[GUEST ACCESS MODE: Data is scrambled or limited to provide examples. Make requests using your API key to unlock full data. Check https://lunarcrush.ai/auth for authentication information.]

[@embracingecho](/creator/tiktok/embracingecho)
"I had two seizures in the waiting room within an hour. My husband told the front desk and the doctor asked a nurse to watch me in the staff area. She came out visibly annoyed that she was forced to watch me. Shes not in this video. I had advocated to the nurse that I had epilepsy the types that Im completely unaware of my seizures and even the genetic mutation I had for epilepsy. She rolled her eyes. When I asked for my husband to sit next to me in the empty seat of the staff area she said NO. I never saw her again. I didnt know I had that many absence seizures until watching the videos back."  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7507732026955402527) [@embracingecho](/creator/tiktok/embracingecho) 2025-05-23T19:55Z 260.7K followers, 15.9M engagements


"These are just small clips of seizures that lasted hours Status Epilepticus is when seizures last more than five minutes or occur multiple times without regaining consciousness in between You can see in these videos when my body would attempt to come out of it and then another would start - I popped a blood vessel in my eye from the intensity of these seizures in my face In the beginning I could regain consciousness in between smaller seizures and then I was totally gone My husband texted me the next day and said I just couldnt help but think about how Im going to tell Halston (our daughter)"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7432789223591136543) [@embracingecho](/creator/tiktok/embracingecho) 2024-11-02T20:58Z 260.7K followers, 2.8M engagements


"*signing tv on clearly I was so over it *signing go coming out of a coma after status epilepticus - no both times my face was so itchy because of the medication and I hadnt itched anything in days"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7522956933654007070) [@embracingecho](/creator/tiktok/embracingecho) 2025-07-03T20:35Z 260.7K followers, 1.1M engagements


"Im really tired of having epilepsy but I hope this helps someone struggling. My whole body hurts. My eyes hurt from flickering so hard in the top of my head. My throat muscles hurt. My husband records these for my doctors. He did help me move my head a few times but my head kept contracting towards the cushion I can tell by the video and the pain in my neck. Im not aware during seizures. I have some awareness after at times but Im so tired and out of it that I may not remember the moments after a seizure. Its not pretty to see but its necessary to advocate and truly understand a condition"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7554893771918298399) [@embracingecho](/creator/tiktok/embracingecho) 2025-09-27T22:06Z 260.7K followers, 15.6M engagements


"A sad and terrifying situation to be in. He needs medical treatment. The rescue nearby does not have the funds to treat him but will be taking donations on his behalf. #DogRescue #AnimalRescue #RescueDog #SaveALife #InjuredDog"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7478816535545466143) [@embracingecho](/creator/tiktok/embracingecho) 2025-03-06T21:48Z 260.7K followers, 7M engagements


"Ive just been so tired of repeating this nightmare. As someone who has a platform I want to say its okay. but sometimes its not. Thats okay to say too. I was put into two different comas this time. I came out of the first and had X seizures which landed me in the second one. This has been really hard. Epilepsy is so serious and we have found my biggest trigger is infections. This is the second blood infection that has landed me multiple comas in which I missed days. I missed my daughters birthday. I was in a coma and I wanted to just be with her and tell her I love her on her birthday. Please"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7498820865669319966) [@embracingecho](/creator/tiktok/embracingecho) 2025-04-29T19:35Z 260.7K followers, 157.6K engagements


"There was green stuff all over the car. The air smelled like metallic sewage. Our eyes have been watering we are coughing. I have my inhaler but what is this Why is there so much pollution in the air #DustStorm #Pollution #Tucson #Phoenix #ArizonaLife #ConspiracyTheory #AirQualityConcerns"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7521944906793864478) [@embracingecho](/creator/tiktok/embracingecho) 2025-07-01T03:08Z 260.7K followers, 418.8K engagements


"Just some of what service dog handlers go through OFTEN. She shrieked and then started yellimg to get my service dog off of the bus. It was humiliating. I took out my phone while she was yelling and started visibly recording. She got a lot nicer after that. A service dog is considered medical equipment and under ADA law is allowed to be with me everywhere I go including transport. Fear of dogs and allergies are not a reason to kick a dog out as written in the ADA. #ServiceDog #ServiceDogInAction #ServiceDogRights #ADALaw #DisabilityRights"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7551214455980444958) [@embracingecho](/creator/tiktok/embracingecho) 2025-09-18T00:09Z 260.7K followers, 142.3K engagements


"Its quite embarrassing to post this but I think its good advocacy for Epilepsy During this video Echo brought preventative medication but it was too late An aura had presented and I was beginning to enter a seizure. Echo barked to alert that a big seizure was happening. He laid on my body to prevent dislocations. During seizures I have no idea whats happening. Echo is the reason for my safety and independence when Im alone or in public. My seizure became a little more aggressive but he stayed regardless and im proud of him. I had to cut the video quite a bit because the seizure was longer and"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7337811534711721258) [@embracingecho](/creator/tiktok/embracingecho) 2024-02-20T22:16Z 260.7K followers, 45M engagements


"I will let you guys know how this goes for anyone who is interested in potentially getting this done Again im not partnered with @sequencing. I just want to give you guys my honest opinion on something that might help your situation #EmpowerDisabledVoices #GeneticSequencing #DNASequencing #GenomeSequencing #DisabledCommunity #DisabilityAwareness"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7361140603679198506) [@embracingecho](/creator/tiktok/embracingecho) 2024-04-23T19:05Z 260.7K followers, 79.7K engagements


"Seizures can feel humiliating. Last night I started having seizures back to back and they werent stopping. My family was panicking as the minutes went by and XXX inevitably had to be called. Paramedics had to inject emergency medication in order to stop my seizures. Another dose was given in the hospital. Status epilepticus is a dangerous brain condition that happens when a person has seizures that last too long or happen too quickly in sequence. If not treated it can lead to permanent brain damage or end of life. Nothing is pretty about epilepsy. X in XX people will develop epilepsy in their"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7417193257236434207) [@embracingecho](/creator/tiktok/embracingecho) 2024-09-21T20:18Z 260.7K followers, 6.8M engagements


"entering a medically induced coma knowing your body wont stop having seizures putting you at risk for SUDEP and more severe brain damage"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7449934898191682846) [@embracingecho](/creator/tiktok/embracingecho) 2024-12-19T01:52Z 260.7K followers, 1.7M engagements


"My husband said the hardest part of me having seizures is the silence waiting for me to come out of them. I was having multiple seizures in a row this time. At the end in a very vulnerable state I cried I dont want to have seizures anymore. I started having absence seizures mid conversation at an event we were at according to Ruben. I was having clusters which is never a great sign. It was hard for him to get me to the car nonchalantly. Its always embarrassing for me to be having seizures at events. I dont like making a scene or for anyone to notice and my husband knows that. I had to cut so"  
[TikTok Link](https://www.tiktok.com/@embracingecho/video/7560808559773011230) [@embracingecho](/creator/tiktok/embracingecho) 2025-10-13T20:38Z 260.7K followers, 14.5M engagements