#  @Ok-Heart375 Ok-Heart375 Ok-Heart375 posts on Reddit about don t, it s, in a, if you the most. They currently have [------] followers and [---] posts still getting attention that total [--] engagements in the last [--] hours. ### Engagements: [--] [#](/creator/reddit::t2_q4xy5rdc/interactions)  - [--] Week [---] +200% - [--] Month [---] -39% - [--] Months [-----] -59% - [--] Year [------] +9.30% ### Mentions: [--] [#](/creator/reddit::t2_q4xy5rdc/posts_active)  - [--] Month [--] -29% - [--] Months [--] -70% - [--] Year [---] -37% ### Followers: [------] [#](/creator/reddit::t2_q4xy5rdc/followers)  - [--] Months [------] +2.40% - [--] Year [------] +32% ### CreatorRank: undefined [#](/creator/reddit::t2_q4xy5rdc/influencer_rank)  ### Social Influence **Social category influence** [technology brands](/list/technology-brands) [stocks](/list/stocks) [finance](/list/finance) [social networks](/list/social-networks) [celebrities](/list/celebrities) [musicians](/list/musicians) [automotive brands](/list/automotive-brands) [countries](/list/countries) [currencies](/list/currencies) **Social topic influence** [don t](/topic/don-t), [it s](/topic/it-s), [in a](/topic/in-a), [if you](/topic/if-you), [garmin](/topic/garmin), [$googl](/topic/$googl), [has been](/topic/has-been), [i need](/topic/i-need), [you have](/topic/you-have), [what do](/topic/what-do) **Top assets mentioned** [Alphabet Inc Class A (GOOGL)](/topic/$googl) [Reddit, Inc. (RDDT)](/topic/reddit) [Optimism (OP)](/topic/optimism) [CannabisCoin (CANN)](/topic/cannabis) ### Top Social Posts Top posts by engagements in the last [--] hours "Argenx banks on Vyvgart prefilled syringe approval in 2025: exec MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1itxing) 2025-02-20T12:44Z [--] followers, [--] engagements "Argenx Awaits Approval of Prefilled Vyvgart Syringe. MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1jov55m) 2025-04-01T13:17Z [--] followers, [--] engagements "Vyvgart hytrulo self injection MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1k2grjd) 2025-04-18T21:58Z [--] followers, [--] engagements "Argenx's FcRn inhibitor Vyvgart hits targets in Phase II myositis Sjgren's studies Sjogrens Sjogrens" [Reddit Link](https://redd.it/1l9nc9m) 2025-06-12T15:11Z [--] followers, [--] engagements "What do we keep it a secret family_of_bipolar family_of_bipolar" [Reddit Link](https://redd.it/1mm13mm) 2025-08-09T21:43Z [--] followers, [--] engagements "Only Murders in the Building I'm watching it for the first time and I'm in season two. I just love that Selena Gomez's character is bi. I also love how staid and uncharming she is. Nice to finally see versions of myself depicted in mainstream media. Yes I just called myself uncharming because its true. https://preview.redd.it/vmqm5mif2rpc1.jpgwidth=1200&format=pjpg&auto=webp&s=db99ba5c4f42fc194a7d5eeb38aaffaeb820ca70 actuallesbians actuallesbians" [Reddit Link](https://redd.it/1bkh2lu) 2024-03-21T20:50Z 36.9K followers, [--] engagements "Can I buy a life like wig for about $50 I'm recently disabled and I find having a buzz cut to be the most convenient way to maintain my hair however I've been toying with the idea of getting a wig for special occasions. I don't really want to spend too much money cuz I wouldn't wear it a lot. I do like my haircut like this but I also miss having long hair. If it is possible to get a wig for about $50 could you please recommend a brand Wigs Wigs" [Reddit Link](https://redd.it/1bmyzjk) 2024-03-24T23:32Z 37.9K followers, [--] engagements "Close to buying my first wig ever. I have these two wigs in my cart. Do I want to start with an expensive higher quality wig because I might have a better first impression Or do I want to buy the cheaper wig because I can be more casual with it and learn wig wearing without much investment Thank you so much for your help on my previous post. The expensive one https://www.amazon.com/gp/product/B0BHFGBB3H/ref=ox_sc_act_title_1smid=A1D8UMY50C6WP6&psc=1(https://www.amazon.com/gp/product/B0BHFGBB3H/ref=ox_sc_act_title_1smid=A1D8UMY50C6WP6&psc=1) The cheap one." [Reddit Link](https://redd.it/1bngrsi) 2024-03-25T15:40Z 37.9K followers, [--] engagements "This is a rant about my sister I have two sisters and one of them is very wealthy and has never had a job. She was a stay-at-home mom and now she volunteers because her husband makes a ton of money. She's never had a cavity and she's never had a major health event. She's in her 50s and I'm [--] and she offered to help me today because I'm currently living alone. However when she showed up she brought a sushi lunch for one. Sushi is one of my favorite foods and everyone in my family knows that. When I realized that she brought lunch only for herself I asked her to leave and I don't feel bad" [Reddit Link](https://redd.it/1bobs8u) 2024-03-26T16:15Z 36.5K followers, [---] engagements "Cannabis cure No just kidding but this post is about cannabis. Why does cannabis reduce all my symptoms except orthostatic intolerance and brain fog obviously. Can anyone shine some science on this My Google search was inconclusive. My personal opinion is that it calms my nervous system. I'm really feeling the nervous system theory lately. cfs cfs" [Reddit Link](https://redd.it/1bom509) 2024-03-26T23:04Z 36.5K followers, [---] engagements "The free version of the visible app The free version of the Visible app is surprisingly helpful. When I first investigated this app they didn't have a free version so I wrote it off. Someone else posted about it here so I revisited it and I'm glad I did. It's going to beat out Bearable by a long shot. cfs cfs" [Reddit Link](https://redd.it/1bre4wu) 2024-03-30T09:51Z 36.1K followers, [--] engagements "Is there an effective way to communicate My sister is [--] and I'm [--]. My sister has a bipolar disorder that causes her to think we are related to royalty. She's constantly "researching" our family tree. This post isn't about her research. I'm recently disabled with ME/CFS an energy limiting disease. (CDC.gov/MECFS) My sister suffers from increasing fatigue that is effecting every part of her life and she's likely to lose her job to this fatigue. Whenever I talk to her about how important it is to take this fatigue seriously she gets upset. She hates all her doctors but she also won't get new" [Reddit Link](https://redd.it/1bsdq3k) 2024-03-31T15:57Z 36.9K followers, [--] engagements "How can I zip it Hello I'm very liberal and very passionate about liberal issues like LGBTQ+ issues trans rights voting access anti-racism wage equity and many more. Last year I became disabled and moved in with my parents who are in their eighties in Wisconsin. I used to live in downtown Chicago where there were planty of like mided people but now I'm a serious minority in the house and out. I want to learn to keep these passions to myself. I'm registered to vote and I already voted in today's election via absentee ballot. I also have reddit for like minded conversations. The community I" [Reddit Link](https://redd.it/1btxwl3) 2024-04-02T12:49Z 36.9K followers, [--] engagements ""Pain is your brain's interpretation of how much danger you're in." "Pain is your brain's interpretation of how much danger you're in." I've seen this meme so many times. Well I've sure turned the danger way down on my pain response such that I just realized my extracted tooth socket has been getting more painful and not better. Been ignoring the pain for several days and then it dawned on me this might be an actual problem. I guess I've been ignoring pain so effectively I forgot that pain can be an important warning. Welp going back to the surgeon on Monday. cfs cfs" [Reddit Link](https://redd.it/1by2ij9) 2024-04-07T11:43Z 36.9K followers, [---] engagements "It's working And I'm so surprised. I only do about [--] min of 4-7-8 breathing most evenings while watching movies. I'm disabled with ME/CFS and can not do any aerobic exercise. I bet this improves my health even just a little. That little bit of breathwork had increased my CO2 What is me/cfs(https://www.cdc.gov/me-cfs/index.html) breathwork breathwork" [Reddit Link](https://redd.it/1by6vf9) 2024-04-07T15:16Z 36.9K followers, [--] engagements "Please advise on a folding electric wheelchair Hello. I live in the United States and I want to buy a folding wheelchair for outdoor use. I live in a very hilly area and I will use the chair to walk my dog go on walks with other people go into town (which is flat) to look at shops and stuff like that. I have me/cfs and I'm ambulatory but with very limited energy. I'm pretty sure I've picked out the chair I want https://www.foldandgowheelchairs.com/benefits-of-magnesium/ Is there another chair or folding scooter I should consider that can go up hills And if you'd like to weight in on color" [Reddit Link](https://redd.it/1c1hdk9) 2024-04-11T15:05Z 36.1K followers, [--] engagements "My mom will never respect my illness or me I've given her so many articles to read and she's read them and then she ignores them. She constantly challenges me when I'm explaining my symptoms and limitations. She employs toxic positivity contradicts me and ignores all the medical information she's read about me/cfs. My dad even got mad at her for ignoring everything she's read. The worst part of all this is that I live with her and my dad. I'm no longer going to try to educate her. I'm doing my best not to interact with her but she's so fucking needy and requires so much attention any time we" [Reddit Link](https://redd.it/1c1npq4) 2024-04-11T19:23Z 36.9K followers, [--] engagements "Therapist recommendation for Wisconsin Are any of you in Wisconsin Do you like your therapist Do they provide telehealth Do they really get chronic/terminal illnesses Please share with me any recommendations you have. I need a new therapist. ChronicIllness ChronicIllness" [Reddit Link](https://redd.it/1c4ou1l) 2024-04-15T15:19Z 36.5K followers, [--] engagements "A Superhero of Suffering removed DrawForMe DrawForMe" [Reddit Link](https://redd.it/1c5mtub) 2024-04-16T18:03Z 37.9K followers, [--] engagements "What's your review of the paid version of the visible app ChronicIllness ChronicIllness" [Reddit Link](https://redd.it/1c7b3pj) 2024-04-18T18:46Z 36.5K followers, [--] engagements "I made this meme. Free use to all cfs cfs" [Reddit Link](https://redd.it/1c7ytf4) 2024-04-19T14:51Z 36.5K followers, [---] engagements "question about disability benefits through an employer hello. I am employed by a major US finacial instution with great disability benefits. I have me/cfs and I've been able to work almost a year since becoming disabled in Feb [--] in part because I moved in with my parents. I'm currently on short term disability but on May [--] I will transfer to long term disability. I've been seeing my doctor once a month she then fills out the paperwork to renew my disability coverage and then I message my managers with my return to work date. Here is the question. I and my doctor do not expect me to return" [Reddit Link](https://redd.it/1cafw1q) 2024-04-22T16:56Z 36.1K followers, [--] engagements "Do you do any visualizing while aggressive resting Like the title says. Do you do any visualize while aggressively resting at times when you're not asleep. I'm trying to up my aggressive resting game and I realized I'm afraid of my body and just about everything else. I'm laying here in fear and I don't want to always be afraid. cfs cfs" [Reddit Link](https://redd.it/1ceiaxi) 2024-04-27T16:18Z 49.7K followers, [--] engagements "Cannabis withdrawal or is Cannabis therapeutic Since having a disabling crash in February [--] I've used cannabis everyday to help with symptoms. I prefer it orally but I also vape it. On days I have less symptoms I use way less of it. I'm observing that the day after using way less just vaping a little I feel terrible. I haven't really tested this out in any methodical way so I'm wondering if anyone else has this experience. Do you think when I use way less I experience withdrawal and then feel like crap the next day On good days when I use way less am I over doing it even though I'm really" [Reddit Link](https://redd.it/1cj9o1u) 2024-05-03T14:11Z 36.5K followers, [--] engagements "Send a letter to all your doctors Ask your friends and family to do the same. https://docs.google.com/document/u/0/d/163DeV93SRYNm7Aq2zC_uoaU7NIJmmydaJIi4BQDQDew/mobilebasic cfs cfs" [Reddit Link](https://redd.it/1cjeryt) 2024-05-03T17:46Z 34.9K followers, [--] engagements "How much salt For those of you who add salt to your water how much are you adding dysautonomia dysautonomia" [Reddit Link](https://redd.it/1ckahz2) 2024-05-04T21:04Z 37.9K followers, [--] engagements "Nalgene sized holder for wheelchair Has anyone bought or made a nalgene sized bottle holder for your chair Please share links. Thank you wheelchairs wheelchairs" [Reddit Link](https://redd.it/1cnbz02) 2024-05-08T18:40Z 36.9K followers, [--] engagements "Does the algorithm suppress posts about disability Since becoming seriously disabled a year and a half ago all my social media posts shifted to disability and disease specific topics. To be clear I was not in anyway am influencer or anyone with any kind of following. I just sorta kept in touch with some friends and they would like my posts like single diget number of likes. But now it's like a ghost town. Some posts get nothing. Did this happen to you too What do you think disability disability" [Reddit Link](https://redd.it/1cnxamr) 2024-05-09T13:27Z 36.5K followers, [--] engagements "I'm having some really weird sensations Yesterday I likely over did it by taking my first wheelchair ride too far. I took Dextromethorphan last night. I slept terribly took forever to fall asleep and then I woke up too early. I took some cannabis to go back to sleep at about 5am and I did fall back to sleep some. It's almost [--] am and I'm laying in bed and I'm having these weird waves of sensation kinda like anxiety but also kind of euphoric. When I move my body I feel grounded again. I feel a slow spinning when my eyes are closed. I'm regular cannabis user and haven't had this experience" [Reddit Link](https://redd.it/1cnxqxn) 2024-05-09T13:49Z 36.5K followers, [--] engagements "What albums should I listen to I have a terrible chronic illness/disability (me/cfs) and I have rest even when it doesn't feel like I need to. Rest means laying in bed with my eyes closed sometimes actually sleeping sometimes listening to podcasts. When I was younger I loved listening to whole albums. Remember when an album was whole work of art I'm having a hard time remembering what albums I liked. What full albums should I listen to anytime period. EDIT: thank you so much I've bookmarked this post and it will be a great resource for me. I have rest [--] hours a day on top of 10-12 hours of" [Reddit Link](https://redd.it/1ctd6o7) 2024-05-16T13:41Z 11.8K followers, [---] engagements "Feeling good is good enough. This is my new mantra. I caused a crash and lowered my baseline on April [--] no joke. I experienced a really bad crash that is over but I remain really fragile. I'm housebound and only leave for doctor appointments I keep my steps under 2k and I aggressively rest 3-4 hours a day which I define as anything from actually sleeping to laying in bed eyes closed listening to a podcast or music. I flipped the script on aggressive rest by calling it my work. I have to clock in and out everyday no matter what and it's really been helping. Now my new flipping the script" [Reddit Link](https://redd.it/1ctowff) 2024-05-16T21:48Z 11.8K followers, [---] engagements "Aggressive Rest All at once or space it out For those of you practicing aggressive rest do you do it all at once or do you space it out during the day. The past three days I've been struggling to make my goal all in one shot wondering if I should break it up into two sessions [--] hours each cfs cfs" [Reddit Link](https://redd.it/1cucof5) 2024-05-17T18:34Z 11.2K followers, [--] engagements "NAD NADH NAD+ Or lets call the whole thing off Do you use or have an opinion about any of these supplements Do you know how they are different or which one might be more helpful for us cfs cfs" [Reddit Link](https://redd.it/1cvx9k5) 2024-05-19T20:16Z 17.8K followers, [--] engagements "Where is your dream home I'm an ambulatory wheelchair user (well not right now because using the wheelchair makes me crash) and I like dreaming about where I could move to after my parents pass (I'm 47F and living with them.) I'll see things in movies like a Greek village and then I'll imagine living there and then I'm like wait I bet that's not a great place for a wheelchair. What are some of your fantasy accessible locations to live It could be a real location or it could be a set of conditions like near a town on a lake with room for a dog. If you could move anywhere where would you move" [Reddit Link](https://redd.it/1cy0gcu) 2024-05-22T13:38Z 14.7K followers, [--] engagements "I love bad weather now. I find myself looking at the forecast and being like "Yes Rain on Friday" Nice weather makes me feel so bad about how much time I have stay in bed. During bad weather I feel better less stress and worry probably in part because staying in bed during bad weather has always been pleasurable. Just an observation. Fingers crossed it will rain again soon. cfs cfs" [Reddit Link](https://redd.it/1cy7opk) 2024-05-22T18:36Z 14.7K followers, [---] engagements "The truth cfs cfs" [Reddit Link](https://redd.it/1czkhjt) 2024-05-24T13:16Z 14.7K followers, [---] engagements "Mindfulness/Buddhist Chronically Ill Sub Does anyone know if there's a chronically ill sub with a focus on mindfulness and/or Buddhism I did some searching but couldn't find one. I'm listening to the book How to Be Sick and would love to connect with other people who get inspiration for coping with their illness from mindfulness. ChronicIllness ChronicIllness" [Reddit Link](https://redd.it/1czvmk8) 2024-05-24T21:18Z 14.7K followers, [--] engagements "Mindfulness help for isolation I'm a 47F and I live with my parents who are in thier 80s because I have a severe disability (me/cfs)(https://www.cdc.gov/me-cfs/about/index.html#::text=ME%2FCFS%20is%20a%20biologicalt%20do%20their%20normal%20activities). I am confined to my bed nearly all day and I can only leave the house for doctor appointments. My parents have both read lots of information on this disease and I only live with them because I can not care for myself. I can not cook or clean and they do all that the household needs. I am extremely isolated in a few ways. Basically no friends" [Reddit Link](https://redd.it/1d10g5y) 2024-05-26T12:37Z 15.6K followers, [--] engagements "Did you come out I'm a bicentennial baby and I've been in denial of my bisexuality until very recently. (Pun always intended) I just thought at college girls fooled around. I also told myself if I can act hetero wouldn't that be easier and then wasted some of my best years taking care of man children. Saw people my age coming out in their thirties and I was like wow they didn't feel safe until now That's weird they are so liberal. 🤦♀ I'm closeted with my family except one sister and I'm not planning to change that. Many many of my friends teachers and community are/were gay and I think I" [Reddit Link](https://redd.it/1d24t0k) 2024-05-27T22:58Z 15.6K followers, [--] engagements "Any other disabled adult children living with their N parent(s) I have ME/CFS I'm housebound and mostly bed bound. I can not care for my basic needs like cooking and cleaning although recently I can do my laundry myself. My N mom down plays dismisses and denies my disability everyday. I have given her and my dad copious information about my disease and my limitations. She's read everything I've given her and does not change her behavior. I need your help learning how to grey rock when she says something like "You can walk to the mailbox." "Why don't you do some exercise" "Of course you feel" [Reddit Link](https://redd.it/1d6jq5y) 2024-06-02T18:24Z [--] followers, [--] engagements "Cannabis reduction/withdrawal Hello. I'm not diagnosed with MCAS but I have some symptoms of it off and on. I haven't had them in a long time and now I'm suddenly getting hit hard. I have sneezing sore throat itchy eyes elevated heart rate and a new symptom burning itchy hands and to a lesser degree feet. The symptoms come up in the evening. I was recently eating sugar and dairy as if they don't cause problems with me which I suspect both do. I've stopped eating them. I have ME/CFS my baseline is very low and I live with my elderly narcissistic parents and have been having above average" [Reddit Link](https://redd.it/1d7lx8c) 2024-06-04T02:02Z 18.7K followers, [--] engagements "Anyone else homebound and living with one or more people that think you're faking it Hoping we can commiserate. I'm [--] and my mom is constantly pushing me to do more than I can and gets upset when I tell her I can't do whatever she is asking me to do. She say cruel things like why don't you walk to the mailbox when I can't even use my electric wheelchair to get to the mailbox without causing PEM. She's a narcissist she's read tons about this disease the only reason I live with my parents is the severity of this disease and yet she continues to live a fantasy where the only reason I don't do" [Reddit Link](https://redd.it/1d8p1xq) 2024-06-05T12:46Z 18.7K followers, [--] engagements "How Long Concussion could offer new insights into Long Covid cfs cfs" [Reddit Link](https://redd.it/1d9hia8) 2024-06-06T12:56Z 18.7K followers, [---] engagements "Rant about my sister. My sister who has had two psychotic episodes that we know of and has a lot of the symptoms of being bipolar but isn't diagnosed as such just called my mom to ask if we can watch her dog because she wants to go to Alabama tomorrow (we are in southern Wisconsin) with her friend. She says she'll be gone for two weeks but when I asked my mom how she's getting there and getting back it revealed that she has no return date. Her dog does not have a rabies shot and we live in a rural area and he runs free when he's at our house. If I was in charge he'd never come over again" [Reddit Link](https://redd.it/1d9ow8v) 2024-06-06T18:13Z 18.9K followers, [--] engagements "Zyrtec and chronic sore throat I'm not diagnosed with MCAS but I do have many of the symptoms. Recently stopped using cannabis going from daily use to almost never and my MCAS like symptoms exploded. I bought Zyrtec and not only did it knock out my MCAS symptoms but also the accompanying chronic sore throat. Thought I'd share in case it can help you. cfs cfs" [Reddit Link](https://redd.it/1dbiiqa) 2024-06-09T01:48Z 18.9K followers, [--] engagements "Have anyone had a reaction to Calcium D-Glucarate Just like the title says. I think I've had a reaction to Calcium D-Glucarate which I tried taking for my ME/CFS. MCAS MCAS" [Reddit Link](https://redd.it/1dcp9oi) 2024-06-10T16:09Z [--] followers, [--] engagements "I thought this was really interesting and relative to our condition. Check out Why You Feel Empty from Hidden Brain on Amazon Music. https://music.amazon.com/podcasts/14f37f6e-7952-4454-a474-d54cbb7a3d06/episodes/823728b6-c681-4ab9-8ad6-ffa8646714d8/hidden-brain-why-you-feel-emptyref=dm_sh_teMtjPIt6WzmIvJ6MiECsUCt2 cfs cfs" [Reddit Link](https://redd.it/1dgkq2r) 2024-06-15T15:40Z 20K followers, [--] engagements "Annoyance with Visible My heart rate has been lowering and my HRV had been rising both are indications of improved health but visible gives me a lower score for "trending from baseline." What gives cfs cfs" [Reddit Link](https://redd.it/1dh71qb) 2024-06-16T12:58Z 20K followers, [--] engagements "I'm approved for long term disability I just heard from the disability insurance company my company uses. Based on my experience here's how you get long term disability in the USA. Work for a company with [--] or more employees and has disability insurance. Don't ever quit your job. Use FMLA and short term disability until you no longer can. See all the specialists get all the tests try all the treatments you'll need documentation of this for your claim. The insurance company will now set me up with a specialist to apply for SSDI because that will reduce the amount of money they will pay me so" [Reddit Link](https://redd.it/1disyod) 2024-06-18T15:07Z 20.5K followers, [---] engagements "Feeling better but I'm more pain A few weeks ago I started talking Glutathione and almost immediately I started feeling and seeing improvement. My HR decreased and my HRV increased but now I'm in so much pain. I haven't increased my activity because of my improvement and the pain it different than PEM pain. This pain is more in my joints and bones than my muscles. What is going on The pain is starting to make me depressed (I mean more depressed.) cfs cfs" [Reddit Link](https://redd.it/1dl6vkz) 2024-06-21T15:34Z 20.9K followers, [--] engagements "Cicada wet market removed chicago chicago" [Reddit Link](https://redd.it/1dlb817) 2024-06-21T18:37Z 20.9K followers, [--] engagements "What type of edible fungi could I inoculate this Silver Maple log with I live in SE Wisconsin. What is the best time of year to inoculate mycology mycology" [Reddit Link](https://redd.it/1dlc5lv) 2024-06-21T19:17Z 20.9K followers, [--] engagements "Who pooped on the patio I'm located in SE Wisconsin. The poop is rather close to the house considering we live on about an acre of wild prairie. Just wondering who was hanging out under the deck close to the house AnimalTracking AnimalTracking" [Reddit Link](https://redd.it/1drkfr1) 2024-06-29T20:37Z 22.3K followers, [--] engagements "Hello I created this group in response to some pretty appalling ablist behavior I encountered in a general mindfulness group on Reddit. I have a background in mindfulness meditation and mindfulness practice primarily from the Shambhala lineage although I left the group long before the recent allegations and upheaval. I am by no means any kind of mindfulness expert or seasoned meditator. I am disabled with ME/CFS and moved in with my elderly parents a year ago. I recently became too disabled to work and I'm in the disability process with my employer. I hope I can remain well enough to moderate" [Reddit Link](https://redd.it/1dt0eyl) 2024-07-01T18:36Z 32.9K followers, [--] engagements "Curse this human brain. What's causing pins and needles in my hands Why are my vitals improving but I'm feeling worse It's my eyesight deteriorating All the time my problem solving brain is trying to solve my incurable untreatable disease and it drives me crazy ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dt9xoh) 2024-07-02T01:33Z 22.6K followers, [--] engagements "How to be mindful when social media is your only social life I struggle with this so much I'm housebound and I haven't socialized in person in over a year. Social media and specifically Reddit is my only outlet but it also causes so much anxiety and compulsion. I love it. I hate it. I suffer. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dtk8pn) 2024-07-02T12:08Z 22.6K followers, [--] engagements "Disability pride flag explained ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dttmz3) 2024-07-02T18:55Z 22.6K followers, [--] engagements "Mindfulness to cope with chronic pain - Mayo Clinic Health System ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dudev7) 2024-07-03T12:42Z 22.6K followers, [--] engagements "Mindfulness "Tarot" Our daily mindfulness "tarot" comes from The Compassion Box: Book CD and Card Deck by Pema Chdrn and Nap Ministry's Rest Deck: [--] Practices to Resist Grind Culture by Tricia Hersey ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dv6ibq) 2024-07-04T13:07Z 23.1K followers, [--] engagements "Mindfulness sleep hygiene I'm struggling with poor sleep which is common with having me/cfs. I'm having intense imaginary arguments in my head when trying to fall asleep and I hate it. I know I need to stop using social media like an hour before bed. I should also put lavender essential oil on my pillow every night. I think stretching before bed might help. What does your sleep hygiene look like ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dvw2sc) 2024-07-05T11:47Z 22.9K followers, [--] engagements "Learning to retrieve in middle age I have a rescued Springer who is seven. When I got her I was very active and able bodied so I never focused on the retrieve because I was happy to get more steps in. Now I'm disabled and have limited mobility so I'd really like to teach her to bring me the ball. Currently she loves to fetch the ball but on the return she's interrupted by resource guarding and will stop about [--] feet away. Before I became disabled I'd walk over to her and she would drop the ball and I'd throw it again and we would work are way around the park. I successfully taught her to" [Reddit Link](https://redd.it/1dw5rbj) 2024-07-05T19:07Z 22.9K followers, [--] engagements "That inner voice I struggle a lot with my inner voice when trying to fall asleep and it gets worse when my condition gets worse. This was an informative podcast. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dxp65y) 2024-07-07T19:51Z 23.3K followers, [--] engagements "Group description updated I just updated the group description. Earlier this week I had a comment removed from one of the me/cfs subreddits. It was a comment I made describing a mindfulness practice someone could do while experiencing acute pain when no additional meds were available. The mods of this group are very diligent about keeping pseudo science "brain retraining" posts out of the group which is one of the reasons I like that group so much. I realized very quickly how much mindfulness practice can seem like these "brain training" programs that promise cures at a very expensive cost" [Reddit Link](https://redd.it/1dydugj) 2024-07-08T16:54Z 23.3K followers, [--] engagements "Present ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dza32v) 2024-07-09T18:44Z 23.3K followers, [--] engagements "Ram Dass quote ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1dzc21c) 2024-07-09T20:05Z 23.3K followers, [--] engagements "Violet Affleck [--] gives speech against mask bans and reveals she had post-viral condition cfs cfs" [Reddit Link](https://redd.it/1e01i2e) 2024-07-10T17:24Z 23.9K followers, [---] engagements "Are the dangerous for my dog SE Wisconsin likely growing from silver maple roots of a large tree we cut down at least [--] years ago. They will pop up several times a summer. mycology mycology" [Reddit Link](https://redd.it/1e053j8) 2024-07-10T19:50Z 23.9K followers, [--] engagements "Sauerkraut day [--] Red cabbage with lots of ginger and garlic tumeric powder (no fresh tumeric in this part of the country) and a little fish sauce. fermentation fermentation" [Reddit Link](https://redd.it/1e07s3p) 2024-07-10T21:40Z 23.9K followers, [--] engagements "SE Wisconsin These pop up a few times a summer and are likely growing from silver maple roots from a tree we cut down about ten years ago. SE WISCONSIN. Can anyone ID them mushroomID mushroomID" [Reddit Link](https://redd.it/1e0wk0p) 2024-07-11T18:53Z 23.9K followers, [--] engagements "Life only unfolds in moments "Life only unfolds in moments. The healing power of mindfulness lies in living each of those moments as fully as we can accepting it as it is as we open to what comes nextin the next moment of now." Jon Kabat-Zinn Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress Pain and Illness ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1e1f7mf) 2024-07-12T11:23Z 24.2K followers, [--] engagements "Acetyl-L Carnitine (ALCAR) caused agitation sleep issues I started using Acetyl-L Carnitine (ALCAR) 1000mg on July [--] and I think it started to make me anxious/agitated. I'm disappointed because I definitely noticed a boost taking it the first couple days. It might have also contributed to poor sleep I've been experiencing. I'm not taking any today. I might only use it "as needed" going forward like when I have to go to a doctor's appointment and the like. What have been your experiences If I take with alpha lipoic acid would the agitation and sleep issues be reduced cfs cfs" [Reddit Link](https://redd.it/1e1p0i3) 2024-07-12T18:35Z 24.2K followers, [--] engagements "CB2 free trial I got this free trial of CB2 after seeing this post. https://www.reddit.com/r/cfs/s/6h9DBvcdla I'm trying it out I don't have big expectations. Have you tried CB2 cfs cfs" [Reddit Link](https://redd.it/1e1p2h3) 2024-07-12T18:38Z 24.2K followers, [--] engagements "Learning to sleep on my back I'm a lifelong side sleeper who's now middle-aged with some pretty serious shoulder injuries. I've been in pain for years sleeping on my side but just couldn't train myself to sleep on my back. Well I woke up at five this morning in so much pain I knew I needed to make a change starting right then and there. I placed a heavy body pillow across my chest and laid there on my back until 7am feeling the urge to flip on my side over and over. I've come up with a slightly different set up for tonight and I ordered a weighed blanket to come on Monday. I'm going to use" [Reddit Link](https://redd.it/1e2lflu) 2024-07-13T21:34Z 24.2K followers, [--] engagements "Can we all talk about curly pantaloons My dog normally gets a buzz cut in the spring but not this year. I'm just loving the curly pantaloons FYI she's a rescue I did not mutilate her tail. springerspaniel springerspaniel" [Reddit Link](https://redd.it/1e2mokc) 2024-07-13T22:29Z 24.2K followers, [---] engagements "pessimism or optimism "To think in terms of either pessimism or optimism oversimplifies the truth. The problem is to see reality as it is." Thich Nhat Hanh The Miracle of Mindfulness: An Introduction to the Practice of Meditation ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1e32izl) 2024-07-14T13:38Z 25.1K followers, [--] engagements "Joint muscle arthritis type pain all over body. What do you do when you have this symptom I know I'm not in PEM but I also know I've been slowly increasing activity and I've been sleeping poorly for several weeks. I know I need to stop eating sugar (I don't eat much honey on raw nuts once a day) because it contributes to inflammation. I'm taking it really easy today. Is there anything else you'd recommend cfs cfs" [Reddit Link](https://redd.it/1e3adv4) 2024-07-14T19:13Z 41K followers, [--] engagements "Beginner's Mind "When something dies is the greatest teaching." Shunryu Suzuki Zen Mind Beginner's Mind: Informal Talks on Zen Meditation and Practice ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1e4mi2i) 2024-07-16T11:42Z 25.1K followers, [--] engagements "Terrible dangerous article. Recommends stimulants and graded exercise. 🤦♀🤦♀🤦♀" [Reddit Link](https://redd.it/1e4mrto) 2024-07-16T11:57Z 24.9K followers, [--] engagements "Pain is inevitable suffering is optional Nice short meditation on pain. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1e4nwky) 2024-07-16T12:54Z 52.3K followers, [--] engagements "This was a great podcast. The guest explains why she doesn't use medical terms like narcissistic in the beginning of the podcast. Towards the end she talks about how she doesn't advocate no contact but doesn't go deep into it. She and her books seem like a really great resource for all of us but especially those of us who can't or choose not to go no contact. Check out How to Deal With Emotionally Immature People (Including Maybe Your Own Parents) Lindsay C. Gibson from Ten Percent Happier with Dan Harris on Amazon Music." [Reddit Link](https://redd.it/1e4pp88) 2024-07-16T14:13Z 25.1K followers, [--] engagements "Go slow. Be gentle. Be careful. This is my new mantra to try to avoid over exertion. My body isn't great today higher HR louder tinnitus. I will be repeating my mantra while doing laundry my one activity for the day. What do you say to yourself ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1e4rstn) 2024-07-16T15:39Z 25.1K followers, [--] engagements "the stories we tell ourselves "Mindfulness helps us get better at seeing the difference between whats happening and the stories we tell ourselves about whats happening stories that get in the way of direct experience. Often such stories treat a fleeting state of mind as if it were our entire and permanent self." Sharon Salzberg Real Happiness: The Power of Meditation ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1e5j02o) 2024-07-17T14:03Z 25.1K followers, [--] engagements "Running out of authors I'm running out of authors for our daily quote. Who have I missed ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1e6cq1i) 2024-07-18T14:24Z 25.3K followers, [--] engagements "no use in worrying "As the great Indian scholar Shantideva has said: If there is a way to overcome the suffering then there is no need to worry; if there is no way to overcome the suffering then there is no use in worrying." Dalai Lama XIV The Dalai Lamas Book of Wisdom ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1e6ctb2) 2024-07-18T14:28Z 53.3K followers, [--] engagements "How can I have such a low pulse ox while using a CPAP I have December sleep hygiene I take amyltriptaline gabapentin LDN metoprolo magnesium and theanine before bed. Every night isn't this bad infact most are much better. I got terrible sleep score my body battery is the terrible but I slept all through the night just over [--] hours and my mind feels clear like I had a good night's sleep my body and muscles on the other hand feel exhausted. What is going on cfs cfs" [Reddit Link](https://redd.it/1e71mdz) 2024-07-19T11:39Z 25.3K followers, [--] engagements "Please critique my pacing. I use my Garmin watch and a few other guidelines to pace. I haven't had a crash in several weeks using this method but I do go up and down. When my sleep score HR HRV and stress score are at their best I do something more like go on a wheelchair ride and then after all those metrics decline for several days and I do much less and then when they get good again I repeat. Is this good pacing or should I be focusing on extending the duration of my good scores Over all my trajectory is an improved baseline but it's going slow as expected. What do you all think cfs cfs" [Reddit Link](https://redd.it/1e81xfz) 2024-07-20T18:15Z 25.5K followers, [--] engagements "Navigating the Balance: The Paradox of Goal Setting and Mindful Presence "Exploring the Philosophy of Not Setting Goals: The philosophy of not setting goals is deeply intertwined with Eastern perspectives particularly Buddhist and Taoist teachings that emphasise 'being' over 'doing' acceptance over control and the present moment over future ambition. This approach proposes that by allowing life to unfold naturally and responding authentically to each moment we attain a state of balance and fulfilment." As a former athlete now disabled with an energy limiting disease not seeing goals is a" [Reddit Link](https://redd.it/1e845au) 2024-07-20T19:57Z 25.5K followers, [--] engagements "Dark chocolate a rant. I can't eat wheat or dairy both give me MCAS like symptoms. I don't eat sugar or simple carbs because they increase inflammation and cause weight gain. I don't drink for the same reasons plus ethanol is a highly addictive carcinogenic neurotoxin. I stopped using THC when I realized it raised my heart rate and I'm afraid to experiment using it with CBD because I am probably pathologically obsessed with my heart rate. My last treat was one square of 85% lindts dark chocolate. We haven't had it in the house for a while but got some recently coincidentally I started to" [Reddit Link](https://redd.it/1e8swow) 2024-07-21T18:24Z 25.5K followers, [--] engagements "Super protector Adding on to this previous post. https://www.reddit.com/r/springerspaniel/s/WJBdoChKQ4 My over protective Springer is now reacting to the backup beep beep beep of delivery trucks in the neighborhood. Until a year ago my Springer and I lived in a highrise in downtown Chicago so she never had to guard the property before. She guarded me so much I had to get her a muzzle after biting [--] people. (Check out The Muzzle Movement online for tips on a properly fitted muzzle if you think one would help you.) Since moving up here she's become the super guardian. We live on a large and" [Reddit Link](https://redd.it/1e8v7yx) 2024-07-21T20:04Z 25.5K followers, [--] engagements "I'm scared to try DHEA. (Cis woman with hormonal issues) I'm a cis woman who's had hormonal issues my whole life. I have endometriosis PMDD and menstrual migraines. All three are currently well managed in part by using continuous use birth control. I guess I didn't research it well before ordering a bottle because one Google entry says it may increase estrogen and might not be a good choice for people who take estrogen. What do you guys think Should I give it a try Anyone in a similar boat as me try it Please share your experiences. cfs cfs" [Reddit Link](https://redd.it/1e9dxxu) 2024-07-22T13:11Z 25.8K followers, [--] engagements "Life remains as fragile and unpredictable as ever. "Mindfulness meditation doesn't change life. Life remains as fragile and unpredictable as ever. Meditation changes the heart's capacity to accept life as it is. It teaches the heart to be more accommodating not by beating it into submission but by making it clear that accommodation is a gratifying choice." Sylvia Boorstein Don't Just Do Something Sit There: A Mindfulness Retreat with Sylvia Boorstein ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1eazmo8) 2024-07-24T11:58Z 42.3K followers, [--] engagements "Rita looks at the / meadow a constellation / of flowers in bloom haiku haiku" [Reddit Link](https://redd.it/1eb7wmv) 2024-07-24T17:54Z 26.6K followers, [--] engagements "r/ChronicallyMindful Dear fellow chronically ill folk I created a new subreddit when I couldn't find any community dedicated to mindfulness for chronically ill and disabled people. I posted once on a general mindfulness sub and was shocked at the ableism I encountered and realized we need our own space. If you practice mindfulness or are interested in learning about mindfulness and you identify as chronically ill or disabled please join us. It's a small niche sub at this point but I think it offers a much needed space for exploring mindfulness while living in an uncooperative body." [Reddit Link](https://redd.it/1eb8n5o) 2024-07-24T18:24Z 26.2K followers, [--] engagements "I'm in PEM but I feel kinda good Woke up this morning not too surprised to find that my exceptionally busy Tuesday had come to collect. I took dextromethorphan right away and a lot of the yucky melted away. I've been laying in bed all day not feeling terrible. When I get up I'm dizzy and know I'm still in PEM and my heart rate is high. But over all this is a strange experience indeed. I guess I'm just sharing. cfs cfs" [Reddit Link](https://redd.it/1ec7ovk) 2024-07-25T22:17Z 26.2K followers, [--] engagements "The body is now "The body is now I believe our forest our jungle the outlandish expanse in which we are invited to let go of everything we think allow ourselves to be stripped down to our most irreducible person to die in every experiential sense possible and see what if anything remains." Reginald A. Ray Touching Enlightenment: Finding Realization in the Body ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1ec90bz) 2024-07-25T23:14Z 26.2K followers, [--] engagements "Do different ferments create different probiotics So far I've only made a sauerkraut/kimchi hybrid ferment and my primary reason is to get live probiotics that are not grown in a lab. There's a theory that probiotic supplements don't work because bacteria mutate so fast that the bacteria grown in a lab don't know how to live in the body. I have a serious chronic illness/disability and probiotics are on a long list of things that help me. So do different ferments make different probiotics Please share your wisdom. fermentation fermentation" [Reddit Link](https://redd.it/1ecmqqx) 2024-07-26T12:22Z 26.6K followers, [--] engagements "If you are truly present The present moment is where we need to operate. When you are truly anchored in the present moment you can plan for the future in a much better way. Living mindfully in the present does not preclude making plans. It only means that you know theres no use losing yourself in worries and fear concerning the future. If you are grounded in the present moment you can bring the future into the present to have a deep look without losing yourself in anxiety and uncertainty. If you are truly present and know how to take care of the present moment as best you can you are doing" [Reddit Link](https://redd.it/1edgk5s) 2024-07-27T13:37Z 26.6K followers, [--] engagements "101 members We now have [---] members. Yay us I created an introduction thread pinned to the top. Please introduce yourself there and subscribe to the post if you want to get notifications of new introductions. You can also create a user flair that shares your illness/disability if you want. Looking forward to seeing your posts ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1edhil9) 2024-07-27T14:22Z 26.6K followers, [--] engagements "All the elements for your happiness are already here. "There is no need to put anything in front of us and run after it. We already have everything we are looking for everything we want to become. Be yourself. Life is precious as it is. All the elements for your happiness are already here. There is no need to run strive search or struggle. Just be. Just being in the moment in this place is the deepest practice of meditation. Most people cannot believe that just walking as though you have nowhere to go is enough. They think that striving and competing are normal and necessary. Try practicing" [Reddit Link](https://redd.it/1eecgd4) 2024-07-28T17:15Z 26.7K followers, [--] engagements "Happy little phone switch Pareidolia Pareidolia" [Reddit Link](https://redd.it/1eedv60) 2024-07-28T18:16Z 26.7K followers, [--] engagements "Which is better from a pacing perspective It's deconditioning or recovery a better sign of proper pacing Strained here represents my last two crashes so that's obviously bad. Garmin4Pacing Garmin4Pacing" [Reddit Link](https://redd.it/1eek1wv) 2024-07-28T22:49Z 26.7K followers, [--] engagements "Which is better from a pacing perspective cfs cfs" [Reddit Link](https://redd.it/1eezz8a) 2024-07-29T13:48Z 26.7K followers, [--] engagements "r/Garmin4Pacing I have MECFS possibly from long covid and I've struggled with learning to pace using my Garmin watch so I created a group for Garmin users to learn to pace since I could not find a similar community or much info on the web. r/Garmin4Pacing Formerly I was an open water swimmer which is why I use Garmin and I'll probably stick with them since I already have so much data with them. If you use Garmin to pace please join the group to either share your wisdom and insights or to ask questions to figure out the best way to use your Garmin to pace. covidlonghaulers covidlonghaulers" [Reddit Link](https://redd.it/1ef3qc7) 2024-07-29T16:21Z 26.7K followers, [--] engagements "Mindful Non Striving I struggle a lot with wanting to get well enough to leave the house. I've been in the house since April [--] only leaving for a couple doctor appointments. I spend hours on my phone looking for a medical solution that I know isn't really there researching supplements creating hope and fear. This is the opposite of mindfulness. https://mbsrtraining.com/attitudes-of-mindfulness-by-jon-kabat-zinn/mindful-attitude-of-non-striving-jon-kabat-zinn/ ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1eftwbd) 2024-07-30T13:52Z 27K followers, [--] engagements "Training Status Garmin Technology Detraining is my goal. Currently in strained. Garmin4Pacing Garmin4Pacing" [Reddit Link](https://redd.it/1efuouv) 2024-07-30T14:24Z 27K followers, [--] engagements "Bring your attention to the pain "Bring your attention to the pain as if you were gently comforting a child holding it all in a loving and soothing attention." - Jack Kornfield ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1egmybr) 2024-07-31T13:17Z 27K followers, [--] engagements "Over night data made even worse by trying cannabis as a sleep aide Garmin4Pacing Garmin4Pacing" [Reddit Link](https://redd.it/1egn0ld) 2024-07-31T13:20Z 27K followers, [--] engagements "Lore 257: Blasted Lore Maybe we need to start seeing fairy doctors. 😂😂😂 A decent [--] min podcast on fairly treatments for untreatable illnesses. cfs cfs" [Reddit Link](https://redd.it/1egtmzj) 2024-07-31T17:53Z 27K followers, [--] engagements "I think Acetyl-L Carnitine (ALCAR) was contributing to my poor sleep quality. I stopped taking it yesterday I got a much better sleep score and few other metrics improved too. There's no way to know how much the Acetyl-L Carnitine (ALCAR) played a role because I've also been resting lots trying to improve from a recent small crash. Garmin4Pacing Garmin4Pacing" [Reddit Link](https://redd.it/1ehf5nh) 2024-08-01T12:15Z 50.3K followers, [--] engagements "I wish I could give you my almost full bottles of DHEA and NAC The NAC in flames my MCAS symptoms and I didn't research the DHEA well enough and realized it's not something I want to try after I bought and opened it. 🤦♀ I wish there was some way I could give these to you. cfs cfs" [Reddit Link](https://redd.it/1ehj89e) 2024-08-01T15:16Z 32.9K followers, [--] engagements "Do our smartwatches have psychosomatic powers over us Like today some of my metrics improved and all day I've been saying to myself I feel so good today. When my metrics are poor I feel bad all day. Garmin4Pacing Garmin4Pacing" [Reddit Link](https://redd.it/1ehqnsy) 2024-08-01T20:18Z 27.4K followers, [--] engagements "Resting isnt an afterthought "Treating each other and ourselves with care isnt a luxury but an absolute necessity if were going to thrive. Resting isnt an afterthought but a basic part of being human." Tricia Hersey Rest Is Resistance: A Manifesto ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1ei81io) 2024-08-02T11:50Z 27.4K followers, [--] engagements "r/ChronicallyMindful Do you use mindfulness as part of your illness management Please join us at r/ChronicallyMindful to share your wisdom and ask your questions. Fibromyalgia Fibromyalgia" [Reddit Link](https://redd.it/1eigapd) 2024-08-02T17:42Z 27.4K followers, [--] engagements "r/ChronicallyMindful Do you use mindfulness as part of your illness management Please join us at r/ChronicallyMindful to share your wisdom and ask your questions. FibromyalgiaIsReal FibromyalgiaIsReal" [Reddit Link](https://redd.it/1eigbg3) 2024-08-02T17:42Z 27.4K followers, [--] engagements "r/ChronicallyMindful Do you use mindfulness as part of your illness management Please join us at r/ChronicallyMindful to share your wisdom and ask your questions. Sjogrens Sjogrens" [Reddit Link](https://redd.it/1eigeir) 2024-08-02T17:46Z 27.4K followers, [--] engagements "How long after consumption does sugar cause inflammation I'm primarily sugar free to reduce pain and inflammation from MECFS. I recently had some honey over raw nuts my go to sweet treat when I'm feeling really bad. I had this yesterday and the day before probably [--] tablespoons of honey each day. I'm in a lot of pain today do you think it's still from the sugar sugarfree sugarfree" [Reddit Link](https://redd.it/1eil3xa) 2024-08-02T20:59Z 27.4K followers, [--] engagements "fall apart "When things start to fall apart in your life you feel as if your whole world is crumbling. But actually its your fixed identity thats crumbling. And thats cause for celebration." PEMA CHDRN ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1ejcvy2) 2024-08-03T20:18Z 27.6K followers, [--] engagements "Frustrated. Discouraged. I was getting better but I did too much had a small crash and I've been doing worse ever since. I'm so down in the dumps so crabby so sad. There are times I can live with and within my limitations and there I times like these I just want to self destruct. I'm not resting as much as I should I feel agitated and my mind keeps planning things it would like to do and creating anxiety. I'm really just venting here. I can't even find a quote for us today. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1ejugrh) 2024-08-04T12:48Z 27.6K followers, [--] engagements "r/Garmin4Pacing Are you using your Garmin to try to manage a chronic illness like long covid or MECFS I've had a hard time learning to use my Garmin "backwards" so I made a group when I couldn't find any resources on Reddit to help. I used to use my Garmin as an open water swimmer and active person. Please join r/Garmin4Pacing. I have MECFS and I have very limited energy so I'm not great at promoting the group. It's new and doesn't have very many members yet. GarminWatches GarminWatches" [Reddit Link](https://redd.it/1ek2j69) 2024-08-04T18:44Z 27.6K followers, [--] engagements "Patience is a form of wisdom. "Patience is a form of wisdom. It demonstrates that we understand and accept the fact that sometimes things must unfold in their own time." Jon Kabat-Zinn Full Catastrophe Living FYI It's very likely that I will post a quote twice someday. 😂😂😂 ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1ek5pf0) 2024-08-04T20:57Z 32.9K followers, [--] engagements "Scientific articles on the danger of covid for those with MECFS I've been seeing all your posts about getting worse after getting covid this summer and I've forwarded some of them on to my parents however my parents only take things seriously if they come from "authority." Can anyone share any links to an official looking article or study I can then pass on to them Everytime I bring it up my dad responds "Well you're going to get a cold someday." I'm housebound and the only way an infection is getting to me is through my parents who I only live with so they can care for me. They don't even" [Reddit Link](https://redd.it/1ekblxo) 2024-08-05T01:30Z 27.6K followers, [--] engagements "I'm going to try out this watch face for pacing. Check out this app from the Garmin Connect IQ Store https://apps.garmin.com/en-US/apps/a676fc9a-b8b1-4a6e-b749-1423ff67c8ad Garmin4Pacing Garmin4Pacing" [Reddit Link](https://redd.it/1ekc1gb) 2024-08-05T01:52Z 27.6K followers, [--] engagements "Glance watch face I'm playing around with this watch face. I didn't like the long covid watch face. Check out this app from the Garmin Connect IQ Store https://apps.garmin.com/en-US/apps/07ae0f49-7240-4475-a229-4507e8035fae Garmin4Pacing Garmin4Pacing" [Reddit Link](https://redd.it/1ekn84z) 2024-08-05T13:02Z [--] followers, [--] engagements "Test results MYASTHENIA GRAVIS REFLEXIVE PANEL Does anyone know what this test results might mean I have MECFS with prominent PEM. I'm very surprised that this test didn't come back in the normal range. Does this mean there might be some treatment that could actually help me Thank you for your wisdom MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1ekqmks) 2024-08-05T15:25Z [--] followers, [--] engagements "Compassion and pity Compassion and pity are very different. Whereas compassion reflects the yearning of the heart to merge and take on some of the suffering pity is a controlled set of thoughts designed to assure separateness. Compassion is the spontaneous response of love; pity the involuntary reflex of fear. Ram Dass ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1elp6v0) 2024-08-06T18:25Z 28.7K followers, [--] engagements "Is anyone using antihistamines I've been seeing a lot of posts about antihistamines in the long covid groups and funny thing I took Doxylamine Succinate last night as a sleep aid and feel better today than I have in a long time and there's a lot of other reasons I should be feeling bad high HR low HRV high stress yesterday didn't sleep well or long. What do you guys think cfs cfs" [Reddit Link](https://redd.it/1elps33) 2024-08-06T18:48Z 28.7K followers, [---] engagements "Should I pursue a diagnosis I've thought for a while that I have MCAS that's triggered primarily by wheat and less so by dairy and sugar. I've never bothered with pursuing a diagnosis because I have so many other health issues and I learned to control my symptoms by eliminating the triggers. My main illness right now is MECFS but I just got blood tests back that indicate I probably have myasthenia gravis. Other diseases I have that are now under control PMDD menstrual migraines and depression. With the possibility of this new diagnosis I'm recognizing that all the symptoms I've attributed to" [Reddit Link](https://redd.it/1elujlc) 2024-08-06T21:59Z 28.7K followers, [--] engagements "natural process of reorientation "There is a growing Awareness in the medical community that a lot of what has been diagnosed and treated as depression among older people may instead be a natural process of reorientation. Whether we attribute it to cellular-biochemical mechanisms or psychodynamics or spiritual processes theres a kind of drawing-inward that seems to be part of the process of aging. Not a paranoid drawing-inward; not being afraid of the world. Just a kind of deepening. I think its probably the nearness of death that leads many people to want to reflect on what life is all" [Reddit Link](https://redd.it/1emkp95) 2024-08-07T19:18Z 28.9K followers, [--] engagements ""If you're going through hell keep going." -Winston Churchill I seriously over exerted yesterday and the crash has already started. I'm concerned that this crash will leave me bedbound and extremely disabled and may not be able to moderate this group. I'm really sorry. Since nothing bad has happened so far I'm hoping it will stay that way but if anyone wants to volunteer to co-moderate you don't have to post everyday or anything just be available to remove any posts that violate the rules. Be well everybody. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1enwejq) 2024-08-09T10:36Z 28.9K followers, [--] engagements "Given a choice would you take Dextromethorphan or Celebrex for severe PEM I'm waiting for my PEM to start and it's going to be a doozy. I started taking dextromethorphan right after the event but I also got a [--] day script for Celebrex and the two don't play well together. Which should I take cfs cfs" [Reddit Link](https://redd.it/1eocfjt) 2024-08-09T22:04Z 29.4K followers, [--] engagements "Had anybody heard of this doctor in Alabama who's getting great results treating long covid https://www.wvtm13.com/article/unlocking-hope-birmingham-doctors-breakthrough-in-long-covid-research/61828757 Second try posting this first link was broken. cfs cfs" [Reddit Link](https://redd.it/1eprp9e) 2024-08-11T18:24Z 29.4K followers, [--] engagements "How do you find your new baseline after a crash I'm coming out of a crash. Previously I was doing [----] steps a day using the stairs once a day getting my own food and eating at the table (not preparing it just microwave or toaster) and sittng outside for a couple hours. The crash brought me down to [---] steps a day no stairs no outside my mom bringing me food to my bed and eating in bed. I'm so scared to do too much as the crash subsides. How do you recommend proceeding Edit: I have a Garmin smartwatch. My HRV dropped before the crash and is still low my RHR is higher but not terrible my sleep" [Reddit Link](https://redd.it/1er7m8c) 2024-08-13T13:15Z 29.5K followers, [--] engagements "What does generalized MG feel like for you I'm diagnosed with MECFS and recently tested positive for MG positive for the binding antibodies only. While I think I've had brief moments of double vision it's not my main complaint also no problems breathing or swallowing. I'm trying to figure out which of symptoms might actually be treatable and googling shows there's a lot of symptom overlap between MECFS and MG. I'd love to hear your description of generalized MG. I also know this disease is really different in each person. Thank you MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1erkycp) 2024-08-13T22:30Z 29.5K followers, [--] engagements "HR elevating as PEM is ending I'm coming out of about a week of PEM and yesterday and today my heart rate is higher than when I was in PEM. I am maintaining my PEM level of activity and not planning to increase until long after my HR and HRV have stabilized. Does any one know what's going on Edit. Just realized this might be because I started taking alpha lipoic acid. I won't take it again until I stabilize. cfs cfs" [Reddit Link](https://redd.it/1eswezh) 2024-08-15T14:20Z 29.5K followers, [--] engagements "Are any of these supplements contributing to a higher resting heart rate B1 100mg D3 2000IU Lysine 500mg C 1000mg Ubiquinol 100mg Omega3 690mg B12 1000mcg Glutathione lipsomal 500mg Magnesium glycinate 200mg Glutathione 500mg NADH 10mg Acetyl l-carnitine 500mg Probiotics cfs cfs" [Reddit Link](https://redd.it/1evato5) 2024-08-18T14:39Z 29.8K followers, [--] engagements "Identified a juvenile Red Tail Hawk by it's call I'm pretty darn disabled and can only sit outside the house on good days. On those days I started using the Audubon app and identifying birds. All summer I observed a pair of Red Tail Hawks and learned their call to each other is exactly what's played on a movie anytime there a hawk portrayed. About a month ago while laying in bed I heard a new bird call I hadn't heard before. It was pretty annoying and sounded a lot like a gull. I looked through the birds I'd already identified and thought at first it was a cat bird. Their call is kinda shrill" [Reddit Link](https://redd.it/1eypwit) 2024-08-22T17:53Z 30.4K followers, [--] engagements "Identified a juvenile Red Tail Hawk by it's call ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1eyqoyv) 2024-08-22T18:25Z 30.4K followers, [--] engagements "My only hope is to give up hope. With MECFS hope can be the enemy. I recently thought I was recovering and improving my baseline but in fact I was over doing it and caused two crashes one fairly significant. I'm now worse off than I ever have been. But the good news is I don't have hope of improvement now. I'm committed to this much lower baseline for the foreseeable future and I'm actually feeling content for now. I'm going to be starting low dose abilify and from what I can tell by other's experiences the key to success is to not increase activity for 2-3 months after feeling improvement." [Reddit Link](https://redd.it/1f0e7h9) 2024-08-24T20:02Z 31K followers, [--] engagements "Fold flat mask with exhaust valve Could someone recommend a good fold flat N95 mask with an exhaust valve preferably from our devil overlord Amazon in the US I like to keep my mask in my fanny pack and it's pretty small in there. Thanks for your help Masks4All Masks4All" [Reddit Link](https://redd.it/1f0el96) 2024-08-24T20:19Z 31K followers, [--] engagements "Saw this and wanted to share ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1f0timw) 2024-08-25T10:43Z 31K followers, [--] engagements "GenX Mindfulness So. I'm on the younger side of genX and this was just perfect. I find myself longing for these banal pre-cellphone moments. https://www.instagram.com/reel/C-2H8eMNUGE/igsh=MW9kNzgxcTVyanVwZg== ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1f1lhtw) 2024-08-26T11:07Z 31K followers, [--] engagements "I broke up with Wellbutrin about a week ago and since then my HRV RHR body battery and stress scores (on Garmin) have all dramatically improved. I switched from duloxetine to Wellbutrin about [--] mo ago in an effort to keep working I'm now back on duloxetine. If you're struggling with your HR and other metrics and you're on Wellbutrin it might be the Wellbutrin. I enjoyed having almost no appetite on Wellbutrin but I won't miss the anxiety anger and high HR. I definitely feel more fatigued back on duloxetine but Wellbutrin didn't prevent crashes and I over exerted with some regularity. I'd" [Reddit Link](https://redd.it/1f4bb99) 2024-08-29T19:34Z 36.1K followers, [--] engagements "An illustrated guide to mindfulness meditation ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1ff9jv2) 2024-09-12T18:23Z 36.1K followers, [--] engagements "How do you eat your honey and garlic What do you eat it with fermentation fermentation" [Reddit Link](https://redd.it/1fqvxra) 2024-09-27T19:28Z 34.9K followers, [--] engagements "Any regular cannabis users Did you notice a change in the way cannabis feels after starting Wellbutrin How did it change for you Wellbutrin_Bupropion Wellbutrin_Bupropion" [Reddit Link](https://redd.it/1g1o1y0) 2024-10-12T00:17Z 33.3K followers, [---] engagements "there is no standard of health that is achievable for all bodies. there is no standard of health that is achievable for all bodies. Our belief that there should be anchors the systemic oppression of ableism and reinforces the notion that people with illnesses and disabilities have defective bodies rather than different bodies. Sonya Renee Taylor The Body Is Not an Apology: The Power of Radical Self-Love ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1g2pivo) 2024-10-13T13:21Z 32.7K followers, [--] engagements "I'm looking for a fiction book with a theme of body positivity radical self love and bonus points for queerness and disability as well. Just like the title says. suggestmeabook suggestmeabook" [Reddit Link](https://redd.it/1g2vzik) 2024-10-13T18:15Z 34.6K followers, [--] engagements "all human life involves pain The more we try to avoid the basic reality that all human life involves pain the more we are likely to struggle with that pain when it arises thereby creating even more suffering. Russ Harris The Happiness Trap: How to Stop Struggling and Start Living: A Guide to ACT ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1g3d26b) 2024-10-14T11:00Z 32.9K followers, [--] engagements "I love your body but not mine. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1g3exm0) 2024-10-14T12:48Z 32.9K followers, [--] engagements "Decolonizing my life is part of my inspiration for being sugar free. Sugar has played such a huge role in the enslavement and abuse of so many people. Sugar has contributed to the inequitable wealth in Western nations. Sugar causes more health problems for people of lower incomes than of affluent people. Sugar is about power wealth and control for the few at the expense of the many. Sugar is oppression. This is one of the motivators I use to try to be sugar free. Any one else identify with this sugarfree sugarfree" [Reddit Link](https://redd.it/1g3h8ai) 2024-10-14T14:34Z 32.9K followers, [---] engagements "Mestinon stomach gurgling How do you cope with the gurgling false hunger and mild nausea from mestinon I'm take 60mg x3. MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1g3j9k5) 2024-10-14T15:59Z 32.9K followers, [--] engagements "Sugar makes my breasts hurt. I just did an accidental science. Been off sugar for several days and just cheated today. I was wondering where my constant breast pain went the past few days and is now back. Welp. Just another motivator Also learned while googling this sugar can increase breast density (I have very dense breasts) which can make mammograms less successful at detecting cancer. Whoa sugarfree sugarfree" [Reddit Link](https://redd.it/1g4ruf8) 2024-10-16T05:10Z 33.3K followers, [--] engagements "What do you eat to avoid nausea from mestinon I'm trying to figure out the minimum I need to eat while still avoiding nausea. What do you eat Do you eat at the same time as taking it or a bit before Thanks for your help. MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1g5zwoe) 2024-10-17T19:59Z 33.3K followers, [--] engagements "Lincoln Park is still a graveyard. Watching Poltergeist for the first time even though I'm [--] and all I can think about is Lincoln Park. Haha https://chicagoreader.com/news-politics/a-conservatory-a-zoo-and-12000-corpses/ chicago chicago" [Reddit Link](https://redd.it/1g8e4fq) 2024-10-21T01:12Z [--] followers, [--] engagements "How do you rest I know this seems obvious but for me it's not. Do you rest and watch TV Do you rest with your eyes closed listening to music or books Will only a real nap help How do you know when to rest and for how long Do you preemptively test Do you have a rest schedule What is the most effective rest practice for you MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1gcifvb) 2024-10-26T10:53Z 34.7K followers, [--] engagements "Mindfulness tips for election stress relief Stay safe calm and mindful everyone in the US. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1gk6jwa) 2024-11-05T13:23Z 37.9K followers, [--] engagements "If Harris definitively wins I'm going to celebrate with something sweet. 🤷♀😘😋 sugarfree sugarfree" [Reddit Link](https://redd.it/1gkc3bq) 2024-11-05T17:26Z 37.9K followers, [--] engagements "Our anxiety does not come from thinking about the future but from wanting to control it. -Kahlil Gibran. If you're in the US and can't work because of illness or disability today is highly distressing. Try to focus on what is safe in your life right now and not what might become. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1gkzxb4) 2024-11-06T14:36Z 42.2K followers, [--] engagements "How atheist chaplains provide spiritual care for nonbelievers CNN The difference between Callahan and his religious counterparts is his emphasis on life here and now without concern for a higher power. And where religiously affiliated chaplains might lean on the teachings of their faith to guide others through crises Callahan says he draws on the philosophies of Muhammad Ali Malcolm X and Tupac Shakur. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1gmklri) 2024-11-08T15:04Z 40K followers, [--] engagements "Other savory and/or spicy sauces I made my first hot sauce from jalapenos habaneros garlic onion and sugar tomatoes. It's actually not very hot and more like a salsa but I like it's pureed texture. What are some other fermented sauces I could explore fermentation fermentation" [Reddit Link](https://redd.it/1gnekqq) 2024-11-09T17:02Z 39.2K followers, [--] engagements "second neuromuscular specialist I'm going to my second neuromuscular specialist on Wednesday. My first one did not diagnose me even though I have positive binding ACHr antibodies a droopy eye that responds to ice weak neck weak arms esp over head extreme general weakness / fatigue and I'm responding very well to mestinon. I had a cat scan and I have no thyomas. I want this second specialist to diagnose me and create a treatment plan. I'm very interested in getting a thymectomy. I need advice on lifestyle management and physical therapy. I want to learn about other treatments and their risks." [Reddit Link](https://redd.it/1go3hlh) 2024-11-10T15:45Z [--] followers, [--] engagements "Ambulatory wheelchair user Looking for a work around for a problem I have. I'm an ambulatory wheelchair user and when I'm riding my electric wheelchair my watch counts like a million steps because the terrain I'm going over is bumpy rough concrete. The disease I have is an energy limiting disease so having an accurate step count is one of the ways I assess how well or poor I'm doing. On my last wheelchair ride I turned my watch off but then forgot to turn it back on for like an hour after. I have a Fenix 6s and I'm pretty sure there's no other work around beside either turning the watch off" [Reddit Link](https://redd.it/1go9a8g) 2024-11-10T19:55Z 39.8K followers, [--] engagements "Trouble finding the right therapist for my illness/disability I have an energy limiting disease myasthenia gravis. I'm disabled and unable to work. I'm 48F and I live with my emotionally immature elderly parents because of this disability. I have no social life because I can barely leave the house. I no longer have access to my stress relieving activities like swimming walking hiking etc. My energy limitations are so severe that I also don't have any hobbies. I can't really sit and draw reading is often difficult but I do listen to books. I'm a prisoner in this body and in this house." [Reddit Link](https://redd.it/1gpiyms) 2024-11-12T11:51Z 39.8K followers, [--] engagements "Vyvgart subcutaneous injection vs infusion Vyvgart subcutaneous injection vs infusion Vyvgart hytrulo vs vyvgart IV infusion Are they the same in terms of effectiveness If you used both please let me know what you think of each. Subcutaneous seems much easier but I want to do what's most effective. MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1gr4fbo) 2024-11-14T13:10Z 40K followers, [--] engagements "Vandals caught on camera defacing ancient Utah petroglyphs investigation underway PrecolumbianEra PrecolumbianEra" [Reddit Link](https://redd.it/1h1aohf) 2024-11-27T18:07Z 41.1K followers, [---] engagements "Just a gentle reminder to check FAQs for this group especially the list of conditions to rule out. I didn't do this for years in part because I was too tired and in part because I trusted my fancy medical team from a fancy medical center. Well it looks like I was misdiagnosed for over two years basically wasting two years of my life. I'm now diagnosed with myasthenia gravis and I've tested positive for high cortisol twice. Treatment for MG is underway and I'll now see an endocrinologist for the elevated cortisol. Print out the list and bring it to your PCP and ask them to look it over. I" [Reddit Link](https://redd.it/1h3gwnt) 2024-11-30T16:58Z 41K followers, [---] engagements "Ear infection My pup has the beginning of an ear infection in one ear. I have a vet appointment for Thursday but I'm wondering if there's anything I can do in the meantime to reduce it's progression. I have a solution of [--] part vinegar [--] part alcohol and [--] parts water which I use to prevent ear infections (obviously went too long between rinses) I'm also cleaning the dark wax out with a cotton pad. I'm going to call the vet tomorrow to see if they have a sooner appointment or wait list and I'll ask them too. Any recommendations for how I can reduce the progression of the infection" [Reddit Link](https://redd.it/1h5ee44) 2024-12-03T03:42Z 41.1K followers, [--] engagements "Misdiagnosis lead to losing my job my condo and my social life. I (48F) was diagnosed with me/cfs a few years ago after I became significantly disabled. As a result of that disability I decided to sell my condo move in with my parents (mid 80s) far away and try to continue to work. I worked for one more year until my disability became too severe to work and then it continued to progress until I was bedbound. I've been house bound since my initial disabling event so at least two years bed bound for several months. About [--] months ago a neurologist ordered a blood test for myasthenia gravis a" [Reddit Link](https://redd.it/1h84ezv) 2024-12-06T15:51Z 41.3K followers, [--] engagements "Help with IDs please I think the last photos are raccoons but I'm really curious about the first two photos. Could they be fox We've seen fox in our yard before. Location SE Wisconsin. AnimalTracking AnimalTracking" [Reddit Link](https://redd.it/1hkt82e) 2024-12-23T17:50Z 41.9K followers, [--] engagements "100 years ago today a Cherokee doctor was running for office in Chicago with a bold plan to reshape the 47th ward. Meet Dr. Hurci Warwelez. NativeAmerican NativeAmerican" [Reddit Link](https://redd.it/1hldnp4) 2024-12-24T13:35Z 41.9K followers, [---] engagements "We Need to Think About Trauma in Treating Autoimmune Disorders Social-emotional stress provokes the immune system the most explains Jackson Nakazawa and higher estrogen levels only amplify the immune response making women more vulnerable to autoimmune conditions. MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1hmo46x) 2024-12-26T13:14Z 42K followers, [--] engagements "Where did early hunter/gathers find salt I can think of obvious places the ocean salt deposits salt lakes. But what about in places like the North American plains southwestern desert northern Europe jungle environments Was trade basically a facilitator of living in these areas or are there ways to find salt in these areas without trade AskAnthropology AskAnthropology" [Reddit Link](https://redd.it/1hru47t) 2025-01-02T13:50Z 42.4K followers, [---] engagements "City of Chicago Completes Accessibility Improvements at Over [---] CTA Bus Stops in [----] disability disability" [Reddit Link](https://redd.it/1hrvtxc) 2025-01-02T15:10Z 44.2K followers, [--] engagements "Potato 💀 potato potato" [Reddit Link](https://redd.it/1htjrf1) 2025-01-04T17:43Z 42.4K followers, [--] engagements "Please help me identify these birds homedecoratingCJ homedecoratingCJ" [Reddit Link](https://redd.it/1hu80qn) 2025-01-05T14:20Z 42.4K followers, [--] engagements "4 closely watched FDA approval dates in [----] from J&J Novo and more Everything in myasthenia gravis is being watched really hard said LaFever. Myasthenia gravis is a chronic disease in which autoantibodies proliferate uncontrollably while current treatments can successfully hold back the disease they must be sustained but nipocalimab could potentially allow patients to reclaim their lives said Dr. Katie Abouzahr vice president autoantibody portfolio and maternal fetal disease area leader J&J Innovative Medicine in an interview last year. J&J submitted a biologics license application for" [Reddit Link](https://redd.it/1hvr4fc) 2025-01-07T13:12Z 46.2K followers, [--] engagements "Amazing music issues in app Troubleshooting help please. I bought a Sonos Ray last week and have been enjoying music on it after connecting Amazon music to the app. I was really happy to no longer be using spotty Bluetooth. Today my Amazon music isn't working. I've tried closing and restarting the app disconnecting and reconnecting Amazon. Is there anything else I should try I'm super sad and disappointed. I just want to listen to music. Please help sonos sonos" [Reddit Link](https://redd.it/1hyzk7v) 2025-01-11T16:28Z 44K followers, [--] engagements "Rita enjoying her Christmas gift springerspaniel springerspaniel" [Reddit Link](https://redd.it/1hzqb7q) 2025-01-12T16:24Z 44.2K followers, [--] engagements "Why am I afraid to get better Three days after my first vyvgart injection I could tell it started to work. I have my second one tomorrow Great news right I've been housebound for [--] years spending most of my time in bed with gMG. Why am I so afraid of getting better and not super excited I mean I am excited but I'm also scared. I lost everything two years ago my condo my hobbies my job (one year ago) my friends. Why am I afraid to start living again MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1i0umr3) 2025-01-14T01:33Z 44.4K followers, [--] engagements "Tutorial/advice to modify silicone hider plugs to hold earrings I bought these plugs to hold my regular earrings. I have an idea of how I will modify them to hold both post and fish hook earrings however I don't need to reinvent the wheel and I'd love to avoid screwing them up. Have you converted these to hold earrings Has anyone made an online tutorial Any advice you can offer me Thank you so much for any help you can give. Stretched Stretched" [Reddit Link](https://redd.it/1i2p2f9) 2025-01-16T13:37Z 44.5K followers, [--] engagements "COVID map update as [--] US states report "very high" virus activity MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1i8wbkg) 2025-01-24T14:14Z 46K followers, [--] engagements "Vyvgart is helping so much and I'm so angry. My mood and agitation is terrible. I'm so angry all the time. I'm angry that I still feel terrible all the time. I'm doing more but I'm still in pain I'm still exhausted. Every noise is like nails on a chalkboard. I'm miserable. There's never going to be real relief is there Edit. And the migraines MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1ianhyk) 2025-01-26T19:18Z 46K followers, [--] engagements "Nipocalimab granted U.S. FDA Priority Review for the treatment of generalized myasthenia gravis. Results demonstrate sustained disease control over [--] weeks in a broad population of antibody positive adult patients: anti-AChR anti-MuSK anti-LRP4 MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1icttb5) 2025-01-29T13:32Z 46.8K followers, [--] engagements "What is the value in journaling when every entry is about suffering I feel like I want to escape my life right now not record it. I don't journal anymore for this reason. How can journaling help me when all I record is my suffering I use an electronic journal that lets me see entries on this day from previous years. It's all suffering (I'm disabled homebound living with my emotionally immature parents and have no other social life). I find myself not wanting to write because next year I'll be prompted to relive the suffering again while probably still suffering the same reality. What is the" [Reddit Link](https://redd.it/1if3qhv) 2025-02-01T10:41Z 46.9K followers, [---] engagements "Dog print consideration These are the front and back feet of my 40# Springer. Her front feet leave huge tracks for her size. I call her front feet her swim paddles. Her back feet are clearly much smaller. Something to consider when trying to identify canines. These are fresh unmelted tracks. AnimalTracking AnimalTracking" [Reddit Link](https://redd.it/1ig0g1z) 2025-02-02T16:04Z 47K followers, [---] engagements "SE Wisconsin two IDs please The first prints are in our driveway grassland and forest area the second prints are on the shore of Lake Geneva. All are fresh snow prints. I'm super curious about the bigger ones on the drive way AnimalTracking AnimalTracking" [Reddit Link](https://redd.it/1ig0ilf) 2025-02-02T16:07Z 47K followers, [---] engagements "I finally completely mixed a jar of natural peanut butter You know the natural peanut butter that's separated with oil on top Such a messy task trying to mix it Well. I stored the jar upside down used an electric beater to mix it really well then refrigerated it over night and mixed with the beater again. I think it will actually be the consistency through the whole jar for the first time ever. CongratsLikeImFive CongratsLikeImFive" [Reddit Link](https://redd.it/1ijfmvg) 2025-02-06T22:37Z 47.4K followers, [---] engagements "I dreamt Trump paid me in counterfeit bills And we had to do an organ transplant on him and someone else but we didn't know how. The organs were in a plastic medical bag with a device attached to the outside. The whole bag and device were to be implanted. The organ bag has been sitting out for a while and I thought they can't be good anymore. Context: I'm very liberal very anti trump concerned about our democracy and the well being of myself and others in this climate. Dreams Dreams" [Reddit Link](https://redd.it/1ijuin7) 2025-02-07T13:04Z 47.3K followers, [--] engagements "Has anyone quit hydroxychloroquine after being diagnosed with MG I have sjorgrens and was put on hydroxychloroquine before being diagnosed with MG. I'm actually on a few contraindicated drugs and one by one I'm weaning off them. In the past when I've tried to get of hydroxy I get really bad joint pain but this was before beginning MG treatment. I had a thymectomy in November take mestinon and just finished my first cycle of vyvgart. I'm wondering/hoping that with these treatments underway the joint pain will be reduced. Or will there be an adjustment period of joint pain but will go away with" [Reddit Link](https://redd.it/1ikojuh) 2025-02-08T14:34Z 47.4K followers, [--] engagements "The Illustrated Happiness Trap: How to Stop Struggling and Start Living Picked up this book at the library. I'm realizing how badly I need to return to a mindfulness practice. I had ACT (acceptance and commitment) therapy in the past and it really helped me to change my life. This is an easy to read review but I have to start putting in the work. I've been white knuckling my life since my last post in this group. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1ilwnep) 2025-02-10T03:21Z 47.4K followers, [--] engagements "Looking for stories about slow improvements with vyvgart I just started my second cycle. The first cycle improved my symptoms but I need way more improvement. Will I continue to improve over time MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1j0pzzj) 2025-03-01T03:17Z 49.8K followers, [--] engagements "Who else is suffering today This morning was one of those mornings I regret waking up. Do you ever have those ChronicIllness ChronicIllness" [Reddit Link](https://redd.it/1j1rjr7) 2025-03-02T14:04Z 50K followers, [---] engagements "Do you ever feel like everything is too terrible to practice mindfulness I've been feeling like this for months I know serious depression going on for me. I always choose distraction or disassociation over being present. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1j1rlse) 2025-03-02T14:07Z 50.1K followers, [--] engagements "What do you all do during your really tired hours of the morning that has a mindfulness component but isn't just sitting there ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1j1rp6p) 2025-03-02T14:11Z 50K followers, [--] engagements "Cannabis for pain Yay or nay Do you use it What's been your experience MyastheniaGravis MyastheniaGravis" [Reddit Link](https://redd.it/1j2q6pc) 2025-03-03T18:52Z 50.1K followers, [--] engagements "Kabafusion absolutely sucks Kabafusion is in charge of my home injections of my most important drug treatment and they have screwed up every single time I have to interact with them. They called my doctor's office and lied to them claiming I wanted to delay my injection when in fact I never even spoke to them. I have an appointment with the home nurse for my next injection on Wednesday morning and my medicine isn't arriving until Wednesday end of day even though I called them twice to confirm delivery and the nurse is scheduled through them. There's a small window of time I can get this" [Reddit Link](https://redd.it/1j2zltz) 2025-03-04T01:48Z 50.1K followers, [--] engagements "Kabafusion absolutely sucks Kabafusion is in charge of my home injections of my most important drug treatment and they have screwed up every single time I have to interact with them. They called my doctor's office and lied to them claiming I wanted to delay my injection when in fact I never even spoke to them. I have an appointment with the home nurse for my next injection on Wednesday morning and my medicine isn't arriving until Wednesday end of day even though I called them twice to confirm delivery and the nurse is scheduled through them. There's a small window of time I can get this" [Reddit Link](https://redd.it/1j2zr3m) 2025-03-04T01:55Z 50.1K followers, [--] engagements "Does mindfulness help your chronic pain Do you find mindfulness helps your chronic pain If it does what technique help you I'm weening off gabapentin and will have some crummy days a head in addition to my usual issues. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1j3akt0) 2025-03-04T13:19Z 50.1K followers, [--] engagements "I wanted a Pczki so bad I forgot I'm gluten intolerant. Seriously. I just ate half a pczki without a thought. I'm only gluten intolerant so nothing serious will happen but I'm just so shocked at my brain. I had a thymectomy in November and ever since then my dairy sensitivity had gone away. Maybe my gluten issue has too I'll find out in [--] to [--] hours. Fingers crossed. Wouldn't that be amazing if it was gone Has anyone else ever lost a food sensitivity I have a rare autoimmune disease myasthenia gravis and in addition to the thymectomy I'm on an immunosuppressant which is helping my typical" [Reddit Link](https://redd.it/1j3cahs) 2025-03-04T14:42Z 50.1K followers, [---] engagements "Emotional Freedom Technique (EFT) Tapping I came across this technique during tonight's insomnia period. I haven't tried it but I like the idea of tapping on the body as a physical grounding technique. I struggle with mentally being present because I'm going through a tough time and using a lot of avoidance. Tapping on the body seems like a potential mindfulness hack. ChronicallyMindful ChronicallyMindful" [Reddit Link](https://redd.it/1j4s9kx) 2025-03-06T10:07Z 51.7K followers, [--] engagements Limited data mode. Full metrics available with subscription: lunarcrush.com/pricing
@Ok-Heart375 Ok-Heart375
Ok-Heart375 posts on Reddit about don t, it s, in a, if you the most. They currently have [------] followers and [---] posts still getting attention that total [--] engagements in the last [--] hours.
Engagements: [--] #
- [--] Week [---] +200%
- [--] Month [---] -39%
- [--] Months [-----] -59%
- [--] Year [------] +9.30%
Mentions: [--] #
- [--] Month [--] -29%
- [--] Months [--] -70%
- [--] Year [---] -37%
Followers: [------] #
- [--] Months [------] +2.40%
- [--] Year [------] +32%
CreatorRank: undefined #
Social Influence
Social category influence technology brands stocks finance social networks celebrities musicians automotive brands countries currencies
Social topic influence don t, it s, in a, if you, garmin, $googl, has been, i need, you have, what do
Top assets mentioned Alphabet Inc Class A (GOOGL) Reddit, Inc. (RDDT) Optimism (OP) CannabisCoin (CANN)
Top Social Posts
Top posts by engagements in the last [--] hours
"Argenx banks on Vyvgart prefilled syringe approval in 2025: exec MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-02-20T12:44Z [--] followers, [--] engagements
"Argenx Awaits Approval of Prefilled Vyvgart Syringe. MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-04-01T13:17Z [--] followers, [--] engagements
"Vyvgart hytrulo self injection MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-04-18T21:58Z [--] followers, [--] engagements
"Argenx's FcRn inhibitor Vyvgart hits targets in Phase II myositis Sjgren's studies Sjogrens Sjogrens"
Reddit Link 2025-06-12T15:11Z [--] followers, [--] engagements
"What do we keep it a secret family_of_bipolar family_of_bipolar"
Reddit Link 2025-08-09T21:43Z [--] followers, [--] engagements
"Only Murders in the Building I'm watching it for the first time and I'm in season two. I just love that Selena Gomez's character is bi. I also love how staid and uncharming she is. Nice to finally see versions of myself depicted in mainstream media. Yes I just called myself uncharming because its true. https://preview.redd.it/vmqm5mif2rpc1.jpgwidth=1200&format=pjpg&auto=webp&s=db99ba5c4f42fc194a7d5eeb38aaffaeb820ca70 actuallesbians actuallesbians"
Reddit Link 2024-03-21T20:50Z 36.9K followers, [--] engagements
"Can I buy a life like wig for about $50 I'm recently disabled and I find having a buzz cut to be the most convenient way to maintain my hair however I've been toying with the idea of getting a wig for special occasions. I don't really want to spend too much money cuz I wouldn't wear it a lot. I do like my haircut like this but I also miss having long hair. If it is possible to get a wig for about $50 could you please recommend a brand Wigs Wigs"
Reddit Link 2024-03-24T23:32Z 37.9K followers, [--] engagements
"Close to buying my first wig ever. I have these two wigs in my cart. Do I want to start with an expensive higher quality wig because I might have a better first impression Or do I want to buy the cheaper wig because I can be more casual with it and learn wig wearing without much investment Thank you so much for your help on my previous post. The expensive one https://www.amazon.com/gp/product/B0BHFGBB3H/ref=ox_sc_act_title_1smid=A1D8UMY50C6WP6&psc=1(https://www.amazon.com/gp/product/B0BHFGBB3H/ref=ox_sc_act_title_1smid=A1D8UMY50C6WP6&psc=1) The cheap one."
Reddit Link 2024-03-25T15:40Z 37.9K followers, [--] engagements
"This is a rant about my sister I have two sisters and one of them is very wealthy and has never had a job. She was a stay-at-home mom and now she volunteers because her husband makes a ton of money. She's never had a cavity and she's never had a major health event. She's in her 50s and I'm [--] and she offered to help me today because I'm currently living alone. However when she showed up she brought a sushi lunch for one. Sushi is one of my favorite foods and everyone in my family knows that. When I realized that she brought lunch only for herself I asked her to leave and I don't feel bad"
Reddit Link 2024-03-26T16:15Z 36.5K followers, [---] engagements
"Cannabis cure No just kidding but this post is about cannabis. Why does cannabis reduce all my symptoms except orthostatic intolerance and brain fog obviously. Can anyone shine some science on this My Google search was inconclusive. My personal opinion is that it calms my nervous system. I'm really feeling the nervous system theory lately. cfs cfs"
Reddit Link 2024-03-26T23:04Z 36.5K followers, [---] engagements
"The free version of the visible app The free version of the Visible app is surprisingly helpful. When I first investigated this app they didn't have a free version so I wrote it off. Someone else posted about it here so I revisited it and I'm glad I did. It's going to beat out Bearable by a long shot. cfs cfs"
Reddit Link 2024-03-30T09:51Z 36.1K followers, [--] engagements
"Is there an effective way to communicate My sister is [--] and I'm [--]. My sister has a bipolar disorder that causes her to think we are related to royalty. She's constantly "researching" our family tree. This post isn't about her research. I'm recently disabled with ME/CFS an energy limiting disease. (CDC.gov/MECFS) My sister suffers from increasing fatigue that is effecting every part of her life and she's likely to lose her job to this fatigue. Whenever I talk to her about how important it is to take this fatigue seriously she gets upset. She hates all her doctors but she also won't get new"
Reddit Link 2024-03-31T15:57Z 36.9K followers, [--] engagements
"How can I zip it Hello I'm very liberal and very passionate about liberal issues like LGBTQ+ issues trans rights voting access anti-racism wage equity and many more. Last year I became disabled and moved in with my parents who are in their eighties in Wisconsin. I used to live in downtown Chicago where there were planty of like mided people but now I'm a serious minority in the house and out. I want to learn to keep these passions to myself. I'm registered to vote and I already voted in today's election via absentee ballot. I also have reddit for like minded conversations. The community I"
Reddit Link 2024-04-02T12:49Z 36.9K followers, [--] engagements
""Pain is your brain's interpretation of how much danger you're in." "Pain is your brain's interpretation of how much danger you're in." I've seen this meme so many times. Well I've sure turned the danger way down on my pain response such that I just realized my extracted tooth socket has been getting more painful and not better. Been ignoring the pain for several days and then it dawned on me this might be an actual problem. I guess I've been ignoring pain so effectively I forgot that pain can be an important warning. Welp going back to the surgeon on Monday. cfs cfs"
Reddit Link 2024-04-07T11:43Z 36.9K followers, [---] engagements
"It's working And I'm so surprised. I only do about [--] min of 4-7-8 breathing most evenings while watching movies. I'm disabled with ME/CFS and can not do any aerobic exercise. I bet this improves my health even just a little. That little bit of breathwork had increased my CO2 What is me/cfs(https://www.cdc.gov/me-cfs/index.html) breathwork breathwork"
Reddit Link 2024-04-07T15:16Z 36.9K followers, [--] engagements
"Please advise on a folding electric wheelchair Hello. I live in the United States and I want to buy a folding wheelchair for outdoor use. I live in a very hilly area and I will use the chair to walk my dog go on walks with other people go into town (which is flat) to look at shops and stuff like that. I have me/cfs and I'm ambulatory but with very limited energy. I'm pretty sure I've picked out the chair I want https://www.foldandgowheelchairs.com/benefits-of-magnesium/ Is there another chair or folding scooter I should consider that can go up hills And if you'd like to weight in on color"
Reddit Link 2024-04-11T15:05Z 36.1K followers, [--] engagements
"My mom will never respect my illness or me I've given her so many articles to read and she's read them and then she ignores them. She constantly challenges me when I'm explaining my symptoms and limitations. She employs toxic positivity contradicts me and ignores all the medical information she's read about me/cfs. My dad even got mad at her for ignoring everything she's read. The worst part of all this is that I live with her and my dad. I'm no longer going to try to educate her. I'm doing my best not to interact with her but she's so fucking needy and requires so much attention any time we"
Reddit Link 2024-04-11T19:23Z 36.9K followers, [--] engagements
"Therapist recommendation for Wisconsin Are any of you in Wisconsin Do you like your therapist Do they provide telehealth Do they really get chronic/terminal illnesses Please share with me any recommendations you have. I need a new therapist. ChronicIllness ChronicIllness"
Reddit Link 2024-04-15T15:19Z 36.5K followers, [--] engagements
"A Superhero of Suffering removed DrawForMe DrawForMe"
Reddit Link 2024-04-16T18:03Z 37.9K followers, [--] engagements
"What's your review of the paid version of the visible app ChronicIllness ChronicIllness"
Reddit Link 2024-04-18T18:46Z 36.5K followers, [--] engagements
"I made this meme. Free use to all cfs cfs"
Reddit Link 2024-04-19T14:51Z 36.5K followers, [---] engagements
"question about disability benefits through an employer hello. I am employed by a major US finacial instution with great disability benefits. I have me/cfs and I've been able to work almost a year since becoming disabled in Feb [--] in part because I moved in with my parents. I'm currently on short term disability but on May [--] I will transfer to long term disability. I've been seeing my doctor once a month she then fills out the paperwork to renew my disability coverage and then I message my managers with my return to work date. Here is the question. I and my doctor do not expect me to return"
Reddit Link 2024-04-22T16:56Z 36.1K followers, [--] engagements
"Do you do any visualizing while aggressive resting Like the title says. Do you do any visualize while aggressively resting at times when you're not asleep. I'm trying to up my aggressive resting game and I realized I'm afraid of my body and just about everything else. I'm laying here in fear and I don't want to always be afraid. cfs cfs"
Reddit Link 2024-04-27T16:18Z 49.7K followers, [--] engagements
"Cannabis withdrawal or is Cannabis therapeutic Since having a disabling crash in February [--] I've used cannabis everyday to help with symptoms. I prefer it orally but I also vape it. On days I have less symptoms I use way less of it. I'm observing that the day after using way less just vaping a little I feel terrible. I haven't really tested this out in any methodical way so I'm wondering if anyone else has this experience. Do you think when I use way less I experience withdrawal and then feel like crap the next day On good days when I use way less am I over doing it even though I'm really"
Reddit Link 2024-05-03T14:11Z 36.5K followers, [--] engagements
"Send a letter to all your doctors Ask your friends and family to do the same. https://docs.google.com/document/u/0/d/163DeV93SRYNm7Aq2zC_uoaU7NIJmmydaJIi4BQDQDew/mobilebasic cfs cfs"
Reddit Link 2024-05-03T17:46Z 34.9K followers, [--] engagements
"How much salt For those of you who add salt to your water how much are you adding dysautonomia dysautonomia"
Reddit Link 2024-05-04T21:04Z 37.9K followers, [--] engagements
"Nalgene sized holder for wheelchair Has anyone bought or made a nalgene sized bottle holder for your chair Please share links. Thank you wheelchairs wheelchairs"
Reddit Link 2024-05-08T18:40Z 36.9K followers, [--] engagements
"Does the algorithm suppress posts about disability Since becoming seriously disabled a year and a half ago all my social media posts shifted to disability and disease specific topics. To be clear I was not in anyway am influencer or anyone with any kind of following. I just sorta kept in touch with some friends and they would like my posts like single diget number of likes. But now it's like a ghost town. Some posts get nothing. Did this happen to you too What do you think disability disability"
Reddit Link 2024-05-09T13:27Z 36.5K followers, [--] engagements
"I'm having some really weird sensations Yesterday I likely over did it by taking my first wheelchair ride too far. I took Dextromethorphan last night. I slept terribly took forever to fall asleep and then I woke up too early. I took some cannabis to go back to sleep at about 5am and I did fall back to sleep some. It's almost [--] am and I'm laying in bed and I'm having these weird waves of sensation kinda like anxiety but also kind of euphoric. When I move my body I feel grounded again. I feel a slow spinning when my eyes are closed. I'm regular cannabis user and haven't had this experience"
Reddit Link 2024-05-09T13:49Z 36.5K followers, [--] engagements
"What albums should I listen to I have a terrible chronic illness/disability (me/cfs) and I have rest even when it doesn't feel like I need to. Rest means laying in bed with my eyes closed sometimes actually sleeping sometimes listening to podcasts. When I was younger I loved listening to whole albums. Remember when an album was whole work of art I'm having a hard time remembering what albums I liked. What full albums should I listen to anytime period. EDIT: thank you so much I've bookmarked this post and it will be a great resource for me. I have rest [--] hours a day on top of 10-12 hours of"
Reddit Link 2024-05-16T13:41Z 11.8K followers, [---] engagements
"Feeling good is good enough. This is my new mantra. I caused a crash and lowered my baseline on April [--] no joke. I experienced a really bad crash that is over but I remain really fragile. I'm housebound and only leave for doctor appointments I keep my steps under 2k and I aggressively rest 3-4 hours a day which I define as anything from actually sleeping to laying in bed eyes closed listening to a podcast or music. I flipped the script on aggressive rest by calling it my work. I have to clock in and out everyday no matter what and it's really been helping. Now my new flipping the script"
Reddit Link 2024-05-16T21:48Z 11.8K followers, [---] engagements
"Aggressive Rest All at once or space it out For those of you practicing aggressive rest do you do it all at once or do you space it out during the day. The past three days I've been struggling to make my goal all in one shot wondering if I should break it up into two sessions [--] hours each cfs cfs"
Reddit Link 2024-05-17T18:34Z 11.2K followers, [--] engagements
"NAD NADH NAD+ Or lets call the whole thing off Do you use or have an opinion about any of these supplements Do you know how they are different or which one might be more helpful for us cfs cfs"
Reddit Link 2024-05-19T20:16Z 17.8K followers, [--] engagements
"Where is your dream home I'm an ambulatory wheelchair user (well not right now because using the wheelchair makes me crash) and I like dreaming about where I could move to after my parents pass (I'm 47F and living with them.) I'll see things in movies like a Greek village and then I'll imagine living there and then I'm like wait I bet that's not a great place for a wheelchair. What are some of your fantasy accessible locations to live It could be a real location or it could be a set of conditions like near a town on a lake with room for a dog. If you could move anywhere where would you move"
Reddit Link 2024-05-22T13:38Z 14.7K followers, [--] engagements
"I love bad weather now. I find myself looking at the forecast and being like "Yes Rain on Friday" Nice weather makes me feel so bad about how much time I have stay in bed. During bad weather I feel better less stress and worry probably in part because staying in bed during bad weather has always been pleasurable. Just an observation. Fingers crossed it will rain again soon. cfs cfs"
Reddit Link 2024-05-22T18:36Z 14.7K followers, [---] engagements
"The truth cfs cfs"
Reddit Link 2024-05-24T13:16Z 14.7K followers, [---] engagements
"Mindfulness/Buddhist Chronically Ill Sub Does anyone know if there's a chronically ill sub with a focus on mindfulness and/or Buddhism I did some searching but couldn't find one. I'm listening to the book How to Be Sick and would love to connect with other people who get inspiration for coping with their illness from mindfulness. ChronicIllness ChronicIllness"
Reddit Link 2024-05-24T21:18Z 14.7K followers, [--] engagements
"Mindfulness help for isolation I'm a 47F and I live with my parents who are in thier 80s because I have a severe disability (me/cfs)(https://www.cdc.gov/me-cfs/about/index.html#::text=ME%2FCFS%20is%20a%20biologicalt%20do%20their%20normal%20activities). I am confined to my bed nearly all day and I can only leave the house for doctor appointments. My parents have both read lots of information on this disease and I only live with them because I can not care for myself. I can not cook or clean and they do all that the household needs. I am extremely isolated in a few ways. Basically no friends"
Reddit Link 2024-05-26T12:37Z 15.6K followers, [--] engagements
"Did you come out I'm a bicentennial baby and I've been in denial of my bisexuality until very recently. (Pun always intended) I just thought at college girls fooled around. I also told myself if I can act hetero wouldn't that be easier and then wasted some of my best years taking care of man children. Saw people my age coming out in their thirties and I was like wow they didn't feel safe until now That's weird they are so liberal. 🤦♀ I'm closeted with my family except one sister and I'm not planning to change that. Many many of my friends teachers and community are/were gay and I think I"
Reddit Link 2024-05-27T22:58Z 15.6K followers, [--] engagements
"Any other disabled adult children living with their N parent(s) I have ME/CFS I'm housebound and mostly bed bound. I can not care for my basic needs like cooking and cleaning although recently I can do my laundry myself. My N mom down plays dismisses and denies my disability everyday. I have given her and my dad copious information about my disease and my limitations. She's read everything I've given her and does not change her behavior. I need your help learning how to grey rock when she says something like "You can walk to the mailbox." "Why don't you do some exercise" "Of course you feel"
Reddit Link 2024-06-02T18:24Z [--] followers, [--] engagements
"Cannabis reduction/withdrawal Hello. I'm not diagnosed with MCAS but I have some symptoms of it off and on. I haven't had them in a long time and now I'm suddenly getting hit hard. I have sneezing sore throat itchy eyes elevated heart rate and a new symptom burning itchy hands and to a lesser degree feet. The symptoms come up in the evening. I was recently eating sugar and dairy as if they don't cause problems with me which I suspect both do. I've stopped eating them. I have ME/CFS my baseline is very low and I live with my elderly narcissistic parents and have been having above average"
Reddit Link 2024-06-04T02:02Z 18.7K followers, [--] engagements
"Anyone else homebound and living with one or more people that think you're faking it Hoping we can commiserate. I'm [--] and my mom is constantly pushing me to do more than I can and gets upset when I tell her I can't do whatever she is asking me to do. She say cruel things like why don't you walk to the mailbox when I can't even use my electric wheelchair to get to the mailbox without causing PEM. She's a narcissist she's read tons about this disease the only reason I live with my parents is the severity of this disease and yet she continues to live a fantasy where the only reason I don't do"
Reddit Link 2024-06-05T12:46Z 18.7K followers, [--] engagements
"How Long Concussion could offer new insights into Long Covid cfs cfs"
Reddit Link 2024-06-06T12:56Z 18.7K followers, [---] engagements
"Rant about my sister. My sister who has had two psychotic episodes that we know of and has a lot of the symptoms of being bipolar but isn't diagnosed as such just called my mom to ask if we can watch her dog because she wants to go to Alabama tomorrow (we are in southern Wisconsin) with her friend. She says she'll be gone for two weeks but when I asked my mom how she's getting there and getting back it revealed that she has no return date. Her dog does not have a rabies shot and we live in a rural area and he runs free when he's at our house. If I was in charge he'd never come over again"
Reddit Link 2024-06-06T18:13Z 18.9K followers, [--] engagements
"Zyrtec and chronic sore throat I'm not diagnosed with MCAS but I do have many of the symptoms. Recently stopped using cannabis going from daily use to almost never and my MCAS like symptoms exploded. I bought Zyrtec and not only did it knock out my MCAS symptoms but also the accompanying chronic sore throat. Thought I'd share in case it can help you. cfs cfs"
Reddit Link 2024-06-09T01:48Z 18.9K followers, [--] engagements
"Have anyone had a reaction to Calcium D-Glucarate Just like the title says. I think I've had a reaction to Calcium D-Glucarate which I tried taking for my ME/CFS. MCAS MCAS"
Reddit Link 2024-06-10T16:09Z [--] followers, [--] engagements
"I thought this was really interesting and relative to our condition. Check out Why You Feel Empty from Hidden Brain on Amazon Music. https://music.amazon.com/podcasts/14f37f6e-7952-4454-a474-d54cbb7a3d06/episodes/823728b6-c681-4ab9-8ad6-ffa8646714d8/hidden-brain-why-you-feel-emptyref=dm_sh_teMtjPIt6WzmIvJ6MiECsUCt2 cfs cfs"
Reddit Link 2024-06-15T15:40Z 20K followers, [--] engagements
"Annoyance with Visible My heart rate has been lowering and my HRV had been rising both are indications of improved health but visible gives me a lower score for "trending from baseline." What gives cfs cfs"
Reddit Link 2024-06-16T12:58Z 20K followers, [--] engagements
"I'm approved for long term disability I just heard from the disability insurance company my company uses. Based on my experience here's how you get long term disability in the USA. Work for a company with [--] or more employees and has disability insurance. Don't ever quit your job. Use FMLA and short term disability until you no longer can. See all the specialists get all the tests try all the treatments you'll need documentation of this for your claim. The insurance company will now set me up with a specialist to apply for SSDI because that will reduce the amount of money they will pay me so"
Reddit Link 2024-06-18T15:07Z 20.5K followers, [---] engagements
"Feeling better but I'm more pain A few weeks ago I started talking Glutathione and almost immediately I started feeling and seeing improvement. My HR decreased and my HRV increased but now I'm in so much pain. I haven't increased my activity because of my improvement and the pain it different than PEM pain. This pain is more in my joints and bones than my muscles. What is going on The pain is starting to make me depressed (I mean more depressed.) cfs cfs"
Reddit Link 2024-06-21T15:34Z 20.9K followers, [--] engagements
"Cicada wet market removed chicago chicago"
Reddit Link 2024-06-21T18:37Z 20.9K followers, [--] engagements
"What type of edible fungi could I inoculate this Silver Maple log with I live in SE Wisconsin. What is the best time of year to inoculate mycology mycology"
Reddit Link 2024-06-21T19:17Z 20.9K followers, [--] engagements
"Who pooped on the patio I'm located in SE Wisconsin. The poop is rather close to the house considering we live on about an acre of wild prairie. Just wondering who was hanging out under the deck close to the house AnimalTracking AnimalTracking"
Reddit Link 2024-06-29T20:37Z 22.3K followers, [--] engagements
"Hello I created this group in response to some pretty appalling ablist behavior I encountered in a general mindfulness group on Reddit. I have a background in mindfulness meditation and mindfulness practice primarily from the Shambhala lineage although I left the group long before the recent allegations and upheaval. I am by no means any kind of mindfulness expert or seasoned meditator. I am disabled with ME/CFS and moved in with my elderly parents a year ago. I recently became too disabled to work and I'm in the disability process with my employer. I hope I can remain well enough to moderate"
Reddit Link 2024-07-01T18:36Z 32.9K followers, [--] engagements
"Curse this human brain. What's causing pins and needles in my hands Why are my vitals improving but I'm feeling worse It's my eyesight deteriorating All the time my problem solving brain is trying to solve my incurable untreatable disease and it drives me crazy ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-02T01:33Z 22.6K followers, [--] engagements
"How to be mindful when social media is your only social life I struggle with this so much I'm housebound and I haven't socialized in person in over a year. Social media and specifically Reddit is my only outlet but it also causes so much anxiety and compulsion. I love it. I hate it. I suffer. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-02T12:08Z 22.6K followers, [--] engagements
"Disability pride flag explained ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-02T18:55Z 22.6K followers, [--] engagements
"Mindfulness to cope with chronic pain - Mayo Clinic Health System ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-03T12:42Z 22.6K followers, [--] engagements
"Mindfulness "Tarot" Our daily mindfulness "tarot" comes from The Compassion Box: Book CD and Card Deck by Pema Chdrn and Nap Ministry's Rest Deck: [--] Practices to Resist Grind Culture by Tricia Hersey ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-04T13:07Z 23.1K followers, [--] engagements
"Mindfulness sleep hygiene I'm struggling with poor sleep which is common with having me/cfs. I'm having intense imaginary arguments in my head when trying to fall asleep and I hate it. I know I need to stop using social media like an hour before bed. I should also put lavender essential oil on my pillow every night. I think stretching before bed might help. What does your sleep hygiene look like ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-05T11:47Z 22.9K followers, [--] engagements
"Learning to retrieve in middle age I have a rescued Springer who is seven. When I got her I was very active and able bodied so I never focused on the retrieve because I was happy to get more steps in. Now I'm disabled and have limited mobility so I'd really like to teach her to bring me the ball. Currently she loves to fetch the ball but on the return she's interrupted by resource guarding and will stop about [--] feet away. Before I became disabled I'd walk over to her and she would drop the ball and I'd throw it again and we would work are way around the park. I successfully taught her to"
Reddit Link 2024-07-05T19:07Z 22.9K followers, [--] engagements
"That inner voice I struggle a lot with my inner voice when trying to fall asleep and it gets worse when my condition gets worse. This was an informative podcast. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-07T19:51Z 23.3K followers, [--] engagements
"Group description updated I just updated the group description. Earlier this week I had a comment removed from one of the me/cfs subreddits. It was a comment I made describing a mindfulness practice someone could do while experiencing acute pain when no additional meds were available. The mods of this group are very diligent about keeping pseudo science "brain retraining" posts out of the group which is one of the reasons I like that group so much. I realized very quickly how much mindfulness practice can seem like these "brain training" programs that promise cures at a very expensive cost"
Reddit Link 2024-07-08T16:54Z 23.3K followers, [--] engagements
"Present ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-09T18:44Z 23.3K followers, [--] engagements
"Ram Dass quote ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-09T20:05Z 23.3K followers, [--] engagements
"Violet Affleck [--] gives speech against mask bans and reveals she had post-viral condition cfs cfs"
Reddit Link 2024-07-10T17:24Z 23.9K followers, [---] engagements
"Are the dangerous for my dog SE Wisconsin likely growing from silver maple roots of a large tree we cut down at least [--] years ago. They will pop up several times a summer. mycology mycology"
Reddit Link 2024-07-10T19:50Z 23.9K followers, [--] engagements
"Sauerkraut day [--] Red cabbage with lots of ginger and garlic tumeric powder (no fresh tumeric in this part of the country) and a little fish sauce. fermentation fermentation"
Reddit Link 2024-07-10T21:40Z 23.9K followers, [--] engagements
"SE Wisconsin These pop up a few times a summer and are likely growing from silver maple roots from a tree we cut down about ten years ago. SE WISCONSIN. Can anyone ID them mushroomID mushroomID"
Reddit Link 2024-07-11T18:53Z 23.9K followers, [--] engagements
"Life only unfolds in moments "Life only unfolds in moments. The healing power of mindfulness lies in living each of those moments as fully as we can accepting it as it is as we open to what comes nextin the next moment of now." Jon Kabat-Zinn Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress Pain and Illness ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-12T11:23Z 24.2K followers, [--] engagements
"Acetyl-L Carnitine (ALCAR) caused agitation sleep issues I started using Acetyl-L Carnitine (ALCAR) 1000mg on July [--] and I think it started to make me anxious/agitated. I'm disappointed because I definitely noticed a boost taking it the first couple days. It might have also contributed to poor sleep I've been experiencing. I'm not taking any today. I might only use it "as needed" going forward like when I have to go to a doctor's appointment and the like. What have been your experiences If I take with alpha lipoic acid would the agitation and sleep issues be reduced cfs cfs"
Reddit Link 2024-07-12T18:35Z 24.2K followers, [--] engagements
"CB2 free trial I got this free trial of CB2 after seeing this post. https://www.reddit.com/r/cfs/s/6h9DBvcdla I'm trying it out I don't have big expectations. Have you tried CB2 cfs cfs"
Reddit Link 2024-07-12T18:38Z 24.2K followers, [--] engagements
"Learning to sleep on my back I'm a lifelong side sleeper who's now middle-aged with some pretty serious shoulder injuries. I've been in pain for years sleeping on my side but just couldn't train myself to sleep on my back. Well I woke up at five this morning in so much pain I knew I needed to make a change starting right then and there. I placed a heavy body pillow across my chest and laid there on my back until 7am feeling the urge to flip on my side over and over. I've come up with a slightly different set up for tonight and I ordered a weighed blanket to come on Monday. I'm going to use"
Reddit Link 2024-07-13T21:34Z 24.2K followers, [--] engagements
"Can we all talk about curly pantaloons My dog normally gets a buzz cut in the spring but not this year. I'm just loving the curly pantaloons FYI she's a rescue I did not mutilate her tail. springerspaniel springerspaniel"
Reddit Link 2024-07-13T22:29Z 24.2K followers, [---] engagements
"pessimism or optimism "To think in terms of either pessimism or optimism oversimplifies the truth. The problem is to see reality as it is." Thich Nhat Hanh The Miracle of Mindfulness: An Introduction to the Practice of Meditation ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-14T13:38Z 25.1K followers, [--] engagements
"Joint muscle arthritis type pain all over body. What do you do when you have this symptom I know I'm not in PEM but I also know I've been slowly increasing activity and I've been sleeping poorly for several weeks. I know I need to stop eating sugar (I don't eat much honey on raw nuts once a day) because it contributes to inflammation. I'm taking it really easy today. Is there anything else you'd recommend cfs cfs"
Reddit Link 2024-07-14T19:13Z 41K followers, [--] engagements
"Beginner's Mind "When something dies is the greatest teaching." Shunryu Suzuki Zen Mind Beginner's Mind: Informal Talks on Zen Meditation and Practice ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-16T11:42Z 25.1K followers, [--] engagements
"Terrible dangerous article. Recommends stimulants and graded exercise. 🤦♀🤦♀🤦♀"
Reddit Link 2024-07-16T11:57Z 24.9K followers, [--] engagements
"Pain is inevitable suffering is optional Nice short meditation on pain. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-16T12:54Z 52.3K followers, [--] engagements
"This was a great podcast. The guest explains why she doesn't use medical terms like narcissistic in the beginning of the podcast. Towards the end she talks about how she doesn't advocate no contact but doesn't go deep into it. She and her books seem like a really great resource for all of us but especially those of us who can't or choose not to go no contact. Check out How to Deal With Emotionally Immature People (Including Maybe Your Own Parents) Lindsay C. Gibson from Ten Percent Happier with Dan Harris on Amazon Music."
Reddit Link 2024-07-16T14:13Z 25.1K followers, [--] engagements
"Go slow. Be gentle. Be careful. This is my new mantra to try to avoid over exertion. My body isn't great today higher HR louder tinnitus. I will be repeating my mantra while doing laundry my one activity for the day. What do you say to yourself ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-16T15:39Z 25.1K followers, [--] engagements
"the stories we tell ourselves "Mindfulness helps us get better at seeing the difference between whats happening and the stories we tell ourselves about whats happening stories that get in the way of direct experience. Often such stories treat a fleeting state of mind as if it were our entire and permanent self." Sharon Salzberg Real Happiness: The Power of Meditation ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-17T14:03Z 25.1K followers, [--] engagements
"Running out of authors I'm running out of authors for our daily quote. Who have I missed ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-18T14:24Z 25.3K followers, [--] engagements
"no use in worrying "As the great Indian scholar Shantideva has said: If there is a way to overcome the suffering then there is no need to worry; if there is no way to overcome the suffering then there is no use in worrying." Dalai Lama XIV The Dalai Lamas Book of Wisdom ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-18T14:28Z 53.3K followers, [--] engagements
"How can I have such a low pulse ox while using a CPAP I have December sleep hygiene I take amyltriptaline gabapentin LDN metoprolo magnesium and theanine before bed. Every night isn't this bad infact most are much better. I got terrible sleep score my body battery is the terrible but I slept all through the night just over [--] hours and my mind feels clear like I had a good night's sleep my body and muscles on the other hand feel exhausted. What is going on cfs cfs"
Reddit Link 2024-07-19T11:39Z 25.3K followers, [--] engagements
"Please critique my pacing. I use my Garmin watch and a few other guidelines to pace. I haven't had a crash in several weeks using this method but I do go up and down. When my sleep score HR HRV and stress score are at their best I do something more like go on a wheelchair ride and then after all those metrics decline for several days and I do much less and then when they get good again I repeat. Is this good pacing or should I be focusing on extending the duration of my good scores Over all my trajectory is an improved baseline but it's going slow as expected. What do you all think cfs cfs"
Reddit Link 2024-07-20T18:15Z 25.5K followers, [--] engagements
"Navigating the Balance: The Paradox of Goal Setting and Mindful Presence "Exploring the Philosophy of Not Setting Goals: The philosophy of not setting goals is deeply intertwined with Eastern perspectives particularly Buddhist and Taoist teachings that emphasise 'being' over 'doing' acceptance over control and the present moment over future ambition. This approach proposes that by allowing life to unfold naturally and responding authentically to each moment we attain a state of balance and fulfilment." As a former athlete now disabled with an energy limiting disease not seeing goals is a"
Reddit Link 2024-07-20T19:57Z 25.5K followers, [--] engagements
"Dark chocolate a rant. I can't eat wheat or dairy both give me MCAS like symptoms. I don't eat sugar or simple carbs because they increase inflammation and cause weight gain. I don't drink for the same reasons plus ethanol is a highly addictive carcinogenic neurotoxin. I stopped using THC when I realized it raised my heart rate and I'm afraid to experiment using it with CBD because I am probably pathologically obsessed with my heart rate. My last treat was one square of 85% lindts dark chocolate. We haven't had it in the house for a while but got some recently coincidentally I started to"
Reddit Link 2024-07-21T18:24Z 25.5K followers, [--] engagements
"Super protector Adding on to this previous post. https://www.reddit.com/r/springerspaniel/s/WJBdoChKQ4 My over protective Springer is now reacting to the backup beep beep beep of delivery trucks in the neighborhood. Until a year ago my Springer and I lived in a highrise in downtown Chicago so she never had to guard the property before. She guarded me so much I had to get her a muzzle after biting [--] people. (Check out The Muzzle Movement online for tips on a properly fitted muzzle if you think one would help you.) Since moving up here she's become the super guardian. We live on a large and"
Reddit Link 2024-07-21T20:04Z 25.5K followers, [--] engagements
"I'm scared to try DHEA. (Cis woman with hormonal issues) I'm a cis woman who's had hormonal issues my whole life. I have endometriosis PMDD and menstrual migraines. All three are currently well managed in part by using continuous use birth control. I guess I didn't research it well before ordering a bottle because one Google entry says it may increase estrogen and might not be a good choice for people who take estrogen. What do you guys think Should I give it a try Anyone in a similar boat as me try it Please share your experiences. cfs cfs"
Reddit Link 2024-07-22T13:11Z 25.8K followers, [--] engagements
"Life remains as fragile and unpredictable as ever. "Mindfulness meditation doesn't change life. Life remains as fragile and unpredictable as ever. Meditation changes the heart's capacity to accept life as it is. It teaches the heart to be more accommodating not by beating it into submission but by making it clear that accommodation is a gratifying choice." Sylvia Boorstein Don't Just Do Something Sit There: A Mindfulness Retreat with Sylvia Boorstein ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-24T11:58Z 42.3K followers, [--] engagements
"Rita looks at the / meadow a constellation / of flowers in bloom haiku haiku"
Reddit Link 2024-07-24T17:54Z 26.6K followers, [--] engagements
"r/ChronicallyMindful Dear fellow chronically ill folk I created a new subreddit when I couldn't find any community dedicated to mindfulness for chronically ill and disabled people. I posted once on a general mindfulness sub and was shocked at the ableism I encountered and realized we need our own space. If you practice mindfulness or are interested in learning about mindfulness and you identify as chronically ill or disabled please join us. It's a small niche sub at this point but I think it offers a much needed space for exploring mindfulness while living in an uncooperative body."
Reddit Link 2024-07-24T18:24Z 26.2K followers, [--] engagements
"I'm in PEM but I feel kinda good Woke up this morning not too surprised to find that my exceptionally busy Tuesday had come to collect. I took dextromethorphan right away and a lot of the yucky melted away. I've been laying in bed all day not feeling terrible. When I get up I'm dizzy and know I'm still in PEM and my heart rate is high. But over all this is a strange experience indeed. I guess I'm just sharing. cfs cfs"
Reddit Link 2024-07-25T22:17Z 26.2K followers, [--] engagements
"The body is now "The body is now I believe our forest our jungle the outlandish expanse in which we are invited to let go of everything we think allow ourselves to be stripped down to our most irreducible person to die in every experiential sense possible and see what if anything remains." Reginald A. Ray Touching Enlightenment: Finding Realization in the Body ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-25T23:14Z 26.2K followers, [--] engagements
"Do different ferments create different probiotics So far I've only made a sauerkraut/kimchi hybrid ferment and my primary reason is to get live probiotics that are not grown in a lab. There's a theory that probiotic supplements don't work because bacteria mutate so fast that the bacteria grown in a lab don't know how to live in the body. I have a serious chronic illness/disability and probiotics are on a long list of things that help me. So do different ferments make different probiotics Please share your wisdom. fermentation fermentation"
Reddit Link 2024-07-26T12:22Z 26.6K followers, [--] engagements
"If you are truly present The present moment is where we need to operate. When you are truly anchored in the present moment you can plan for the future in a much better way. Living mindfully in the present does not preclude making plans. It only means that you know theres no use losing yourself in worries and fear concerning the future. If you are grounded in the present moment you can bring the future into the present to have a deep look without losing yourself in anxiety and uncertainty. If you are truly present and know how to take care of the present moment as best you can you are doing"
Reddit Link 2024-07-27T13:37Z 26.6K followers, [--] engagements
"101 members We now have [---] members. Yay us I created an introduction thread pinned to the top. Please introduce yourself there and subscribe to the post if you want to get notifications of new introductions. You can also create a user flair that shares your illness/disability if you want. Looking forward to seeing your posts ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-27T14:22Z 26.6K followers, [--] engagements
"All the elements for your happiness are already here. "There is no need to put anything in front of us and run after it. We already have everything we are looking for everything we want to become. Be yourself. Life is precious as it is. All the elements for your happiness are already here. There is no need to run strive search or struggle. Just be. Just being in the moment in this place is the deepest practice of meditation. Most people cannot believe that just walking as though you have nowhere to go is enough. They think that striving and competing are normal and necessary. Try practicing"
Reddit Link 2024-07-28T17:15Z 26.7K followers, [--] engagements
"Happy little phone switch Pareidolia Pareidolia"
Reddit Link 2024-07-28T18:16Z 26.7K followers, [--] engagements
"Which is better from a pacing perspective It's deconditioning or recovery a better sign of proper pacing Strained here represents my last two crashes so that's obviously bad. Garmin4Pacing Garmin4Pacing"
Reddit Link 2024-07-28T22:49Z 26.7K followers, [--] engagements
"Which is better from a pacing perspective cfs cfs"
Reddit Link 2024-07-29T13:48Z 26.7K followers, [--] engagements
"r/Garmin4Pacing I have MECFS possibly from long covid and I've struggled with learning to pace using my Garmin watch so I created a group for Garmin users to learn to pace since I could not find a similar community or much info on the web. r/Garmin4Pacing Formerly I was an open water swimmer which is why I use Garmin and I'll probably stick with them since I already have so much data with them. If you use Garmin to pace please join the group to either share your wisdom and insights or to ask questions to figure out the best way to use your Garmin to pace. covidlonghaulers covidlonghaulers"
Reddit Link 2024-07-29T16:21Z 26.7K followers, [--] engagements
"Mindful Non Striving I struggle a lot with wanting to get well enough to leave the house. I've been in the house since April [--] only leaving for a couple doctor appointments. I spend hours on my phone looking for a medical solution that I know isn't really there researching supplements creating hope and fear. This is the opposite of mindfulness. https://mbsrtraining.com/attitudes-of-mindfulness-by-jon-kabat-zinn/mindful-attitude-of-non-striving-jon-kabat-zinn/ ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-30T13:52Z 27K followers, [--] engagements
"Training Status Garmin Technology Detraining is my goal. Currently in strained. Garmin4Pacing Garmin4Pacing"
Reddit Link 2024-07-30T14:24Z 27K followers, [--] engagements
"Bring your attention to the pain "Bring your attention to the pain as if you were gently comforting a child holding it all in a loving and soothing attention." - Jack Kornfield ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-07-31T13:17Z 27K followers, [--] engagements
"Over night data made even worse by trying cannabis as a sleep aide Garmin4Pacing Garmin4Pacing"
Reddit Link 2024-07-31T13:20Z 27K followers, [--] engagements
"Lore 257: Blasted Lore Maybe we need to start seeing fairy doctors. 😂😂😂 A decent [--] min podcast on fairly treatments for untreatable illnesses. cfs cfs"
Reddit Link 2024-07-31T17:53Z 27K followers, [--] engagements
"I think Acetyl-L Carnitine (ALCAR) was contributing to my poor sleep quality. I stopped taking it yesterday I got a much better sleep score and few other metrics improved too. There's no way to know how much the Acetyl-L Carnitine (ALCAR) played a role because I've also been resting lots trying to improve from a recent small crash. Garmin4Pacing Garmin4Pacing"
Reddit Link 2024-08-01T12:15Z 50.3K followers, [--] engagements
"I wish I could give you my almost full bottles of DHEA and NAC The NAC in flames my MCAS symptoms and I didn't research the DHEA well enough and realized it's not something I want to try after I bought and opened it. 🤦♀ I wish there was some way I could give these to you. cfs cfs"
Reddit Link 2024-08-01T15:16Z 32.9K followers, [--] engagements
"Do our smartwatches have psychosomatic powers over us Like today some of my metrics improved and all day I've been saying to myself I feel so good today. When my metrics are poor I feel bad all day. Garmin4Pacing Garmin4Pacing"
Reddit Link 2024-08-01T20:18Z 27.4K followers, [--] engagements
"Resting isnt an afterthought "Treating each other and ourselves with care isnt a luxury but an absolute necessity if were going to thrive. Resting isnt an afterthought but a basic part of being human." Tricia Hersey Rest Is Resistance: A Manifesto ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-02T11:50Z 27.4K followers, [--] engagements
"r/ChronicallyMindful Do you use mindfulness as part of your illness management Please join us at r/ChronicallyMindful to share your wisdom and ask your questions. Fibromyalgia Fibromyalgia"
Reddit Link 2024-08-02T17:42Z 27.4K followers, [--] engagements
"r/ChronicallyMindful Do you use mindfulness as part of your illness management Please join us at r/ChronicallyMindful to share your wisdom and ask your questions. FibromyalgiaIsReal FibromyalgiaIsReal"
Reddit Link 2024-08-02T17:42Z 27.4K followers, [--] engagements
"r/ChronicallyMindful Do you use mindfulness as part of your illness management Please join us at r/ChronicallyMindful to share your wisdom and ask your questions. Sjogrens Sjogrens"
Reddit Link 2024-08-02T17:46Z 27.4K followers, [--] engagements
"How long after consumption does sugar cause inflammation I'm primarily sugar free to reduce pain and inflammation from MECFS. I recently had some honey over raw nuts my go to sweet treat when I'm feeling really bad. I had this yesterday and the day before probably [--] tablespoons of honey each day. I'm in a lot of pain today do you think it's still from the sugar sugarfree sugarfree"
Reddit Link 2024-08-02T20:59Z 27.4K followers, [--] engagements
"fall apart "When things start to fall apart in your life you feel as if your whole world is crumbling. But actually its your fixed identity thats crumbling. And thats cause for celebration." PEMA CHDRN ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-03T20:18Z 27.6K followers, [--] engagements
"Frustrated. Discouraged. I was getting better but I did too much had a small crash and I've been doing worse ever since. I'm so down in the dumps so crabby so sad. There are times I can live with and within my limitations and there I times like these I just want to self destruct. I'm not resting as much as I should I feel agitated and my mind keeps planning things it would like to do and creating anxiety. I'm really just venting here. I can't even find a quote for us today. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-04T12:48Z 27.6K followers, [--] engagements
"r/Garmin4Pacing Are you using your Garmin to try to manage a chronic illness like long covid or MECFS I've had a hard time learning to use my Garmin "backwards" so I made a group when I couldn't find any resources on Reddit to help. I used to use my Garmin as an open water swimmer and active person. Please join r/Garmin4Pacing. I have MECFS and I have very limited energy so I'm not great at promoting the group. It's new and doesn't have very many members yet. GarminWatches GarminWatches"
Reddit Link 2024-08-04T18:44Z 27.6K followers, [--] engagements
"Patience is a form of wisdom. "Patience is a form of wisdom. It demonstrates that we understand and accept the fact that sometimes things must unfold in their own time." Jon Kabat-Zinn Full Catastrophe Living FYI It's very likely that I will post a quote twice someday. 😂😂😂 ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-04T20:57Z 32.9K followers, [--] engagements
"Scientific articles on the danger of covid for those with MECFS I've been seeing all your posts about getting worse after getting covid this summer and I've forwarded some of them on to my parents however my parents only take things seriously if they come from "authority." Can anyone share any links to an official looking article or study I can then pass on to them Everytime I bring it up my dad responds "Well you're going to get a cold someday." I'm housebound and the only way an infection is getting to me is through my parents who I only live with so they can care for me. They don't even"
Reddit Link 2024-08-05T01:30Z 27.6K followers, [--] engagements
"I'm going to try out this watch face for pacing. Check out this app from the Garmin Connect IQ Store https://apps.garmin.com/en-US/apps/a676fc9a-b8b1-4a6e-b749-1423ff67c8ad Garmin4Pacing Garmin4Pacing"
Reddit Link 2024-08-05T01:52Z 27.6K followers, [--] engagements
"Glance watch face I'm playing around with this watch face. I didn't like the long covid watch face. Check out this app from the Garmin Connect IQ Store https://apps.garmin.com/en-US/apps/07ae0f49-7240-4475-a229-4507e8035fae Garmin4Pacing Garmin4Pacing"
Reddit Link 2024-08-05T13:02Z [--] followers, [--] engagements
"Test results MYASTHENIA GRAVIS REFLEXIVE PANEL Does anyone know what this test results might mean I have MECFS with prominent PEM. I'm very surprised that this test didn't come back in the normal range. Does this mean there might be some treatment that could actually help me Thank you for your wisdom MyastheniaGravis MyastheniaGravis"
Reddit Link 2024-08-05T15:25Z [--] followers, [--] engagements
"Compassion and pity Compassion and pity are very different. Whereas compassion reflects the yearning of the heart to merge and take on some of the suffering pity is a controlled set of thoughts designed to assure separateness. Compassion is the spontaneous response of love; pity the involuntary reflex of fear. Ram Dass ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-06T18:25Z 28.7K followers, [--] engagements
"Is anyone using antihistamines I've been seeing a lot of posts about antihistamines in the long covid groups and funny thing I took Doxylamine Succinate last night as a sleep aid and feel better today than I have in a long time and there's a lot of other reasons I should be feeling bad high HR low HRV high stress yesterday didn't sleep well or long. What do you guys think cfs cfs"
Reddit Link 2024-08-06T18:48Z 28.7K followers, [---] engagements
"Should I pursue a diagnosis I've thought for a while that I have MCAS that's triggered primarily by wheat and less so by dairy and sugar. I've never bothered with pursuing a diagnosis because I have so many other health issues and I learned to control my symptoms by eliminating the triggers. My main illness right now is MECFS but I just got blood tests back that indicate I probably have myasthenia gravis. Other diseases I have that are now under control PMDD menstrual migraines and depression. With the possibility of this new diagnosis I'm recognizing that all the symptoms I've attributed to"
Reddit Link 2024-08-06T21:59Z 28.7K followers, [--] engagements
"natural process of reorientation "There is a growing Awareness in the medical community that a lot of what has been diagnosed and treated as depression among older people may instead be a natural process of reorientation. Whether we attribute it to cellular-biochemical mechanisms or psychodynamics or spiritual processes theres a kind of drawing-inward that seems to be part of the process of aging. Not a paranoid drawing-inward; not being afraid of the world. Just a kind of deepening. I think its probably the nearness of death that leads many people to want to reflect on what life is all"
Reddit Link 2024-08-07T19:18Z 28.9K followers, [--] engagements
""If you're going through hell keep going." -Winston Churchill I seriously over exerted yesterday and the crash has already started. I'm concerned that this crash will leave me bedbound and extremely disabled and may not be able to moderate this group. I'm really sorry. Since nothing bad has happened so far I'm hoping it will stay that way but if anyone wants to volunteer to co-moderate you don't have to post everyday or anything just be available to remove any posts that violate the rules. Be well everybody. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-09T10:36Z 28.9K followers, [--] engagements
"Given a choice would you take Dextromethorphan or Celebrex for severe PEM I'm waiting for my PEM to start and it's going to be a doozy. I started taking dextromethorphan right after the event but I also got a [--] day script for Celebrex and the two don't play well together. Which should I take cfs cfs"
Reddit Link 2024-08-09T22:04Z 29.4K followers, [--] engagements
"Had anybody heard of this doctor in Alabama who's getting great results treating long covid https://www.wvtm13.com/article/unlocking-hope-birmingham-doctors-breakthrough-in-long-covid-research/61828757 Second try posting this first link was broken. cfs cfs"
Reddit Link 2024-08-11T18:24Z 29.4K followers, [--] engagements
"How do you find your new baseline after a crash I'm coming out of a crash. Previously I was doing [----] steps a day using the stairs once a day getting my own food and eating at the table (not preparing it just microwave or toaster) and sittng outside for a couple hours. The crash brought me down to [---] steps a day no stairs no outside my mom bringing me food to my bed and eating in bed. I'm so scared to do too much as the crash subsides. How do you recommend proceeding Edit: I have a Garmin smartwatch. My HRV dropped before the crash and is still low my RHR is higher but not terrible my sleep"
Reddit Link 2024-08-13T13:15Z 29.5K followers, [--] engagements
"What does generalized MG feel like for you I'm diagnosed with MECFS and recently tested positive for MG positive for the binding antibodies only. While I think I've had brief moments of double vision it's not my main complaint also no problems breathing or swallowing. I'm trying to figure out which of symptoms might actually be treatable and googling shows there's a lot of symptom overlap between MECFS and MG. I'd love to hear your description of generalized MG. I also know this disease is really different in each person. Thank you MyastheniaGravis MyastheniaGravis"
Reddit Link 2024-08-13T22:30Z 29.5K followers, [--] engagements
"HR elevating as PEM is ending I'm coming out of about a week of PEM and yesterday and today my heart rate is higher than when I was in PEM. I am maintaining my PEM level of activity and not planning to increase until long after my HR and HRV have stabilized. Does any one know what's going on Edit. Just realized this might be because I started taking alpha lipoic acid. I won't take it again until I stabilize. cfs cfs"
Reddit Link 2024-08-15T14:20Z 29.5K followers, [--] engagements
"Are any of these supplements contributing to a higher resting heart rate B1 100mg D3 2000IU Lysine 500mg C 1000mg Ubiquinol 100mg Omega3 690mg B12 1000mcg Glutathione lipsomal 500mg Magnesium glycinate 200mg Glutathione 500mg NADH 10mg Acetyl l-carnitine 500mg Probiotics cfs cfs"
Reddit Link 2024-08-18T14:39Z 29.8K followers, [--] engagements
"Identified a juvenile Red Tail Hawk by it's call I'm pretty darn disabled and can only sit outside the house on good days. On those days I started using the Audubon app and identifying birds. All summer I observed a pair of Red Tail Hawks and learned their call to each other is exactly what's played on a movie anytime there a hawk portrayed. About a month ago while laying in bed I heard a new bird call I hadn't heard before. It was pretty annoying and sounded a lot like a gull. I looked through the birds I'd already identified and thought at first it was a cat bird. Their call is kinda shrill"
Reddit Link 2024-08-22T17:53Z 30.4K followers, [--] engagements
"Identified a juvenile Red Tail Hawk by it's call ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-22T18:25Z 30.4K followers, [--] engagements
"My only hope is to give up hope. With MECFS hope can be the enemy. I recently thought I was recovering and improving my baseline but in fact I was over doing it and caused two crashes one fairly significant. I'm now worse off than I ever have been. But the good news is I don't have hope of improvement now. I'm committed to this much lower baseline for the foreseeable future and I'm actually feeling content for now. I'm going to be starting low dose abilify and from what I can tell by other's experiences the key to success is to not increase activity for 2-3 months after feeling improvement."
Reddit Link 2024-08-24T20:02Z 31K followers, [--] engagements
"Fold flat mask with exhaust valve Could someone recommend a good fold flat N95 mask with an exhaust valve preferably from our devil overlord Amazon in the US I like to keep my mask in my fanny pack and it's pretty small in there. Thanks for your help Masks4All Masks4All"
Reddit Link 2024-08-24T20:19Z 31K followers, [--] engagements
"Saw this and wanted to share ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-25T10:43Z 31K followers, [--] engagements
"GenX Mindfulness So. I'm on the younger side of genX and this was just perfect. I find myself longing for these banal pre-cellphone moments. https://www.instagram.com/reel/C-2H8eMNUGE/igsh=MW9kNzgxcTVyanVwZg== ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-08-26T11:07Z 31K followers, [--] engagements
"I broke up with Wellbutrin about a week ago and since then my HRV RHR body battery and stress scores (on Garmin) have all dramatically improved. I switched from duloxetine to Wellbutrin about [--] mo ago in an effort to keep working I'm now back on duloxetine. If you're struggling with your HR and other metrics and you're on Wellbutrin it might be the Wellbutrin. I enjoyed having almost no appetite on Wellbutrin but I won't miss the anxiety anger and high HR. I definitely feel more fatigued back on duloxetine but Wellbutrin didn't prevent crashes and I over exerted with some regularity. I'd"
Reddit Link 2024-08-29T19:34Z 36.1K followers, [--] engagements
"An illustrated guide to mindfulness meditation ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-09-12T18:23Z 36.1K followers, [--] engagements
"How do you eat your honey and garlic What do you eat it with fermentation fermentation"
Reddit Link 2024-09-27T19:28Z 34.9K followers, [--] engagements
"Any regular cannabis users Did you notice a change in the way cannabis feels after starting Wellbutrin How did it change for you Wellbutrin_Bupropion Wellbutrin_Bupropion"
Reddit Link 2024-10-12T00:17Z 33.3K followers, [---] engagements
"there is no standard of health that is achievable for all bodies. there is no standard of health that is achievable for all bodies. Our belief that there should be anchors the systemic oppression of ableism and reinforces the notion that people with illnesses and disabilities have defective bodies rather than different bodies. Sonya Renee Taylor The Body Is Not an Apology: The Power of Radical Self-Love ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-10-13T13:21Z 32.7K followers, [--] engagements
"I'm looking for a fiction book with a theme of body positivity radical self love and bonus points for queerness and disability as well. Just like the title says. suggestmeabook suggestmeabook"
Reddit Link 2024-10-13T18:15Z 34.6K followers, [--] engagements
"all human life involves pain The more we try to avoid the basic reality that all human life involves pain the more we are likely to struggle with that pain when it arises thereby creating even more suffering. Russ Harris The Happiness Trap: How to Stop Struggling and Start Living: A Guide to ACT ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-10-14T11:00Z 32.9K followers, [--] engagements
"I love your body but not mine. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-10-14T12:48Z 32.9K followers, [--] engagements
"Decolonizing my life is part of my inspiration for being sugar free. Sugar has played such a huge role in the enslavement and abuse of so many people. Sugar has contributed to the inequitable wealth in Western nations. Sugar causes more health problems for people of lower incomes than of affluent people. Sugar is about power wealth and control for the few at the expense of the many. Sugar is oppression. This is one of the motivators I use to try to be sugar free. Any one else identify with this sugarfree sugarfree"
Reddit Link 2024-10-14T14:34Z 32.9K followers, [---] engagements
"Mestinon stomach gurgling How do you cope with the gurgling false hunger and mild nausea from mestinon I'm take 60mg x3. MyastheniaGravis MyastheniaGravis"
Reddit Link 2024-10-14T15:59Z 32.9K followers, [--] engagements
"Sugar makes my breasts hurt. I just did an accidental science. Been off sugar for several days and just cheated today. I was wondering where my constant breast pain went the past few days and is now back. Welp. Just another motivator Also learned while googling this sugar can increase breast density (I have very dense breasts) which can make mammograms less successful at detecting cancer. Whoa sugarfree sugarfree"
Reddit Link 2024-10-16T05:10Z 33.3K followers, [--] engagements
"What do you eat to avoid nausea from mestinon I'm trying to figure out the minimum I need to eat while still avoiding nausea. What do you eat Do you eat at the same time as taking it or a bit before Thanks for your help. MyastheniaGravis MyastheniaGravis"
Reddit Link 2024-10-17T19:59Z 33.3K followers, [--] engagements
"Lincoln Park is still a graveyard. Watching Poltergeist for the first time even though I'm [--] and all I can think about is Lincoln Park. Haha https://chicagoreader.com/news-politics/a-conservatory-a-zoo-and-12000-corpses/ chicago chicago"
Reddit Link 2024-10-21T01:12Z [--] followers, [--] engagements
"How do you rest I know this seems obvious but for me it's not. Do you rest and watch TV Do you rest with your eyes closed listening to music or books Will only a real nap help How do you know when to rest and for how long Do you preemptively test Do you have a rest schedule What is the most effective rest practice for you MyastheniaGravis MyastheniaGravis"
Reddit Link 2024-10-26T10:53Z 34.7K followers, [--] engagements
"Mindfulness tips for election stress relief Stay safe calm and mindful everyone in the US. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-11-05T13:23Z 37.9K followers, [--] engagements
"If Harris definitively wins I'm going to celebrate with something sweet. 🤷♀😘😋 sugarfree sugarfree"
Reddit Link 2024-11-05T17:26Z 37.9K followers, [--] engagements
"Our anxiety does not come from thinking about the future but from wanting to control it. -Kahlil Gibran. If you're in the US and can't work because of illness or disability today is highly distressing. Try to focus on what is safe in your life right now and not what might become. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-11-06T14:36Z 42.2K followers, [--] engagements
"How atheist chaplains provide spiritual care for nonbelievers CNN The difference between Callahan and his religious counterparts is his emphasis on life here and now without concern for a higher power. And where religiously affiliated chaplains might lean on the teachings of their faith to guide others through crises Callahan says he draws on the philosophies of Muhammad Ali Malcolm X and Tupac Shakur. ChronicallyMindful ChronicallyMindful"
Reddit Link 2024-11-08T15:04Z 40K followers, [--] engagements
"Other savory and/or spicy sauces I made my first hot sauce from jalapenos habaneros garlic onion and sugar tomatoes. It's actually not very hot and more like a salsa but I like it's pureed texture. What are some other fermented sauces I could explore fermentation fermentation"
Reddit Link 2024-11-09T17:02Z 39.2K followers, [--] engagements
"second neuromuscular specialist I'm going to my second neuromuscular specialist on Wednesday. My first one did not diagnose me even though I have positive binding ACHr antibodies a droopy eye that responds to ice weak neck weak arms esp over head extreme general weakness / fatigue and I'm responding very well to mestinon. I had a cat scan and I have no thyomas. I want this second specialist to diagnose me and create a treatment plan. I'm very interested in getting a thymectomy. I need advice on lifestyle management and physical therapy. I want to learn about other treatments and their risks."
Reddit Link 2024-11-10T15:45Z [--] followers, [--] engagements
"Ambulatory wheelchair user Looking for a work around for a problem I have. I'm an ambulatory wheelchair user and when I'm riding my electric wheelchair my watch counts like a million steps because the terrain I'm going over is bumpy rough concrete. The disease I have is an energy limiting disease so having an accurate step count is one of the ways I assess how well or poor I'm doing. On my last wheelchair ride I turned my watch off but then forgot to turn it back on for like an hour after. I have a Fenix 6s and I'm pretty sure there's no other work around beside either turning the watch off"
Reddit Link 2024-11-10T19:55Z 39.8K followers, [--] engagements
"Trouble finding the right therapist for my illness/disability I have an energy limiting disease myasthenia gravis. I'm disabled and unable to work. I'm 48F and I live with my emotionally immature elderly parents because of this disability. I have no social life because I can barely leave the house. I no longer have access to my stress relieving activities like swimming walking hiking etc. My energy limitations are so severe that I also don't have any hobbies. I can't really sit and draw reading is often difficult but I do listen to books. I'm a prisoner in this body and in this house."
Reddit Link 2024-11-12T11:51Z 39.8K followers, [--] engagements
"Vyvgart subcutaneous injection vs infusion Vyvgart subcutaneous injection vs infusion Vyvgart hytrulo vs vyvgart IV infusion Are they the same in terms of effectiveness If you used both please let me know what you think of each. Subcutaneous seems much easier but I want to do what's most effective. MyastheniaGravis MyastheniaGravis"
Reddit Link 2024-11-14T13:10Z 40K followers, [--] engagements
"Vandals caught on camera defacing ancient Utah petroglyphs investigation underway PrecolumbianEra PrecolumbianEra"
Reddit Link 2024-11-27T18:07Z 41.1K followers, [---] engagements
"Just a gentle reminder to check FAQs for this group especially the list of conditions to rule out. I didn't do this for years in part because I was too tired and in part because I trusted my fancy medical team from a fancy medical center. Well it looks like I was misdiagnosed for over two years basically wasting two years of my life. I'm now diagnosed with myasthenia gravis and I've tested positive for high cortisol twice. Treatment for MG is underway and I'll now see an endocrinologist for the elevated cortisol. Print out the list and bring it to your PCP and ask them to look it over. I"
Reddit Link 2024-11-30T16:58Z 41K followers, [---] engagements
"Ear infection My pup has the beginning of an ear infection in one ear. I have a vet appointment for Thursday but I'm wondering if there's anything I can do in the meantime to reduce it's progression. I have a solution of [--] part vinegar [--] part alcohol and [--] parts water which I use to prevent ear infections (obviously went too long between rinses) I'm also cleaning the dark wax out with a cotton pad. I'm going to call the vet tomorrow to see if they have a sooner appointment or wait list and I'll ask them too. Any recommendations for how I can reduce the progression of the infection"
Reddit Link 2024-12-03T03:42Z 41.1K followers, [--] engagements
"Misdiagnosis lead to losing my job my condo and my social life. I (48F) was diagnosed with me/cfs a few years ago after I became significantly disabled. As a result of that disability I decided to sell my condo move in with my parents (mid 80s) far away and try to continue to work. I worked for one more year until my disability became too severe to work and then it continued to progress until I was bedbound. I've been house bound since my initial disabling event so at least two years bed bound for several months. About [--] months ago a neurologist ordered a blood test for myasthenia gravis a"
Reddit Link 2024-12-06T15:51Z 41.3K followers, [--] engagements
"Help with IDs please I think the last photos are raccoons but I'm really curious about the first two photos. Could they be fox We've seen fox in our yard before. Location SE Wisconsin. AnimalTracking AnimalTracking"
Reddit Link 2024-12-23T17:50Z 41.9K followers, [--] engagements
"100 years ago today a Cherokee doctor was running for office in Chicago with a bold plan to reshape the 47th ward. Meet Dr. Hurci Warwelez. NativeAmerican NativeAmerican"
Reddit Link 2024-12-24T13:35Z 41.9K followers, [---] engagements
"We Need to Think About Trauma in Treating Autoimmune Disorders Social-emotional stress provokes the immune system the most explains Jackson Nakazawa and higher estrogen levels only amplify the immune response making women more vulnerable to autoimmune conditions. MyastheniaGravis MyastheniaGravis"
Reddit Link 2024-12-26T13:14Z 42K followers, [--] engagements
"Where did early hunter/gathers find salt I can think of obvious places the ocean salt deposits salt lakes. But what about in places like the North American plains southwestern desert northern Europe jungle environments Was trade basically a facilitator of living in these areas or are there ways to find salt in these areas without trade AskAnthropology AskAnthropology"
Reddit Link 2025-01-02T13:50Z 42.4K followers, [---] engagements
"City of Chicago Completes Accessibility Improvements at Over [---] CTA Bus Stops in [----] disability disability"
Reddit Link 2025-01-02T15:10Z 44.2K followers, [--] engagements
"Potato 💀 potato potato"
Reddit Link 2025-01-04T17:43Z 42.4K followers, [--] engagements
"Please help me identify these birds homedecoratingCJ homedecoratingCJ"
Reddit Link 2025-01-05T14:20Z 42.4K followers, [--] engagements
"4 closely watched FDA approval dates in [----] from J&J Novo and more Everything in myasthenia gravis is being watched really hard said LaFever. Myasthenia gravis is a chronic disease in which autoantibodies proliferate uncontrollably while current treatments can successfully hold back the disease they must be sustained but nipocalimab could potentially allow patients to reclaim their lives said Dr. Katie Abouzahr vice president autoantibody portfolio and maternal fetal disease area leader J&J Innovative Medicine in an interview last year. J&J submitted a biologics license application for"
Reddit Link 2025-01-07T13:12Z 46.2K followers, [--] engagements
"Amazing music issues in app Troubleshooting help please. I bought a Sonos Ray last week and have been enjoying music on it after connecting Amazon music to the app. I was really happy to no longer be using spotty Bluetooth. Today my Amazon music isn't working. I've tried closing and restarting the app disconnecting and reconnecting Amazon. Is there anything else I should try I'm super sad and disappointed. I just want to listen to music. Please help sonos sonos"
Reddit Link 2025-01-11T16:28Z 44K followers, [--] engagements
"Rita enjoying her Christmas gift springerspaniel springerspaniel"
Reddit Link 2025-01-12T16:24Z 44.2K followers, [--] engagements
"Why am I afraid to get better Three days after my first vyvgart injection I could tell it started to work. I have my second one tomorrow Great news right I've been housebound for [--] years spending most of my time in bed with gMG. Why am I so afraid of getting better and not super excited I mean I am excited but I'm also scared. I lost everything two years ago my condo my hobbies my job (one year ago) my friends. Why am I afraid to start living again MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-01-14T01:33Z 44.4K followers, [--] engagements
"Tutorial/advice to modify silicone hider plugs to hold earrings I bought these plugs to hold my regular earrings. I have an idea of how I will modify them to hold both post and fish hook earrings however I don't need to reinvent the wheel and I'd love to avoid screwing them up. Have you converted these to hold earrings Has anyone made an online tutorial Any advice you can offer me Thank you so much for any help you can give. Stretched Stretched"
Reddit Link 2025-01-16T13:37Z 44.5K followers, [--] engagements
"COVID map update as [--] US states report "very high" virus activity MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-01-24T14:14Z 46K followers, [--] engagements
"Vyvgart is helping so much and I'm so angry. My mood and agitation is terrible. I'm so angry all the time. I'm angry that I still feel terrible all the time. I'm doing more but I'm still in pain I'm still exhausted. Every noise is like nails on a chalkboard. I'm miserable. There's never going to be real relief is there Edit. And the migraines MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-01-26T19:18Z 46K followers, [--] engagements
"Nipocalimab granted U.S. FDA Priority Review for the treatment of generalized myasthenia gravis. Results demonstrate sustained disease control over [--] weeks in a broad population of antibody positive adult patients: anti-AChR anti-MuSK anti-LRP4 MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-01-29T13:32Z 46.8K followers, [--] engagements
"What is the value in journaling when every entry is about suffering I feel like I want to escape my life right now not record it. I don't journal anymore for this reason. How can journaling help me when all I record is my suffering I use an electronic journal that lets me see entries on this day from previous years. It's all suffering (I'm disabled homebound living with my emotionally immature parents and have no other social life). I find myself not wanting to write because next year I'll be prompted to relive the suffering again while probably still suffering the same reality. What is the"
Reddit Link 2025-02-01T10:41Z 46.9K followers, [---] engagements
"Dog print consideration These are the front and back feet of my 40# Springer. Her front feet leave huge tracks for her size. I call her front feet her swim paddles. Her back feet are clearly much smaller. Something to consider when trying to identify canines. These are fresh unmelted tracks. AnimalTracking AnimalTracking"
Reddit Link 2025-02-02T16:04Z 47K followers, [---] engagements
"SE Wisconsin two IDs please The first prints are in our driveway grassland and forest area the second prints are on the shore of Lake Geneva. All are fresh snow prints. I'm super curious about the bigger ones on the drive way AnimalTracking AnimalTracking"
Reddit Link 2025-02-02T16:07Z 47K followers, [---] engagements
"I finally completely mixed a jar of natural peanut butter You know the natural peanut butter that's separated with oil on top Such a messy task trying to mix it Well. I stored the jar upside down used an electric beater to mix it really well then refrigerated it over night and mixed with the beater again. I think it will actually be the consistency through the whole jar for the first time ever. CongratsLikeImFive CongratsLikeImFive"
Reddit Link 2025-02-06T22:37Z 47.4K followers, [---] engagements
"I dreamt Trump paid me in counterfeit bills And we had to do an organ transplant on him and someone else but we didn't know how. The organs were in a plastic medical bag with a device attached to the outside. The whole bag and device were to be implanted. The organ bag has been sitting out for a while and I thought they can't be good anymore. Context: I'm very liberal very anti trump concerned about our democracy and the well being of myself and others in this climate. Dreams Dreams"
Reddit Link 2025-02-07T13:04Z 47.3K followers, [--] engagements
"Has anyone quit hydroxychloroquine after being diagnosed with MG I have sjorgrens and was put on hydroxychloroquine before being diagnosed with MG. I'm actually on a few contraindicated drugs and one by one I'm weaning off them. In the past when I've tried to get of hydroxy I get really bad joint pain but this was before beginning MG treatment. I had a thymectomy in November take mestinon and just finished my first cycle of vyvgart. I'm wondering/hoping that with these treatments underway the joint pain will be reduced. Or will there be an adjustment period of joint pain but will go away with"
Reddit Link 2025-02-08T14:34Z 47.4K followers, [--] engagements
"The Illustrated Happiness Trap: How to Stop Struggling and Start Living Picked up this book at the library. I'm realizing how badly I need to return to a mindfulness practice. I had ACT (acceptance and commitment) therapy in the past and it really helped me to change my life. This is an easy to read review but I have to start putting in the work. I've been white knuckling my life since my last post in this group. ChronicallyMindful ChronicallyMindful"
Reddit Link 2025-02-10T03:21Z 47.4K followers, [--] engagements
"Looking for stories about slow improvements with vyvgart I just started my second cycle. The first cycle improved my symptoms but I need way more improvement. Will I continue to improve over time MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-03-01T03:17Z 49.8K followers, [--] engagements
"Who else is suffering today This morning was one of those mornings I regret waking up. Do you ever have those ChronicIllness ChronicIllness"
Reddit Link 2025-03-02T14:04Z 50K followers, [---] engagements
"Do you ever feel like everything is too terrible to practice mindfulness I've been feeling like this for months I know serious depression going on for me. I always choose distraction or disassociation over being present. ChronicallyMindful ChronicallyMindful"
Reddit Link 2025-03-02T14:07Z 50.1K followers, [--] engagements
"What do you all do during your really tired hours of the morning that has a mindfulness component but isn't just sitting there ChronicallyMindful ChronicallyMindful"
Reddit Link 2025-03-02T14:11Z 50K followers, [--] engagements
"Cannabis for pain Yay or nay Do you use it What's been your experience MyastheniaGravis MyastheniaGravis"
Reddit Link 2025-03-03T18:52Z 50.1K followers, [--] engagements
"Kabafusion absolutely sucks Kabafusion is in charge of my home injections of my most important drug treatment and they have screwed up every single time I have to interact with them. They called my doctor's office and lied to them claiming I wanted to delay my injection when in fact I never even spoke to them. I have an appointment with the home nurse for my next injection on Wednesday morning and my medicine isn't arriving until Wednesday end of day even though I called them twice to confirm delivery and the nurse is scheduled through them. There's a small window of time I can get this"
Reddit Link 2025-03-04T01:48Z 50.1K followers, [--] engagements
"Kabafusion absolutely sucks Kabafusion is in charge of my home injections of my most important drug treatment and they have screwed up every single time I have to interact with them. They called my doctor's office and lied to them claiming I wanted to delay my injection when in fact I never even spoke to them. I have an appointment with the home nurse for my next injection on Wednesday morning and my medicine isn't arriving until Wednesday end of day even though I called them twice to confirm delivery and the nurse is scheduled through them. There's a small window of time I can get this"
Reddit Link 2025-03-04T01:55Z 50.1K followers, [--] engagements
"Does mindfulness help your chronic pain Do you find mindfulness helps your chronic pain If it does what technique help you I'm weening off gabapentin and will have some crummy days a head in addition to my usual issues. ChronicallyMindful ChronicallyMindful"
Reddit Link 2025-03-04T13:19Z 50.1K followers, [--] engagements
"I wanted a Pczki so bad I forgot I'm gluten intolerant. Seriously. I just ate half a pczki without a thought. I'm only gluten intolerant so nothing serious will happen but I'm just so shocked at my brain. I had a thymectomy in November and ever since then my dairy sensitivity had gone away. Maybe my gluten issue has too I'll find out in [--] to [--] hours. Fingers crossed. Wouldn't that be amazing if it was gone Has anyone else ever lost a food sensitivity I have a rare autoimmune disease myasthenia gravis and in addition to the thymectomy I'm on an immunosuppressant which is helping my typical"
Reddit Link 2025-03-04T14:42Z 50.1K followers, [---] engagements
"Emotional Freedom Technique (EFT) Tapping I came across this technique during tonight's insomnia period. I haven't tried it but I like the idea of tapping on the body as a physical grounding technique. I struggle with mentally being present because I'm going through a tough time and using a lot of avoidance. Tapping on the body seems like a potential mindfulness hack. ChronicallyMindful ChronicallyMindful"
Reddit Link 2025-03-06T10:07Z 51.7K followers, [--] engagements
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