@jacksonsnmjourney Avatar @jacksonsnmjourney jacksonsnmjourney

jacksonsnmjourney posts on TikTok about tiktok, facebook, fed, we are the most. They currently have [-------] followers and [---] posts still getting attention that total [---------] engagements in the last [--] hours.

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Social Influence

Social category influence social networks #249 technology brands #286 ncaa football #777 stocks 0.99% automotive brands 0.99%

Social topic influence tiktok #101, facebook #7, fed 3.96%, we are 2.97%, watch #1625, the first 2.97%, strong 1.98%, walk #263, closed 1.98%, play #1538

Top accounts mentioned or mentioned by @stonyfield @waffle @ark @sesame @stoneyfield @creigh @shortstory @mcdonalds @ms @savoyswag @storemanagerfaith

Top Social Posts

Top posts by engagements in the last [--] hours

"LISTEN 👂🏼#nemalinemyopathy #gtube #listen #toddler #amc #focus #rare #disease #fy #arthrogryposis #fyp #neuromusculardisease #toddlersoftiktok #goodmorning #wink #listening #smart #teaching #learning #patience Jacksons about to turn [--] and cant yet walk unassisted due to Nemaline Myopathy He knows he will get what he wants after other tasks are complete I talk through each one while I do them and tell him what tasks are left before he gets in his walker He asked me prior to this to walk (in his infant walker) Explaining to him what will happen before he gets what he has asked for has made"
TikTok Link 2025-05-28T12:25Z 532.5K followers, 1.2M engagements

"Youre fast . YES I AM🥺 #nemalinemyopathy #gtube #arthrogryposis #physiotherapy #fast Jacksons [---] and cant walk yet because of a muscle disease so instead he rolls around like this. His Yes I am after I tell him hes really fast🥺 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Jacksons [---] and cant walk yet because of a muscle disease so instead he rolls around like this. His Yes I am after I tell him hes really fast🥺 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-01-25T12:21Z 532.5K followers, 346K engagements

"Well it was a nice try😅 #nemalinemyopathy #gtube #arthrogryposis #disability #brother POV Youre a big brother and want to be kind to little brother but you dont actually want to share🤣 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre a big brother and want to be kind to little brother but you dont actually want to share🤣 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-02-02T15:39Z 532.5K followers, 143.8K engagements

"9 months of growth for our Waffle House obsessed toddler 😅 #nemalinemyopathy #gtube #wafflehouse #arthrogryposis #disability Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney [--] months between these two Waffle House clips. Hes grown and changed but his love for Waffle House has remained the same🤣 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney [--] months between these two Waffle House clips. Hes grown and changed but his love for Waffle House has remained the same🤣"
TikTok Link 2026-02-04T16:13Z 532.5K followers, 1.3M engagements

"We will catch REAL fish🎣 #nemalinemyopathy #arthrogryposis #gtube #fishing #disability Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre [--] and all you want to do is catch a real fish after pretend fishing in the house every day. The face he makes when I say not today🥺 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre [--] and all you want to do is catch a real fish after pretend fishing in the house every day. The face he makes when I say not today🥺"
TikTok Link 2026-02-15T13:06Z 532.5K followers, 187.1K engagements

"Jackson James I cant wait to watch you become a big brother June 2025💙 Pregnancy and babies are so scary for us. We cant wait until the day we get to hold baby brother in our arms and know hes safe. #pregnancyannouncement #nemalinemyopathy #disease #fyp #roadto10k #proudmom #toddlersoftiktok #pregnant #momof2 #neuromusculardisease #HOPE #journey #adventure #babyboy #brothers #pregnancytest #fypviral #follow #medical #announcement #itsaboy #surprise Jackson has a HUGE announcement🎉 So much fear yet so much excitement. Here we are going on yet another adventure 💕 Baby BROTHER coming June"
TikTok Link 2024-12-23T19:53Z 532.5K followers, 959.7K engagements

"Jackson Strong🫶🏼 #nemalinemyopathy #medicalbills #fyp #hipdysplasia #toddlersoftiktok #medicaltrauma #kytebaby #surgery #hip #newyear #neuromusculardisease #iloveyou #fypage #proud #cowboy #jacksonsjourney #momsoftiktok #sahm IF I TOLD YOU THAT YOU COULD HELP MY [--] MONTH OLD WALK WOULD YOU HELP (PLEASE WATCH UNTIL THE END) ALL YOU NEED TO DO IS LIKE COMMENT AND SHARE THIS POST THE MORE PEOPLE WHO SEE THIS POST THE CLOSER WE ARE TO PAYING FOR JACKSONS HIP SURGERY FOR THOSE WISHING TO DIRECTLY DONATE: https://gofund.me/631a8a79 IN ORDER TO WALK JACKSON NEEDS A HIP SURGERY THIS FEBRUARY. EVEN"
TikTok Link 2025-01-03T02:34Z 530.9K followers, 695.2K engagements

"GIVEAWAY CLOSED- WINNERS HAVE BEEN CONTACTED🫶🏼. GIVEAWAY Jacksons so excited to give TWO Zvibes away He would not be where he is orally without his+ introducing this tool early Checkout their site for more This giveaway is not sponsored in any way- we just love their products so much and want to give back in a small way. GIVEAWAY RULES: Must live in the US (sorry to everyone else) Follow this TikTok account (jacksonsnmjourney) Like this post Comment on this post Repost this post This Giveaway ENDS January 17th Winners will be contacted by this account and this account ONLY by January 18th"
TikTok Link 2025-01-13T22:22Z 530.9K followers, 130.1K engagements

"I guess yogurt is #1 right now. Anything you want baby boy. #toddlersoftiktok #nemalinemyopathy #gtube #feeding #feedingtherapy #19monthsold #neuromusculardisease #disability #fyp #yogurt #family #jacksonsjourney #fypviral #fyp #fyppppppppppppppppppppppp #babytalk #tubielife #more #please #thankyou #momsoftiktok #momlife #toddler you do Spoon Yes hes already had yogurt today Jacksons [--] months old and gtube fed due to his muscle disease. Now hes learning to eat by mouth. I guess yogurt is our favorite right now you do Spoon Yes hes already had yogurt today Jacksons [--] months old and gtube fed"
TikTok Link 2025-01-23T17:11Z 532.5K followers, 2.6M engagements

"The wait is finally over❤ #nemalinemyopathy #toddlersoftiktok #tubefed #gtube #fy #fyp #neuromusculardisease #medical #gaittrainer #medicaldevice #wait #proud #practicemakesprogress #family #ourlife #jacksonsjourney Jackson shouldnt have had to wait over [--] months to receive a medical device he desperately needed. The wait is FINALLY over FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney After over [--] months. Next up hip surgery mid September and lots of practice in his gait trainer❤ Now he has the tools he needs to properly learn and slowly gain more strength to"
TikTok Link 2025-07-30T00:43Z 532.5K followers, 508.6K engagements

"Practice counting in English AND Spanish. #nemalinemyopathy #arthrogryposis #gtube #counting #spanish Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Practice counting with my [--] year old in English AND Spanish Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Practice counting with my [--] year old in English AND Spanish"
TikTok Link 2026-01-21T15:48Z 532.5K followers, 246.7K engagements

"A tumble in his walker but daddy kisses fix all❤ #nemalinemyopathy #gtube #fall #gtube #arthrogryposis Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV My [--] year old cant walk yet and took a tumble in his walker. Daddy kisses fix all❤ Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV My [--] year old cant walk yet and took a tumble in his walker. Daddy kisses fix all❤"
TikTok Link 2026-01-23T23:38Z 532.5K followers, 694.2K engagements

"Strawberry milkshakes are healing 🍓 #nemalinemyopathy #gtube #feedingtherapy #arthrogryposis #fall POV My gtube fed [--] year old requests a milkshake to heal the goose egg on his head Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV My gtube fed [--] year old requests a milkshake to heal the goose egg on his head Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-01-24T15:45Z 532.5K followers, 392.4K engagements

"PEW Will #nemalinemyopathy #gtube #arthrogryposis #brother #why POV Youre a big brother and your little brother stinks. Pew Will + Youre [--] and you ask why constantly and mom says because Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre a big brother and your little brother stinks. Pew Will + Youre [--] and you ask why constantly and mom says because Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-01-28T16:09Z 532.5K followers, 280K engagements

"Forever a Waffle House Boy. #nemalinemyopathy #gtube #waffles #arthrogryposis #feedingtherapy Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-01-29T15:40Z 532.5K followers, 153.9K engagements

"This one gives me all the feels. I cant believe how far hes come in [---] years. Proud is an understatement. Were so thankful for you. #nemalinemyopathy #gtube #arthrogryposis #therapy #journey POV This wasnt the life we planned but a life we wouldnt change if it means we still get to have you Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV This wasnt the life we planned but a life we wouldnt change if it means we still get to have you Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-01-30T00:58Z 532.5K followers, 143.7K engagements

"My [--] year old apologizing for hitting his dog. Im sorry Ollie. #nemalinemyopathy #gtube #arthrogryposis #disability #imsorry Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney My [--] year old apologizing to his dog for hitting him. The apology vs how we got there 🤣 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney My [--] year old apologizing to his dog for hitting him. The apology vs how we got there 🤣"
TikTok Link 2026-01-30T14:48Z 532.5K followers, 259.8K engagements

"Happy Birthday to Cast Elmo & Soft Elmo🎉 #nemalinemyopathy #gtube #arthrogryposis #elmo #birthday POV Daddy sings Happy Birthday to Cast Elmo & Soft Elmo🎉 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Daddy sings Happy Birthday to Cast Elmo & Soft Elmo🎉 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-02-04T01:42Z 532.5K followers, 142.9K engagements

"I turned around and saw him pretending to give himself water via gtube🥺❤ #nemalinemyopathy #gtube #arthrogryposis #disability #water tastes the meds that were previously in it Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre [--] and have been gtube fed your whole life so you know how its done🥺❤ tastes the meds that were previously in it Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre [--] and have been gtube fed your whole life so you know how its done🥺❤"
TikTok Link 2026-02-06T14:25Z 532.5K followers, 136.7K engagements

"Playing I spy with my [--] year old🤣 #nemalinemyopathy #gtube #arthrogryposis #ispy #disability Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Playing I Spy with my [--] year old who doesnt QUITE know how to play it😅 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Playing I Spy with my [--] year old who doesnt QUITE know how to play it😅"
TikTok Link 2026-02-08T01:02Z 532.5K followers, 132.4K engagements

"Just walking down the hallway. In his own time ❤ #nemalinemyopathy #arthrogryposis #gtube #disability #learningtowalk Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Doctors diagnosed you with a severe muscle disease called Nemaline Myopathy at [--] weeks old and told your parents youd never walk. Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Doctors diagnosed you with a severe muscle disease called Nemaline Myopathy at [--] weeks old and told your parents youd never walk"
TikTok Link 2026-02-10T20:41Z 532.5K followers, 474.1K engagements

"Chest up. #nemalinemyopathy #arthrogryposis #gtube #physicaltherapy #learning My [--] year old has a muscle disease that has caused kyphosis (rounding of the back). Watch his posture change when I tell him Chest up. Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Every muscle in his body is affected by this disease. But its not stopping him now❤ Hes also just learning to sit on his own. All of this is a learning curve. My [--] year old has a muscle disease that has caused kyphosis (rounding of the back). Watch his posture change when I tell him Chest"
TikTok Link 2026-02-11T20:50Z 532.5K followers, 486.3K engagements

"I wanna teach Will to walk.🥺 You will sweet boy💕 #nemalinemyopathy #arthrogryposis #gtube #physicaltherapy #teach Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre [---] and learning to walk and all thats on your mind is to teach your little brother to walk🥺 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre [---] and learning to walk and all thats on your mind is to teach your little brother to walk🥺"
TikTok Link 2026-02-12T15:59Z 532.5K followers, 414K engagements

"My sweet hardworking boy ❤ #nemalinemyopathy #arthrogryposis #gtube #physicaltherapy #disability Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre a parent trying to help your [---] year old learn to walk but his back pain kicks in after [--] minutes of hard work🥺 His words of affirmation as I guide him are everything 🫶🏼 How is he only [--] Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre a parent trying to help your [---] year old learn to walk but his back pain kicks in after [--] minutes"
TikTok Link 2026-02-13T16:18Z 532.5K followers, 4.4M engagements

"What a journey. #nemalinemyopathy #arthrogryposis #gtube #physicaltherapy #disability POV Its youre first time taking steps outside in a walker at [---] years old after being told youd NEVER walk❤ Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Its youre first time taking steps outside in a walker at [---] years old after being told youd NEVER walk❤ Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-02-14T01:13Z 532.5K followers, 377.4K engagements

"Thanks Mom. #nemalinemyopathy #arthrogryposis #gtube #physicaltherapy #disability POV Youre [---] and learning to walk + walking up to a table to play for the first time and you dont know what you should do🥺 Ill never get over his thanks Mom Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre [---] and learning to walk + walking up to a table to play for the first time and you dont know what you should do🥺 Ill never get over his thanks Mom Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-02-14T19:52Z 532.5K followers, 142.9K engagements

"Birdies #nemalinemyopathy #arthrogryposis #gtube #disability #learning POV Youre [---] and get to walk at the park on your own after being told youd never walk due to your muscle disease. Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney POV Youre [---] and get to walk at the park on your own after being told youd never walk due to your muscle disease. Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-02-15T20:40Z 532.5K followers, 353.9K engagements

"Xylophone and singing songs. #nemalinemyopathy #singing #toddlersinging #jinglebells #fy #fyp #disability #gtube #tubefed #arthrogryposis #amc #babyboy #music #neuromusculardisease #goodmorning #family #muscledisease #smarttoddler FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey A little xylophone and ABCs with my music obsessed [--] year old Plus a little jingle bells FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey A little xylophone and ABCs with my music obsessed [--] year old Plus a little jingle bells"
TikTok Link 2025-06-27T11:31Z 461.2K followers, 311.2K engagements

"Sour cream and bread. #nemalinemyopathy #gtube #fy #disability #tubefed #arthrogryposis #amc #babyboy #practicemakesprogress #muscledisease #fypviral #feedingtherapy #family #babyboy #dinner #cheesecakefactory POV: Doctors said youd never eat by mouth. [--] years later youre eating sour cream from a sauce bowl FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey POV: Doctors said youd never eat by mouth. [--] years later youre eating sour cream from a sauce bowl FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey"
TikTok Link 2025-06-29T01:47Z 461.2K followers, 351.9K engagements

"Byeeeee @Waffle House #wafflehouse #nemalinemyopathy #gtube #fy #disability #fyp #newfriends #bye #amc #arthrogryposis #jacksonsjourney #muscledisease #feedingtherapy #family #familytime #toddler #waffles When a Waffle House employee thanks you for coming and all youve got to say is Byeeee FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey When a Waffle House employee thanks you for coming and all youve got to say is Byeeee FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey"
TikTok Link 2025-06-30T17:48Z 462.6K followers, 768.3K engagements

"Ice Qweam. #nemalinemyopathy #gtube #tubefed #icecream #disability #fy #fyp #bye #family #treat #arthrogryposis #amc #feedingtherapy #practicemakesprogress #iloveyou #pov #toddlersoftiktok #toddler #son #amazing #goodnight FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey POV: Youre gtube fed but learned how to eat Ice Qweam FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey POV: Youre gtube fed but learned how to eat Ice Qweam"
TikTok Link 2025-07-02T23:07Z 461.7K followers, 742.1K engagements

"Boogers and Yogi #nemalinemyopathy #gtube #tubefed #disability #fy #family #booger #yogi #arthrogryposis #amc #feedingtherapy #practicemakesprogress #iloveyou #toddler #toddlersoftiktok #amazing #jacksonsjourney FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Lets talk about Boogers & Yogi while getting fed via Gtube FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Lets talk about Boogers & Yogi while getting fed via Gtube"
TikTok Link 2025-07-05T14:05Z 461.7K followers, 252.4K engagements

"Peekaboo with the Tapir at the zoo. #zoo #gtube #nemalinemyopathy #tapir #disability #fy #arthrogryposis #amc #toddlersoftiktok #toddlerlife #family #familytime #jacksonsjourney #fyp #peekaboo #hideandseek #hide Jackson plays peekaboo with the Tapir at the zoo FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Jackson plays peekaboo with the Tapir at the zoo FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey"
TikTok Link 2025-07-06T14:16Z 462.6K followers, 160.6K engagements

"The Lick It😂 🍋🟩 #nemalinemyopathy #gtube #disability #fy #funny #sour #neuromusculardisease #lickit #lime #arthrogryposis #amc #toddler #jacksonsjourney #practicemakesprogress #toddlersoftiktok #fyp #fyp #taste #family #ourlife #tubefed POV: Youre [--] and Gtube fed and try a lime for the first time in [--] months 🍋🟩 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey POV: Youre [--] and Gtube fed and try a lime for the first time in [--] months 🍋🟩 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey"
TikTok Link 2025-07-07T10:51Z 462.6K followers, 365K engagements

"Super Daddy❤ #nemalinemyopathy #disability #fy #gtube #tubefed #neuromusculardisease #daddy #postpartum #newborn #fyp #arthrogryposis #amc #daddysboy #fun #familytime #family #jacksonsjourney #iloveyou #toddlersoftiktok #ourlife #toddler Having a [--] year old with a severe disability making him unable to walk (YET) AND a having a newborn is NO joke😅 But with a Super Daddy it makes it possible ❤ FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Having a [--] year old with a severe disability making him unable to walk (YET) AND a having a newborn is NO joke😅 But with a Super Daddy it makes it"
TikTok Link 2025-07-10T16:58Z 462.6K followers, 728.4K engagements

"Truly so grateful for this jolly jumper. Now if Daddy and Ollie could just bounce. #nemalinemyopathy #disability #fy #gtube #tubefed #neuromusculardisease #fyp #arthrogryposis #amc #bounce #jollyjumper #trampoline #toddlersoftiktok #toddler #family #independence #walk #msrachel #jacksonsjourney #hoplittlebunny But this jolly jumper has allowed him independence and joy he wouldve never had otherwise Being [--] is hard when youre unable to walk due to your neuromuscular disease FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Unfortunately neither Daddy or Ollie can bounce buddy 😆 But this"
TikTok Link 2025-07-11T11:55Z 462.6K followers, 292.9K engagements

"Measure this DAD Run #nemalinemyopathy #disability #run #dad #gtube #tubefed #neuromusculardisease #fy #arthrogryposis #amc #measure #learning #toddlersoftiktok #toddler #family #fun #play #jacksonsjourney #independence POV: Youve been watching Dad and now you can measure this FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey POV: Youve been watching Dad and now you can measure this FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey"
TikTok Link 2025-07-12T10:44Z 462.6K followers, 232K engagements

"Who knew choosing a book would be this hard #nemalinemyopathy #disability #gtube #tubefed #fy #book #read #amc #learning #neuromusculardisease #arthrogryposis #learntoread #toddlersoftiktok #toddler #jacksonsjourney #play #fyp FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey [--] whole minutes of No and a Yes I guess this is what being [--] looks like😆 Choosing is hard FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey [--] whole minutes of No and a Yes I guess this is what being [--] looks like😆 Choosing is hard"
TikTok Link 2025-07-16T09:46Z 463.5K followers, 378.2K engagements

"My favorite duo. #nemalinemyopathy #fatherson #disability #gtube #tubefed #popits #firework #fy #learning #amc #fy #neuromusculardisease #arthrogryposis #toddlersoftiktok #sawdust #jacksonsjourney #toddler #fun Pop its sawdust and waving bye to the tractor🫶🏼 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Pop its sawdust and waving bye to the tractor🫶🏼 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey"
TikTok Link 2025-07-17T10:39Z 464K followers, 226.7K engagements

"Thank you @Sesame Place for this gift Were truly grateful and blown away by our sweet boy. Disclaimer: Video NOT sponsored #nemalinemyopathy #disability #gtube #tubefed #fy #neuromusculardisease #amc #arthrogryposis #toddler #tubefed #liquids #sippycup #toddlermom #learning #drink #feedingtherapy #jacksonsjourney #fyp #proud Thank you Seasame Place for the sweet gift you sent Jackson Both Jackson and us as parents are SO excited We are truly grateful and so thankful Jacksons able to drink some liquid safely ❤ As Jacksons grown hes only desired to drink more and more. Each time weve tried any"
TikTok Link 2025-07-18T09:58Z 463.7K followers, 259.2K engagements

"Thank you @stonyfield We are so grateful for your YOGI Disclaimer: Video NOT sponsored #nemalinemyopathy #gtube #disability #tubefed #fy #neuromusculardisease #arthrogryposis #amc #yogurt #stoneyfield #gift #thankyou #yogi #toddler #toddlermom #jacksonsjourney #fyp #feedingtherapy Thank you @stoneyfield for this gift Jacksons been obsessed with these yogi pouches since the day he learned to manage and swallow them. He now eats more of these pouches than we care to admit😅 Were so thankful and so proud that hes able to enjoy something he loves POV: @stonyfield Sends your [--] year old learning to"
TikTok Link 2025-07-19T14:05Z 464K followers, 257.7K engagements

"ALABAMA. #nemalinemyopathy #gtube #roadtrip #fy #tubefed #disability #neuromusculardisease #fy #arthrogryposis #amc #driving #toddlersoftiktok #accent #southern #alabama #fyp #funnytoddler #funny ALABAMA FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey ALABAMA FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey"
TikTok Link 2025-07-20T10:40Z 464K followers, 237.8K engagements

"The video Id use to describe pure joy. So incredibly proud. #nemalinemyopathy #gtube #fun #dadandson #toddlersoftiktok #fy #fyp #disability #alabama #neuromusculardisease #amc #arthrogryposis #fyp #dance #toddlerlife #disabilitytiktok #ourlife #jacksonsjourney #miracle #iloveyou #family If someone told me that this would be him just [--] years later When Jackson was diagnosed with his muscle diseaseour world came crashing down. FB:Jacksonsofficialnmjourney IG: Jacksonsnm_journey This moment is one Ill never forget I just love being your mama I dont think theres any way I wouldve believed them If"
TikTok Link 2025-07-21T10:01Z 464.5K followers, 169.7K engagements

"Brothers and muscles. #nemalinemyopathy #gtube #brothers #newbrother #toddlersoftiktok #fy #amc #fy #arthrogryposis #fyp #toddlerlife #muscles #neuromusculardisease #jacksonsjourney #ourlife #brother #disability #family #familytime How becoming a big bother is going: FB:Jacksonsofficialnmjourney IG: Jacksonsnm_journey How becoming a big bother is going: FB:Jacksonsofficialnmjourney IG: Jacksonsnm_journey"
TikTok Link 2025-07-22T11:22Z 464K followers, 459.8K engagements

"GRAPES🍇 Good Morning Daddy #nemalinemyopathy #gtube #toddlersoftiktok #toddler #fy #amc #arthrogryposis #fyp #toddlerlife #goodmorning #tubefed #grapes #neuromusculardisease #daddy #family #disability #ourlife #jacksonsjourney #wave POV: You get this excited to eat Grapes at [--] years old after being told youd never be able to eat orally FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Good Morning Daddy🥺 POV: You get this excited to eat Grapes at [--] years old after being told youd never be able to eat orally FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Good Morning Daddy🥺"
TikTok Link 2025-07-25T17:58Z 490.6K followers, 519.5K engagements

"Jacksons Incredible Mommy. #nemalinemyopathy #fy #gtube #neuromusculardisease #youtube #toddler #miracle #iloveyou #fyp #family #smart #proud #jacksonsnmjourney FB:Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Link in Bio: FB:Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Link in Bio:"
TikTok Link 2025-08-01T02:00Z 475.3K followers, 473.3K engagements

"The greatest things take the most time 🫶🏼 #nemalinemyopathy #gtube #neuromusculardisease #amc #arthrogryposis"
TikTok Link 2025-08-16T05:42Z 475.3K followers, 290.1K engagements

"Thank you #nemalinemyopathy #arthrogryposis #neuromusculardisease #gtube #fy Thank you Id you or anyone you know have/ are willing to sell their used tables please send us a message Weve been unable to find any near us to pick up TikTok Family: Our family is in search of [--] used spica tables for Jackson in the Nashville area. We have about [--] weeks to find them before Jacksons major hip surgery FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/Tiktok: Jacksonsnmjourney Thank you Id you or anyone you know have/ are willing to sell their used tables please send us a message Weve been unable"
TikTok Link 2025-08-25T13:03Z 476.3K followers, 1.4M engagements

"Mom I got one #nemalinemyopathy #arthrogryposis #gtube #amc #neuromusculardisease FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Talking to my [--] year old about his upcoming hip surgery. Of course he talked about his boogers too😂 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Talking to my [--] year old about his upcoming hip surgery. Of course he talked about his boogers too😂"
TikTok Link 2025-09-10T17:41Z 490K followers, 354.4K engagements

"Its surgery day Please be thinking of and praying for our strong boy. We appreciate you all #nemalinemyopathy #arthrogryposis #hipdysplasia #surgery #gtube FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney We will update as we can through the day via social media stories He is expected to be in the hospital for 2-3 days. We will likely be taking a break from posting until Jackson begins to feel okay We need as many people praying for Jackson as we can get If youre watching this Jacksons headed into surgery at 8am today 9/16. Anesthesia is much more dangerous"
TikTok Link 2025-09-16T09:30Z 490.2K followers, 798.9K engagements

"Were HOME Thank you @Creigh Riepe for this beautiful song ❤ #nemalinemyopathy #arthrogryposis #hipdysplasia #surgery #gtube Facebook: Jacksonsofficialnmjourney Instagram: Jacksonsnm_journey YT/ TikTok: Jacksonsnmjourney My [--] year olds hip surgery: Thank you Creigh for this song ❤ Facebook: Jacksonsofficialnmjourney Instagram: Jacksonsnm_journey YT/ TikTok: Jacksonsnmjourney My [--] year olds hip surgery: Thank you Creigh for this song ❤"
TikTok Link 2025-09-19T17:00Z 490K followers, 313.7K engagements

"Vote for Jackson Link in Bio Share to everyone you know #toddlersoftiktok #toddleroftheyear #nemalinemyopathy #amc #arthrogryposis Vote Jackson for Toddler of the Year: Please share this everywhere Jackson made it to the FINALS Vote Jackson for Toddler of the Year: Please share this everywhere Jackson made it to the FINALS"
TikTok Link 2025-09-19T20:11Z 490.1K followers, 182.7K engagements

"2 days Post-Op. Vote Jackson for Toddler of the Year Link in Bio💙 #nemalinemyopathy #arthrogryposis #gtube #amc #toddlersoftiktok FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Vote Jackson for Toddler of the Year (Link in Bio) Please like and share ❤ If we were to win the winnings would go towards a van as we need trunk space for his medical equipment ❤ Would you believe me if I told you this is [--] DAYS after my toddlers major hip surgery 🥺 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Vote Jackson for Toddler of the"
TikTok Link 2025-09-21T14:22Z 495.5K followers, 1M engagements

"Thank you TikTok for finding this table 💗 #nemalinemyopathy #arthrogryposis #gtube #hipdysplasia #surgery Our TikTok family helped us find this spica table for Jackson. FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney When we got it it was pink. My father-in-law fixed it up for us This is how you make a body cast fun🫶🏼 Thank you to our TikTok family for your help in finding this Thank you to BOTH the person who found it AND the person who gave it to us. Our TikTok family helped us find this spica table for Jackson. FB: Jacksonsofficialnmjourney IG:"
TikTok Link 2025-09-29T23:48Z 495K followers, 242.5K engagements

"Two and a half weeks in😅 #nemalinemyopathy #arthrogryposis #surgery #hipdysplasia #gtube What my day looks like with an immobile toddler in a full body cast 🫠 (Imagine me behind the camera feeding our [--] month old)😅 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/ TikTok: Jacksonsnmjourney What my day looks like with an immobile toddler in a full body cast 🫠 (Imagine me behind the camera feeding our [--] month old)😅 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/ TikTok: Jacksonsnmjourney"
TikTok Link 2025-10-04T19:30Z 497K followers, 365.6K engagements

"Twinkle Twinke Little Star #nemalinemyopathy #arthrogryposis #hipdysplasia #gtube #twinkletwinklelittlestar Sometimes I forget he only turned [--] [--] months ago😅❤ FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Sometimes I forget he only turned [--] [--] months ago😅❤ FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney"
TikTok Link 2025-10-07T23:23Z 496.7K followers, 263.8K engagements

"#nemalinemyopathy #ring #phone #fyp ##toddlersoftiktok##neuromusculardisease##gtube##iloveyou##pretend##fypviral##play##Love#j#jacksonsjourney My [--] month old pretending my hand is a phone💕 My [--] month old pretending my hand is a phone💕"
TikTok Link 2024-12-25T04:07Z 77K followers, 10.9M engagements

"Celebrating Home Depot carts today Happy Friday friends🫶🏼 #medicalbills #nemalinemyopathy #sitting #homedepot #toddlersoftiktok #hipdysplasia #fyp #kytebaby #neuromusculardisease #newyear #jacksonsjourney #sahm #warrior #win #celebrate #momsoftiktok #fungi #shoppingcart #disability #fypage #fypviral #disabilitytiktok Hes [--] months old but his muscle disease has delayed everything from swallowing breathing and all physical movement Just a few months ago Jackson couldnt sit up in a cart like this Celebrating everything they told him he wouldnt do. He still falls over but we help him right"
TikTok Link 2025-01-03T17:25Z 502.9K followers, 101K engagements

"Replying to @shortstory Its a snuggle after breakfast type of morning. #toddlersoftiktok #nemalinemyopathy #raredisease #fyp #toddlers #funnytoddler #binky #pacifier #fyp #fypviral #hipdysplasia #medicalbills #sahm #momsoftiktok #momlife #warrior #jacksonsjourney #momcommunity #funnybaby #iloveyou #hair #comfort Why I cant take the binky out to talk😂🫶🏼 Why I cant take the binky out to talk😂🫶🏼"
TikTok Link 2025-01-04T14:50Z 499K followers, 406.1K engagements

"JUST KIDDING. Sugar sugar🫶🏼 Jackson still receives food full of nutrition via gtube. #cake #icecream #sugar #gtube #toddlersoftiktok #fypviral #sahmlife #medical #momsoftiktok #nemalinemyopathy #neuromusculardisease #fyppppppppppppppppppppppp #linkinbio #19months #progress #eating #fypage #gtubebaby #eatbaby #hipdysplasia #feedingtherapy"
TikTok Link 2025-01-09T16:50Z 504.2K followers, 315.1K engagements

"Were a chatty house hold. This tubie bear has been so good in teaching Jackson about his tubie. I didnt even have to show him how to connect it- he just knew from watching us ❤ #tubiebear #tubie #gtube#mickeymouse #goofy #mickey #toddlersoftiktok #nemalinemyopathy #talking #fyp #fypviral #toddlers #gtube #feeding #jacksonsjourney #disabilitytiktok #disabilitytiktok #19monthsold #neuromusculardisease #iloveyou #muscledisease #fy #fyppppppppppppppppppppppp #fyp #donaldduck #medical I was told my [--] month old wouldnt be able to move or talk. Now hes talking about Goofy and Mickey while feeding"
TikTok Link 2025-01-28T14:55Z 77K followers, 495.1K engagements

"Thank you all for your prayers #gtube #neuromusculardisease #jacksonsjourney #nemalinemyopathy #sick #toddlersoftiktok #toddler #fypviral #fy #fyp #19monthsold #sickness #influenza #virus #family #miracle #iloveyou #respiratory #sleep #strong #bath #rockingchair #sleep #tired #tiredmom #sickbaby #sickfamily Were so thankful hes been able to keep his oxygen levels high through this. Mommys hair is the best medicine of all 🥰 102-105 degree fevers (Thank you Tylenol and Motrin) His fevers have finally come down and are being managed well no longer getting dangerously high. I cant wait for him"
TikTok Link 2025-02-01T22:43Z 505K followers, 427.8K engagements

"Jackson: JOHN JOHN #neuromusculardisease #gtube #jacksonsjourney #nemalinemyopathy #toddlersoftiktok #sick #hipsurgery #toddlersoftiktok #john #daddy #toddler #fyp #fy #fyp #fypage #20months #family #toddlermom #onthemend #iloveyou #mybaby Blowing kisses🥰 My [--] month old with a muscle disease calls his Daddy by his real name (John) when he doesnt come to Daddy😂 For those of you waiting on an update on Jacksons surgery it will be coming soon. Unfortunately our preop appointment didnt go as we hoped it would. Blowing kisses🥰 My [--] month old with a muscle disease calls his Daddy by his real"
TikTok Link 2025-02-05T22:35Z 500.1K followers, 1.9M engagements

"Take deep breaths with my toddler💗#jacksonsjourney #gene #mutation #arthrogryposis #amc #neuromusculardisease #nemalinemyopathy #toddler #toddlersoftiktok #educate #deepbreaths #patience #kind #fy #fyp #gtube #toddlerlife #toddlermom #adapt #water #walk #walking #progress #miracle #precious #contractures #breakfast"
TikTok Link 2025-02-12T15:24Z 508.2K followers, 4M engagements

"DIP DIP #gtube #mcdonalds #fries #mcflurry #disability #physicallydisabled #neuromusculardisease #fy #fyp #practicemakesprogress #fypviral #toddler #icecream #dip #nemalinemyopathy #feedingtherapy #toddlermom #tiktoktoddler #amc #arthrogryposis #fypage #strength #eat #gastrostomytube #dadsoftiktok #son #familytime #family #FamilyFun How proud he is when he steals Daddys spoon😆 Jacksons fed by gtube but that doesnt stop him from dipping his fry in Daddys ice cream How proud he is when he steals Daddys spoon😆 Jacksons fed by gtube but that doesnt stop him from dipping his fry in Daddys ice"
TikTok Link 2025-02-26T00:00Z 77K followers, 216.2K engagements

"@stonyfield we love you #yogie #yogurt #neuromusculardisease #nemalinemyopathy #awareness #disability #gtube #fy #fypviral #fyp #physicallydisabled #fypage #practicemakesprogress #eating #toddler #toddlersoftiktok #toddlermom #disease #arthrogryposis #muscle #rare #amc #momtok #sahm #cap #strawberry We LOVE yogie here He can never get enough 😅 I guess cheese will have to do 😆 Jacksons muscle disease affects his ability to swallow. Hes primarily gtube fed but now eats entire yogiepouches multiple times a day We LOVE yogie here He can never get enough 😅 I guess cheese will have to do 😆"
TikTok Link 2025-02-28T00:35Z 204.4K followers, 299.3K engagements

"Practice walking with us💗 #21months #walk #nemalinemyopathy #neuromusculardisease #daddysboy #raredisease #myopathy #fyp #fy #toddler #physicallydisabled #fypviral #disability #walk ##nemalinerodmyopathy##fypage##ourlife##toddlermom##family##familytime##trail##practicemakesprogress##ourlife##toddlersoftiktok##fun##joy##outside##fypage##afternoon##jacksonsjourney##toddlerlife Look at those STEPS Keys were a GREAT motivation Moments like this I never believed wed have to wait so long for. And then I never believed it would happen Forever turning cants into cans Moments like this give me such"
TikTok Link 2025-03-02T23:54Z 499.4K followers, 380K engagements

"Yogie for life @stonyfield #nemalinemyopathy #gtube #taste #waffles #neuromusculardisease #fyp #thankyou #myopathy #toddlersoftiktok #toddler #fy #fyp #ourlife #familytime #toddlertalking #toddlermom #momlife #sahm #push #tiktokfamily #jacksonsjourney #ourstory #fypage #miracle #kind #toddlerlife #yogurt #stonyfield #yogie #elmo My gtube fed toddler always asks for waffles before yogie eats one bite and then asks for his yogie Even just a small TASTE is a huge win in our circumstance Wait for the yogie ask. Ill never get over how cute it is🥺❤ And ill never stop giving what he asks for- even"
TikTok Link 2025-03-04T13:31Z 507.3K followers, 7M engagements

"I cant believe his vocab🫶🏼 #toddler #gtube #play #grateful #nemalinemyopathy #toddlersoftiktok #neuromusculardisease #fy #myopathy #fyp #rare #morning #goodmorning #sahm #tubefed #playingtoddler #jacksonsjourney #sahm #toddler #toddlersoftiktok #toddlermom #happybirthday #cousin #vocabulary #toddlertalk Listen to my [--] month old say Happy Birthday to his cousin. I was shocked he actually said it. Listen to my [--] month old say Happy Birthday to his cousin. I was shocked he actually said it"
TikTok Link 2025-03-07T14:12Z 499.9K followers, 395.5K engagements

"YOGI FOREVER @stonyfield #gtube #feeding #feedingtherapy #nemalinemyopathy #fy #neuromusculardisease #FYP #sahm #yogi #yogurt #stonyfield #yogurtpouches #sahm #mom #family #follow #muscle #arthrogryposis #disease #rare #amc #iloveyou #kytebaby #ourlife #miracle #meetjackson #nicetomeetyou #jacksonsjourney #tubefed #learning #21monthsold #fyp #hope #yogurtlover #weloveyogi #fypviral Meet MR. YOGI my: Yogi OBSESSED [--] month Gtube Fed son with a rare muscle disease🫶🏼 Meet MR. YOGI my: Yogi OBSESSED [--] month Gtube Fed son with a rare muscle disease🫶🏼"
TikTok Link 2025-03-18T21:14Z [--] followers, 1.8M engagements

"The passion in his help😂 #help #toddlertalk #pawpatrol #gtube #nemalinemyopathy #neuromusculardisease #fy #fyp #amc #goodmorning #sahm #mom #momsoftiktokclub #toddlersoftiktok #disability #communication #muscle #disease #arthrogryposis #walk #passion #goodmorning I taught my toddler that cant YET walk or get what he wants himself due to a muscle disease to ask for help when he needs me. The passion in his help gets me😂 Deep Breath Toys Sees paw troll pajamas Immediate HAULT when the microwave beeps I taught my toddler that cant YET walk or get what he wants himself due to a"
TikTok Link 2025-03-20T11:24Z [--] followers, 5.3M engagements

"@McDonalds my gtube fed toddler loves your hashbrowns Yes @Ms Rachel is playing on the TV😂 #gtube #disability #iloveyou #toddlersoftiktok #fy #fyp #nemalinemyopathy #fypppp #neuromusculardisease #awareness #21months #mcdonalds #hashbrowns #feedingtherapy #fyp #sahm #toddler #toddlermom #proudmom #proud #eat My gtube fed toddler eats his OWN hashbrown for the first time. How do you explain this feeling to anyone🥹❤ That little bite🥹 Its fascinating to me how different a typically eating child vs tube fed child eats. My heart could explode just at him being okay with touching it 🫶🏼 My gtube"
TikTok Link 2025-03-25T12:01Z 505.4K followers, 4.7M engagements

"Ive never seen him love a waffle more @Waffle House #gtube #fyp #nemalinemyopathy #gtube #arthrogryposis #amc #toddlerwin #dadsoftiktok #feedingtherapy #fyp #fy #disability #familytime #sahm #momlife #wafflehouse #fun #funny #toddlertok #21months #toddler #jacksonsjourney #tubefed #waffles #breakfast We went to Waffle House a few days ago. My [--] month old gtube fed son LOVED their waffles. He hasnt stopped asking for Waffle House since 😂 Proof we did in fact take him to Waffle House 🫶🏼 We went to Waffle House a few days ago. My [--] month old gtube fed son LOVED their waffles. He hasnt"
TikTok Link 2025-03-31T01:13Z [--] followers, 22.3M engagements

"We love the Easter Bunny 🐣🥚🐰#Easter #Bunny #yogi #toddler #disability #fy #fyp #gtube #fyp #nemalinemyopathy #amc #arthrogryposis #jacksonsjourney #rare #disease #neuromusculardisease #toddlertalk FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey He was REAL ready to put his Yogi away to go see what he got 😂 The look on my 22month olds face when I tell him the Easter bunny came 😂 Youre not ready for the EASTER BUNNY close up❤ FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey He was REAL ready to put his Yogi away to go see what he got 😂 The look on my 22month olds face when I tell"
TikTok Link 2025-04-21T12:11Z 507.5K followers, 1.5M engagements

"Jacksons MRI storytime. #toddlersoftiktok #goodmorning #disability #nemalinemyopathy #iloveyou #toddlertalk #miracle #jacksonsjourney #fy #amc #sahm #nicu #arthrogryposis #practicemakesprogress #neuromusculardisease #mri #fyp Now at [--] months he was just evaluated as a 3-4 year old in speech communication and understanding. Prior to speaking to our neurologist (Who told us the reading was wrong) we were told hed never have the strength to talk due to muscle weakness Those results turned out to be an incorrect reading (we were told an incidental copy and paste) When Jackson was in the NICU the"
TikTok Link 2025-04-24T11:34Z 507.9K followers, 456.4K engagements

"So much joy and so much LOVE. #disability #nemalinemyopathy #iloveyou #tiktok #toddler #rare #neuromusculardisease #fy #fyp #jacksonsjourney #educate #share #fypage #amc #arthrogryposis #smart #microphone #joy #gtube #tubefed #22monthsold"
TikTok Link 2025-04-29T01:11Z 497.9K followers, 485.2K engagements

"Babirusa #zoo #nemalinemyopathy #amc #arthrogryposis #toddler #fy #fyp #babirusa #toddlersoftiktok #gtube #tubefed #pronunciation #animals #daddysboy #neuromusculardisease #family #weekend #goodmorning FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Listen to how SHOCKED Daddy is at his [--] year olds pronunciation😆 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Listen to how SHOCKED Daddy is at his [--] year olds pronunciation😆"
TikTok Link 2025-06-09T11:25Z 498.5K followers, 840.3K engagements

"GOALLLLL🥺⚽ #nemalinemyopathy #neuromusculardisease #fy #gtube #amc #arthrogryposis #park #gaittrainer #soccer #walk #practicemakesprogress #firsttime #family #toddlersoftiktok Jackson plays soccer for the first time 🥺⚽ His reaction is EVERYTHING FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Jackson plays soccer for the first time 🥺⚽ His reaction is EVERYTHING FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney"
TikTok Link 2025-08-03T11:34Z 499K followers, 770.8K engagements

"Watch ME❤ #nemalinemyopathy #arthrogryposis #gtube #amc #neuromusculardisease FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Jackson is [--] and cant walk YET but watch him strengthen his muscles so he can one day❤ FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Jackson is [--] and cant walk YET but watch him strengthen his muscles so he can one day❤"
TikTok Link 2025-08-19T15:16Z [--] followers, 1.3M engagements

"Surgery haul and surgery explanation with his xray. Comment activity ideas Jackson can do while sitting for the [--] months after surgery ❤ #nemalinemyopathy #hipdysplasia #arthrogryposis #surgery #neuromusculardisease Essentially they will bring his left femur down into the socket and remove a portion of his femur to prevent his femur from pulling right back out of his socket If the socket is flared up they will also make a cut into that socket to bring it down and over the joint FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney If you have activity ideas for"
TikTok Link 2025-09-05T15:05Z 499.2K followers, 458.4K engagements

"How I stop his tantrum before another meltdown. Downside of this cast Hes now having complete meltdowns. 😩 ** Not looking for parenting advice just sharing how we do things🫶🏼** #nemalinemyopathy #arthrogryposis #gtube #hipdysplasia #tantrum How I stop my [--] year olds tantrum before it turns into a complete meltdown😅 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney How I stop my [--] year olds tantrum before it turns into a complete meltdown😅 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney"
TikTok Link 2025-09-30T22:40Z 507.9K followers, 3.5M engagements

"Replying to @SavoySwag Lots of playdough videos coming❤ #arthrogryposis #nemalinemyopathy #gtube #playdough ##toddlersoftiktok For everyone having a hay day about the green playdough. Its his automatic response as we call it😅 He asks for green regardless of if he means it or not. FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney For everyone having a hay day about the green playdough. Its his automatic response as we call it😅 He asks for green regardless of if he means it or not. FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney"
TikTok Link 2025-10-01T11:58Z [--] followers, 631.5K engagements

"Jacksons Barber Shop. Whos next #nemalinemyopathy #arthrogryposis #barbershop #gtube #toddler FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney POV: Your [--] and have opened up your first barber shop with dad supervising FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney POV: Your [--] and have opened up your first barber shop with dad supervising"
TikTok Link 2025-10-10T12:06Z 498.5K followers, 224.5K engagements

"I miss this😔 #nemalinemyopathy #arthrogryposis #gtube #toddler #hipdysplasia FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney My [--] year old has been in a body cast now for [--] weeks [--] days. I have never missed these moments more.😔 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney My [--] year old has been in a body cast now for [--] weeks [--] days. I have never missed these moments more.😔"
TikTok Link 2025-10-17T11:22Z 499.9K followers, 479.9K engagements

"I got an idea💡#nemalinemyopathy #arthrogryposis #gtube #toddler #idea FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney My two year old has an idea💡 But we didnt expect it be this😂 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney My two year old has an idea💡 But we didnt expect it be this😂"
TikTok Link 2025-10-19T01:58Z 507.9K followers, 1.3M engagements

"I guess Elmo is the one who needs a new toy😂 #nemalinemyopathy #arthrogryposis #gtube #elmo #hipdysplasia FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney POV: Youre [--] and trying to get a New toy for Elmo FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney POV: Youre [--] and trying to get a New toy for Elmo"
TikTok Link 2025-10-20T14:50Z 503.5K followers, 304.9K engagements

"Grateful for a swing that accommodates this cast❤ #nemalinemyopathy #arthrogryposis #gtube #hipdysplasia #surgery BOTH the account name AND handle will be jacksonsnmjourney POV: Youre [--] and can fit in a swing at the park (even in a body cast) If you see any other handle name that is a fake account 🫶🏼 If youre watching this on TikTok: Please take a moment to make sure youre watching from an authentic account FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/ TikTok: Jacksonsnmjourney BOTH the account name AND handle will be jacksonsnmjourney POV: Youre [--] and can fit in a swing at the"
TikTok Link 2025-10-28T23:41Z 506.6K followers, 261.1K engagements

"Barber Jackson #nemalinemyopathy #arthrogryposis #gtube #hipdysplasia ##playdough FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney My [--] year old in a body cast practicing his barber skills FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney My [--] year old in a body cast practicing his barber skills"
TikTok Link 2025-11-01T11:58Z 505.8K followers, 127.6K engagements

"Someone tag Santa #nemalinemyopathy #arthrogryposis #gtube #santa #pajamas FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney SOMEONE TAG SANTA🥺 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney SOMEONE TAG SANTA🥺"
TikTok Link 2025-11-19T15:16Z [--] followers, 299.7K engagements

"Gingerbread & Snowflakes❄ #nemalinemyopathy #arthrogryposis #gtube #toddler #christmas FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Ho Ho Jammies with Jackson❄ FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Ho Ho Jammies with Jackson❄"
TikTok Link 2025-11-30T12:35Z 507.9K followers, 268.8K engagements

"We missed you Auntie Feefers @storemanagerfaith #nemalinemyopathy #arthrogryposis #toddler #gtube #walk Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney My [---] year old is still learning to walk. This is one of his favorite ways to interact with his Auntie Feefers. Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney My [---] year old is still learning to walk. This is one of his favorite ways to interact with his Auntie Feefers"
TikTok Link 2025-12-13T14:01Z [--] followers, 145.6K engagements

"Its [--] oclock #nemalinemyopathy #arthrogryposis #time #gtube #toddlersoftiktok Asking my toddler What time is it What time is it where you are Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Asking my toddler What time is it What time is it where you are Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2025-12-25T01:08Z 507.9K followers, 211.3K engagements

"#ad BUYYY THE CHOCO MUSK BUYYY THE CHOCO MUSK"
TikTok Link 2025-12-28T07:14Z 100.7K followers, 15.7K engagements

"EGGS🍳Learning to eat is a hard task when youve been tube fed your whole life. #nemalinemyopathy #arthrogryposis #gtube #eggs #learning Watch my Gtube fed [---] year old enjoy eggs for the first time while his little brother eats. Then change his mind REAL fast😅 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney Watch my Gtube fed [---] year old enjoy eggs for the first time while his little brother eats. Then change his mind REAL fast😅 Facebook: Jacksonsofficialnmjourney IG: Jacksonsnm_journey TikTok + Handle: @jacksonsnmjourney"
TikTok Link 2026-01-08T14:56Z 507.9K followers, 184.5K engagements

"Truly we have such a beautiful life. Just looks a little different and says seem a little harder than most. This kid amazes me daily. If youd like to donate to Jacksons gofund me towards hip surgery costs in February link in bio. Thank you all #nemalinemyopathy #jacksonsjourney #gofundme #gtube #19months #waffles #orange #banana #breakfast #gtubebaby #fyp #fypviral #fyp #mylife #ourmorning #morninginmylife #medicalbills #fypage #jackson #wheelsonthebus #kytebaby#beautifullife Hold Now hes saying hes Happy I feed him oral foods before to: [--]. Estimate his calories/ subtract from tube feeds. 2."
TikTok Link 2025-01-06T14:42Z [--] followers, 233.4K engagements

"Giving knucks all the time over here. The scowl😂 #neuromusculardisease #gtube #smarttoddler #knucks #smart #kidsoftiktok #nemalinemyopathy #toddler #fyp #fy #jacksonsjourney #fypage #family #familytime #daddy #yogurt #jackson #20months #iloveyou #snuggles #foryoupage Jacksons [--] months old and his new favorite thing is to Give Knucks The scowl he gives me when he hits my ring😂 Jacksons [--] months old and his new favorite thing is to Give Knucks The scowl he gives me when he hits my ring😂"
TikTok Link 2025-02-08T01:27Z 508.5K followers, 571.8K engagements

"Little genius Just a little hoping before bed❤ not sure what he has against GG tonight😂 yes his his surgeon cleared the hes of the jumper🫶🏼 #jollyjumper #happy #grandma #grandpa #yellow #jump #strong #hoplikeabunny #msrachel #disability #nemalinemyopathy #gtube #fy #fyp #muscledisease #jacksonsjourney #tubefed #hop #toddlersoftiktok #toddlerplay #walk #sahm #familytime #dadsoftiktok #momlife #momtok #mom #neuromusculardisease #jump Hop and TALK with my [--] month old toddler who cant walk YET❤ shows off his muscles Hop and TALK with my [--] month old toddler who cant walk YET❤ **shows off"
TikTok Link 2025-03-15T23:48Z [--] followers, 1M engagements

"My smart boy. #nemalinemyopathy #gtube #fy #rare ##disease##arthrogryposis##fyp##amc##neuromusculardisease##noises##animals##sounds##monkey##dinosaur##fish##dog##car##cat##goodmorning##neuromusculardisease##fyp##family#s#sahme#education FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Noises with my toddler. It still blows me away Jacksons not yet 2🤯 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey Noises with my toddler. It still blows me away Jacksons not yet 2🤯"
TikTok Link 2025-05-12T12:06Z 509.6K followers, 345.4K engagements

"Vote for Jackson Click the link in our Bio to vote You get a free vote everyday❤ Thank you #nemalinemyopathy #arthrogryposis #gtube #toddleroftheyear #neuromusculardisease LINK IN BIO TO VOTE FOR JACKSON PLEASE: LIKE SHARE AND COMMENT #Toddleroftheyear2025 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney LINK IN BIO TO VOTE FOR JACKSON PLEASE: LIKE SHARE AND COMMENT #Toddleroftheyear2025 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney"
TikTok Link 2025-09-14T22:46Z 508.5K followers, 868.6K engagements

"OLLIEEEEEEEE #nemalinemyopathy #arthrogryposis #gtube #hipdysplasia #toddler FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Why is my [--] year old calling Ollie my new favorite thing😂❤ FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey YT/TikTok: Jacksonsnmjourney Why is my [--] year old calling Ollie my new favorite thing😂❤"
TikTok Link 2025-10-21T23:38Z 508.5K followers, 504.3K engagements

"Anyone elses kid hide behind closed eyes Yes I realize hes almost [--]. All [--] of his doctors refer to him in months so I do too❤ #23monthsold #nemalinemyopathy #iloveyou #disability #fy #toddler #funnytoddler #fyp #rare #amc #arthrogryposis #fypage #neuromusculardisease #trouble #toddlersoftiktok #family #fyp #almost2 Can anyone translate what word hes saying here This was recorded the same time as the last couple: Im happy to report hes been doing well since 💪🏼 My [--] month old closes his eyes when hes in trouble😂 FB: Jacksonsofficialnmjourney IG: Jacksonsnm_journey He says trash perfectly"
TikTok Link 2025-05-04T11:30Z 530.9K followers, 428.8K engagements

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