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Recordati Rare Diseases posts on X about the most. They currently have XXX followers and XX posts still getting attention that total X engagements in the last XX hours.
Top posts by engagements in the last XX hours
"Ahead of @rarediseaseday on February 28th were sharing the story of Reza a 13-year-old living with cystinosis - a rare condition that causes the amino acid cystine to build up in organs like the kidneys and eyes. Despite the challenges Reza is full of optimism and big dreams. He loves dancing reading and aspires to become an actor I will try my best to make those around me happy Reza shares. His story is part of a global initiative by EURORDIS and Rare Disease Day to highlight the strength and resilience of people living with rare diseases. This Rare Disease Day lets celebrate Reza and the"
X Link @RecordatiD 2025-02-27T15:57Z XXX followers, XXX engagements
"On Rare Disease Day we are proud to share our Rare Disease Patient Community Charter the result of a yearlong collaboration to ensure patients remain central to our planning thinking and actions. Developed with our patient ambassadors across Europe and beyond and with input from Patient Advocacy Groups representing diverse rare conditions we co-created a charter reflecting their views expectations and ambitions. Built on four key pillars it formalises our commitment to the rare disease community holding us accountable and guiding our internal operations and external interactions with all"
X Link @RecordatiD 2025-02-28T16:02Z XXX followers, XXX engagements