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@AlexionPharma "What happens when three people living with neuromyelitis optica spectrum disorder (#NMOSD) write and exchange letters about their individual journeys and read them for the first time on camera Watch our short film Rare Connections in NMOSD to see it unfold:"
X Link @AlexionPharma 2025-09-03T15:51Z 12.4K followers, XXX engagements

"Last week Alexion AstraZeneca Rare Disease joined the Global Genes RARE Drug Development Symposium in Boston. Grateful for the chance to connect share and learn from the rare disease community as we work together to drive innovation and support those affected"
X Link @AlexionPharma 2025-09-09T13:00Z 12.4K followers, XXX engagements

"Are you passionate about making a difference in patients' lives At Alexion we're pioneering groundbreaking therapies for rare and devastating diseases and looking for top-tier talent to join us. Could you be up for the challenge Lets find out:"
X Link @AlexionPharma 2025-09-12T13:00Z 12.4K followers, XXX engagements

"Haematopoietic stem cell transplant-associated thrombotic microangiopathy is a type of TMA a group of severe and potentially life-threatening rare disorders that cause blood clots & damage to the walls of the smallest blood vessels that occurs following HSCT. Learn more below"
X Link @AlexionPharma 2025-09-17T13:00Z 12.4K followers, XXX engagements

"Were proud to be at the 41st Congress of the @ECTRIMS showcasing our latest research in neuromyelitis optica spectrum disorder (#NMOSD) and screening Rare Connections in NMOSD to elevate patient voices and deepen understanding of this rare neuromuscular disease"
X Link @AlexionPharma 2025-09-24T14:00Z 12.4K followers, XXX engagements

"Like many rare diseases theres limited awareness of generalised #MyastheniaGravis a rare autoimmune disorder characterised by loss of muscle function and severe muscle weakness. Were committed to advancing understanding of this #RareDisease to benefit patients across the 🌎"
X Link @AlexionPharma 2025-09-30T13:00Z 12.4K followers, XXX engagements

"On Sept XX we united virtually for Rare Conversations with the global rare disease communitysharing experiences insights and the power of data to drive change. Thank you to all who joined #RareConversations #RareDiseaseCommunity"
X Link @AlexionPharma 2025-10-03T13:00Z 12.4K followers, XXX engagements

"On Global #PNHDay2025 were joining the rare disease community to bring attention to paroxysmal nocturnal haemoglobinuria (PNH). By deepening awareness and understanding were committed to improving outcomes for those living with PNH. #PNHAwareness2025 #TogetherForPNH"
X Link @AlexionPharma 2025-10-12T13:00Z 12.4K followers, XXX engagements

"Due to the unpredictability and fluctuating symptoms of generalised #MyastheniaGravis (gMG) those living with this #RareDisease may feel invisible. Learn about the power of feeling seen while navigating life with gMG in Rare Connections in gMG. Watch at"
X Link @AlexionPharma 2025-10-16T13:00Z 12.4K followers, XXX engagements

"Join RareConversations on Sept XX Hear patient advocates and experts discuss the real impact of rare diseases and new ways to drive change. Rare disease patients caregivers and members of patient advocacy groups can register now #RareDiseases"
X Link @AlexionPharma 2025-09-10T13:00Z 12.4K followers, XXX engagements

"The severity of hypophosphatasia (#HPP) can be wide-ranging. Signs and symptoms of the disease may present in many different ways and accumulate or worsen over time"
X Link @AlexionPharma 2025-09-16T13:00Z 12.4K followers, XXX engagements

"With more than XXX million people worldwide living with a rare disease and 10000 rare diseases known to exist today rare diseases are not as rare as we may think. Learn more"
X Link @AlexionPharma 2025-09-18T13:00Z 12.4K followers, XXX engagements

"Learn how were advancing newborn screening through genetic research:"
X Link @AlexionPharma 2025-09-18T16:30Z 12.4K followers, XXX engagements

"Genomic newborn screening holds the potential to transform the diagnostic journey for families by enabling early action to make a meaningful difference. Learn how:"
X Link @AlexionPharma 2025-09-18T16:35Z 12.4K followers, XXX engagements

"Hypophosphatasia (#HPP) can affect males and females of all ages with certain symptoms more common based on a persons age"
X Link @AlexionPharma 2025-09-19T13:00Z 12.4K followers, XXX engagements

"Neuromyelitis optica spectrum disorder (#NMOSD) is a rare and debilitating autoimmune disease characterised by unpredictable relapses or attacks. Discover more about this condition and its impact below"
X Link @AlexionPharma 2025-09-23T13:00Z 12.4K followers, XXX engagements

"Today on #aHUSDay we recognise those living with atypical haemolytic uraemic syndrome. We are inspired by the strength and resilience of the aHUS community and remain dedicated to improving care for those affected by this severe and devastating disease. #aHUS24Sept"
X Link @AlexionPharma 2025-09-24T13:00Z 12.4K followers, XXX engagements

"aHUS is a type of thrombotic microangiopathy (TMA) a group of severe and potentially life-threatening rare disorders that cause blood clots and damage to blood vessels which can lead to organ failure and death. See the signs symptoms & complications of TMA #aHUSDay"
X Link @AlexionPharma 2025-09-24T16:00Z 12.4K followers, XXX engagements

"Were pleased to wrap up this years Congress of the @ECTRIMS where we engaged in meaningful conversations with researchers and clinicians to advance care for those living with neuromyelitis optica spectrum disorder (#NMOSD)"
X Link @AlexionPharma 2025-09-26T19:41Z 12.4K followers, XXX engagements

"What is generalised #MyastheniaGravis (gMG) Learn more about this #RareDisease below"
X Link @AlexionPharma 2025-10-09T13:00Z 12.4K followers, XXX engagements

"People living with paroxysmal nocturnal haemoglobinuria (PNH) can experience a delayed diagnosis by XX or more years due to diverse symptoms and varied clinical presentation. Explore the signs and symptoms of PNH below. #PNHDay2025 #PNHAwareness2025"
X Link @AlexionPharma 2025-10-12T16:00Z 12.4K followers, XXX engagements

"The path to a hypophosphatasia (#HPP) diagnosis can be difficult. Vague varied symptoms can often lead to missed signs many doctor visits and uncertainty"
X Link @AlexionPharma 2025-10-17T13:00Z 12.4K followers, XXX engagements