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@shaylatalei "Ive lived with CRPS (Complex Regional Pain Syndrome) for XX years a rare incurable nerve condition. About two and a half years ago it spread internally and paralyzed my stomach which led to a second diagnosis: gastroparesis (also incurable). I had no idea this could happen. One day I could eat. And then I couldnt. Now I rely on TPN (Total Parenteral Nutrition) to survive. Its a sterile formula made in a lab based on my weekly bloodwork and it runs straight into my bloodstream through a port in my chest. It gives me all of my fluids calories nutrients and electrolytes because I cant just eat"
TikTok Link @shaylatalei 2025-09-21T23:49Z 126.3K followers, 7.7M engagements

"This is what I use to keep my numbing cream in place before accessing my portit helps so much with keeping the area numb and makes the whole process a little less stressful 🙌🏼 #port #mediport #medicalport #portacath #centralline #dayinmylife #morningroutine #goodmorning #spoonie #gastroparesis #rheumatoidarthritis #crps #pots #chronicillness #autoimmunedisease #trending #trendingaudio #chronicallyill #tubie #medicine #potsie"
TikTok Link @shaylatalei 2025-06-03T12:00Z 126.3K followers, 75.9K engagements

"Im still in a state of shock so I apologize for the rambling 🙈 #mcas #mastcellactivationsyndrome #allergies #autoimmunedisease #fyp"
TikTok Link @shaylatalei 2025-09-09T14:56Z 126.3K followers, 38.6K engagements

"Replying to @fake_plastic_trees hope this gelps 🫶🏻 #tubefed #infinitypump #gtube #jtube #gjtube #tubie #tubielife #feedingtubeawareness #gp #gastroparesis #chronicillness #chronicillnessawareness #autoimmunedisease #feedbag #tubiehack #dayinmylife #medicaldevice #momtok #momsoftiktok #viral #fy #fyp #fyp #medicalsupplies How to lower the alarm volume on a Moog EnteraLite Infinity Pump"
TikTok Link @shaylatalei 2024-07-07T23:29Z 126.3K followers, 9802 engagements

"Come deaccess my port with me 💉 #port #mediport #portacath #centralline #fyp #fy #fyp"
TikTok Link @shaylatalei 2025-07-22T22:59Z 126.3K followers, 11.8K engagements

"About XXX years ago my stomach became paralyzed a condition called gastroparesis which I developed as a complication of CRPS. I had no idea this could even happen. One day food was fine and then it wasnt. Because of that I cant eat or drink normally anymore. Even water makes me sick it feels like glass shards when it hits my stomach. So now I rely on TPN (Total Parenteral Nutrition) to survive. TPN is IV nutrition that runs through a port in my chest and goes directly into my bloodstream. It gives me all of my calories fluids and nutrients and its made in a lab each week based on my"
TikTok Link @shaylatalei 2025-10-10T00:38Z 126.3K followers, 1M engagements

"aka time to access my port so I can start TPN. If youre new here: I dont eat in the traditional way anymore. Im on TPN (total parenteral nutrition) which means I get all of my nutrition through a central line that goes directly into my heart. And that starts with accessing my portsafely sterilely and one step at a time. Accessing a port isnt optionalit has to be done perfectly every time to avoid serious complications like infections or bloodborne issues. It used to terrify me. Now its part of my routine. I share this not for sympathy but to show what chronic illness and medical independence"
TikTok Link @shaylatalei 2025-08-31T22:31Z 126.3K followers, 4.3M engagements

"I use my pump hanger around my house and when I need to leave I set the whole thing in my backpack 🤍 I have had alot of questions about my pump hanger so I decided to make a separate video This works great for me. #tubefed #gtube #gjtube #jtube #tubielife #feedbag #drainbag #gp #gastroparesis #tubiehack #chronicillness #dayinmylife #ditlofamom #viral #fyn #fyp #fyp #fy #momtok #momsoftiktok #girlmom #medicalsupplies"
TikTok Link @shaylatalei 2024-05-15T13:14Z 126.3K followers, 66.8K engagements

"$1000 dinner + $XX dinner. I set up my TPN (Total Parenteral Nutrition) which costs $1000 per bag before insurance and then made a simple $XX meal for my kids. This is our real life. I survive on TPN because my stomach is paralyzed from gastroparesis which means food doesnt move through my digestive system like it should. TPN delivers all of my nutrition through a port in my chest straight into my bloodstream. I cant eat what I cook but I still cook for my family. Thats the part people dont always see. This isnt about comparison its about coexistence. Life doesnt stop because Im sick. And"
TikTok Link @shaylatalei 2025-09-19T22:10Z 126.3K followers, 1.9M engagements

"Replying to @zoeebrowne How to adjust the alarm on the ininity pump ✨ #tubefed #infinitypump #gtube #jtube #gitube #tubie #tubielife #feedingtubeawareness #gp #gastroparesis #chronicillness #chronicillnessawareness #autoimmunedisease #feedbag #tubiehack #dayinmylife #medicaldevice #momtok #momsoftiktok #viral #fy #fyp #fyp #medicalsupplies How to adjust the alarm on a Moog EnteraLite Infinity Pump"
TikTok Link @shaylatalei 2024-07-24T13:32Z 126.3K followers, 9824 engagements

"This is me accessing my port and setting up my 18-hour TPNaka how I get all of my nutrition since my stomach doesnt work like it should. TPN (Total Parenteral Nutrition) is IV nutrition delivered through a port in my chest. Because of gastroparesis (stomach paralysis) my digestive system cant process food properlyso every calorie I take in goes directly into my bloodstream. I run TPN for XX hours a day which means Im connected most of the time. Its a lot to manage on top of life and parenting and after a long weekend I just needed to keep this edit simple. I filmed the full process but I"
TikTok Link @shaylatalei 2025-09-15T15:23Z 125.8K followers, 2M engagements

"Port access + TPN setup 💉 I get a lot of questions about my port and TPN so I answered a few of them in this video while setting everything up For anyone new here I developed gastroparesis (stomach paralysis) about XXX years ago as a complication of CRPS (Complex Regional Pain Syndrome) which Ive lived with for XX years. After trying feeding tubes and other options that my body couldnt tolerate I was eventually placed on TPN (Total Parenteral Nutrition). TPN is IV nutrition that gives me all of my calories fluids and nutrients directly into my bloodstream through a port in my chest. My"
TikTok Link @shaylatalei 2025-10-12T22:51Z 126.3K followers, 64.3K engagements

"Answering a few questions Ive gotten about my port while I deaccess today 💬 If theres anything else youre curious about feel free to ask. #port #mediport #medicalport #portacath #centralline #dayinmylife #morningroutine #goodmorning #spoonie #gastroparesis #rheumatoidarthritis #crps #pots #chronicillness #autoimmunedisease #trending #trendingaudio #chronicallyill #tubie #medicine #potsie"
TikTok Link @shaylatalei 2025-06-09T13:00Z 125.8K followers, 8161 engagements