[GUEST ACCESS MODE: Data is scrambled or limited to provide examples. Make requests using your API key to unlock full data. Check https://lunarcrush.ai/auth for authentication information.]
@hsconnectorg
"Still feeling the magic. 💜 Thank you to everyone who came out to raise awareness for hidradenitis suppurativa this weekend in Times Square. To all the advocates who showed up showed out and left it all on that catwalk your bravery and vulnerability made history. We know it wasnt an easy ask but you care so deeply about this community and about spreading awareness. You didnt just do it you crushed it. Bravo Its wild to think that something once kept as our deepest secret is now what connects us and brings so many amazing people into our lives. What was once an orphaned condition now has a"
TikTok Link @hsconnectorg 2025-10-06T12:35Z 6940 followers, XXX engagements
"MEN HAVE HS TOO The HS Brotherhood is a support group just for men living with HS. This monthly virtual group is a safe space for men to share about their experiences. HS is a brutal condition and it's important to have safe spaces to share our lives experiences. Theres also a podcast - link in bio. Head to the "community" tab on our website to see all of our groups and sign up (we have X and counting) #hidradenitissuppurativa #thehsbrotherhood"
TikTok Link @hsconnectorg 2025-10-13T00:00Z 6941 followers, XXX engagements
"🎤 A message from our CEO Brindley Brooks straight from Times Square. To our partners @UCB @Novartis and @Incyte: thank you for believing in the HS community and standing with us as we brought Find US to the biggest stage in the world. Your support didnt just light up a billboard it lit up hope for thousands of patients who finally saw themselves represented. This is only the beginning. 💜 #HidradentitisSuppurativa #TimesSquareTakeover #FindUS25 #HSAwareness #ThankYouSponsors"
TikTok Link @hsconnectorg 2025-10-08T16:01Z 6941 followers, 1104 engagements
"New treatment option means more questions Come learn about biologics this November 4th @ 11AM EST 💜 #hsconnectorg #hidradenitissuppurativaawareness #lifewithHS #HidradenitisSuppurativa #hidradenitissuppurativasupport #hidradenitissuppurativawarrior #chronicillnesslife #chronicillness #webinar #biologics #biologicsforHS"
TikTok Link @hsconnectorg 2023-11-02T17:53Z 6930 followers, 2458 engagements
"We love the Truth HS Campaign - and so thankful to @incyte for helping to make the Find Us campaign in Times Square possible. When we all work together to uplift the patient community amazing things happen #findus25 #hidradenitissuppurativa"
TikTok Link @hsconnectorg 2025-10-11T14:01Z 6947 followers, XXX engagements
"Linsday from @novartis said it "(HS) is too often misunderstood and underrepresented" - we say NO MORE Thanks so our amazing partners we're able to bring HS awareness to the biggest stage in the world. Find Us is not just a moment in Times Square it's a campaign to tell the world WE ARE HERE HS is more common than we think. It's not rare just rarely talked about. #hidradenitissuppurativa #findus25 #hsconnect"
TikTok Link @hsconnectorg 2025-10-10T12:05Z 6960 followers, XXX engagements
"Always happens when youre out in public too 😮💨 #beautifyhs #hidradenitissuppurativa #chronicillness #fyp #livingwithhs #hscommunity #hsconnectorg"
TikTok Link @hsconnectorg 2025-07-09T10:53Z 6879 followers, 47K engagements
"We had some AMAZING sponsors who helped make #findus25 possible. 💜 Thank you. Thank you. Thank you 🫶 @UCB_USA @novartis @incyte"
TikTok Link @hsconnectorg 2025-10-06T20:01Z 6926 followers, XXX engagements