](https://x.com/useless_priest/status/1678873672587649025)  2023-07-11T21:59Z [----] followers, [----] engagements


"Having a contested illness is like "My life is falling apart but I have to appear more mentally resilient than I even was before this happened or else they'll psychologise it." It's some Cuckoo's Nest sh*t"  
[X Link](https://x.com/useless_priest/status/1680951301948014593)  2023-07-17T19:44Z [----] followers, [----] engagements


"A lot of folks proudly describing themselves as socially liberal economically conservative free thinker are going wild for this analysis"  
[X Link](https://x.com/useless_priest/status/1680974547783147520)  2023-07-17T19:44Z [----] followers, [----] engagements


"Before the pandemic ME was roughly twice as common as MS"  
[X Link](https://x.com/useless_priest/status/1685363333610840064)  2023-07-29T18:55Z [----] followers, [----] engagements


"Suggestion: can we start referring to the need to put some serious funding into juicy succulent and sizzling Long COVID research"  
[X Link](https://x.com/useless_priest/status/1686731433375678464)  2023-08-02T13:43Z [----] followers, [---] engagements


"From 2015-2020 I worked in an office where the entire floor was asked not to eat any citrus fruit due to one guy who had an allergy and everyone complied. Would the same be true today Would the guy even raise the point today"  
[X Link](https://x.com/useless_priest/status/1687141869694722056)  2023-08-03T16:42Z [----] followers, 31.1K engagements


"Just love how Janet Dafoe strong-armed the director of the WHO into a phone call by basically being like Im disappointed in you young man. 💪💪❤"  
[X Link](https://x.com/useless_priest/status/1687424777919561728)  2023-08-04T11:26Z [----] followers, [----] engagements


"Living by the old maxim If you want an infection-associated and complex chronic illness centre of excellence you start one yourself. So much respect"  
[X Link](https://x.com/useless_priest/status/1687907407890944000)  2023-08-05T19:24Z [----] followers, [----] engagements


"What are some of the potential costs of Long COVID Lifetime income Ability to maintain a relationship Ability to think / analyse / form memories Ability to exercise Sense of self Sense of autonomy Hobbies Loss of friends and family due to stigma What else"  
[X Link](https://x.com/useless_priest/status/1688266587436941312)  2023-08-06T19:11Z [----] followers, [----] engagements


"@TheChefsGardens @LongCovidComms @ann_mcnitt Are you deliberately ignoring the point about wastewater"  
[X Link](https://x.com/useless_priest/status/1688515144731516928)  2023-08-07T11:39Z [----] followers, [---] engagements


"How many people are out there lying in the fog and unable to speak for themselves Thinking of all the people who arent here. #SevereMEAwarenessDay"  
[X Link](https://x.com/useless_priest/status/1689010558950051841)  2023-08-08T20:27Z [----] followers, [----] engagements


"It's hard not to go overboard with praise here but this is an extremely precise description of the most important and often overlooked aspects of ME from the perspective of someone who really knows. Also some really nice editing and graphical work"  
[X Link](https://x.com/useless_priest/status/1689355652852805632)  2023-08-09T19:19Z [----] followers, [----] engagements


"This is a very good description of the Long COVID "exit criteria" as it applies to precautionary measures. Or at least the ones I currently require"  
[X Link](https://x.com/useless_priest/status/1689396331805110272)  2023-08-09T22:00Z [----] followers, [---] engagements


"That centrist impulse of We need to establish whether LC is real or not before we start treating it is so strong and also quite transparent even if they dont use those words directly"  
[X Link](https://x.com/useless_priest/status/1689525509867151361)  2023-08-10T06:34Z [----] followers, [---] engagements


"German Chancellor Schulz seems to be talking about passing legislation to remove barriers to pharmaceutical / university research in the context of Long COVID. That's good I guess"  
[X Link](https://x.com/useless_priest/status/1689755817732386816)  2023-08-10T21:49Z [----] followers, [----] engagements


"This is one aspect of Long COVID I dont see represented well currently in research papers and to some degree in patient conversation. Gut issues / GI problems doesnt cover it. New allergies doesnt really cover it. I am only able to tolerate eating one small meal a day. This feels unsustainable from a continuing to remain alive perspective. I am only able to tolerate eating one small meal a day. This feels unsustainable from a continuing to remain alive perspective"  
[X Link](https://x.com/useless_priest/status/1690660226616131584)  2023-08-13T09:43Z [----] followers, [----] engagements


"Its not just that people are unaware of the benefits of ventilation. Any time I crack a bit of a window anywhere at any time of year someone comes over and closes it. Its like this conditioned pathological aversion to ventilation. Does it come from drafts cause illness"  
[X Link](https://x.com/useless_priest/status/1690661626284818432)  2023-08-13T09:48Z [----] followers, [----] engagements


"@loscharlos Theres a silent army of people with mild LC struggling through their jobs at the moment. Many of them dont know whats wrong with them. Many of them will be the moderate and severe patients of next year and beyond I think"  
[X Link](https://x.com/useless_priest/status/1690773225284763649)  2023-08-13T17:12Z [----] followers, [----] engagements


"This is the great mild / moderate middle of the distribution. We dont hear so much about this in articles. There must be so many people in this situation wondering how long they can keep going. Knowing theres nothing for them once they have to stop"  
[X Link](https://x.com/useless_priest/status/1690865989473251328)  2023-08-13T23:20Z [----] followers, [----] engagements


"@AdeleGroyer @NateB_Panic To be fair I don't work in this area of insurance and I don't have any first-hand evidence to lead me to that opinion. But I'd love to see more info specifically focussing on complex chronic conditions which have a history of being undermined / downplayed / dismissed"  
[X Link](https://x.com/useless_priest/status/1691585081419202626)  2023-08-15T22:58Z [----] followers, [--] engagements


"I just find it weird that if you're an advocacy group that spends 90% of its time going after *checks notes* other advocates you wouldn't pause and consider whether maybe something in your logic has gone awry"  
[X Link](https://x.com/useless_priest/status/1692572183959159093)  2023-08-18T16:20Z [----] followers, [----] engagements


""Life must go on." Sure absolutely But disabled people are a part of life"  
[X Link](https://x.com/useless_priest/status/1692834117325406493)  2023-08-19T09:41Z [----] followers, [----] engagements


"Long COVID is often heavy arms heavy legs heavy breath and a heavy heart"  
[X Link](https://x.com/useless_priest/status/1692855314272469360)  2023-08-19T11:05Z [----] followers, [----] engagements


"Long COVID is being [--] and grateful you can wash the dishes today"  
[X Link](https://x.com/useless_priest/status/1693219174967886140)  2023-08-20T11:11Z [----] followers, 14.1K engagements


"Great article in Time discussing the Josefowicz et al. paper on changes in the innate immune system caused by COVID and the potential implications for Long COVID"  
[X Link](https://x.com/useless_priest/status/1693533387489788220)  2023-08-21T07:59Z [----] followers, [----] engagements


"Long COVID means no mercy and no understanding. Whether you are trying to recover or avoid relapse"  
[X Link](https://x.com/useless_priest/status/1693723663403520116)  2023-08-21T20:36Z [----] followers, [----] engagements


"Long COVID is constantly being tripped up by the consequences of something you werent able to do yesterday or the day before"  
[X Link](https://x.com/useless_priest/status/1695370750859870237)  2023-08-26T09:41Z [----] followers, [---] engagements


"No one told me I could get Long COVID"  
[X Link](https://x.com/useless_priest/status/1695731945982812378)  2023-08-27T09:36Z [----] followers, 242.4K engagements


"(All indefinite: ) Sense of dignity and self future aspirations/hopes intimate physical contact the idea of being in a relationship most social contact ability to walk cycle and climb ability to eat and drink what I want being able to share a space without a mask "  
[X Link](https://x.com/useless_priest/status/1695754460486639738)  2023-08-27T11:05Z [----] followers, [----] engagements


"Changed the Grindr profile. That oughta do it"  
[X Link](https://x.com/useless_priest/status/1695878841716101506)  2023-08-27T19:19Z [----] followers, [----] engagements


"@COVID19_CT Haha wow really Kudos for doing it. I hope it pays off every once in a while. Strange that the gays get angry about this stuff though. What do they say"  
[X Link](https://x.com/useless_priest/status/1695885720815034852)  2023-08-27T19:47Z [----] followers, [--] engagements


"@COVID19_CT Thats very funny. Of course its the closeted married men. Theres some kind of overlap between thinking you have to get married and thinking you have to believe COVID is mild"  
[X Link](https://x.com/useless_priest/status/1695887708663534048)  2023-08-27T19:55Z [----] followers, [--] engagements


"This is not to detract from any case of Long COVID but I think theres a serious problem that most people perceive LC as something where youre run down for [--] months you eat some radishes and do some yoga and youre good to go"  
[X Link](https://x.com/useless_priest/status/1696103817027125316)  2023-08-28T10:13Z [----] followers, 17.6K engagements


"SARS-CoV-2 is causing life-changing vascular damage brain damage other forms of organ damage as well as disabling energy-limiting chronic illness. Long COVID encompasses all of these outcomes. People need to understand what viruses can do"  
[X Link](https://x.com/useless_priest/status/1696107685194748371)  2023-08-28T10:29Z [----] followers, [----] engagements


"I hear stories like this sometimes and I try to think what the answer is. Should any mention of fatigue at all be avoided People can't conceive of it. Should we only frame it as sickness flu-like feelings feeling "on fire" etc"  
[X Link](https://x.com/useless_priest/status/1696257705021723000)  2023-08-28T20:25Z [----] followers, [----] engagements


"@SGriffin_Lab Its wild how theres zero plan to deal with infection-associated chronic illnesses like Long COVID which are shaping up to be lifelong"  
[X Link](https://x.com/useless_priest/status/1696981102236225772)  2023-08-30T20:19Z [----] followers, [---] engagements


"There are a lot of medical professionals putting themselves out there and engaging with the concept of Long COVID in wide-eyed good faith. I am hopeful that it will be difficult for the wider field to ignore this and ultimately backtrack to the point of all-out gaslighting per ME"  
[X Link](https://x.com/useless_priest/status/1698422887680483740)  2023-09-03T19:49Z [----] followers, [---] engagements


"It's worth emphasising again and again - viral persistence as a theory does not work in opposition to many of the other proposed mechanisms underlying Long COVID. 5/ We delineate mechanisms by which a SARS-CoV-2 reservoir may contribute to immune #coagulation and #neuroimmune abnormalities #microbiome imbalances autoimmunity and latent #pathogen reactivation in Long COVID patients https://t.co/lbo5llQPT5 5/ We delineate mechanisms by which a SARS-CoV-2 reservoir may contribute to immune #coagulation and #neuroimmune abnormalities #microbiome imbalances autoimmunity and latent #pathogen"  
[X Link](https://x.com/useless_priest/status/1698766937684086786)  2023-09-04T18:36Z [----] followers, 11.1K engagements


"With cases on the rise post your SARS-CoV-2 acute infection protocols below. ⚕ I want to hear about pills neti pots rest thoughts prayers shamanic chants etc. 💊🧘♀🧪🫖"  
[X Link](https://x.com/useless_priest/status/1699531368043016333)  2023-09-06T21:13Z [----] followers, [----] engagements


"Long COVID is overwhelmingly discussed in the press as though it's an unprecedented and isolated event and not another iteration of a group of conditions that science/medicine is only starting to grapple with. This narrative is thankfully starting to change"  
[X Link](https://x.com/useless_priest/status/1699876608755069305)  2023-09-07T20:05Z [----] followers, [----] engagements


"Even if there were a treatment available tomorrow the way people with Long COVID (and related conditions) have been treated over the past [--] years (past decades) has been absolutely disgraceful"  
[X Link](https://x.com/useless_priest/status/1700160140421283969)  2023-09-08T14:52Z [----] followers, [----] engagements


"Long COVID is being periodically (or semi-permanently) buried alive in your own body"  
[X Link](https://x.com/useless_priest/status/1700923978485825876)  2023-09-10T17:27Z [----] followers, [----] engagements


"@deerhoof @wekeepus_safe I think the [--] in [--] likely includes transient disability but at least 5-10% seem to get LC. Thanks for mentioning"  
[X Link](https://x.com/useless_priest/status/1701115799576969547)  2023-09-11T06:09Z [----] followers, [--] engagements


"Questions of NPV and financial risk go away with government funding. Lots of things wouldnt exist if they had to surmount NPV hurdle by themselves. Airline industry. Public transport. Healthcare generally. How much money has US spent on weapons R&D @LisaAMcCorkell @patientled @IDEpiHeather Rob Califf: this is an issue of net present value; what the market will do; There's a whole bunch of conditions that are not financially attractive right now and I'm sorry to say that's what you're all with #LongCovid are facing now. 7/ @LisaAMcCorkell @patientled @IDEpiHeather Rob Califf: this is an issue"  
[X Link](https://x.com/useless_priest/status/1701491092485546458)  2023-09-12T07:01Z [----] followers, [----] engagements


"Do people really expect people with Long COVID more severe ME etc. to be casualties of a botched public health response and to just quietly / happily accept that"  
[X Link](https://x.com/useless_priest/status/1702069714539680152)  2023-09-13T21:20Z [----] followers, 16.4K engagements


"Long COVID is being less mobile than your 70yo parents while being told to think positively"  
[X Link](https://x.com/useless_priest/status/1702449672843870526)  2023-09-14T22:30Z [----] followers, 19K engagements


"Love how Zeynep called out speculation around Wens health as armchair diagnosis and then proceeds to be like Anyway I think its clear she has bacterial pneumonia"  
[X Link](https://x.com/useless_priest/status/1702573746874192014)  2023-09-15T06:43Z [----] followers, 23.4K engagements


"There are a lot of people on this website and out in the world who would be in quite an embarrassing/compromised position if biomarkers for LC and/or ME are discovered"  
[X Link](https://x.com/useless_priest/status/1702679819261984892)  2023-09-15T13:44Z [----] followers, 13.6K engagements


"I have #MECFS & no depression. It's not my fault it looks similar on the surface. I expect journalists doctors experts in short: people who have studied and decide my fate do more than stay on the surface"  
[X Link](https://x.com/useless_priest/status/1702947600926748788)  2023-09-16T07:28Z [----] followers, [----] engagements


"Long COVID is being very sick for [---] years and counting but reading in the newspaper that you actually recovered after a few months"  
[X Link](https://x.com/useless_priest/status/1702970969579471078)  2023-09-16T09:01Z [----] followers, [---] engagements


"There's quite a good ME specialist in Amsterdam. Does anyone have any advice on getting a referral from their GP"  
[X Link](https://x.com/useless_priest/status/1703014784755499094)  2023-09-16T11:55Z [----] followers, [--] engagements


"@anxiouscatmom Only thing that I ever indulge myself a bit re: conspiracy thinking is - at the end of the day annuity payments are very expensive. It's one way to shore up a pension funding deficit"  
[X Link](https://x.com/useless_priest/status/1703156646849941695)  2023-09-16T21:19Z [----] followers, [----] engagements


""LC having longer term funding will not only pay dividends to understand what LC is and how to best treat it it will also shed light into the other basket of infection-associated chronic illnesses that I argue we have ignored for [---] years.""  
[X Link](https://x.com/useless_priest/status/1703460071814894014)  2023-09-17T17:25Z [----] followers, [----] engagements


"When good journalism actually happens it almost hits you like a slap in the face. You only realise what poor levels of accountability are sought more broadly when you see proper questions being asked"  
[X Link](https://x.com/useless_priest/status/1704982710341546028)  2023-09-21T22:15Z [----] followers, [----] engagements


"I dont often comment on this aspect of the pandemic but doesnt it just seem so stupid to keep dancing this dance every three months or so Its incredible. [--]. A few points - first this will keep happening to both ATC and other elements of critical infrastructure that rely on relatively small groups of highly-skilled individuals to function. Second these kind of events always have downstream effects. https://t.co/2EWJ5XXWQv [--]. A few points - first this will keep happening to both ATC and other elements of critical infrastructure that rely on relatively small groups of highly-skilled individuals"  
[X Link](https://x.com/useless_priest/status/1706321767977849064)  2023-09-25T14:56Z [----] followers, [----] engagements


"@katimcf Assuming a perfectly-informed patient and clinician (which is not the case in reality) do you think the simple rule could hold"  
[X Link](https://x.com/useless_priest/status/1708948575235756065)  2023-10-02T20:54Z [----] followers, [---] engagements


"Went to a party masked (was a big hit 😅) for a little while. Rare opportunity to see reactions to Long COVID in the wild and with social guards dropped. Lots of I know two people who had LC for like a year and were out of work- they got better"  
[X Link](https://x.com/useless_priest/status/1710621396135461232)  2023-10-07T11:41Z [----] followers, 20.5K engagements


"(Sees mask): Do you have c*vid People really really really push hard against comprehending that (a) people with LC get worse with reinfection (b) the person with the mask generally isnt the one with C*VID"  
[X Link](https://x.com/useless_priest/status/1710627984300761226)  2023-10-07T12:07Z [----] followers, [----] engagements


"Damn someone should have let the apartheid regime in South Africa know all they needed to do to regain global popular support was throw a few gay pride parades"  
[X Link](https://x.com/useless_priest/status/1711161579398402348)  2023-10-08T23:28Z [----] followers, [---] engagements


"I did what I was supposed to do: I took all the precautions I got vaccinated took off the mask and went out and got infected. Now that I have Long Cvid there's nothing for me"  
[X Link](https://x.com/useless_priest/status/1711836450289840408)  2023-10-10T20:09Z [----] followers, 26.8K engagements


"I know when people reply saying "I hope she pulls out of it" that they mean well but read up about Long COVID ME/CFS and related diseases. She doesn't need hope. She needs people to start talking about these illnesses. She needs specialist care and research funding"  
[X Link](https://x.com/useless_priest/status/1718018390244122957)  2023-10-27T21:34Z [----] followers, 31.8K engagements


"It's wild how there's a group of illnesses that involve feeling sick tired and miserable basically indefinitely. .and then a large number of unaffected people who point to the slightest hint of *impaired mental health* in patients as if to say "Aha It's psychogenic""  
[X Link](https://x.com/useless_priest/status/1719409490682950013)  2023-10-31T17:42Z [----] followers, [----] engagements


"Even if you're a millenial and have low phone confidence call your reps on Tuesday and ask for a Long COVID Moonshot I'd wager they're not used to hearing from millenials"  
[X Link](https://x.com/useless_priest/status/1723829159091208583)  2023-11-12T22:24Z [----] followers, [----] engagements


"Good luck to one and all in the US tomorrow 🥂 Make like the cow and jump over the moon"  
[X Link](https://x.com/useless_priest/status/1724215273136271480)  2023-11-13T23:58Z [----] followers, [----] engagements


"What are y'all gonna do with all the profit you're making off of Long COVID advocacy 😀"  
[X Link](https://x.com/useless_priest/status/1724932993230205301)  2023-11-15T23:30Z [----] followers, 15.7K engagements


"How To End The Futile Flow Of Terrible Long COVID Takes In Major News Publications"  
[X Link](https://x.com/useless_priest/status/1724937794236109236)  2023-11-15T23:49Z [----] followers, [----] engagements


"@MamaSitaa__ Such an iconic cartoon 😂"  
[X Link](https://x.com/useless_priest/status/1724943203877437454)  2023-11-16T00:11Z [----] followers, [---] engagements


"Long COVID is having to wear a mask to guard against an immutable threat to your ability to support and feed yourself but having to worry more about the trauma response of people who see you wearing it"  
[X Link](https://x.com/useless_priest/status/1725067723179237500)  2023-11-16T08:26Z [----] followers, [---] engagements


"An athlete tragically commits suicide due to the effects what is clearly POTS. She describes all of her tests coming back normal. When will #MedTwitter and the media acknowledge these conditions If every time tragedy strikes we fail to even recognise the condition"  
[X Link](https://x.com/useless_priest/status/1727590717826977913)  2023-11-23T07:31Z [----] followers, 19.1K engagements


"@dsethlewis I dont know anyone whos said they would vote for Geert Wilders. Theres no way he could get into government 🤷"  
[X Link](https://x.com/useless_priest/status/1727840041106329696)  2023-11-24T00:02Z [----] followers, [---] engagements


"People reading a lot into Leo Varadkars wording of Irish-Israeli girl Emily Hands release (was lost and is now found) fail to understand that hes a blithering automaton whos been mainlining the West Wing for half his life"  
[X Link](https://x.com/useless_priest/status/1728740825486831687)  2023-11-26T11:41Z [----] followers, [---] engagements


"@quackRback Why isn't chronic illness profitable"  
[X Link](https://x.com/useless_priest/status/1729615421588844981)  2023-11-28T21:37Z [----] followers, [--] engagements


"I feel the same way about Amsterdam. I feel like Ive been stuck in some sort of weird stasis where Im in my first week here every week. I only see the same [--] or [--] streets in perpetuity"  
[X Link](https://x.com/useless_priest/status/1730188301301071942)  2023-11-30T11:33Z [----] followers, [----] engagements


"Its wonderful when you can rewrite the context of what was said. The subtweet is a beautiful medium. Its also great that you can literally take any interpretation of someones remarks that you wish and ascribe values to them on the basis of your manufactured interpretation"  
[X Link](https://x.com/useless_priest/status/1730564742446477806)  2023-12-01T12:29Z [----] followers, [---] engagements


"I sometimes wonder whether anything in popular culture will ever convey the feeling vulnerable people have at the moment of weathering the various viral waves and cradling their remaining health / range of function like a candle in the wind against the backdrop of indifference"  
[X Link](https://x.com/useless_priest/status/1732894789186515140)  2023-12-07T22:48Z [----] followers, [---] engagements


"📺 I'm too sick to live. Melissa is one of the [-----] Dutch people with lung #COVID that is deteriorating faster and faster. Some of them are considering #euthanasia TV coverage of severe long COVID"  
[X Link](https://x.com/useless_priest/status/1733808550432969143)  2023-12-10T11:19Z [----] followers, [---] engagements


"As disturbing as it is to watch the coverage is amazing because they give Melissa space and time to struggle to her feet to answer the door. The contrast of how huge an effort goes in and what a basic task it is is striking and I don't think it's a side of LC people know"  
[X Link](https://x.com/useless_priest/status/1734004550296617414)  2023-12-11T00:17Z [----] followers, [----] engagements


"@healingfromlc Why are the Dutch so embarrassed on your behalf if you wear a mask"  
[X Link](https://x.com/useless_priest/status/1735814505223909745)  2023-12-16T00:10Z [----] followers, [---] engagements


"I've recently started making "prototype" (rushed) versions of Michael's porridge by frying the oats on the pan in butter for [--] minutes and then cooking them in water as I normally do. I can confirm that he knows what he's talking about"  
[X Link](https://x.com/anyuser/status/1735959565840097579)  2023-12-16T09:46Z [--] followers, [----] engagements


"Fantastic paper describing a vicious vascular cycle in ME and LC. (vascular dysfuction clots / endothelial damage) - (capillary ischemia-reperfusion) - (mitochondrial dysfunction) - (reactive oxygen species) - (vascular dysfunction) - "  
[X Link](https://x.com/useless_priest/status/1735995200420430038)  2023-12-16T12:08Z [----] followers, [----] engagements


"@healingfromlc Fortunately appears that it won't affect wastewater statistics"  
[X Link](https://x.com/useless_priest/status/1736778190297694422)  2023-12-18T15:59Z [----] followers, [---] engagements


"@RorPreston I guess you appealed to his Principles"  
[X Link](https://x.com/useless_priest/status/1737204237484937441)  2023-12-19T20:12Z [----] followers, [---] engagements


"Alright f*ck it. Just walked up for one of these bad boys. If Im goin down this cruffin is going down with me"  
[X Link](https://x.com/useless_priest/status/1739240631229206773)  2023-12-25T11:04Z [----] followers, [----] engagements


"Sometimes feels like Spotify as a company was started with the sole intention of exposing every single Aphex Twin cover to the world"  
[X Link](https://x.com/useless_priest/status/1739789001450545457)  2023-12-26T23:23Z [----] followers, [---] engagements


"There was a time last year when this kind of recovery story was coming out every other week. Im glad its not as common now because its pretty harmful. Unpopular opinionThis narrative of resilience cured Long COVID is harmful to the many who are just as resilient but did not have a spontaneous recovery. Which is why we need more funding for LC research. #LongCovidMoonshot #LongCOVID #TreatLongCovid https://t.co/N1wnMEsR2P Unpopular opinionThis narrative of resilience cured Long COVID is harmful to the many who are just as resilient but did not have a spontaneous recovery. Which is why we need"  
[X Link](https://x.com/anyuser/status/1740181396059283894)  2023-12-28T01:22Z [--] followers, [----] engagements


"If you dont recover from Long COVID its not your fault"  
[X Link](https://x.com/anyuser/status/1740184195774005369)  2023-12-28T01:33Z [--] followers, 15.6K engagements


"Jon Favreau - now would be a great time to have someone with a disability (for example Long COVID) or someone who is vulnerable to infection come on the podcast and explain what stamina really means. If you catch COVID you should rest"  
[X Link](https://x.com/useless_priest/status/1740658473770029437)  2023-12-29T08:58Z [----] followers, [----] engagements


""I already had ME/CFS (chronic fatigue syndrome) so I was aware I could get Long Covid. Then the fatigue from Covid-19 hit me hard and never went away." "I don't have a life": Living with Long Covid can be exhausting painful and lonely and most people don't know when their symptoms will improve 👇 https://t.co/Elk26m3YMS "I don't have a life": Living with Long Covid can be exhausting painful and lonely and most people don't know when their symptoms will improve 👇 https://t.co/Elk26m3YMS"  
[X Link](https://x.com/useless_priest/status/1740679630187593929)  2023-12-29T10:22Z [----] followers, [---] engagements


"" Dean Hohaia said having Long Covid has stripped the enjoyment out of life and has made him feel numb: "I'm numb all the time. I don't feel happy I don't feel sad I don't laugh I don't cry - I'm numb." ""  
[X Link](https://x.com/anyuser/status/1740679952809468231)  2023-12-29T10:23Z [--] followers, [---] engagements


"Thanks for the reply but I don't think it's clear to you where the anger is coming from. Imagine you've been disabled by one (1) infection and you're either unable to work or clinging on for dear life. You're the only one on public transport / in the shop wearing a mask . 1/ Just to follow up: the brand of person I was referring to is someone who tells people to fuck off if they choose to work from home while sick. I dont find that persuasive I find it unhinged. Long Covid is real tragic and deserves more attention (I had a post-Covid condition Just to follow up: the brand of person I was"  
[X Link](https://x.com/useless_priest/status/1740775277725192423)  2023-12-29T16:42Z [----] followers, 40.9K engagements


""We will only deal with Long COVID or disability advocates who adopt a civilised tone that appeals to us and makes us feel good. Because every milestone in social and political progress that comprises our national history was achieved in this manner.""  
[X Link](https://x.com/useless_priest/status/1741129844312728053)  2023-12-30T16:11Z [----] followers, [----] engagements


"Pretty understandable take. I just dont agree tbh. Its not Bernie per se but the line of reps behind him whove tweeted the same line verbatim. Its the lack of any substantive engagement. Keep calm carry on step over the disabled person on your way back to normal life All you all #longcovid advocates piling on Bernie are weird. Who cares if an old dude gets covid isolates and works if he feels ok Thats ideal. What do you want him to do Live tweet his symptoms while apologizing for the evolution of viruses All you all #longcovid advocates piling on Bernie are weird. Who cares if an old dude"  
[X Link](https://x.com/useless_priest/status/1741228150560817455)  2023-12-30T22:41Z [----] followers, [----] engagements


"Its the easiest thing in the world to drop by and tone police the language used by people affected by a particular issue and then resume not engaging with that issue at all"  
[X Link](https://x.com/anyuser/status/1741241338102702119)  2023-12-30T23:34Z [--] followers, [----] engagements


"Its been [--] years. LC is a mysterious illness LC may last up to [--] months Make sure to consult your GP Just tested COVID +. Glad I am up to date with my vaccinations. Make sure you wash your hands this holiday season Remember during the pandemic #PodSaveJon @postviraltrials It was a boiling point this was the first time a prominent member of Congress publicly disclosed they tested for Covid this wave & it was the most progressive member they have completely ignored LC for [--] years and this continued silence and neglect is enraging to people. @postviraltrials It was a boiling point this was the"  
[X Link](https://x.com/useless_priest/status/1741248729292648635)  2023-12-31T00:03Z [----] followers, [----] engagements


"Most doctors in Europe would tense up if you walked in wearing a mask. As though you came in with a weapon"  
[X Link](https://x.com/useless_priest/status/1741388320251187377)  2023-12-31T09:18Z [----] followers, [---] engagements


"It's important that medics and academics see the study of infection-associated chronic illness as a viable course for their careers. This is the importance of a stable line of funding offices in the NIH etc. Long COVID isn't going to be transient. Why should funding be At a time when many post-COVID clinics are closing we continue our efforts in caring for #LongCovid patients @NorthwesternMed and researching the root cause of this debilitating disease. Become a member of our team and help us cure Long COVID https://t.co/vxP421rIYV At a time when many post-COVID clinics are closing we continue"  
[X Link](https://x.com/useless_priest/status/1741397659393372409)  2023-12-31T09:55Z [----] followers, 26.6K engagements


"Just had direct COVID+ exposure. Hitting the Algovir nasal spray Gargling w/ CPC mouthwash Will be taking Zinc Allegra Quercetin Niacin Aspirin Resting Any other ideas"  
[X Link](https://x.com/useless_priest/status/1741583374160929252)  2023-12-31T22:13Z [----] followers, 129.3K engagements


"I have mentioned it a couple of times already but what happens in Amsterdam with fireworks on this day every year really is a blight on humanity. I know people with severe sound sensitivity who are having a really bad time right now"  
[X Link](https://x.com/useless_priest/status/1741598461546332325)  2023-12-31T23:13Z [----] followers, [---] engagements


"Hey journalists 😃 Happy new year Here are [--] things about Long COVID or Post-Acute Sequelae of COVID that I'd love you to understand better in [----]. Short 🧵"  
[X Link](https://x.com/useless_priest/status/1741767561803444636)  2024-01-01T10:25Z [----] followers, 38.6K engagements


"Are colostrum and lactoferrin functionally the same"  
[X Link](https://x.com/useless_priest/status/1741858096211800103)  2024-01-01T16:25Z [----] followers, [----] engagements


"Not helpful all the same"  
[X Link](https://x.com/useless_priest/status/1741995551590068496)  2024-01-02T01:31Z [----] followers, [---] engagements


"Is LDN worth the risk I'm kind of terrified to try it. 😅"  
[X Link](https://x.com/anyuser/status/1742254199251804506)  2024-01-02T18:39Z [--] followers, 18.8K engagements


"@loscharlos Happy birthday chief We're [--] days apart"  
[X Link](https://x.com/useless_priest/status/1742285483596550530)  2024-01-02T20:43Z [----] followers, [---] engagements


"People will reach deep into their most stoic selves and silently accept huge increases in death and disability. But will raise murder about paying taxes or something"  
[X Link](https://x.com/anyuser/status/1742515113125388406)  2024-01-03T11:55Z [--] followers, [---] engagements


"Favreaus double standard in relation to respectable vs. unhinged disability advocates along with his mask slip on COVID generally is such an important emblem because it perfectly encapsulates how we suspect the mainstream left now quietly feels. Suspicions seem valid"  
[X Link](https://x.com/useless_priest/status/1742693752383176835)  2024-01-03T23:45Z [----] followers, 18.5K engagements


"@loscharlos @Dakota_150 @EricTopol And it was purely a technicality like before long COVID will be a distant memory"  
[X Link](https://x.com/useless_priest/status/1742702640935649410)  2024-01-04T00:21Z [----] followers, [---] engagements


"Spotted in Amsterdam West @BerlinBuyers"  
[X Link](https://x.com/useless_priest/status/1742866702310744502)  2024-01-04T11:12Z [----] followers, [----] engagements


"Congrats to Rob Wst and team - the muscle biopsy study going head-to-head with the Epstein files on the Guardian home page lol After a long wait our longitudinal long COVID study is finally published in @NatureComms: https://t.co/0xfTnjTPNB. We find a skeletal muscle alterations in patients with #longcovid which worsen with exercise. 1/n After a long wait our longitudinal long COVID study is finally published in @NatureComms: https://t.co/0xfTnjTPNB. We find a skeletal muscle alterations in patients with #longcovid which worsen with exercise. 1/n"  
[X Link](https://x.com/anyuser/status/1742871959547838696)  2024-01-04T11:33Z [--] followers, [----] engagements


"Shout if youd had [--] or more vaccinations at the time you got Long COVID 👇 A single #Covid #Vaccine dose reduced the risk of #LongCOVID by [--] percent two doses reduced it by [--] percent & three or more doses reduced it by [--] percent. A single #Covid #Vaccine dose reduced the risk of #LongCOVID by [--] percent two doses reduced it by [--] percent & three or more doses reduced it by [--] percent"  
[X Link](https://x.com/useless_priest/status/1743044707029049740)  2024-01-04T23:00Z [----] followers, 41.5K engagements


"Many interesting points in David Tuller's interview w/ Ed Yong but I love the philosophy of: "Rather than starting from the point 'These illnesses are disbelieved and here's why that's wrong' start from the position 'This is real and here's what it feels like'." Earlier today I spoke with journalist Ed Yong about how he came to grasp the seriousness the challenges in covering it and related stuff. https://t.co/5SpZ99jMVO Earlier today I spoke with journalist Ed Yong about how he came to grasp the seriousness the challenges in covering it and related stuff. https://t.co/5SpZ99jMVO"  
[X Link](https://x.com/useless_priest/status/1743385233586557203)  2024-01-05T21:33Z [----] followers, [----] engagements


"Excellent podcast with Irish musician and LC patient @AilieBlunnie In-depth discussion of the nature of exertion and PEM with really detailed and colourful analogies and imagery. Highly recommended 👏 From Nov [--] 2023"  
[X Link](https://x.com/useless_priest/status/1743651256889962990)  2024-01-06T15:10Z [----] followers, [----] engagements


"When did your Long COVID symptoms start 🗓"  
[X Link](https://x.com/anyuser/status/1743712136835010777)  2024-01-06T19:12Z [--] followers, [----] engagements


"@sophsoph_psd @NoHealthNoFun A lot of them don't mask either I'd imagine (no judgement - just talking about visibility)"  
[X Link](https://x.com/anyuser/status/1743752584425251324)  2024-01-06T21:53Z [--] followers, [--] engagements


"Most of the most impactful scientific research in Long COVID and ME has not received NIH funding. "Former chief medical advisor to the president Anthony Fauci is one doctor who sees the opportunity here. I spoke with him and in his precise careful fashion he laid out a road map for how to approach #MECFS." https://t.co/T18RyAx5kD "Former chief medical advisor to the president Anthony Fauci is one doctor who sees the opportunity here. I spoke with him and in his precise careful fashion he laid out a road map for how to approach #MECFS." https://t.co/T18RyAx5kD"  
[X Link](https://x.com/useless_priest/status/1743986952188145987)  2024-01-07T13:24Z [----] followers, [----] engagements


"It strikes me that those of us struggling with some basic truths - for example that COVID disabled a lot of folks and probably will continue to do so - would benefit the most from some reflection off-Twitter. Struggling especially to the degree that derision is needed. Yes Getting off twitter and connecting with people in real life would be a good start for someone with long covid to move on. Yes Getting off twitter and connecting with people in real life would be a good start for someone with long covid to move on"  
[X Link](https://x.com/useless_priest/status/1744145280528752976)  2024-01-07T23:53Z [----] followers, [----] engagements


"@JackKavanagh12 Better services tho"  
[X Link](https://x.com/useless_priest/status/1744152030266950034)  2024-01-08T00:20Z [----] followers, [---] engagements


"A billboard on Long COVID is only political in nature because the nation is divided: Some people are totally fine with viruses disabling a large group of people as long as they're not in that group. its appalling that Covid is so politicized that its victims cannot even advocate for ourselves the virus got us once but society victimizes us over and over again its appalling that Covid is so politicized that its victims cannot even advocate for ourselves the virus got us once but society victimizes us over and over again"  
[X Link](https://x.com/useless_priest/status/1744774610510283068)  2024-01-09T17:34Z [----] followers, [----] engagements


"@maosbot If so something is rotten in the state of Denmark"  
[X Link](https://x.com/useless_priest/status/1744799835075567828)  2024-01-09T19:14Z [----] followers, [----] engagements


"Dr. Birx said the comparison between COVID and HIV is valid in a specific way: that both are (/ can be) asymptomatic and their effects on the immune system are only noticed on a delay of months or years. That's valid. It doesn't mean LC = AIDS. That's not what she's saying"  
[X Link](https://x.com/useless_priest/status/1745411920939655382)  2024-01-11T11:46Z [----] followers, 22.1K engagements


"The pandemic from POV of a vulnerable person is a rats maze and around every bend capitalism just seems to want to stamp you out. How evil do you have to be to produce and sell fake respirators How evil do you have to be to produce and sell fake respirators"  
[X Link](https://x.com/useless_priest/status/1746274288171131151)  2024-01-13T20:53Z [----] followers, [---] engagements


"@Mercedes_Bouter @healingfromlc Have ordered from these. Still felt counterfeit tbh"  
[X Link](https://x.com/useless_priest/status/1746476132680036817)  2024-01-14T10:15Z [----] followers, [--] engagements


"@cuboidalhug @haziethompson Iconic television"  
[X Link](https://x.com/useless_priest/status/1747396373069038043)  2024-01-16T23:12Z [----] followers, [--] engagements


"Trying to use psychology to solve Long COVID is like trying to use mechanics to solve depression 👇 Simple yet effective method deployed in South Korea to prevent people jumping off bridges 🌉 https://t.co/DIsifgTaOw Simple yet effective method deployed in South Korea to prevent people jumping off bridges 🌉 https://t.co/DIsifgTaOw"  
[X Link](https://x.com/useless_priest/status/1747407916888400261)  2024-01-16T23:58Z [----] followers, [----] engagements


"Grindr isnt all that bad lol. Its so incredibly wild what a difference it makes when high profile patients like Physics Girl spread awareness. This is just a random guy in Amsterdam 🔥"  
[X Link](https://x.com/useless_priest/status/1747636712417751163)  2024-01-17T15:07Z [----] followers, [----] engagements


"Working with mild Long COVID is doing nothing all week except working feeding yourself and sitting/lying down and yet feeling like you've gone on a bender 3-5 nights out of the week. But still a privilege relative to more severe LC"  
[X Link](https://x.com/useless_priest/status/1748137173495205894)  2024-01-19T00:15Z [----] followers, 43.1K engagements


""Long COVID is showing us that viral infections are clearly causing chronic outcomes" Dutch TV feature on Long COVID in kids on later this evening"  
[X Link](https://x.com/useless_priest/status/1748744580516700329)  2024-01-20T16:29Z [----] followers, [--] engagements


"@UCSFHospitals please ask your staff to use N95 masks while caring for the clinically vulnerable patients in your care - this is a very reasonable accommodation in an ongoing COVID wave. @SFdirewolf also happens to be one of the best people on this Earth. #UCSFMaskForAlice"  
[X Link](https://x.com/useless_priest/status/1749218945226113269)  2024-01-21T23:54Z [----] followers, [----] engagements


"The muscle biopsy study has received such attention I was recently chatting with someone I barely know and I mentioned Long COVID. He mentioned the study without any further prompt. Impossible to overstate what a positive impact things like this have for the patients. @FvRhijn @DLR_en @dlr @esa @NASA @m_eggelbusch @BraedenCharlton No healthy people who are inactive do not suffer from 'worsening of symptoms after exercise'. They improve physical function after resuming exercise training @FvRhijn @DLR_en @dlr @esa @NASA @m_eggelbusch @BraedenCharlton No healthy people who are inactive do not"  
[X Link](https://x.com/useless_priest/status/1750121478765334571)  2024-01-24T11:40Z [----] followers, 12.3K engagements


"The quandary for LC patients in European primary care. Decide between care being inaccessible because of reinfection risk or because GP goes down the mental health track when they see you wearing a mask. This is a nightmare. I suspect that my GP thinks I have mental issues because I wear a respirator. The doctors at the HBOT clinic thought so too. I suspect that my GP thinks I have mental issues because I wear a respirator. The doctors at the HBOT clinic thought so too"  
[X Link](https://x.com/useless_priest/status/1750278552027537829)  2024-01-24T22:05Z [----] followers, [----] engagements


"Good point. If you're a Long COVID patient and like when LC is covered well in the press it's a good idea to: Click on the article* Like and share from the news outlet's Twitter page Thank the author * Anyone knows whether this counts from Twitter or only from Google Make sure you click through to the link to let Bloomberg know that coverage like this is important to you. Make sure you click through to the link to let Bloomberg know that coverage like this is important to you"  
[X Link](https://x.com/useless_priest/status/1750440424446017967)  2024-01-25T08:48Z [----] followers, [----] engagements


"@SickPatato Def no disrespect to anyone tbh. It's just an editorial decision nothing to do with the patients. It's kind of funny tbh when you so many articles and features on the same topic and they're literally all like this"  
[X Link](https://x.com/useless_priest/status/1750563707657060776)  2024-01-25T16:58Z [----] followers, [---] engagements


""The fight against long COVID-19 is not just a medical challenge. It is a moral one." - Bernie Sanders"  
[X Link](https://x.com/useless_priest/status/1750962897692328075)  2024-01-26T19:24Z [----] followers, [----] engagements


"A lot of the decorated folks pushing GET/CBT forcefully for ME or LC are getting on in years. Will they be replaced when they join the great graded exercise study in the sky or will it start to fizzle out 🤔"  
[X Link](https://x.com/useless_priest/status/1751242302201233915)  2024-01-27T13:54Z [----] followers, [----] engagements


"@MamaSitaa__ If you're up for it here's a whopper thread in German for how to spot fakes. Somewhere on the thread someone mentions it's good to head to your national 3M site and check out the approved vendors next to the mask you want (like for me it's the guys on the far right)"  
[X Link](https://x.com/useless_priest/status/1752032100679909704)  2024-01-29T18:12Z [----] followers, [----] engagements


"Anyone on instagram and interested in the ear seeds as a cure for ME controversy worth checking out @ drjoshuawolrich for a thorough analysis and takedown"  
[X Link](https://x.com/useless_priest/status/1752037650645574135)  2024-01-29T18:35Z [----] followers, [---] engagements


"Having a strong reaction to Lactoferrin. What could it mean Also considered the screen name Lactie McFerrin"  
[X Link](https://x.com/useless_priest/status/1752452270984143027)  2024-01-30T22:02Z [----] followers, [----] engagements


"@CraftyMissB If what I have is PEM the scariest for me is the heaviness of the limbs that doesnt necessarily come from the same place as that of fatigue. It literally feels like my muscles stop working suddenly. Full of sand"  
[X Link](https://x.com/useless_priest/status/1752474769193103579)  2024-01-30T23:31Z [----] followers, [---] engagements


"Ive only properly been aware of ME/CFS for about [--] years or so and I already have enough. I just cant with this any more. I have no idea what this cyclical pattern of malpractice abuse and cover up must trigger in those whove been affected for years and their families. A third () pre-inquest review into Maeve's death is scheduled for Friday. Here is how @jensmithTV covered her suffering and death from ME for @BBCSpotlight https://t.co/Zg2hsZeJPF via @YouTube A third () pre-inquest review into Maeve's death is scheduled for Friday. Here is how @jensmithTV covered her suffering and death from"  
[X Link](https://x.com/useless_priest/status/1753133710134616208)  2024-02-01T19:10Z [----] followers, [----] engagements


"In the Netherlands the parliament will vote on the provision of outpatient Long COVID clinics on Feb [--]. After [--] day there are already (updated) ✍11000✍ signatures on this petition. Add your name on 🙂"  
[X Link](https://x.com/useless_priest/status/1753725234283221347)  2024-02-03T10:20Z [----] followers, [--] engagements


""I think this young Dutch woman's voluntary euthanasia due to the severe effects of a condition I don't regard as serious is a great opportunity for me to tell people about my experience with depression and how much more resilient I am than this recently deceased girl.""  
[X Link](https://x.com/useless_priest/status/1753729316297322931)  2024-02-03T10:37Z [----] followers, 53.5K engagements


"Tragically this absolute turnip has nearly 17k followers on TikTok. Tries to shame LC patients for laziness and wanting "a pill". Quotes a paper on exercise as treatment in LC which explicitly excludes patients with PEM. Absolute comedy of errors ensues"  
[X Link](https://x.com/useless_priest/status/1753812543045279746)  2024-02-03T16:07Z [----] followers, 10K engagements


"@Silas33 I wish her the best in her mission of sharing medical advice with all the people on her block list. As useful as a marzipan dildo"  
[X Link](https://x.com/useless_priest/status/1753813367070888332)  2024-02-03T16:11Z [----] followers, [---] engagements


"You got a fast car I've got a sh*t chron-ic ill-ness Maybe we can make a deal Maybe together we can get to the shop 🎶"  
[X Link](https://x.com/useless_priest/status/1754638086858825769)  2024-02-05T22:48Z [----] followers, [----] engagements


"@MilicaStojsic1 Its like putting on a sign Smoking kills Quit smoking except with an added layer of pandemic association that people have been buried in their psyche"  
[X Link](https://x.com/useless_priest/status/1755861190863938039)  2024-02-09T07:48Z [----] followers, [--] engagements


"It turns out when we said "We can feel it in our bones" we were right"  
[X Link](https://x.com/useless_priest/status/1757121170887815444)  2024-02-12T19:15Z [----] followers, 10.6K engagements


"@SplendidSpeseia There appears to be a large battalion of queen size beds closing in on the White House"  
[X Link](https://x.com/useless_priest/status/1758269330310013251)  2024-02-15T23:17Z [----] followers, [--] engagements


""An apple a day keeps the doctor away." So does the phrase "I think I might have Long COVID.""  
[X Link](https://x.com/useless_priest/status/1758559137762287660)  2024-02-16T18:29Z [----] followers, [----] engagements


"I saw the city centre of Amsterdam for the first time today lol. [---] years and [--] e-bike later. It was amazing"  
[X Link](https://x.com/useless_priest/status/1758824983801847954)  2024-02-17T12:05Z [----] followers, [----] engagements


"Nicht Genesen organising a large round table for politicians scientists pension managers disability advocates and those affected by Long COVID. 💪 #RundeTisch"  
[X Link](https://x.com/useless_priest/status/1759664801779777947)  2024-02-19T19:42Z [----] followers, [--] engagements


"If we truly had made any progress on mental health as a society we wouldn't be seeing it rolled out repeatedly to politically defang people like Aaron Bushnell or delegitimise the accounts of the chronically ill"  
[X Link](https://x.com/useless_priest/status/1762247010109792549)  2024-02-26T22:43Z [----] followers, [---] engagements


"Anyone who uses mental health as a tool for these purposes doesn't give a shit about people with mental health problems"  
[X Link](https://x.com/useless_priest/status/1762247386837979307)  2024-02-26T22:44Z [----] followers, [---] engagements


"Kids with Long COVID are sometimes sicker than cancer patients "Kinder mit Long Covid sind teilweise krnker als die Krebspatienten" https://t.co/QGbH986jcm "Kinder mit Long Covid sind teilweise krnker als die Krebspatienten" https://t.co/QGbH986jcm"  
[X Link](https://x.com/useless_priest/status/1762888620103401910)  2024-02-28T17:12Z [----] followers, [----] engagements


"One of the sh*ttier aspects of being mild specifically is that it's impossible to convey to someone else the objective likelihood of a serious downturn in your future health. Side point: I really hope more effort goes into understanding this severity trajectory"  
[X Link](https://x.com/useless_priest/status/1762971963243274464)  2024-02-28T22:44Z [----] followers, [----] engagements


"Bigger spike == longer dip 🤔"  
[X Link](https://x.com/useless_priest/status/1763623196853481619)  2024-03-01T17:51Z [----] followers, [----] engagements


"Irish babies born during pandemic restrictions: Had healthier gut microbiomes Developed fewer allergies Required fewer antibiotics at year [--]. Association between gut microbiota development and (reduced) allergy in infants born during pandemicrelated social distancing restrictions https://t.co/sXvxOY3Ps9 Association between gut microbiota development and (reduced) allergy in infants born during pandemicrelated social distancing restrictions https://t.co/sXvxOY3Ps9"  
[X Link](https://x.com/useless_priest/status/1763879293443100687)  2024-03-02T10:49Z [----] followers, 60.1K engagements


"Its incredibly perverted that the pandemic has actually been fashioned into yet another reason to strip away labour rights in the US. Regular people should be on the streets over this. Some claiming CDC was forced to weaken isolation guidelines as many people in the US don't have enough paid sick leave so no one is isolating. Poor excuse. Weakening guidance only makes it harder to pass sick leave polices because politicians will say it isn't needed anymore. Some claiming CDC was forced to weaken isolation guidelines as many people in the US don't have enough paid sick leave so no one is"  
[X Link](https://x.com/useless_priest/status/1764220148301304018)  2024-03-03T09:23Z [----] followers, [---] engagements


"I missed this. A conference dedicated to advancements in both ME and LC. April [----] in Lisbon with contributions from among others: E. Yong M. Hanson L. Bateman D. Systrom S. Levine L. Tannenbaum An International Conference on Clinical and Scientific Advances in ME/CFS & #LongCOVID will take place on April [--] and [--] [----] in Lisbon Portugal. You can attend in person (places are limited) or participate online via streaming https://t.co/UesGuqLifU #MEcfs #CFS #PwME An International Conference on Clinical and Scientific Advances in ME/CFS & #LongCOVID will take place on April [--] and [--] [----] in Lisbon"  
[X Link](https://x.com/useless_priest/status/1764301817813295385)  2024-03-03T14:48Z [----] followers, [----] engagements


"A guy spent [--] f*cking years in an iron lung and was killed by COVID in f*cking [----] 😡"  
[X Link](https://x.com/useless_priest/status/1767822148221964670)  2024-03-13T07:56Z [----] followers, 93.5K engagements


"@TomMonrow We used to take care of people"  
[X Link](https://x.com/useless_priest/status/1767862482310226335)  2024-03-13T10:37Z [----] followers, [----] engagements


"Yes Queensland CHO the main problem with LC is all of the hypervigilance surrounding it"  
[X Link](https://x.com/useless_priest/status/1768860270166790644)  2024-03-16T04:42Z [----] followers, [---] engagements


""We should stop using the term Long COVID. The disease is indistinguishable from other conditions we didn't give proper names to because we don't care about them. Please just allow us not to care about these things collectively as it's more efficient.""  
[X Link](https://x.com/useless_priest/status/1768957559627518439)  2024-03-16T11:08Z [----] followers, 11.7K engagements


""Hannah what do people with Long COVID feel Do they feel . ignored left out shoved to the side ." Hannah's answer to this is really 🔥 🧵👇 1/ Spoke to @scifri about #LongCovid including biological mechanisms the false narrative that rates of Long Covid are going down and other topics alongside the amazing @VirusesImmunity Listen here: https://t.co/Q2UGeiAUFv Spoke to @scifri about #LongCovid including biological mechanisms the false narrative that rates of Long Covid are going down and other topics alongside the amazing @VirusesImmunity Listen here: https://t.co/Q2UGeiAUFv"  
[X Link](https://x.com/useless_priest/status/1769011808151470498)  2024-03-16T14:44Z [----] followers, [----] engagements


"The cost of getting back to "normal" is coming at the health and inclusion of long haulers and it's *terrible to be a part of . 4/"  
[X Link](https://x.com/useless_priest/status/1769012384679465351)  2024-03-16T14:46Z [----] followers, [---] engagements


". It really is something that just needs to change dramatically because the pandemic is not over until there is meaningful treatments and a cure for Long COVID." - @ahandvanish 5/5"  
[X Link](https://x.com/useless_priest/status/1769012483581218891)  2024-03-16T14:46Z [----] followers, [----] engagements


"It drives me f*cking crazy how few people understand that people have been disabled by COVID"  
[X Link](https://x.com/useless_priest/status/1771584092561199260)  2024-03-23T17:05Z [----] followers, 37.7K engagements


"Mullen: You guys dont know how lucky you are to have D Bone Almost the entire LC community: Actually thanks a lot for bringing that up"  
[X Link](https://x.com/useless_priest/status/1772526353239207957)  2024-03-26T07:29Z [----] followers, 22.7K engagements


"A key takeaway from pandemic for me has been that once you lose your ability to work or hang out in groups you lose all currency with people. People are sympathetic to your concerns until you become disabled and are spent goods or possibly anxious and negative. TIME: COVID-Cautious Americans Feel Abandoned Alex who got COVID-19 for the first time in late [----] and later developed Long COVID symptoms There was this reckoning moment where it was like Maybe the CDC is not being totally honest with us. https://t.co/205BF5Qp2R TIME: COVID-Cautious Americans Feel Abandoned Alex who got COVID-19 for"  
[X Link](https://x.com/useless_priest/status/1773268303881937342)  2024-03-28T08:38Z [----] followers, [----] engagements


"We've moved on from the "Long COVID symptoms may last up to [--] months" era to the "X may be the cause of Long COVID" era. Which is . good()"  
[X Link](https://x.com/useless_priest/status/1773475320621908460)  2024-03-28T22:20Z [----] followers, [----] engagements


"Imagine how many more resources Long COVID would get if it was perceived as a national security risk and not one of those womens diseases. If my mother had seen what I saw she would say 'It's the Russians stupid.' Greg Edgreen who ran the military investigation into mysterious brain injuries suffered by U.S. officials says the bar for proof was set impossibly high by the government. https://t.co/TGiWbrVW2r https://t.co/cNKxoKLrDd If my mother had seen what I saw she would say 'It's the Russians stupid.' Greg Edgreen who ran the military investigation into mysterious brain injuries suffered by"  
[X Link](https://x.com/useless_priest/status/1774695581677416509)  2024-04-01T07:09Z [----] followers, [----] engagements


"For me the difficulty of LC is not only accepting and dealing with the immense precarity and uncertainty of your situation as well as avoiding COVID itself but also having to guide your loved ones through it strategically such that you don't lose their credibility / patience. How will you navigate a world that wants to cosplay [----] How will you handle your friends & family (& this is even more challenging for parents) who just dont get it & think youre overreacting Suddenly self-preservation is deemed paranoid. /9 How will you navigate a world that wants to cosplay [----] How will you handle"  
[X Link](https://x.com/useless_priest/status/1775234456468557931)  2024-04-02T18:50Z [----] followers, [----] engagements


"I wouldn't be surprised if Taylor Swift turned up at this stage. Serious organisation News alert🚨 We are pleased to announce that the German Federal Minister of Health Prof. Dr. Karl Lauterbach (@Karl_Lauterbach ) will be attending the #UniteToFight2024 opening ceremony and speaking to us all in a video message. A great success #longcovid #MECFS News alert🚨 We are pleased to announce that the German Federal Minister of Health Prof. Dr. Karl Lauterbach (@Karl_Lauterbach ) will be attending the #UniteToFight2024 opening ceremony and speaking to us all in a video message. A great success"  
[X Link](https://x.com/useless_priest/status/1775970236841209912)  2024-04-04T19:34Z [----] followers, [----] engagements


"A life with ME/CFS is like being buried alive. 🔥 I feel like its not discussed enough that there have been large-scale protests for ME/LC happening across Germany Austria and Switzerland for weeks"  
[X Link](https://x.com/useless_priest/status/1776688614115614955)  2024-04-06T19:09Z [----] followers, 11K engagements


""Long COVID is a straightforward illness that can be addressed with good diet sleep hygiene and exercise." "OK would you like some blood I understand there's a big dema." "Nah nah bruv you're good lol""  
[X Link](https://x.com/useless_priest/status/1777053706619347281)  2024-04-07T19:19Z [----] followers, 13.7K engagements


"Why are there so many Instagram / TikTok accounts constructing false narratives around "the ups and downs of my Long COVID recovery" Does everything have to be bloody inspirational"  
[X Link](https://x.com/useless_priest/status/1777079609881751673)  2024-04-07T21:02Z [----] followers, [----] engagements


"More lessons from Liegenddemo in Germany/Austria/Switzerland. The demos are designed to be accessible to patients by keeping them small-scale: 400-500m in length with the desination being a quiet place for lying down. Participants can always just join directly there. @useless_priest @LiegendDemo @ElkeAsen Ist halt klein gedacht. Kurzer Weg 400-500m Kurze Anfahrt ist halt relativ klein doch durch das leise sein und hinlegen beeindruckender als gedacht. (Bisschen Pause vor der Heimfahrt) Zur Not knnte eins auch nur am Endpunkt mitmachen. Berlin hab ich keine Chance HH schon. @useless_priest"  
[X Link](https://x.com/useless_priest/status/1777307058229944723)  2024-04-08T12:06Z [----] followers, [----] engagements


"Is it possible to get Prodrome Glia in the Netherlands 💭"  
[X Link](https://x.com/useless_priest/status/1777342849220059514)  2024-04-08T14:28Z [----] followers, [---] engagements


"Re: smartwatches for LC/ME. Good rundown of Garmin models I found on the Facebook group"  
[X Link](https://x.com/useless_priest/status/1777369479053185370)  2024-04-08T16:14Z [----] followers, [----] engagements


"Some pretty amazing coverage in the UK of the new study out of Imperial College London. It's remarkable how the tone shifts when sound research emerges. Imagine if the investment increased even a little bit how perceptions would change"  
[X Link](https://x.com/useless_priest/status/1777397010951213415)  2024-04-08T18:04Z [----] followers, [----] engagements


"For those with #PostVac have you had any COVID vaccinations since What was the result"  
[X Link](https://x.com/useless_priest/status/1777474025926570163)  2024-04-08T23:10Z [----] followers, [---] engagements


"Opens with example of Long COVID. We must help ease the economic burden for patients who have chronic diseases https://t.co/06s4ZTIBuB We must help ease the economic burden for patients who have chronic diseases https://t.co/06s4ZTIBuB"  
[X Link](https://x.com/useless_priest/status/1777856250723582299)  2024-04-10T00:28Z [----] followers, [----] engagements


"How effective is vaccination in those who already have LC How susceptible are people with LC to subsequent infection Is there anyone interested in moving this conversation from the realm of anecdata to data"  
[X Link](https://x.com/useless_priest/status/1778686386729632010)  2024-04-12T07:27Z [----] followers, [----] engagements


"I know I should be a bigger person but I'm tired of seeing / hearing references to how tough the pandemic "was" psychologically for people"  
[X Link](https://x.com/useless_priest/status/1779593437370609868)  2024-04-14T19:31Z [----] followers, 49.9K engagements


"@mskathleenquinn @KatieKlocksin Hey Kathleen to be clear I have Long COVID. From our perspective the pandemic just kept going"  
[X Link](https://x.com/useless_priest/status/1779629335185416570)  2024-04-14T21:54Z [----] followers, [----] engagements


"@smithsj Dont be absurd"  
[X Link](https://x.com/useless_priest/status/1779646066154942467)  2024-04-14T23:01Z [----] followers, [---] engagements


"Took the Garmin for its first workday spin. This is a little bit above-normal stressful Tuesday. Can clearly tell I had a presentation at 16:30 😅. Cool as a 🥒"  
[X Link](https://x.com/useless_priest/status/1780274569032466484)  2024-04-16T16:38Z [----] followers, [---] engagements


"@CamRegier Oh wow. There's actually someone at work who said she'd be up for comparing. Really interested to know. Also wanna see how much orange I have when I WFH. Those orange times are definitely pretty visceral for me. Wish I had these stats from pre-pando to compare against"  
[X Link](https://x.com/useless_priest/status/1780324893785051367)  2024-04-16T19:58Z [----] followers, [--] engagements


"Yet more demonstrations this weekend in Germany - this time in Mnster and Heidelberg. Relentless and never taken for granted"  
[X Link](https://x.com/useless_priest/status/1781657618051674119)  2024-04-20T12:14Z [----] followers, [--] engagements


"I guess it's a bit nave but I don't get why every person with dysautonomia ME POTS EDS MCAS and Long COVID doesn't look at each other's dilemma and start banging on the doors of medicine and parliament demanding IACCI revolution"  
[X Link](https://x.com/useless_priest/status/1782479164429242582)  2024-04-22T18:38Z [----] followers, 13.9K engagements


"I really don't understand what's going on here. The whole thing with ME is supposedly that nothing shows up in tests. But when someone's SpO2 falls to [--] (normal 95-100) this is due to - what - illness beliefs @MEawareness @5_News Jesus. Thats someone clearly struggling to breath with a clinical quality hospital device showing an emergency level low blood oxygen. The hospital instead of addressing thisjust turned off the obs machine 😧 I justwhat is wrong with them @MEawareness @5_News Jesus. Thats someone clearly struggling to breath with a clinical quality hospital device showing an"  
[X Link](https://x.com/useless_priest/status/1783216687321383129)  2024-04-24T19:29Z [----] followers, 11.5K engagements


"People with ME/CFS and Long COVID: Were there time gaps between the onset of one symptom group and another e.g. did you get ME/CFS in year [--] and get POTS in year 3"  
[X Link](https://x.com/useless_priest/status/1783630511367188843)  2024-04-25T22:53Z [----] followers, 21.3K engagements


""Pandemic led to a growing acceptance of doctors witholding treatment" - Forbes"  
[X Link](https://x.com/useless_priest/status/1784196496780300328)  2024-04-27T12:22Z [----] followers, [----] engagements

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